Funny tingling all over body
Posted , 93 users are following.
Hi everyone!
For about 6 weeks now, off and on, I've had this weird tingling all over my body.
At times it'll be concentrated in one place (like pins and needles) in both my feet or a hand or a shin. And then other times like tonight, it'll be like little sudden twitches of tingling...almost like a little buzzy, tingling insect. So tonight, buzz on my top lip and then my scalp and then my big toe and then my thumb and then my cheek. I go to scratch myself to make it stop (though it's definitely on the inside....not like a skin condition).
I went to the doctors about 4 weeks ago and he was very dismissive. Said it wouldn't be anything serious as neurological stuff would involve chronic persistent pins/needles in one specific area. I was texted for thyroid and glandular fever (as I mentioned I'd had a really bad cold and sore throat and that's when it seemed to have started). Both tests came back normal.
It's very annoying. I do have sciatica and wonder if that's causing it? The little tingles all over are keeping me awake right now!
Perhaps I should go back to the docs? To be honest, he made me feeling like a raving hypochondriac last time (despite the fact he could see from my records is not been to the doctors in over 10 years, apart from an A&E visit for a broken foot!).
Any ideas?
1 like, 199 replies
shannon93482 grace50435
Posted
I had the same symptoms of nerve patches. It turned into neuropathy in my hands and feet caused by a thyroid disorder called Hashimoto's Thyroiditis. You could have a blood test done to see if you have antibodies in your blood. This is a sign of an autoimmune disorder. The thyroid gland can cause all kinds of issues like fatigue, carpel tunnel, hair loss, sever menstrual bleeding. Doctors dismissed me for years. I wish I had fought harder up front, before my thyroid was damaged too much. If you have a blood test, ask specifically for the antibody test, not just TSH levels. Also, I removed gluten, dairy and soy from my diet and that helped so much. Good Luck.
shell_36119 grace50435
Posted
I've had the exact same symptoms and after investigating alot about this I am deciding whether this is down to diet and lifestyle. Are we drinking enough water??? I don't mean tea, coffee, energy drinks... I mean clean fresh water.
I've pasted a really interesting article about the affects of dehydration.
After reading alot about dehydration I have decided to test this theory. You don't have to be in the middle of a dessert to be dehydrated. I honestly don't think humans consume enough clean fresh water these days. I then wondered if not drinking enough water is affecting my nerves? I will be putting this to the test as diet and lifestyle should always be considered first before any medications. Our bodies should be able to sort themselves out.
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jaime62595 grace50435
Posted
Hi - so happy I found this.
I'm having many of the same symptoms as you all - which has been going on for about 2 years and it's getting extremely overwhelming. Burning, tingling feeling all over my body with concentration in my arms and legs. It congregates around the joints and thighs. Sometimes I feel stabbing sensations or pains throughout random parts of my body. Extreme fatigue. Random muscle twitches. I've had two bouts of terrible paranoia. Shortness of breath. Some tingling in face. I've had awful headaches presenting itself around the eyes almost like a sinus infection. All of these symptoms vary in intensity and have flare ups every few weeks. When I'm not having a flare my symptoms are manageable but when I have a flare it's absolutely awful. I have one right now and iTs been present for a full week. This is probably the worst one I ever had.
I've been to so many doctors; neurologists and rheumatologists and PCPs and ENTs. I've had MRIs, catscans, EMG, full blood panel, etc. The only thing that was found was positive ANA and positive ANCA with no conclusion of an autoimmune.
I'm getting a small fiber biopsy done in September and then trying to find a lymes specialist. I've tested negative for lymes but want a more extensive panel.
