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Heavy headed, feeling woozy and off balance

Posted , 18 users are following.

michelle27275
michelle27275

I started off with dizziness and sickness I couldn't even walk without falling over. Now I'm constantly heave headed and feeling woozy snd off balance when I walk or stand up. When I lie down its heavy on my head too and I feel sickly. I've been to ent and they say it's nothing to do with my ear although I have got tinitus in m6 right ear and hearing loss for 3 years now. I'm waiting for an appointment with the nurologist in 3 weeks time. I just want something to be done im really fed up and on sick from work. HELP anyone?

0 likes, 249 replies

249 Replies

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  • donna40025
    donna40025 michelle27275

    Posted

    I think I addressed this discussion ? Michelle if the doctor did the Epley they must believe it is BPPV ! I've had the Epley and as you it made me extremely ill and vommiting for days on end so after the 4th time they decided to see a real doctor who specialises in vertigo and he sent me to Sydney which took two planes and over two thousand kms to get there and they put me in the Omniac Chair ( only two in Australia) best thing they have ever done and I have most of my balance back no more vertigo  and my life back after 5 months of being home bound! Google Omniac Chair ! Can't say enough of what that chair did for me and if you have BPPV and I. uK??? There must be one somewhere I would travel - I would buy a ticket across the world if I had to of! 
    • michelle27275
      michelle27275 donna40025

      Posted

      Omg donna that's brilliant ☺. Don't think I'll be lucky enough to be sent all that way from UK. But bppv doesnt say the symptoms that I've got I feel woozy, head feels heavy and I feel off balance all the time. I'm on betahistine dihydrochloride 3 times a day.
  • donna40025
    donna40025 michelle27275

    Posted

    Michelle just read your reply - feeling woozy, photophobic, swaying , rocking, brainfog etc etc it all varies ! For the Sydney trip will I live in Australia and good chance you have one or two in England ! I know America has 6 Omniac chairs and Australia has 2 ! Good luck 😳
  • victoria78511
    victoria78511 michelle27275

    Posted

    I've been suffering with my balance for over seven years affected my left side Flicking in my left eye when walking I just feel like I'm walking on sponges you said you feel sticky l get that as well my hands and feet, ENT told me it was because I have a weak balance system in my ear do you feel cold inside? I can not stop shaking especially when I do vestibular rehabilitation. I do not have the spinning sensations just off balance.
    • michelle27275
      michelle27275 victoria78511

      Posted

      I did have the spinning sensation but that's eased off now. I do feel quite cold inside too sometimes but I shake quite a lot. I just feel like im constantly rocking on a boat it's awful and pressure in my head feels heavy.
    • victoria78511
      victoria78511 michelle27275

      Posted

      Have you tried vestibular rehabilation exercise look on YouTube it might help you. When I went to physio she told me to stand on the spot with my eyes closed and count to 30 then get a cushion, stand on it with your eyes closed and count to 30. It helped with the swaying feeling by doing it twice a day. But now I feel like the chair moves when I sit down.
    • michelle27275
      michelle27275 victoria78511

      Posted

      No one not tried that Victoria ill have a look on you tube ☺. Oh so its helped with swaying feeling when standing and walking but it's worse when your sitting down?
    • victoria78511
      victoria78511 michelle27275

      Posted

      Give it a go keep it up every day. I don't like Turning my head to the left.l have trouble when walking changing surface,e,g, tile to carpeting. It's called equilibrium look it up. How do you feel when you are walking. I'm getting a pulsating feeling across my shoulder and in my legs.
    • michelle27275
      michelle27275 victoria78511

      Posted

      I don't like turning my head to the right it feels funny. I feel strange when im walking it feelsoke someone is pushing me and I have a heavy head and like im rocking on a boat. To top it off I now have ear ache in my gpod ear.
    • debbie82116
      debbie82116 michelle27275

      Posted

      Hi Michelle

      I had pressure, pain and plugging in both ears and felt as though i was being pushed from the back of my head. I felt unsteady all the time and had a very sore neck and headaches. My head felt foggy, my eyes were blurry and i felt anxious about not being in control of my body.

      Been there....done that....takes nerves of steel and a lot of patience to get through it.

      You WILL get better!! It just takes TIME!

