Has anyone been given Nalmefene / selincro ?

I don't think Hope4 Cure meant to complain at you, but let you know that there is a lot more information available on this forum than you may have realised. Nalmefene has been discussed in detail for some time on here now

Thank you Paul, I did take it as a bit of a slap but I think that anything that can help people find a way is worth repeating.  

It's actually more 'magic' than any other alcohol treatment in history and it also makes it a lot less tough than traditional methods.

Oops so many typo's, so many mistakes in spelling, sorry for this.

English is just my fourth in Langues.

I hope you all wil understand, I'm French ;-)

 

'Magic' compared to traditional treatment methods

Oh those, in that case, I subscribe your opinion ;-)

 

Escargot, on the grounds that I can only remeber the very basic french I learnt at school (a long time ago) I'm impressed that you even realsie you have made typos But thank you for the encouragement.. I am actually looking forward to the challenge.. Ive been over drinking for 20+ years and the thought of being able to be back in control is exciting. 

 

That's good to hear, being back in control, last week I started opening my dayly mail again.

For over a year I could just not cope with the bills etc.

In this time my boyfriend, needed to do most of the administration.

He saved me in everything, I could have lost my restaurant, which had been in our family for four generations.

I'm extremely happy, Selingro does work for me.

Good luck Buddy

Escar

 

I would be interested to know, on what grounds did she have serious doubts? I would guess that it was because of traditional views of alcohol addiction.

Well done for convincing her to prescribe it for you

She (my gp) was worried about the lack of after medication care / lack of group therapy type stuff... I explained that I am a contributor to this forum. And that I hope to use my experiance as a boost to others to encourage people to really try to get their lives back. (Terrible grammer I know) I now have my tablets and will start taking them on Saturday night as I am aware there may be some side effects and its best if I'm not required to drive.. Yes I know only 1-10 get the side effects but I'm trying to cover all bases.. 

Ps Thank you Paul for taking an interest, it makes a difference...  

That shows that she doesn't understand the treatment. In fact, the NICE guidelines show a complete lack of understanding of the treatment. There is no need for this psycho-social support they recommend. It is a physical treatment. The only counselling required is education about how it works. If people have issues that led to them drinking excessively (which I accept, many do) then they need to deal with those via talking therapies, but that is nothing to do with Nalmefene.

Unfortunately, people have it so ingrained in their minds that the ONLY way to deal with alcohol problems is to stand up and admit their 'wrongdoing', express their 'guilt' and take their 'punishment.' The sooner these myths are dispelled fully, the better.

Hi Paul, I myself feel I am not getting the correct support for taking the tablets both my Gp and key worker seem hell bent on me giving up alcohol and attending group meetings. Neither is really guiding me with the use of selincro. I feel confused what to do as the advice I get from them conflicts with the advice on this site. My GP admitted he thought anyone with a drink problem was a lost cause and although will prescribe for 6 months doesn't want to see me again until August?? Linda

That's awful. It is bad enough for a supposedly trained professional to be so lacking in knowledge (it takes 5 minutes to Google it before he sees you) but to have the judgemental attitude as well is appalling.

Your keyworker is clearly not up-to-date with the most important development in alcohol treatment for decades.

I would go armed with some information and TELL THEM that they don't have the required knowledge.

In the meantime, use this forum as your support. At least people here want to help and don't judge people.

Thank you Paul I will you ate so supportive to all on this site thank goodness you are out there for us. Linda

Linda , I found the kindle book 'The cure for alcoholism' by Roy Eskapa gave me all in information I needed, it goes into great detail about taking Selinco.

Hope this helps

BB

Hi BB, I have a kindle so will download it. Many thanks and kind regards Linda

BasilBrush is right, Linda. The book is very good and easy to read (medical jargon is explained fully).

Thank you I have downloaded a sample. I will stand my ground with key worker too because I wanted help to cut down but at every meeting he wants me to commit to a plan to abstain. To be fair he had never heard of selincro but you'd think he'd read up on it fully. I can't stop going because doctor will panic and stop prescribing so the more I can learn the better 😄

It's not good enough though is it Linda? You wouldn't expect to go in the supermarket and have somebody at the checkout who didn't know how to scan items, or to take your car to a mechanic and have him looking for the starting handle.

If they can't keep up to date with progress, they should get out of the job. I DO understand that GPs have way to much to keep fully up-to-date with but, if a patient comes in and asks about a new treatment, surely it is a GP's responsibility to have a quick read and at least understand what it is about.

As an alcohol specialist, I would be seriously embarrassed if a client of mine knew more than me.

Well as he had already admitted his opinion regarding alcohol dependencies I wouldn't expect any less and as I have no other option I will be their guinea pig and educate them so maybe they will be more sympathetic with the next patient who goes to them for similar help. Thank you

That's the spirit Linda, like you I'm a Gunea pig, my medicine however did know about Nalmefene.

Now she nows my expieriences, she wants to know all off it;

I'm actualy quite proud of it, by being this test animal, I might be saving lives.

Good luck to you all,

Escar