If anyone has any advice or routes I can go I would be forever grateful. I'm running around in circles and just want relief and my life to go back to normal. Every doctor thinks I'm crazy, and keeps dismissing my symptoms when they are real and present and terrifying.
amy0821 grace50435
Posted
I feel like I am experiencing what everyone else is experiencing! Last month, as I was trying to fall asleep from a bout of severe anxiety, I felt this electrical shock type pain run up my foot and into my face. I went to the ER, they did a CT scan, blood and urine testing, and they said my sodium level was low. My doc had put me on lexapro and hydroxyzine for my anxiety. I hated it so much that I took myself off of it after 2 days, and drank tons of water to flush it out, thus lowering my sodium. Since then I've had facial numbness, ear pressure, severe headaches, vision issues, and intermittent tingling all over my body. Last weekend I had a migraine so bad that I went to the ER again. They gave me Reglan and meclizine for the ear pressure. In doing some research, I also found I was experiencing TMJ symptoms and have tried self trigger point massage. I can't get in to seeing a neurologist until October 3. I've called 2 times, and the neuro my GP referred me to didn't think 2 ER visits constituted an emergency to fit me in!!! Would appreciate any advice. Thank you!
Engjellushaa grace50435
Posted
Hi everyone , I have the same problem could anyone find any solution for this I did all the blood test and everything was ok Tyroid , B12 , Raumatoid but I have the same symptoms My doc described me Naproxen but doesn’t help me he said you have to go te the specialist , I I feel anxious I don’t know what's happened.
Cornerstone2017 Engjellushaa
Posted
I has tingling problem all over the body at times, nerve shocking pain in leg (like lightning pain), and then toe. I went to see Acupuncturist, I was told there were some gases inside the nerves system. So the acupuncturist put many needles on my back all the way to toe in order to release the gas.
The needles and pin gradually went away, and it took several treatment for all the gas in the nerves system to be taken out. I've recovered from it since.
vanessa59073 Engjellushaa
Posted
ishfaqm grace50435
Posted
I know your post is year old but i am having EXACTLY the same symptoms. Can you please let me know what was the outcome of your symptoms and what made you feel better if you ar better now. it will help a great deal.
BDMX2 grace50435
Posted
Hi Everyone,
Checking back in to this thread because I'm feeling loads better, so I thought I'd share what I've been doing.
Like many of you, I've seen a rheumatologist, a neurologist, my primary care, and also my naturopath. I've had blood tests, urine tests, a hair sample heavy metal test, an EMG and an MRI, and tested my well water at home. The only thing that shows up is elevated ANA and my heavy metals showed high for tin and copper and elevated for lead (but my water showed fine).
So I took a pretty scattered approach trying multiple things. I don't know what has helped but something or some combination has helped immensely:
1. I cut out gluten (I started reading Grain Brain and also the Medical Medium book)
2. I started taking Hawaiian Spirulina
3. Increased my B12
4. Increased my vitamin D
5. Increased my Magnesium
6. Started eating more fresh veggies and fresh fruits - careful to choose organic when I can
7. Started drinking "bulletproof coffee" with coconut oil and grass fed butter in it
8. Started eating only grass fed beef if I'm eating beef
9. Cut out shampoos, makeup, lotions that contained any toxins
10. Started drinking only water from home (I work downtown in a city, so while I didn't have the water tested at the office, I do know that it is probably full of "within safe limits" chemicals)
10. I also did a course of food grade bentonite clay, about 10 days drinking it once a day.
I also started seeing a therapist for the anxiety bouts, and I also can't dismiss the relief of having a clean MRI of my brain.
I wouldn't call myself 100% "cured" of my symptoms, but I'd say I'm at a good 90% better.
I have a follow up with the rheumatologist in a month or so, I'm interested to see if my ANA levels have calmed down.
The only other thing that I might still explore is a deeper dive into Lyme. The general panels came back negative, but from what I'm finding there are false negatives and better tests out there. I live in the US, less than 100 miles from the town for which Lyme disease is named, so I'm still not ready to dismiss Lyme completely.
I hope others who have posted on this thread are having good improvement as well!
kate33295 BDMX2
Posted
Hi BDMX2 and thanks for reporting back on what has helped alleviate your symptoms. Can you tell what kind of dose you were/are taking for the spirulina, B12, vitamin D and magnesium?
I'd like to give these and the gluten free diet a trial.
Also, how long did it take for your improvement after you made your changes?
I'll also be seeing a therapist starting today for anxiety. I've always had a handle on it with no trouble switching it off by reading or watching TV but these symptoms have set off the worst anxiety I've ever experienced, which I'm sure is exacerbating the symptoms 🙄 Lol
BDMX2 kate33295
Posted
Hi Kate,
D3 is 5000 IU daily
B12 is 1000 mcg daily
Spirulina - I did a bunch of research and learned that you want the Hawaiian Spirulina - I buy the Nutrex brand on Amazon. It is 500 mgs and you take 6 per day.
Magnesium is 200 mg. make sure it is a high quality one that is chelated for better absorption.
I hear you on the anxiety - kind of a chicken or the egg sort of thing! My therapist recommended guided meditation and that helped a lot. I downloaded an app for it on my phone.
I'd say within about 2-3 weeks I was feeling some improvement, and it kept improving over the course of a month or two. I'm coming up on 3 months since going gluten free.
I did have a bout of the night time panic attack thing the other night after indulging in some various tastings at a food and wine fest - a few different types of alcohol and I tasted a few things with gluten. I would imagine that it might be the alcohol that triggered it, since I think the gluten thing is more long term than acute exposure.
It sounds like you are on a good path to try to get to the bottom of this thing! Keep us posted how it is going.
kate33295 BDMX2
Posted
Thanks for your reply!
I'm heading out today to get the specific vitamins. My original doctors first round of blood tests returned with lowered vitamin D (she didn't tell me the level but said it was slightly lowered) so I started on D3 1000IU daily so I'll increase that. I started 2 days ago on a vitamin b mega complex (which has a range of all the b vitamins) but it actually only has 50mcg of B12 so I'm going to scrap that entirety and get just the B12 on its own in the 1000mcg from what I've read it's almost impossible to overdose on this vitamin as your body just pees out any unneeded amounts!!!
I'll be sure to get the specific vitamins that you have mentioned.
Last night was the worst I barely slept and it's the first time I've had trouble sleeping but my anxiety went off the charts suddenly even though all evening I'd been in much better spirits. So with all the cortisol and adrenaline rushing through my system it wouldn't let me sleep and the panic attacks just came in waves. At about 4am I ended taking a Temazepam 10mg which I think eventually helped. I had some prescribed to help me relax for a long haul flight back in Feb (I hate flying!!) and I remembered I still had these and I was desperate to relax and get sleep. Also I downloaded an app called Calm about a week ago and did one for anxiety which eventually broke through that mental barrier with the focus on breathing.
It's interesting you mention about the alcohol (I don't drink anymore because I'm trying to lose weight) as I was looking at foods that increased cortisol and alcohol was one, as well as factory farm beef where grass fed was better (and I remember you switching to this). Along with others like fruit juice, trans fats etc.
Have you reduced your vitamin levels since your improvements? And didn't you mention about perhaps another test for Lyme? How did that go?
kate33295 BDMX2
Posted
I forgot to mention, I've posted at the end of this thread with my symptoms/issues but I sought a second doctor opinion after my first said it was viral. The new doctor is uploading my blood tests that were done as I wasn't even told what she was testing for.
He also got me in to see a neurologist on the 21st of November.
vanessa59073 BDMX2
Posted
carrie84430 grace50435
Posted
Ive noticed when its relly bad I am also sensitive to noise and light... so thats wierd. I also get goosebumps. I also sometimes get a tightness or pressure around the jaw area. Its just so tough to relax under those circumstances. I will try anything at this point. Its just too much.
Ive tried muscle relaxers, tramadol, benadryl, ibuprofen, lidocaine cream... nothing works. If anyone has some success I would love to hear about it. I will share anything I find for relief as well :-)
tonya68204 carrie84430
Posted
HI THERE! WHEN I READ POP ROCKS IN MY VEINS I HAD TO REPLY! THAT IS EXACTLY HOW I WOULD DESCRIBE WHAT I AM HAVING .ANY ANSWERS? ARE YOU STILL HAVING? THANKS!