Has the forum got M.E again ??

Hi Michelle

I would be absolutly devistated if i had to give up my mode of transport, its all i have left of my independence, ive already lost my job, home, friends, social life and my health to this completly miss-understood illness and couldnt face losing anymore from it, i guess im lucky that ive being criving for over 20 years so its kinda second nature to me, but my heart really goes out to you for your lose of driving, but its very good that you took it in your own hands to give up due to your illness for fear of having an accident, defiantly thumbs up for that !!

Take care

Jay xox

Ha Ha, I asked for that!!:lol: :lol: Maybe I'll forget that one for now!!

As for your labour-saving dog walking technique Alicia, well, it didn't go down too well with Roxy. She just gave me a rather withering look.:roll:

I do find those ball-throwing thingys you get from a pet shop a great help though - it throws it for miles - you can almost have a nap before the dog returns!

Katie

Michelle, I have stopped driving a lot of the time. I only drive short journeys and on familiar roads and definitely not after dark. This limits my independence somewhat so I can sympathise with you.

Fortunately I can arrange things around my husband's shifts or my daughter being home but it does take your independence away from you and I see now how much I took driving for granted. I too, have a CLio but my daughter has it most of the time now.

Fortunately we have a bus stop outside the house, but bussing is also very tiring.

My commiserations go out to you. x

Hi Michelle

Oh, I am so very sorry that you have had to make such a devastating decision - but very brave of you.

I feel I can now admit that there are times when really I should be going down the same road as you (OMG - what an AWFUL pun - I honestly didn't intend it to come out like that!) :oops:

Like Alicia, I only drive at certain times, never in the dark, wind or heavy rain and only if absolutely necessary. And only then for really short journeys as my concentration is so poor. I never offer to take any one as a passenger and can't even have the radio or CD on - to avoid distraction.

If things don't improve I, too, may have to make the same decision as you Michelle.

Take care - I'm just so sorry that this has happened to you.

Katie x

,

Thanks for your support guys, I'm feeling a bit better about it now and I know it was the right decision its just made it all soooo much more real

Saw the Dr today and he talked to me and done a few physical tests and says I have got CFS and also fibromyalgia - lucky me eh???? :roll:

Also advised me that the letter I received from the ME clinic was basically saying they've run out of money but hope to see me one day (don't hold your breath though!!!) Typical, still at least the doc was honest and I must admit I did appreciate that. He's put me on a different combination of tablets to try and get on top of the pain, haven't got to the chemist yet tho was drained from the whole trip to the docs. Still it seemed like a fairly successful visit and he wants to see me again in 3 weeks to review how its going. That in itself was fairly impressive - normally the doctors can't wait to get me out the door and certainly don't encourage me to go back!!!!!

Anyways will keep you posted

Take care all

Michelle

Hi Michelle

Well at least you know for sure now. Sorry you've got the fibromyalgia too - that's a pain, literally. Is is worse on your shoulders and neck like mine? I find the evenings are worse - the best thing is massage - maybe that is something you can teach your daughter to do - she may be happy to feel that she is helping you - particularly if she can watch something she likes on TV at the same time. (My daughter has always been happy to give me a massage since she was about five!) - even before the fibromyalgia - but I've always been achey.

Your GP sounds very promising and it's good that he wants to monitor you. My last GP used to see me every month for the first year of my illness, and it really helped me - unfortunately she has now left and I haven't got the same rapport with my new one.

Good luck with the new tablets and hope they help.

Katie x

Its great reading what everyone has to say, it often cheers me up, I have a read often when I feel down.

Know its my turn for abit of a twist. I suffer the majority of the time with severe headaches. Is it just me or does anyone else suffer?

Just before I go I feel right down at the minute because I want to go back to work but I can't and I'm missing it. The longer I'm off thr worse I feel.

Hi Loulou

I'm sitting here typing this with an absolutely splitting headache this morning. I usually just have a dullish ache but this one is an absolute swine and kept waking me up (more than usual) in the night. So I can appreciate how miserable it is for you.

I gave up work (for six months or maybe forever ...) three weeks ago, and I must say the novelty of being off has now well and truly gone.

