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ive been diagnosed with FS last December ..although pain 'started' in September and I didn't take a lot of notice having had major surgery that side (right) thoracotomy to remove a schwannoma from my mediastinum (chest Cavity) operation left me with brachial nerve damage lymphodema and vocal paralysis that side.
I also have recurring bouts of temporal arteritis (same side) and last night the pain was so bad and had travelled into the right side of my neck, my ear and face and eye. To be honest without sounding melodramatic I thought 'this is it' I'm on butrans and temgesic and eventually after 4 hours of hell ..it went back to its awful but not agony state.
after finding this site today I realise that the FS has shifted into my neck and I'm really just posting for any, any kind of advice as tonight approaches and once again I can feel the pain upping the odds. To be honest it's a battle I don't want and I'm not sure I can win.sorry to be a moaning mincub.
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