      DEBBIE xx

    • michelle27275
      michelle27275 debbie82116

      Posted

      Thanks Debbie its been over 5 weeks ive been like this now. Did you take any medications to help? I was a lot worse at the start was been sick and couldn't walk the dizziness was really bad.
    • victoria78511
      victoria78511 michelle27275

      Posted

      I have same feeling like I'm being pulled to the left it's affecting my good ear. When I seen the EnT he told me to stand on the spot with my eyes closed with my arms out straight March on the spot count to 50 I opened my eyes i turned to the left he said I've got a weak balance system he sent me for physio. You should try it if you got a weak balance system you should turn to the right are you having physio
    • michelle27275
      michelle27275 victoria78511

      Posted

      Yeah i did that too when I saw ENT they told me to march on the spot and asked me to walk in a straight line too with my eyes closed. No I'm not seeing a physio no one's asked me too but I think I need too.
    • victoria78511
      victoria78511 michelle27275

      Posted

      . He should have sent you for physio Because it will not get any better. In the end I paid private to see EnT. He told me that I've got vestibular neuritis. He going to send me to heartlands hospital birmingham.I started to get blurred vision and cold hands and feet how do you feel?
    • michelle27275
      michelle27275 victoria78511

      Posted

      I have good and bad days. I feel heavy headed, off balance when I walk feel like im constantly drunk and rocking on a boat. I do have days when I do feel better and things seem better.
    • debbie82116
      debbie82116 michelle27275

      Posted

      I went to a vestibular rehab therapist. He gave me exercises to do to help my brain compensate for the loss of balance in my left ear. It helped loads.
    • debbie82116
      debbie82116 michelle27275

      Posted

      I was referred by my ent. I live in Canada though...not sure where you're from?
    • victoria78511
      victoria78511 michelle27275

      Posted

      Good luck for Friday I hope they can find out what's wrong.what hospital you going to?
    • michelle27275
      michelle27275 victoria78511

      Posted

      They told me I've got bppv but my symptoms are different. Going to leed's hospital where I live
    • victoria78511
      victoria78511 michelle27275

      Posted

      I live in Wolverhampton do you go funny when lying in bed when you turn to the right or when you are just standing up?
    • michelle27275
      michelle27275 victoria78511

      Posted

      I did go really funny but not so much now ad I use a v-neck pillow and another pillow on top so I'm not lying as flat which helps.
    • debbie82116
      debbie82116 michelle27275

      Posted

      Physiofitleeds is where you need to go...they do vestibular rehab there. You'll get the exercises you need to feel better!

      Just a question: Did you recently have quite a bit of stress in your life? New baby? A marriage?

      Cheers, Debbie

    • victoria78511
      victoria78511 michelle27275

      Posted

      Not feeing to good today feel reel cold inside.when I went to see the physio she said that the exercises would not work for me now cause my brain is trying to compensate. I'm going to see a specialist higher than her in another hospital. I always feel like the chair is rocking. Did you try the exercises?
    • victoria78511
      victoria78511

      Posted

      Because the first ent doctor i saw told me to stop the exercises. He kept saying it was my eyes. Then said it was my ears, I've had 3 mark scans, a ct scan and seen 3 neurologists. One said when it started it was a hormonal imbalance, the second one said the brain is a funny thing.... and the third said its ears. I've paid private to see another ent and said it was my ears. So if I carried on with the exercises I wouldn't be in this position. So I'd recommend you trying physio as I've suffered it for 7 years. I was also told not to take medication for it
    • victoria78511
      victoria78511 michelle27275

      Posted

      Hi Midhchelle was it today

      u went too see a norology I hope everything went well for you x

    • michelle27275
      michelle27275 victoria78511

      Posted

      Had my nurology appointment today. The doctor said to ween me of the tablets as they stop the signal so your brain doesn't recover. He thinks I'm got memiers an inner ear condition which causes intense vertigo. He said it's defiantly a balance n ear problem. He's going to try get my appointment forward for MRI scan and he's getting me physio and I have home exercises to do. He was really lovely and helpful today.
    • victoria78511
      victoria78511 michelle27275

      Posted

      Hi Michelle sorry I did not get back to you last night I was not feel to

      Good I had to go to bed.I'm reel glad that you are getting sorted.

      What kind of exercises as he gave you.

    • michelle27275
      michelle27275 victoria78511

      Posted

      How you feeling today Victoria? He gave vestibular rehabilitation home exercises to do.
    • victoria78511
      victoria78511 michelle27275

      Posted

      Not to good, i've started the exercises again.l was told to stop exercises

      By the EnT the physio said it was the wrong thing to do because

      I was doing will. Have you started your exercises?