Funnily enough, I miss putting on my smart work clothes - I just seem to slop around in fleeces and my old gym trousers (hoping one day I will be able to exercise properly again - but even they are now stretched to the limit). I seem to have lost my identity now ... :cry:

Pleased that you enjoy this forum - you must join in more often - don't know what I would do without it - just fade into obscurity, I think ...

Take care

Katie

Hello Loulou, I have relatives in Durham, it is such a lovely city. I love the cathedral high up over the river and the little cobbled streets.

What I love about this forum, and I've only been here a few days, is coming in here to read that someone has exactly something that I have got - this morning it is the headaches.

I am not at all well atm, culmination of doing far too much for too long and my headache and head pressure is just following me everywhere I go. I just won't let up. The longest relapse I have ever had was 8 weeks, the shortest 3 weeks although I do get 'off days' in between.

But now I have been on here and read all these things that others have too I almost feel a little better. I used to think it was just me and all in my mind or imagination, that if only I made a bit more effort and I was always apologising for myself.

Now I see that the pattern is the same across this illness, and it is an illness, I always saw it as just a weakness because that is how I tended to feel as I had no yardstick to measure it by, I didn't know one other sould with the same thing.

I think I have made sense there, not too sure though as everything is coming out garbled today and I can't cope - aaaarrrrggghhhhhhhh :cry:

Hi all,

am feeling slightly concerned and confused about the tablets I was prescribed yesterday by GP. Only got round to collecting them today and have been prescribed 600mg ibuprofen 3x day (fair enough) and 1mg Flupentixol at night. Never heard of flupentixol and as there was no info leaflet I googled it and discovered its an antipsychotic used to treat mild - moderate depression and acute mental disorders such as schizophrenia :shock: I can't find any other uses for it and was wondering if anyone else has been prescribed this at any point or if my doctor just thinks I'm a total headcase of something :evil:

Michelle

Hi Michelle

Never heard of that one! :? I also googled CFS and Flupentixol and there is obviously some connection, but would need a lot more googling to find the information we need (my eyes started going funny so had to stop).

I'm sure your GP knows what he is doing - in fact I wouldn't be surprised if he knows something that a lot of other GPs don't - I think it is probably a very new drug to be used for this illness. As I've mentioned before, the drug I take is an antidepressant, but my GP explained that it has also been found to help pain and, I should imagine that Flupentixol has very recently been found to do the same. However, your GP really should have explained this to you if this is the case. I can understand if you are reluctant to take them. Is it possible to speak to him on the phone?

Also, when my drugs are prescribed there is a new ruling that on the label with your name etc it also has to state what the drug is being used for i.e.

ME. Does yours say this?

Hope this all makes sense - I've even confused myself!! (Easily done!)

Katie

I have no idea what the dr said I can't remember, I do remember him saying the combination was supposed to be effective to people allergic to most things (that would be me - I've become allergic to loads lately) but as for what they're for...... well my good old memory strikes again!!! :?

As for the labelling I haven't heard about that and none of my meds say what they're for - mind you were not always front runners on progress down here in the Westcountry :oops: I probably could ring (would have to be after the weekend now though) but I feel stupid cos I already had to ring once since my appointment yesterday about something else I couldn't remember, he really will think I'm a muppet in a minute - the appointment was bad enough, I wasn't having a good day with the brain fog and he kept having to re-explain stuff and keep asking me the same thing over and over til it got through to me :? Poor fella must have thought I was really slooooow :oops: Worst thing is I've always been really switched on so I absolutely HATE feeling like an idiot, still I'm sure I'll get used to it :cry:

Thanks for looking it up for me, I didn't find any links with ME/CFS.

Hope your doin ok

Michelle

Hi Folks

Surely there must be some nice guys out there with CFS/ME who would like to join us on this exciting forum. You are much needed. :wink:

Look forward to hearing from you. :wink:

Katie

Note to Jay: You must be getting so fed up with all our girly talk - particularly us menopausal ones!!!:roll:

Yes but if the 1 in 5 ratio is correct then the ratio of Jay to Alicia, Katie, Michelle, Donna - who else is there? - must be about right.

But you are right, it would be nice to hear from some more menfok. :roll: