Has the forum got M.E again ??

my emotions are all over the place one minute happy the next crying and my moods can be terrible. At times my husband thinkd I am possessed.

There again, that is symptomatic of menopause. Where does one end and the other start.

I have ME, underactive thyroid, the right age for menopausal symptoms and I also have mental health issues that make me quite volatile. No wonder the drs just want to give me HRT and an antidepressant. Yet I know in my heart of hearts that I do not have clinical depression and my ME consultant confirmed that at my diagnosis.

I think the 'middle aged woman' syndrome causes doctors to have a mental block sometimes. :roll:

LouLou, you made an informed choice and it was the wrong one, but you wanted a bit of normality and that is sooooo understandable. I think you are younger than me and are not ready to give up on life.

Part of living with this illness that I have learned from going to the ME clinic is learning about your limits and pacing (not that I always manage to do it). It is all about conserving energy even on good days so you have a bit to spare. My consultant likened it to paying into a bank acount, always leave yourself in credit, don't go overdrawn.

Now that is easy to say, I have not totally mastered it and I don't think I ever will due to my personality.

Be kind to yourself for a few days, don't apologise for being down and you will come up again and gradually you will learn your limits.

BTW, I, too, am totally intolerant to alcohol and a very very cheap date. I was told at the clinic that it is a common symptom among people with ME. I used to attend church and I would get squiffy for a few moments after the communion wine and that is a mere thimbleful :roll:

Those walls and doors do pack a fair old punch as well, don't they :wink:

Hi guys,

After overdoing it at the beginning of last weak I found myself so weak and dizzy that my legs would not support me on my own, I was in bed from Thursday til Sunday only getting up for the loo (with Mark's help) and slept a lot of the time, yesterday I came downstairs, again with Mark's help, and spent the day on the sofa. I did start feeling stronger towards the end of yesterday and didn't sleep during the day (well a 5 min catnap doesn't really count!). I went to bed, now able to slowly get there myself only to find I laid awake til gone 3am then had a scary nightmare about a snake crushing my skull - think that was in response to the major headache I had.

However, this morning I get up bright as a button, hardly no pain at all, head fairly clear and my mobility back to normal :shock: I feel better than I have in ages it is just crazy how I seem to have gone from one extreme to the next so fast. Has anyone else experienced this???

Hope you are all ok

Michelle x

hi Michelle,

Thoughs experiences you've had are very typical of over exerting yourself for too long, i used to suffer from them ages ago but got so depressed by it that ive learnt to control how much i do in a day, occasionally i do over do it and suffer for it but never nearlly a week like you did, i can normally tell if ive over done it by the dreams i have, i too have had sever nightmares were ive woken up sweating and panicy, but now i know its all due to M.E and that other suffer from it, does helps me cope with it

Glad to see your feeling better and hope you continue to improve

Take care

Jay xox

Hey thanks everyone!

A least I'm not sweating alone :oops: :oops: :oops: :oops: :oops: :oops: :oops: :oops: :oops: :oops: :oops: :oops:

Donna x

Hi Michelle

Yes, this is such a weird illness. I am absolutely hopeless at pacing myself - a good day and I'm packing in as much as I can - which is really stupid and I should know better by now.

The sad thing is when you wake up clear headed, without pain and full of energy it just makes you realise how good life could be! And then it's all snatched away again.

I always know when I've overdone it - my eyes go tired and blurred and I feel wonky! :?

Take care

Katie x

Thanks for your kind words. I'm 35 but feel about 80+ at times. The walls and doors do give a good punch.

ha ha ha Sorry I have to laugh! :lol:

You remind me of last summer when I went to our local pub in the village for a glass or two of wine or maybe something a little stronger! After repeatedly being :hangover: I wrote to the brewery to say the pumps must of been dirty or something. I never told my friends becausee I was embarrased at not being able to keep up with the girls! They never replied and after failing health and visits to the GP :doctor: I was diagnosed with ME in the October.

Still not aware of the intolerance to alcohol I have a fab New YEars Eve - loved every minute of it :diva: - until the day after and :magic: I was ill.

I believe that a little of something you fancy is good :bubbly: but learning to listen to your body has been the biggest hurdle for me and I choose to stick my head in the sand!

Sometime a little glass of red helps me sleep!

Cheers everyone :bubbly:

Donna x

Hello everyone!

Those dreams are sending me daft! :weird: This morning I woke up half way through some dream about a friend of mine and I HAD to go back to sleep to finish it off! I can really see how some people get depressed by such :weird: dreams. I cannot begin to tell you have realistic they are.

Yikes for now

Donna x

p.s Still sweting like a trooper! :oops:

Hi Donna

Just had a thought ....

Your symptoms are most probably ME based, but are you sure you are free of the water infection you had? A UTI or any form of infection would have the same symptoms.

Are any of my fellow ME people clumsy and unco ordinated? Is it part of the problem or am I just clumsy and unco ordinated?

Since denting friend's car yesterday, In the last hour and a half I have dropped the dog's ceramis bowl into the enamel sink and cracked the sink - said dog bowl is unharmed. :roll: I have also thrown my hamster mug across the kitchen floor (not intentionally I might add) and smashed it to smithereens.

'They' (whoever they are) say things come in 3s so I hope that's the end of it, but honestly, I pick things up and just seem to part company with my hands :bleep:

I am also very clumsy, I have broke many things my dropping them. Its got to the point I avoid using good glasses or china. I get my husband to dust the good orniments

No it's not you, Alicia - blame everything on the ME.

Page 18 of my 'bible' 'poor co-ordination - clumsiness'

balance problems

Plus a great list of other symptoms

Sorry about the sink - what a pain. Well hopefully, as you say, that is the third thing so hopefully that's IT!!

One of my most annoying 'symptoms' is walking into doorways - my elbows and shins are permanently covered in bruises - I try so hard not to do it - that just seems to make things worse! :roll: :roll: