Happy Xmas Fibro forum x

Hi All!

Up early has couldn't sleep. Woke at ten past three but laid in bed and couldnt get back off to sleep. Needed to be up early today as got Molly's party. Looking forward to tomorrow for a rest lol! So much going on this time of month with Christmas etc. :lol: Was good to hear Molly and little ones singing We wish you a Merry Christmas in school yesterday at coffee morning. Also sang a song from their Nativity with actions.

You all have to keep fighting for your DLA allowance don't be put off. If and when I need it I shall fight. So keep going everyone you deserve it and should be entitled to it. :lol:

Made the cakes for party yesterday and two dozen mincepies ready for Christmas shall put in freezer till then. Got to make some sandwiches later as party starts at 11am. Need to wake up a bit more first.

I hope you get the rest of your shopping done Di today and don't overdo it. :cry: I hope Ses, Linda, Helen, Lindy and Alicia you are all coping.

Sorry if I have missed anyone it is early in morning for me lol :cry:

Catch up soon.

Love Tess x x

Hi All,

Yep Im fine Tess! I hope the party goes well today...Im sure it will...

Not got much planned for today. Food shopping, then pop into the tatoo shop to check out the picture they have drawn up for me, to see if its what I want. Getting that done next weekend!

Just can`t wait for a week come Monday...thats my last working day! Then holiday time until the 5th of Jan...YEEHAAAAA!!! Can`t come quick enough.

Bitter cold here this morning, cars are all iced up. Snow is keeping away so far though.

I hope everyone is doing ok.

Catch up soon.

Take Care

Lindy...x

Hi everyone

Well have finally sorted out my sick benefit from the benefits agency. someone had put me in for income based not national insurance contributions, so they say that they are just waiting for one form then they can sort it all out, but I found diabililty living allowance easier to cope with than any of this, they wanted to know my husbands earnings etc but because I could not give them a straight answer as he is self employed they got quite funny!!!

Have finally finished all my pressie shopping but now my husband wants to do some decorating before christmas as every one comes to us for christmas day but am wondering when it will all be finished lol!!

I contacted the hospital to find out when some of my appointments might be but have found out that they have not even recieved a referal letter from my surgeon. I have been waiting to see a back specialist since july, am waiting for an ultra sound on the tumor on my foot but they have not heard anything and my surgical appliance unit has not had a referal either even though I have to see them for my orthapedic boots on Wednesday. these referals were supposed to have been made back in August. Have contascted the surgeons secretery and she is supposed to be calling me back tomorrrow but will have to try and contact the foot and ankle nurse to find out what is going on I dont think that my surgeon would have forgotten so many referals would he !!!

any way weather is really cold here in south wales and it looks like a hard frost tonight so hope you are all warpped up warm and toastie and sleep well

speak to you all soon

Helen xx

Hi Tess, Linda, Di, Lindy Alicia and everyone else,

Well I have been in pain once again but hey whats new...... I got my file back and my up to date x-ray result showing the cervical rib and my Pain Specialist report was not in the file so I have forwarded this to the tribunals.

I am so glad that you had a lovely day Tess with your grand-daughter as this time of year is so rewarding seeing children smile with excitement, my little boy is loving seeing christmas trees and decorations lit up in the street...... we haven't got our decs up yet due to my hubby being at work!!!! so hopefully we are getting our decs up on tuesday!!!!!

Anyway I am again not feeling too well so I will love you and leave you all, gentle hugs to Tess, Di, Linda, Linda, Alicia and everyone else xxxxx

Take care xxxx

Hi Helen, Lindy, Ses and All!

You have been waiting so long Helen with your foot it is just not fair for you. I am still waiting to see the podiatrist but at least mine isn't as bad as yours. I have been waiting since July! Why do the referrals never get to the right department or sent off :cry: We have to do all the chasing up or you never get anywhere. :cry: You must be so frustrated Helen but keep strong. :lol: I am still waiting to hear from my consultant about changing my thyroid meds. More important as have to be right to stop cancer coming back. Been a week now and not heard anything. See gp on Thursday this week if I can get an appointment lol. He is only in that one day next week. :cry: Its good you now have all your presents bought. I still got a few to get yet. I have been doing some baking mincepies and christmas cake lol. :lol:

Yeah Lindy Molly's Party was good. About 20 children and 12 adults there!

It was fun I was in charge of musical chairs! It should have been easy to deal with that. Some of the ones who got knocked out came back when I wasn't looking so got a bit confusing. :cry: The person who won in the end was Molly, but no cheating on my part! :lol: What design tattoo are you having? I bet you are really looking forward to your holiday.