      I was told to do them 5 time a day

    • michelle27275
      michelle27275 victoria78511

      Posted

      Yeah started mine last night. I wasn't told to do them 5 times a day though. It says in my execsise book to do them 2 to 3 times a day. I'm quite scared about coming off these betahistine tablets but they aren't good for me the doctor said 😕. I felt a whole lot worse before I started on these tablets. Are you in uk victoria?
    • michelle27275
      michelle27275

      Posted

      It's ok I've just seen you live in Wolverhampton lol
    • victoria78511
      victoria78511 michelle27275

      Posted

      Yes the doctor is right when it all started the physio told me stop

      Taking them you will be all right. What exercises book have you got

      ?

    • michelle27275
      michelle27275 victoria78511

      Posted

      Do you think ill be ok on no medications? It's vestibular rehabilitation exercises. What exercises are you on?
    • victoria78511
      victoria78511 michelle27275

      Posted

      I was on it for 6 months your might feel a bite funny

      First few days you will be alright. The physio told me to sit on a chair

      Bring your index finger approximately 10 inches in front of your nose or use

      A point on the wall.focus on your finger while turning

      your head side to side. Gradually increase the speed of the head the

      Point should not jump. Repeat 15,20 times DO both 2,3 times daily

      Side to side and up and down. I hope this will help

    • michelle27275
      michelle27275 victoria78511

      Posted

      Yeah I've got that exercise in my book they gave me. I've got 10 exercises all together to do. Sitting and standing ones. How you feeling today?
    • victoria78511
      victoria78511 michelle27275

      Posted

      I feel like the chair is moving up and down its my brain trying to compensate

      How do you feel after doing your exercises?

    • michelle27275
      michelle27275 victoria78511

      Posted

      I still feel woozy headed like im rocking. Think it'll get worse before it gets better. Do you have anyone who can help you at home? Or are you ok doing things at home.
    • victoria78511
      victoria78511 michelle27275

      Posted

      It will get worse before it's get better i've got my husband at home

      He as to do the shopping l have not been out the house for over a year can't do the housework I had to give up work. Have u got anyone to help?

    • michelle27275
      michelle27275 victoria78511

      Posted

      I can go out but only in the car and to my mums. I can't go shopping or anything I tried thst and I felt awful I had to come out. I struggle to do housework or make meals I go funny and have to sit down. Yeah my boyfriend lives with me but yes always working as I'm off sick so he's doing more hours to pay for the bills.
    • victoria78511
      victoria78511 michelle27275

      Posted

      All started when I was up the town felt like someone was pushing me at the back of the head two days later felt like I was walking on sponges and swaying. If I went into a shop I felt weird and had to hold onto trolley. How did yours start?
    • michelle27275
      michelle27275 victoria78511

      Posted

      I started with tinitus 3 years ago. Then 6 weeks ago I went to bed laid on my bad ear and this spinning was really bad and i started been sick and couldn't walk. Then after a few days I could get out of bed. Then I was dizzy every time I did certain movements and now I have constant heavy head swaying feeling like lm on a boat.
    • victoria78511
      victoria78511 michelle27275

      Posted

      Just the same as yesterday have you stopped your medication? If you don't hear anything about your physio in a month get in touch with a neurologist because I've had referrals lost
    • michelle27275
      michelle27275 victoria78511

      Posted

      Yeah stopped my medication now. Okay I will do. I was hoping to go back to work on Tuesday not sure ill be able too.
    • victoria78511
      victoria78511 michelle27275

      Posted

      In the end my body was getting used to the medication. See how u feel in a week time before you turn to work
    • michelle27275
      michelle27275 victoria78511

      Posted

      I've been on the medication just over 2 weeks so will see how i feel thanks. If your in Facebook there's this group for people who are going through the same as us. It's really helpful.
    • victoria78511
      victoria78511 michelle27275

      Posted

      Not to good feel reel good. I feel worse in the morning. Went to the doctors and start crying said I can not wait six months for physio he told me to ring them. I phone Friday she as not back i'm going to ring later. How are you feel today?
    • michelle27275
      michelle27275 victoria78511

      Posted

      I feel worse than yesterday. I'm going to doctors at 3 as need another sick note and I need my other tablets they've put me on amitriptyline for my headaches. 6 months is way too long how can they expect you to wait that long.
    • victoria78511
      victoria78511 michelle27275

      Posted

      Sorry you feel worse but you will do to start with keep up we the exercises I wish kept up with exercises at the beginning When did your headache start I had reel bad headache it felt like bad hangover. Does it affect your vision in your left eye when you do your exercises
    • michelle27275
      michelle27275 victoria78511

      Posted

      I'm trying to push myself every day I am going for short walks everyday. I've had headaches for weeks it a constant heavy head light headed feeling off balance. No it doesn't affect my eyes. Are you doing your exercises again?
    • victoria78511
      victoria78511 michelle27275

