Help, getting really down about Molluscum
Posted , 25 users are following.
I picked up Molluscum from a spa day back in March this year. I had the usual story of doctors telling me its fine and not to worry about it.
I then lost out on a relationship because of it in the summer and also started war on them.
I have had 3 freezing sessions at the clinic and new ones keep popping up or old ones coming back so I then brought a home kit as they wont let me back until three weeks have passed.
I am also using TTO which has helped shrink but never get rid of them.
I get really really down and upset about this virus as its been 5/6 months and new spots tend to appear over night. I have got to the point I don't know what is a little spot / blemish or what is a wart now and feel like I am treating anything.
Can anyone tell me how long they had this for? and also what do they look like when you are winning? Did they just stop appearing or did they appear then disappear quickly or all suddenly just start healing.
I just want a sign that my body is fighting it. I dont drink much, dont smoke, taking vitamins, work out etc.
2 likes, 151 replies
Idkidccc gemma10702
Posted
I think mine have gone away! Its been two weeks and nothing new has come up. I also took Cimitidine for the last month. My derm seems very certain that my last beetle juice treatment was the last one! I had liquid nitrogen done once while i had 4 beetle juice treatments. If you ask me beetle juice had less scarring then liquid nitrogen. But can anyone give any advice for what to apply on the scarring to get rid of the discoloration faster?
If anyones wondering about the time frame, I came in contact with MC August 2019 and they came up in November 2019 and i didnt start treatment until end of January 2020 because PCP said dont do anything and not to worry about it -.-
alisha92262 Idkidccc
Posted
We're on the same boat. It looks like mine has gone away too! Mine started popping around September 2019 and was burned by the doctor by the end of January 2020. My MC simply wasn't diagnosed correctly during the first doctor visit that's why it got out of control. I did not know it could spread by touching so my intial 3 MCs ended up multiplying to 15. I developed 15 more between Feb-April and finally got the courage to pop all of them in the last week of April to the first week of May. I wanted to try taking Cimitedine too but I had breathing issues after taking a pill. haha
Oh well, it's only been a week since I got rid all of it. Fingers crossed. Goodluck to us!
anj07898 gemma10702
Posted
hi guys,
I was wondering if anyone could help me with something.
I have been clear from any new bumps for nearly 3 months and then i saw a tiny little bump in the genital region. Now im not convinced its molloscum but was wondering if anyone knew about timelines and how long you had to be clear before you can be sure it wont come back?
My understanding is this isnt a dormant disease and so the likelihood this is molloscum is very slim. But if anyone has been told any actual answers in regards to how long without a new bump before you can be sure it isnt coming back, that would be great?
Thanks as always guys.
roger49312 anj07898
Posted
congrats on being free for 3 months most derms say 3 months of being clear means you are clear some drs say if you have none you are clear - the illness is harmless so not enough research out there i have only read one case online where a guy says he has had it for 6 years and they keep coming back - but i dont believe everything i read online.
most hair follicles around the genitals are not uniform and if you are looking and looking and are full of anxiety and fear of finding one you can mistake a non uniform hair follicle or fordyce spot or inflamed hair follicle for one
in most cases this thing is gone in 6-9 months and in some cases its gone in 1-2 months and rarely its longer than a year
remember its harmless and will go
mindy39902 gemma10702
Posted
hi there everyone
ive been suffering from molluscum for 11 whole months now!! 😕 i dont have any immune system diseases but i can not manage to get rid of this virus. ive tried cryo curetting by the derm.. even beetle juice. I kee getting new bumps every 3 weeks or so. i take vitamins l lysine and vit d. what else can i do? please some help me i cry every single night because of this virus!!!
how can i clear it?
does it ever go away? has anyone had it last this long??
i am very clean always cleaning my clothes after one wash should i be bleaching them?
any help would be appreciated
gemma10702 mindy39902
Posted
so sorry you are still getting them. They will go. sounds like you are doing everything you can. I personally never washed all my clothes every time or bleach that's drastic. your anxiety and stress from them is probably not helping. start by telling yourself they will go and focus on other areas fitness, plenty of sleep
Are you sure they are molluscum firstly? I get little bumps now all the time panic a bit bit but then they go. how many have you got?
drink loads of water and just keep ontop of the cryo every two to three weeks. That's the best thing to do. Sorry I dont have a sure fit answer.
