Has anyone experienced these symptoms with tietze syndrome?

Hello all I am 56 yr female in FL , and have had these symptoms off and on for 12 yrs. I have yet to be diagnosed. This last bout has lasted 6 months. I have experienced the same symptoms as most of you, but did not notice arm pain. The Dr's are puzzled, and think I am drug seeking. I hope that I can find some way to share this post with my doc.

At least I feel relief with knowing it has a name other than "it could be stress related." With this new info, I feel that I may be able to get help with the painful symptoms without feeling like a potential junkie.

Hi, I've been diagnosed with Tietze syndrome 4 years ago. The pain usually occurs in my chest region and it only comes when I am stressed out. About 6 months ago I have started having a back pain in my thoracic region (T8). Doctors can't tell me if the pain is due to Tietze syndrome.

What do you think?

Cheers

Dina

Oh I replied in 2008! Well l still have it!!! In a bad glare at moment arbs weak up neck goes weak and sometimes l feel like I can't swallow, l dint even go to the gp now have nit been fir iver 2 years git sent to a rheumy to display all symptoms of ankylosing spondylitis but MRI didn't show infkammation of sacroiliac joints so basically l was left to get in with worsening symptoms! Thing is noones ever mentioned costo as a cause!!!

Just replying on this as I see a lot of people still looking at this thread.

I have Tietze and I have the same symptoms. Once my chest feels 'locked' (basically there is a lot of pressure on my sternum), I get heart palpitations as well. So thats when I take a deep breath and I can feel my sternum pop, sometimes its very bad. But once popped my chest feels free and the palpitations are immediately gone. Its become more of an inconvenience than anything else.

Regards.

You all need to get your vitamin d leveks checked!!! I am severely deficient < 7.5 found out last week i just started replacement last week and lve lived with this pain so long it has totally affected all my life,,,, and l can already feel a difference! i'm not joking!!!and apparently thus is one if the first symptoms of vitamin d defucency!!! get it checked!!! 7.5="" found="" out="" last="" week="" i="" just="" started="" replacement="" last="" week="" and="" lve="" lived="" with="" this="" pain="" so="" long="" it="" has="" totally="" affected="" all="" my="" life,,,,="" and="" l="" can="" already="" feel="" a="" difference!="" i'm="" not="" joking!!!and="" apparently="" thus="" is="" one="" if="" the="" first="" symptoms="" of="" vitamin="" d="" defucency!!!="" get="" it="" checked!!!="">

Hi i was diognosed with tietze a year ago after so many scans and invesive tests being done i have had this for 3yrs i have had to give up work and driving and i rarely go out the house apart from hospital visits Ihave seen 2 thoracic surgeons who say they will not opperate to fix it as it will make things worse as they dont know enough about it saw a general surgeon today to see if they could do key hole surgery to see whats going on as it feels like the cartlidge is broken away and thats what could be causing the other symtoms his answer was no opperation it makes me so mad that they can leave you live like this. My symtoms i get are pupatations been admitted to hospital twice with this chest pain dizzeness shortness of breat, feeling like i am going to pass out lots of front rib and back pain swelling unable to eat big meals loss of wieght, tiderdness and just generaly feeling unwell I have been going to the pain clinic for over a year for streriod injectins nerve blocks and botoxium injections nothing has helped so far and no amount of differnt pils help either, Each day i get up is like a lottery i just dont know if i will have a good or bad day it really gets me down and the doctors just dont seem to be able to help my family even appealed to the local papers and MP but nothing came of it surley there must be someone that can help so we can all get our lives back so we can live and not just exist hers wishing us all hope

Hey everyone,

I have had Tietze syndrom for about 10 years now I am currently 29. I would like to share some of my knowledge and thoughts on this disease. 

While there is no known set cause or cure, my doctor believes that mine was triggered by a nasty bout of bursitis I had in my shoulder. It can be caused by many different influences I'm afraid.

My attacks last anywhere from a few days to numerous weeks.

Symptoms of mine:

There are times when I can feel it coming on. A pressure and slight pain in my chest are the first signs. It's like a dull ache that may or may not progress. I can feel my chest tighten. There is a slight shortness of breath, or it becomes difficult to breath at all. My spine also occasionally feels a dull ache . These I can usually control with meditation or yoga. If it's feeling like it's escalating the best remedies I found that can be helpful are: ice packs, ibuprofen, and massage therapy. I have also found that an alcoholic beverage may ease the pain. However i encourage that you do not turn to alcohol. 

There are times when I may be driving down the road, and with no warning signs an elephant kicks me in my chest. The pain becomes debilitating. I have literally been driving down the road and had to pull over and rest in my car because I couldn't drive. I have been laid up in my bed for days, not being able to move. (Make no mistake, bad attacks happen anywhere or anytime. I was using the car as an example)

Symptoms of the more harsh attacks are as follows:

extreme pain in my chest, shoulders, ribcage, and/or back (in between shoulders)

numbness in arms/legs/face

hyperventilation 

Panic attacks

My chest becomes hot and red

Inability to breath or shortness of breath

What feels like heart palpitations 

Extreme exhaustion 

general feeling of malaise 

The best ways I have found to combat this are

ice packs, meditation, ibproufen, and sleeping propped up.

Also talk to your doctor about lidocaine patches

local injections or steroid injections. Unfortunately steroid injections are very painful. 

I have found that psychological stress can be a bad trigger. If you ever feel like your being stressed out, take a step back, calm down, maybe meditate for a moment. Once I started doing this, it seems to have allowed my attacks become more infrequent or at least less painful.

As is I spend still, 4 or 5 months of my year in some degree of discomfort. The really bad attacks still hurt, the pain has not lessened over time when they initially hit. However my pain management has strengthened, so when I feel them coming on, I can control the pain better. I hope that my post helps those with this debilitating disease. 

It saddens me that just because it his is not a known disease, or that it isn't a life threatening one. People don't truly understand how hard it is living with this. They don't understand the pain that we go through. It is very difficult to live with. But have courage, you can live with it. The pain can be managed to a certain degree for the most part. 

Good luck to everyone.

Hi guys

I've  been suffering from tietze syndrome since April 2014 and was only diagnosed in July. I was really scared and in so much pain but the worst was know one knew what was wrong with me. It stated out as headaches then chest pain and tingling sensations in my face and arm. I went for a bunch of tests and they couldn't figure out what caused it or how to stop it. On really bad days my entire body will shake especially my legs. Has anyone experienced this? Doctors say it could be because I stress myself out thinking in having a heart attack.

I will say its nice to know I'm not alone in this struggle. And for all those out there suffering with this how do you carry on with day to day life without it becoming an interruption?

Kindthoughs going out.

Tammy

I Can see some people has a heart WHO beats fast which is a High pulse

Hello everyone. Sorry to hear that everyone is in pain like me. Well I went through 6 straight months

After 6 monthsbof pain and testing it was diagnosed by an ER Dr. For me and now one thing the tell me to use when the inflammation is there is

Voltaren gel. It works alright but its not a miracle worker. Nothing helps this pain

I even get like numbness up my neck with it now been going on approx 9 year.....