      Posted

      Yes I'm still doing the exercises.When you done the exercises do not walk about sit down and look at something not moving and count to 50 that's what the physio said
    • michelle27275
      michelle27275 victoria78511

      Posted

      That's really strange to be said that as I've had aching in my good ear. I been to docs they said it's a dental problem. Went to dentist they said it's not a dental problem.
    • victoria78511
      victoria78511 michelle27275

      Posted

      Told second ent who I seen in October said it was because my good try compensate for my bad ear
    • michelle27275
      michelle27275 victoria78511

      Posted

      Yeah that makes sense. Do you go out anywhere? I've got doctors soon then ill go for a walk.
    • victoria78511
      victoria78511 michelle27275

      Posted

      NO because my balance as gone. I only go to the doctor's or hospital appointment my husband has to have time off work. I cannot walk by my self
    • debbie82116
      debbie82116 michelle27275

      Posted

      Michelle....

      Both of my ears ached...i had pressure and pain in them both even though my left ear is the bad one. My VN got better after i started on the exercises and went on Ativan. This drug helps the foggy brain and unsteadiness.

      Debbie

    • michelle27275
      michelle27275 victoria78511

      Posted

      Hi Victoria. Been to doctors they've given me the amitripline tablets and signed me off work for another 3 weeks argh. Scared to take the tablets as they can cause bad drowsiness 😕
    • michelle27275
      michelle27275 victoria78511

      Posted

      Ita the hospital which give a repeat prescription to take to my doctors today. I'm getting a really bad head migrane and they help for that.
    • michelle27275
      michelle27275 victoria78511

      Posted

      I felt off balance and it feel strange been outside and when people walk past me my mind can't cope with it.
    • victoria78511
      victoria78511 michelle27275

      Posted

      When it first started felt strange when I was outside.l did not like being in supermarkets I was okay in the house I do not like being in the kitchen if my husband and my two daughters are in the kitchen just feel weird to me. I now how you feel
    • michelle27275
      michelle27275 victoria78511

      Posted

      Exactly same..I tried going into a shop earlier when I came to my mums I had to come back out my mind can't cope.
    • victoria78511
      victoria78511 michelle27275

      Posted

      You will cope.just keep up with exercises do not stop them like I did.When it started though I was the only one in the world with is. Google Equilibrium
    • michelle27275
      michelle27275 victoria78511

      Posted

      I tried looking into the equilibrium but I didn't get it? What is it? Hope your feeling bit better victoria?
    • victoria78511
      victoria78511 michelle27275

      Posted

      Hi Michelle I hope you ok Google put in dizziness,vertigo,disequilibrium. It tells you why you feel strange out side. things are moving a round you. Are you still doing the exercises?
    • victoria78511
      victoria78511 michelle27275

      Posted

      When I got up this morning I had that sickly feeling I now my balances will be worse when go to the doctor's I do not like husband sitting to the left. How is your headache today
    • michelle27275
      michelle27275 victoria78511

      Posted

      What you at the doctors for? My headaches not as bad at minute but normally gets worse throughout the day.
    • michelle27275
      michelle27275 victoria78511

      Posted

      Hi Victoria. I'm much the same really off balance feels like someone's pushing me when im walking. Just walked to my mums and done my exercises. How are you?
    • victoria78511
      victoria78511 michelle27275

      Posted

      Still doing the exercises.When stand on the spot I feel like I'm being pulled to the left
    • victoria78511
      victoria78511 michelle27275

      Posted

      I have to get my husband or my daughter's to Hoover up because the noise affecting my ear I start to shake
    • victoria78511
      victoria78511 michelle27275

      Posted

      I've done 3 different exercises when I done the exercises start to feel cold. It a sign its the night time I'm started to feel weird and tired.How many have you done.How do you feel?
    • michelle27275
      michelle27275 victoria78511

      Posted

      I do 10 different exercises twice a day. Some of them make me feel a lot dizzier so I just let the dizziness go away then continue them.
    • michelle27275
      michelle27275 victoria78511

      Posted

      I did yeah I used to have the spinning sensation now I have the lightheaded off balance feeling from minute I get up to going to bed. When you say weird what do you mean?
    • victoria78511
      victoria78511 michelle27275

      Posted

      You feel awful stand up because you are moving like out side. I'm not to bad sitting down
    • michelle27275
      michelle27275 victoria78511

      Posted

      HI Victoria. The exercises are ok some harder than others. Been for an hour long walk today and went for my eyes testing to make sure nothing going on behind my eyes. They ok vision wise but they give me glasses as I get headaches she looking at my phone too long. So just have to wear them when reading and looking at my phone..How's you?
    • victoria78511
      victoria78511 michelle27275

      Posted

      Was you ok when you went for a walk? Did things look better when you was out side.I'm going to Google standing exercises. I'm not to bad today you soon be back to work.
    • michelle27275
      michelle27275 victoria78511

      Posted

      Yeah felt a bit better today walking about. That's good glad your bit better. Oh gosh I hope I'm back to work soon.
    • victoria78511
      victoria78511 michelle27275

      Posted

      If you felt bit better when went out side exercises are doing you good.You will be running a marathon next week Keep up the good work x
    • victoria78511
      victoria78511 michelle27275

      Posted

      Does it feel like somebody pushing down on the top of your head? Have you been for a walk today?
    • michelle27275
      michelle27275 victoria78511

      Posted

      Just feels like everything rushes to my head when I stand up and walk about its awful. Yeah I've been for a walk today.
    • victoria78511
      victoria78511 michelle27275

      Posted

      Have you had your blood pressure took. When I went to see the EnT took my blood pressure sitting and standing to if my blood pressure dropped to much when standing.
    • michelle27275
      michelle27275 victoria78511

      Posted

      Hi Victoria how are you today? I been to doctors they checked my blood pressure all ok even when standing. I feel bad today think it's cause I got up early this morning which is bad for dizziness.
    • victoria78511
      victoria78511 michelle27275

      Posted

      Was you ok going to the doctor's? Are you finding the exercises are help? You Will have your good days and bad days.
    • michelle27275
      michelle27275 victoria78511

      Posted

      I'm fine going to doctors it's only 2 minutes from my house. Yeah I'd say they are helping me a bit. Just fed of feeling heavy headed feel like someone's pushing me to the left today. Just had a nap as was tired. How you feeling? I just want to feel fine again..
    • victoria78511
      victoria78511 michelle27275

      Posted

      I know how you feel. I thing I've over done it we the exercises because balance is bad. Ears are driving me mad
    • michelle27275
      michelle27275 victoria78511

      Posted

      Are you death in your ears? I'm death in one ear and have to wear an hearing aid. I have a constant buzzing noise in my ear cause of the tinitus.
    • michelle27275
      michelle27275 victoria78511

      Posted

      Ah it drives me bonkers the tinitus 😕. The hearing aid take my tinitus away abit. See my problem is my ear which is causing the balance issues. Can't wait for my scan so I can know for definate whats going on.
    • victoria78511
      victoria78511 michelle27275

      Posted

      Hi Michelle not very good today. How are you feeling? did you run the marathon this morning?you should not wait long for the scan I only wait 4 weeks.
    • michelle27275
      michelle27275 victoria78511

      Posted

      Felt pk when I got up but when I start walking about I feel woobly. I'm getting there a bit I can do bit more round the house. I have my scan a week on Tuesday. Did anything show on your scan when you had it? It's just the nurologist says nor everything shows on scans.
    • victoria78511
      victoria78511 michelle27275

      Posted

      I'm glad you got your scan. Is it a MRl scan or CTscan you are having?they sent me letter saying my scan was ok.
    • victoria78511
      victoria78511 michelle27275

      Posted

      You just got to wait for your physio. I think they reel do not now what's causing my problem they keep saying we know you got a underlying problem BUT WHAT?
    • michelle27275
      michelle27275 victoria78511

      Posted

      The consultant said it's my ears. Got another 2 weeks sick note yet. If im better ill go back before hand. You got any more hospital appointments?
    • victoria78511
      victoria78511 michelle27275

      Posted

      I'm waiting for a appointment it can take up 6 month. When I get there and they say I've you got a underlying problem I'm going to scream:-)
    • michelle27275
      michelle27275 victoria78511

      Posted

      Is it nurology appointment? I know how you feel I said the same wr shouldn't be feeling like this every day of our lIves. You'd think they put first for appointments.
    • victoria78511
      victoria78511 michelle27275

      Posted

      Yes I'm going to see nurology. I ask how long would it take to see a EnT on the NHS she said 3 months I paid private it take 3 days.to see him it cost me £180 pound's. They say money talks I could have paid my gas bill:-):-)
    • michelle27275
      michelle27275 victoria78511

      Posted

      Ignor that message I get it now. Up to 6 months with nhs for ENT and you got one in 3 days private. 180 pounds is that just for the inital consultation?
    • pinky25194
      pinky25194 michelle27275

      Posted

      Hi Michelle and Victoria

      You just click on the little envelope at the side of the name and you can send each other private messages.

      Xxx

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