My wrists are hurting today! Don't know if it is because just been writing out the rest of christmas cards. Feel a bit sore today. Hurting a bit as I type but go with it. :cry: We have had frost here but luckily no snow yet!

Sorry your not feeling really well again Ses. It would be good one day to wake up feeling refreshed and wonderful! Probably have to see flying pigs first lol :wink: I bet Ethan is getting excited for Christmas and then he has his birthday shortly after. It is a shame it all comes so close together. Its like Molly her birthday was Saturday and had a party. Got lots of lovely presents but then got Christmas in a couple of weeks so more presents. Amy doesn't know where to put them all. I normally give Amy my daughter money for the grandchildren so she can buy them some clothes. I do get a few toys. Molly had some new shoes from us not long after starting school. So bought her birthday cake and and some writing and colouring stuff.

Well take care everyone! Got Christmas tree and all decorations done now. Got few more cards to sort out.

Love Tess x x

Hi there my dear friends,

Sorry that you have been waiting that long Helen, I was wondering about you the other day hun too but I somehow got sidetracked as you do, joy of the fibro!!!! I think it is disgusting you are waiting so long to wait your appointment for the tumor on your foot, I do so hope they phone you back tomorrow xxxxxx

Well Tess you are probably feeling it hun from dealing with all the children at Molly's party, at least you had fun though and enjoyed watching her being happy as like I said before it is so rewarding seeing young ones smile and be happy, even if we are hurting on the inside, it somehow takes it away for a short while with their glee???

Anyway just to let you all know that anyone that gets the £10 christmas bonus will be entitled to an additional bonus of £60 after xmas so that is all good as we are usually broke after the season of good will here is the link for you to look at ........

http://www.direct.gov.uk/en/MoneyTaxAndBenefits

/BenefitsTaxCreditsAndOtherSupport/On_a_low_

income/DG_10018704

Anyway folks Ethan is screaming due to his terrible two tantrums his dad has just walked in and he wanted Olivias drink out of the fridge for her packed lunches and he will go on like this for about ten minutes in a strop so I am going to have to go as his crying is piercing down my ear!!!!!

Take care everyone xxxx

hi everyone

ses... how do u manage with the little one day in and day out.. i was speaking to my sister yesterday and she thinks i have suffered from M E since i had chris 21 years ago and thinking back i do think so.. but i have been diagnosed with fibro.. today is time of the month and my energy levels are so bad im sitting here just now thinking.. oh i really need to do housework but when i do it makes me worse.. oh need all ur advice

a couple of (friends) who has not been in touch for many months and who i have been really hurt by as they new i was ill and still never got in touch.. well one of them text me and asked if i wanted to go to the other friends house for a visit... im not sure what to do cause if im ill they wont understand but if i dont go i will then feel the bad one even though i know deep down i did nothing wrong i feel they did.. so what do i do??

hope ur all fine and thanks for that link ses..

di xx

Hi Di,

I would text them back and say you will try to, and explain it has been sometime since you have felt well due to the fibro, if they are a good friend they may think ok and text back and say it will be nice to see you, or they will take a short while to txt you bk as they may research fibro?? (probably not,but a good friend would) I would see their reaction and if they still do not seem interested in seeing you after your answer, well to me they are not worth bothering about, I ditched dead wood long ago....... you do however know this friend better than me and the choice is yours at the end of the day hun, is he/she worse loosing on the other hand????? it might boost your confidence on the other hand if this friend starts to realize your struggle??? Could your sister not perhaps give them a word in their ear? Anyway hun good luck and I hope it turns out the best way for you xxxxx

Coping with a two nearly three year old can be a nightmare but when he is happy the joy lifts me so it kind of works evenly........ I only have him a few hours a day if that a Monday and Thursday from 2 - 3.30 and at this time he watches sky so he is kind of amused?????

Take care hun and gentle hugs xxxx

I do hope everyone else is ok too xxxxx

Hi Di

I have had the same experience as you where \"friends\" are concerned. I have one friend who has stayed with me through Ray`s accident, my daughter`s diabetes, Ray`s heart problems and now my own illness! She has always been there for me, and will help if I need it. I retired at easter and some of the people I worked with I had known for 22yrs, I was sent an invitation to the annual production that the school puts on, but was unable to go because of both mine and Ray`s illness and I have not heard a word from any of them since!

Ses is right that if they are true friends they will stick with you, but in the end it has to be your decision Di. I went through a bad bout of depression after I retired and when I started feeling better I realised it was because I was so lonely.

It is mainly down to all my good friends on here that I am surviving, I know if I need to get something of my chest I can come on here and you will all listen.

well must go now, bless you all my friends ,I hope you don`t suffer too much tonight

Love Linda

Hi, Ses, Di, Linda, Helen

I hope you got that phone call Helen about the tumour on your foot.!

Its about time they got in touch with you. Keep pushing it don't let them keep you waiting lol. :cry: I did enjoy the party Ses was good to see all the little ones excited and playing the games. :lol:

Di I think what Ses says about your so called friends is right. I would do the same as Ses. Only you can make the decision at the end of the day and I am sure you will make the right one for you! :lol:

Linda you are so lucky having a friend there for you and supporting you through everything going on in your family. :lol: That is what a true friend is. I have a couple of friends that I know would be there for me if I wanted their advice or help.

Going to see one who was also my neighbour before I moved for lunch tomorrow.

I have had such a busy day today! Went to my dad's today and gave his flat a quick spruce up for Christmas. Then my daughter Amy rang asked if could look after Sophie for half hour. Came home and then went to my other daughter's Steph who waxed my eyebrows for me. Isn't too painful worse with the tweezers lol. Then my other daughter Claire asked if I would go shopping at Morrisons this was about 5 o'clock. I felt bad but had to say no as was making Stewart's tea as he is on nights again.

Claire was good and understood that I would be too tired!

Luckily tomorrow won't be too bad. Going to see my friend and have lunch so will be sitting down most of day tomorrow.

Had a lot more aches and pains all over my body today. My joints in my fingers still hurt and my wrists. Also my knees. Think it is this cold weather setting everything off.

Well hope we all get a good sleep. Still not ready yet for Christmas! Help!

Love Tess x x

hi tess,ses linda, lindy and everyone else out there

well....... i had planned to go xmas shopping today as john has two days off but i was to sore to do anything managed to shower about 330 then took a headache, john gave my 3 teenagers a talking to tonight and i got upset that he was asking them to help more as he is struggling,he has now went off to bed cause i think he feels bad and is really exhausted, i just feel so guilty i feel lazy in my head but my body wont let me do anything, the fatigue is really getting to me, i didnt sleep much last night as the pains were awful i was rocking in bed to try and get some relief.. i have been going to go back to my gp but i find the travelling and the effort to go really overwhelming, do u think i could ask a doc to visit me??

thanks for all ur advice on my so called friends im going to see how i am feeling on thurs and if im ill im just going to ask them to come to me.

i really hope ur all well and thanks again for being my life line..xxxdi x

ses

do u still have that imagine poem on fibro.. it really tells how u feel everyday... if u have could u post it on here or email it please xxx di xx

Hi there my dear friends just a quickie to see you all are ok...... I will post that imagine poem to you Di as I have loads of stuff for fibro due to my Support Group so I will forward it too you xxxxx

I am glad Tess you had a lovely day at the party, you are probably aching now due to being very busy........slow down hun as you will over exert yourself and then you will definitely feel it!!!!!

I hope everyone is also entitles to the £60 bonus as I had posted the info xxxx

Take care my dear friends and I hope we all sleep well xxxx

Gentle hugs xxxx I am off to bed as I am up early in the morning xxxx

Hi Ses, Tess, Di and everyone,

Tess I always did lots of things with my daughter before the fibro, and I know what you mean about feeling bad when you have to say no! Its like Ses says though take care not to do too much as you`ll end feeling tired and in more pain!

I overdid things this weekend and feel dreadful today, can hardly keep my eyes open. Unfortunately they were things I couldn`t avoid, My son does Karate and came home on Sat with a suspected broken nose and foot!!! So it was off to A&E for 3hs! My daughter has picked up what is thought to be a new strain of bronchiolitis, we think from the babies she nurses, so off to GP with her yesterday morning, she wasn`t fit to drive let alone walk!

Anyway going to my one and only friend`s for coffee as usual this morning then waiting for the council to come and mend the lock on the front door this afternoon, so like you Tess I shall be sitting most of the day. Only problem with that is I shall be more stiff. Oh the joys of this complaint we have to put up with! Lol

I do hope you`re not in so much pain today Ses, and everyone else as well.

Love Linda

hi all my good friends

WHAT a night i had last night..... i was so tired, but the restless legs started then the pains all over my legs..feet were burning then the backache started jeezo i was so frustrated, so the on effect is that i have been so fatigued today and had to go back to bed for the afternoon, it really annoyspe me as my husband was off today and was going to go christmas shopping and i feel for him as we dont get much time together, he is feeling down just now so i feel guilty see this fibro just doesnt affect our lives eh...

im just going to relax tonight and hope tomorrow is a better day.

hope all of u are well today and not suffering to much, soft hugs to u all.. speak soon di xx