Has the forum got M.E again ??

Posted , 52 users are following.

I found your article quite helpful.

I just recently had a diagnosis of CFS and did not believe or understand what it was about. It is good to know in your article that may there be some options and support to improve this condition. It is also helpful to know there are books or organisations that may be good for me during this period. I have found that doing a little bit of excercise make me tired but helps me to avoid depression or feeling part of the community.

[i:ff97f93ed2]This message was automatically imported from the original Patient Experience[/i:ff97f93ed2]

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  • Posted

    Hi Alicia,

    Jay is right, loads of people prang their cars everyday. However, I can totally relate to how you feel, I have recently given up driving as it was getting too dangerous although I only passed my test in July so I didn't really have much experience to fall back on.

    I hope it all works out for yuo

    Take crae

    Michelle

  • Posted

    Hi everyone,

    thank you so very much for your kind words it means a lot to me.

    I'm still ridiculously weak and have to have support to go to the toilet :oops: it is so humiliating :oops: . I've never sufferd quite this bad before and it is reelly scary, I don't seem to have any strength in my legs at all and my head is spinning of its axis, I have slept so much over the last few days and haven't a clue what day we're on. I've been so confused and have lost chunks of time. I could't even remember my daughters name :cry: I hate all this, but I love all of you. Your kindness, suppoert and understanidng is what is really getting me through.

    Thanks again everyone, hope you are all doing ok :hug:

    take care

    Michelle

  • Posted

    Hope you manage it Katie, ours has all gone now and the sun is shining brightly :D
  • Posted

    Thanks guys, still waiting for Nathalie to wake up so I can tell her :roll:
  • Posted

    Alicia, as the others have just said, your little prang could have happened to anyone - please don't be so hard on yourself. I can imagine just how cross you feel, but before making a decision, just wait a while and see how you feel in a few days.

    It's so easy to make a simple mistake like that - I've done it at least twice in my years of driving - and they both happened when I was fit and healthy. It's so easy to be momentarily distracted - there are always so many other things to be thinking about. (I've recently got two speeding tickets - and that's simply because I wasn't concentrating ). :oops:I was probably thinking what I was going to cook for supper that evening.

    I'm sure your daughter's friend will understand - I find from experience that they can be very forgiving at that age - that generation are much more laid back than I think we ever were. Hopefully, if it's a simple dent it won't be an insurance job. It can just be pulled out.

    All your friends here really feel for you, but , as we've all said - don't be too hard on yourself.

    Take care

    Katie smile:hug:

  • Posted

    Thanks Katie, Nathalie has been very sweet about it, we are going to the bodyshops on Thursday to get some quotes.
  • Posted

    Hi everyone

    I'm back! I have read that some of you have had night sweats but just lately mine have been terrible :oops: :oops: :oops: I am having to change linen and nightwear daily. :x

    Also I experience insomnia and when I do drift of I feel like I am haveing such REAL dreams. I feel very strange about it all.

    I will try and post you a poem in the near future.

    Thanks for you message Katie x

    Donna x

  • Posted

    Hi Donna,

    Ive being having really real dreams for a long time now, some mornings when i wake up i often wonder weather or not ive had a dream or just watched a DVD there that real, and yes i do have night sweats too, its not as bad as it used to be so think it will wear off, but i do still have my insomnia which ive had from the start, uncontrolable sleep can be depressing, specially if your awake during the night, thats why ive made alot of friends on internet and find theres alot of them in our situation but without the M.E

    Take care

    Jay xox

  • Posted

    Hi Donna,

    Ive being having really real dreams for a long time now, some mornings when i wake up i often wonder weather or not ive had a dream or just watched a DVD there that real, and yes i do have night sweats too, its not as bad as it used to be so think it will wear off, but i do still have my insomnia which ive had from the start, uncontrolable sleep can be depressing, specially if your awake during the night, thats why ive made alot of friends on internet and find theres alot of them in our situation but without the M.E

    Take care

    Jay xox

  • Posted

    Hi Donna

    Welcome back! smile I hope everthing is now healing nicely.

    Yes, I suffered from really bad night sweats for about the first 6 months of being unwell - I only get them occasionally now though. They were so bad that I ended up having to buy a new mattress, despite having double covers on it. It is one of the symtoms of ME.

    I quote from my 'bible' -

    ME patients are frequently exhausted, sweat profusely, and body thermostats don't work. They are oversensitive to noises, smells touch and pain and are emotionally unstable.

    It also mentions nightmares and dreams - I suffer from both. The dreams are amazing at times but also exhausting. If I sleep in the afternoon (which I do most days now) I fall into a really deep sleep with incredible dreams - I usually wake up quite refreshed for a while whereas at night, I feel more tired in the morning than when I went to bed. I also usually feel as if I have been trampled on by an elephant - and everything aches for an hour or so.

    So what you are describing is perfectly normal for this wretched illness, Donna.

    Do take care and don't over do it.

    Katie x smile

  • Posted

    PS It's possible, Donna, that your general anaesthetic may have exascerbated your ME symptoms for a while - hopefully not for long. :nurse:
  • Posted

    I to suffer from night sweats, the strange things though is my feet pain at the same time because they are so cold.
  • Posted

    Really? :shock: I just thought it was menopausal hot flushes. My GP gave me HRT patches but I threw them away after 2 weeks, they were making me feel really ill and making the sweats worse :roll:

    How do I know which it is? My body thermostat has always been wonky but worse recently, perhaps it is a bit of both.

  • Posted

    Sorry Donna, how rude of me. Lovely to see you back. Hope you are feeling better now.

    BTW, if you want to know about emotional instability, ask my family, apparently I am one of the world's worst . Is it really down to ME? I'd not heard that before,

  • Posted

    I was sich of sitting at home when family and friends were out enjoying themselves. I took it into my head to ignore my body and pushed myselve through the pain anf tiredness and when out for a few hours. You would think great it's a good thing to do, but silly me pushed myselve too far :roll: I turned into a bit of a :diva: due to :ale: It only took two halves. Mind you it's the first time since I became ill 18 months ago I have touched alcohol.

    All day I have suffered. Half way through the night my body give up and I haed to give up and go home. What should me a short walk home turned into a taxi ride. All day I have walked into walls etc :bruised:

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