doop098 mindy39902
Posted
Hey Mindy I'm sorry you are having to go through this, and I hope you get better soon. Since doctors don't seem to really care about it too much and it lacks funds for research, I've tried looking everywhere on the internet for medicine that helps. Two of the most common OTC pills I've heard of people taking with success on Reddit, this forum, and other medical forums are Cimetidine and Agmatine Sulfate. You can get Cimetidine from a pharmacy and order Agmatine Sulfate pills on Amazon. I'm willing to try it for mine but have heard one person mention breathing difficulties with Cimetidine, so be cautious. I've also heard of these helping reduce anxiety (something I deal with) and OCD in multiple people, which could be reason it helps. It's really annoying that we have to look for help with treatment ourselves on forums, but it is what it is. I'm glad we have a place to talk about this and hopefully if we try these things out on ourselves then we can find unorthodox methods that actually work and help others, but don't risk your health if you have a bad feeling about taking these medicines. Best of luck!
jeff18744 mindy39902
Posted
Did this eventually clear up for you? My daughter has had this now for a year. It's spread all over her body. She probably has over 100 lesions. We did 1 round of beetle juice treatment, but it didn't seem to have any effect.
mindy39902 jeff18744
Posted
yes keep going w the beetlejuice
it was the best treatment
it took me a full year to get rid of it
mindy39902 gemma10702
Posted
thanks
yes im trying to remain calm its just been so long! i just never heard of anyone having it this long. hopefully my body recognizes this soon
thanks for your advice
rbc gemma10702
Edited
New here. I've been dealing with MC for about a month and a half, although I'm pretty sure I've had it for several months. I'm in a state of near constant panic and depression. Enjoyed reading this thread. I'm wondering if anyone here on this thread has any further updates on their cases??? Looking for every shred of hope I can find.
gemma10702 rbc
Posted
Hi. I know exactly how you feel and I hated every minute of it wondering if I would wake up with more or if they would ever go or if they would come back again as sometimes they need more than one treatment.
I want to reassure you that you will get there but it will take a long time that will feel like forever.
I think looking back I had them a lot for the first 6 months and then after a it got really bad they all suddenly started to go and I even after they had cleared up I had the odd one pop up for a few months after.
I was convinced the other day I had one again and left it a few days and it went down so I am still horrendously paranoid about them and wont shave just in case.
If you can go to the gum clinic get the frozen off every few weeks and keep at it and get a home kit although they don't work as good. Loads of water and no stress as I think that plays a massive part on our overall health.
If you are ever feeling really down just message and I ll try msg as soon as I can.
d0502 rbc
Posted
Yes! Mine left in about one month!
I myself recently got CM I would say about 5 months ago, all on my inner thigh and bum (it was so embarrassing). I bought a solution on amazon that I found while researching about how to get rid of CM. It is called 'Molusk Cuteanous solution'. It contains Potassium Hydroxide at 10% which is the highest endorsed compound within scientific journals for the treatment of MC. I know that this doesn't mean it will be effective 100% of the time for everyone but it is worth a try. I applied this solution to each individual molluscum every night until they each became inflamed and red. The reason why I did this is because the acid on the lesion kick starts the body's immunity. Generally your body doesn't even realise that the molluscum is on your body because it is so benign. This is why it takes a long time for your body to notice and get rid of them! With every new mollsucum that appeared I would carry out the same routine by adding the drop of acid on the head at night before i went to sleep. Because some molluscum were on my body before the newer ones these would heal quicker and tended to scab over due to the acid, which meant my body was fighting the virus and healing the top layer of skin from the acid.
I know how much anxiety this condition causes but this routine healed mine in about a month in total and no new molluscum appeared after either. I hope this helps
rbc d0502
Posted
That's awesome that you got rid of it in a month. So, you've been clear for, what, 3 or 4 months now? No new ones ever popped up? I'll look in to that product if mine worsen. Thanks!
linda33231 rbc
Posted
i was commenting on this thread back when it first started. i had mollescum for about 8 months, from May to December 2019. October and November were the worst months. i went after my bumps so aggressively that one of the bumps ulcerated and became infected, and i got a yeast infection from ph balance being so off. Finally the 4th doctor i went to see about it all froze the remaining ones off and told me to stop all other treatments and just use zinc oxide for the one that had ulcerated. Most importantly, she told me not to panic. thst she had seen countless cases of mollescum and that calming down was key to helping it heal. it actually worked. in 2 weeks, my mollescum was gone. The odd one would pop up here and there but I haven't had a new one in 6 months. Im thankful to be on the other side of this. You will get there too. stay strong and be patient and gentle with yourself and your body.
rbc linda33231
Posted
I remember reading your story earlier in the thread, Linda. I love to see this update. Congratulations and thanks for the encouragement!
d0502 rbc
Edited
Yes I've been clear for 4/5 months now, with out any pop ups. If you do get it I'm sure it will help you as it has helped me.
Wish you the best!