Has the forum got M.E again ??

Just kidding - sorry!!!! I know what libido is really - just haven't had much use for it lately.

I don't mind people laughing at me - humour is the only thing that keeps me sane!

People can laugh [i:fe2f10d35d]with [/i:fe2f10d35d]me but not [i:fe2f10d35d]at[/i:fe2f10d35d] me. My father did too much of that and I still have issues with it.

Point taken!

Hi

Well you can all laugh at me cause i didnt know what libido or sex drive means :wink:

Update on my mom, shes still in hospitol on that pain killer in her back but they had to reduce it as her blood was down, shes looks abit better today

Hope you all have a good weekend

Jay xox

I have just been spending time reading through old topics and posts and I fel I have got to know you all a little better, and seen a bit of your experiences with this condition.

I would just like to say how nice it is to have a little place to go where I am not in a minority and not made to feel like a second class citizen because I do not keep up with the rest of the world.

Thanks Jay, hope your mum continues to improve. Let us know how she gets on

Hi Donna

Was wondering how you were, havnt heared from you for a while, i do hope your feeling better from the op, did you find out about if your appendix was the smallest in the uk ??

spk soon

Jay xox

Hi guys,

hope you are all well. I am currently being punished for over-exerting myself this week. I had some relatives come down on Monday to stay with us until today. I have been trying to take it easyish but have obviously overdone it somewhat, I have been walking more than normal and not having as much rest as normal. Yesterday my legs were like jelly and my head was spinning and I'm not sure exactly what happend but I endde up in a heap at the bottom of the stairs. I have now spent the last 48hrs in bed and even going to the loo wipes my energy levels and I end up asleep. Was feelin gilty too cos I felt like i messed up last few days of my relatives holiday but I do know its not my fault. I just wish I had more energy and could take all the normal things in life for granted again.

Sorry folks, just needed a bit of a whinge, having a bit of a pity party for myself I suppose.

Anyway. take care

Michelle

Hello Michelle

We've all been there and can identify with you completely. I think you actually did really well to get as far as you did - so please stop feeling guilty - this horrible illness seems to take delight in making us suffer all sorts of emotions as well as having to suffer the phyisical ones.

The sad thing is, that as a result, we tend to isolate ourselves - I know I do - I no longer have people to stay, rarely arrange to go out (tends to be a last minute decision depending on how I feel), and I leave my phone on permanent ansaphone so that I don't have to respond unless I feel well enough to.

All very frustrating and upsetting. BUT - having said that - WE ARE ALL GOING TO BEAT THIS ILLNESS - we are NOT going to let it get the better of us!!

Take care, Michelle. Rest up for a while longer and don't be too hard on yourself. We all understand.

Katie x

Hi Michelle,

I can totally understand your feelings, ive lost count the amount of times ive had to let my family and friends down due to being either ill or exhausted, to a point were they just dont bother inviting me now, but that suits me cause atleast i know were i am everyday, thats at home in my comfort zone, the only time i really push myself is at my neices and nephews birthday partys, but other than that its just me myself and i, and we all get on and understand each other

Anyway dont get worked up over it, its not your fault

Take care

Jay xox

Michelle, well done to do what you did, but you must take care of yourself.

I am very bad at saying 'no' and I will make plans only to have to back out of them when the day comes. I have one friend who is disabled himself and understands that we plan to meet up on the spur of the moment whenever we both fel up to it, and we have some good times. It is the able bodied people who cannot or will not get the message.

Please don't feel bad. You will get over this blip, of course you will.

Jay, I do admire you. When I am feeling particularly bleurrgghh and mehhh, I have a little fantasy world I retreat to where I live on my own with my little dog in a caravan in Dorset (Charmouth) where no one can touch me. When people really annoy me I have even googled mobile homes for sale in Dorset, but it doesn't happen, except for a holiday.:roll:

Hi Michelle don't feel bad or guilty we can't help it. I know people don't understand and never will unless they themselves get struck down. I never understood the illness, until I caught it and I work or should I say worked in the medical proffession.

Sorry about the spelling but so mtired cannot be bothered to check it. Need some sleep but mt body thinks otherwise :sleepy:

Take care Lou Lou

That's it, finished, I am not going to drive any more. It's stupid, it's only a matter of time before something bad happens.

This morning I went out early in the snow to take my dog, Max for a run in the snowy field because we do not get much opportunity where we live. We don't often get snow worth playing in. It was too early really, 8.30 but I do not wake up properly until about 10. I was not firing on all cylinders and also was admiring the sun on the snow and I reversed into my daughter's friend's car and dented the door.

They didn't get in until 4,30 this morning so I am waiting for them to wake up so I can tell her. I am so hoping it is not an insurance job because I lost 2 yrs NCB last year. If I lose any more I will not be able to easily afford my renewal. It is astronomical as well because my daughter is on it and is a young driver. But it's not her who is the risk - it's me, and I think my confidence to drive has all but gone :cry:

Thank you for letting me write about this.

I too, was so pleased when I found this forum Alicia - it was quite by chance - just fiddling around on my computer one day. It's amazing just how all the various postings have multiplied over a very short time - and I'm sure while we are all still around it will continue to do so. I would be totally lost without it.

Apart from anything else it ensures that, for once, I am actually sitting down and conserving my energy which I something I am still very much learning to do.

Take care everyone.

Katie

PS. We've got thick snow here - I'm going to try and find the energy to build a mini snowman. I've just scraped the carrots for lunch and have just got one left over for his nose! :snowball:

Hi Alicia

Dont be to hard on yourself about your little accident, there must be thousands of ppl pranging there car every day, that small slip of concentration can happen to any one !! i make a point that i dont go out on my bike untill atleast 2-3 hrs after ive got up so i know my heads abit clearer

Hope everything works out ok for you

Jay xox