high blood pressure and anxiety
Posted , 55 users are following.
Hi all. I posted a message some months ago regarding my BP, I went to the GP and ended up in hypertension crisis 200/110! My GP made me sit in the surgery for couple of hours and started me on amlodipine, this was fine until I had horrific side effects and ended up unable to walk, after few weeks was diagnosed with severe anxiety and stress so started on citalopram and propananol plus ramapril 5mg, it's been over a year now and I feel really good in myself and happy but have a phobia now of the BP machine, I had my own monitor but my family banned it as it made me worse, really want to visit GP and check it but very scared of Getting a high reading. I have worked so hard to change my life and don't get stressed and do yoga daily, anyone else feel the same? I am 38 yrs old
3 likes, 139 replies
lorraine37554 hails63112
Posted
I battled to reply to your post re high bp, had similar experience - I am a state outpatient and exaggerated high reading was taken on an electric BP machine, but I get a fairly normal reading when using my battery operated monitor which I use at home - last week 8 June, 2018 - my local community health centre, i.e. Lady Michaelis, Plumstead, Cape RSA, kept me in their Emergency Room for the whole day, also the month before. The doctor at the Trauma unit at Victoria Hospital told me not to take it, but a new dr at the day hospital, re-prescribed Amlodipine whereas I told him that the other dr at Victoria Hospital took me off it. I TOO ended being able to walk - the attitude of the health workers at that day hospital made me realise that they are upsetting me emotionally, obtaining high readings, then "detaining" me for a full day until closing time. I am angry because of the attitude - I have been on Pharmapress since after my first op at a state hospital in 2010, whereas when I saw private doctors on my medical aid, I never had a BP problem. Last month (May 2018) when I attended the day hospital, also by appointment, the same story - the new nurse Klem working there, created an Emergency situation. Not sure if all that is legal and I do not know what my rights are as a patient, but I was left feeling hurt and humiliated. I have also had my BP taken at private chemists and got lower readings when a manual bp pump was used. So I no more know who to trust - they could be trying to "trip" me as I was employed by the State Dept Health many years ago for six years and my Termination was a swindle. I did not have money to fight them, so left it and just got work elsewhere. I do not have a persecution complex and am not one of their MENTAL patients. Thanks for reading this.
sue00366 hails63112
Posted
Thought I would add my testimony to this 3 year old post to keep it going. I never thought of my anxiety over taking my BP as a phobia but it does make sense. My employer offered an annual wellness check as a benefit for many years. During that time my numbers were always normal. Then the wellness check changed from a benefit to a requirement if we wanted to avoid an increased insurance premium. From that point forward, I struggled with anxiety each time I went in for the wellness check. I went from normal to hypertensive overnight. Each year my anxiety has increased and has now reached the point where any measurement of my BP causes me to stress out. I tried BP meds for a while that sent my BP through the floor while at home, but still had elevated readings in the doctor's office so my doctor took me off the medication. I may inquire about anti-anxiety medication at my next doctor visit. Thanks to everyone for sharing their experiences.
joan80293 sue00366
Posted
I appreciate your dilemma. my readings are all over depending on who, how and when they are taken. as low as 124/76 and as high as 154/90. I was put on a couple of different meds with no change until Metoprolo. I take half of the lowest. dose. I went through a long period of freaking out about my bp but now I have settled into a routine and feel like I can handle it. I started taking magnesium in either citrate/malate combo form or chelate/oxide combo and my anxiety and sense of well being has improved 100%. it has helped my bp as well. there were other dietary supplement changes as well but the magnesium made the biggest difference. it's a frustrating thing, this white coat syndrome.
jesse04845 joan80293
Posted
Thanks for all you're input. Nice to know I'm not alone. Sometimes I think the medical establishment enjoys creating a crisis so they have something to try to resolve.
lorraine37554 joan80293
Posted
It is very annoying, though, when a senior white female patient(s) such as I are targeted, all the other patients without appointments were seen before me, while I sat in the emergency room on two consecutive appointments because of high blood pressure. There is chaos and racism at certain state health centres and the manageress of that day hospital was on 4 months paid sick leave as she had a stroke. If you fill in a complaint form or email, you come off worse. On 31 Aug. 2018, I had a meeting with the Independant Health Complaints Committee of the Western Cape, which was a frustrating waste of time and energy. A meeting was held at short notice on a Friday at month-end (31st August) in the boardroom of the day hospital/clinic, it was not an official, structured meeting. The chairperson, a professor, an elderly male of colour, who I later found out on Google, is/was a state psychologist, was questioning me and making notes with two women, who attended & also made notes; from the outset, he was biased, seemed to be covering up for the state/government Dept Health, he asked leading questions, it just left me angry, offended, frustrated. The meeting/interview went on for 2 hours; they did not appreciate/consider that I as a sick white female patient had to leave home early, get a public taxi to attend in the middle of winter in rain, cross a busy road and then sit there having to entertain their questioning. After the meeting, my neck &shoulders were massaged by the chairperson, I felt uncomfortable. My name is Lorraine, but throughout the meeting I was addressed by him as "Lollie".
After the meeting, I waited to see the doctor at the day hospital, a Muslim female, who questioned me about my property, asked me why I do not go into an old age home. I am 64, look about 40. They have no respect. I cannot afford medical aid/insurance, which would be the best route/solution to all this harassment. Since age 60, I am a state old-age pensioner, so my income is small. It now seems that I must retire 7 eventually die under these terrible conditions. I can perhaps approach a NGO/non-profit organisation for counseling and advice; there is no human rights organisation for senior people in the Western Cape. The University of Pretoria has a human rights department for seniors, but I live in the Western Cape, a province far away. I approached the SA Human Rights Commission, my matter was pending for one year without feedback and just before Xmas 2018, I cancelled/withdrew my complaint. Thanks for reading this.
jesse04845 hails63112
Posted
The sight of a BP cuff sends me into a panic attack. All the emphasis and scare tactics have worked well. If they meant to scare me, they did their job well. I never had an issue going to a doctor or having my BP taken before. Now I'm terrified to go to a doctor or dentist. I'd almost rather die than go to a doctor. They totally humiliated me when my pressure hit 130/90. Got my diastolic pressure down, but the damage is done. If they only have a clue how they totally destroyed my life.
mark73553 jesse04845
Posted
130/90 in a stressful situation is not high at all (in 1 experiment they had people do math in their heads really fast while measuring their bp....it went off the charts! readings like 200/100 if I remember correctly.) You should get a good home machine and take it right before going to bed or first thing in the morning (with an empty bladder)- at these times it should be 120/80 or less, the rest of the day it can be as high as 140/90 no problem. Also make sure you're taking it correctly!!
Here's how to take your blood pressure at home:
Avoid caffeine, alcohol, tobacco, and exercise for at least 30 minutes before measuring your blood pressure.
Sit with your feet flat on the floor, rest your back against the chair, and place your arm on a table or other flat surface.
After sitting quietly for five minutes, wrap the cuff snugly around the upper part of your bare arm. The center of the cuff should sit over your artery (some blood pressure monitors have an arrow to help you with placement).
Relax , breath deeply and think about something that makes you happy while the machine is taking the reading- don't tense up thinking about how high its going to be...or you'll get your wish!
joan80293 jesse04845
Posted
I hear you. I developed white coat syndrome too, caused by my reaction to comments from nursing staff. it then developed into a blood pressure cuff syndrome. I think about it and my anxiety and BP goes crazy. the best thing I did was take my BP often. when I took it I would do it three times in a row. invariably my BP would go down dramatically. I also tell myself that I CAN control my Blood pressure (by breathing, singing, getting comfortable with the cuff) instead of letting it control me. it was a scary time but I believe the worst is behind me. Mark73553 has good input as well.
lorraine37554 jesse04845
Posted
I bought my own digital (battery operated) blood pressure monitor from a local pharmacy; never had bp issues until after my first surgical procedure at a local state hospital in 2011. Because of all the politics in my country, I "smelt a rat" as I noticed that when e.g. a sister at a local chemist took my bp with her manual monitor, the reading was lower. I am not employed by state health services and it is not my job to see that the blood pressure machines they use, are working properly, but I noticed that when I was in hospital in 2017, they had a few of those electric bp monitors in the ward; the one worked well, gave a good reading, the other one not. They told me that they can't operate if my blood pressure is too high; to cut a long story short, the operation was a success. There are also natural remedies for high blood pressure, e.g. tissue salts (Scutellaria) - I take one Pharmapress daily and occasionally test my blood pressure at home with my wrist monitor; I also get white collar in that outside the doctors room, while waiting my turn with all the other state outpatients, I get/got a much lower reading than when sitting opposite her at her 'desk' - but yes, their electric bp cuff was so tight that my arm and hand were blue and they just left me there in that chair with that tight thing on my arm - I would have unplugged it or cut the cord .. (don't take it too seriously - you are not alone), but I wish that someone would do something about it, as wrong readings can lead to wrong prescriptions; the dr in the emergency room prescribed Verapamil, which is ok, then the other dr prescribed slow release Verapamil which is much stronger, which I cannot take, so only the low dosage one agrees with me - don't allow them to "destroy" your life, it is a gift from God, please look after yourself, my reading yesterday was about 158/90 and I skipped, forgot to take my Pharmapress the day before ..
lorraine37554 mark73553
Posted
I love my coffee (filter is healthier, I think)& tea, don't smoke .. thanks for the advice
lorraine37554 hails63112
Posted
Hi, Amlodipine did EXACTLY the same to me. I ended up in Casualty (i.e. the emergency department) of my local state hospital, i.e. Victoria Hospital, Wynberg, Cape Town. I had to phone a state ambulance to fetch me and take me there as I had no one to drive me there at night. The doctor who examined me, threw the Amlodipine tablets into the waste bin in the emergency room, he took me off Amlodipine. My neighbor who is a nursing sister also told me that Amlodipine makes your legs weak that you cannot walk, so that is why I do not take it.
The Amlodipine was prescribed by the state day hospital in Plumstead by a female doctor. I have no choice, have to see her as there is no one else other than her colleague, a new male doctor, who prescribed Verapamil when I was kept in the emergency room by their new nurse Klem - so it goes .. yes, it is very hurtful and humiliating, more so for vulnerable, senior people who need that care as you age
lorraine37554 hails63112
Posted
A chemist sister can also take your blood pressure for you (but you pay a small fee for the service), or buy a digital one, they cost about R300 at Clicks; I think Dischem stores also sell them. Just get on top of it ..
menzo hails63112
Edited
Hi, I have been through the same journey. I will tell you my story, with the hope that it reaches others in similar shoes and it comforts them that they are not alone.
Unfortunately, there are many people who suffer from this and there isn't a one-fits-all answer/solution unfortunately. Some of us are just more prone to anxiety and are therefore more susceptible to triggers for phobias.
I began having anxiety attacks when I was 27 during an uncertain time of my life; at that time I thought/more like convinced I was sick with some terminal illness, anywhere ranging from cancer to being HIV positive..took countless tests and had tons of doctor visits that claimed I was perfectly healthy. Things then just subsided and I started living a normal life again.
Fast forward to 4-5 years ago, I started having anxiety attacks again during a stressful period in my life. One day I had a full-blown panic attack and I believed I was having a heart attack - headed to the hospital and the nurse took my blood pressure (which btw had been normal average 119/78 up until then during physicals) and of course she panicked looking at the number - 179/112. Then the doctor gave me an EKG, and monitored my blood pressure as I was lying down - it kept going down, took my blood work - no heart attack, no AFIB, nothing.
Three months later, same episode of panic, went down to urgent care, nurse takes my blood pressure, she panicks like the first one - 182/110; so I went to see a cardiologist for a full visit - EKG, Echo, Stress Test, 48hr Holter, the works - all came back negative. The interesting part when I took the stress test on the treadmill, I was super anxious getting on it, my first BP measurement at rest was 150/100, as I started running, during stress, the systolic only went up to 176 and the diastolic actually went down to 70/68, which is completely normal for healthy hearts. That test was inconclusive - just stress/anxiety. Doctor put me on a low dose of Ativan to take just in moments of panic/anxiety, advised me to get a home BP monitor and so I did...
I started exercising more, losing weight, take my meds as needed and was measuring my BP 3 times a day, morning, afternoon, night - averaging it out. Months later I had another full-blown panic attack - went back to the cardiologist (a different one this time) - did another battery of tests, Echo, EKG, Holter, again inconclusive...
I started wondering the doctors were right, the problem was in my head and my heart was completely fine. Heck, most people go a lifetime without having a full cardio workup...I had had two in less than a year. I continued measuring my BP and I noticed two things: 1) in times of stress it would be higher than average and 2) I slowly was becoming dependent on the machine as if I needed it to justify my well-being. So I started taking my BP more than 3 times a day, it slowly escalated into an OCD behavior, never thinking it could turn into a phobia.
A year later, new doctor check up - he takes my BP with an old school sphygmomanometer, my heart starts racing like crazy, sees me obviously panicked and just says my blood pressure is high at 160/100, looking worried as hell. Never mind he completely ignored the fact I was panicked and that my heart rate was definitely over 100bpm. So I tell him my readings at home are completely normal - he asked me to show them to him and so I did. So he just said to keep monitoring them.
This is a turning point in the story when the full phobia began, where I started to question my own BP machine, so I bought two more monitors...no I had 3 monitors measuring my BP countless of times a day, still averaging it out. You can imagine what that started doing not just to my head, but to my family. Days where the numbers weren't perfectly under 120/80 - I kept trying to make sure it was still normal. Days where I had spikes were bad days, all I was thinking was my BP - the machines finally had taken over my life. I started questioning my whole health - even though I appeared to be in good shape, running 3-4 times a week, I felt terrible, always down, tired and on edge. I then began monitoring my heartbeat more closely, during workout, before and after. I started to obsess on my heartbeat. When I obsessed on my heartbeat, my BP wasn't a concern - when I obsessed on my BP, my heartbeat wasn't a concern. Every day for the past 2-3 years.
Finally, two things happened. Six months ago, I had another full-blown panic attack - the worst one yet. At this point I was having them on a weekly/monthly basis - most of them would happen before I was about to take my BP. I headed straight to the emergency room thinking this is it - I am finally having a heart attack. At the ER again doctors took my BP - they had to put the monitors away from me, each reading was ranging between 170/90, 170/80 - heartrate anywhere between 150-130...again EKG...all negative, I finally relaxed and took my BP again - I think the last reading was 128/90. So I left, this time thinking: I need to get a hold of my life here as I am going into the deep end.
I went to a cardiologist AGAIN for the third time - again EKG, Holter, Echo - explained my BP phobia to him and my full history. The doctor was very stern and very serious. He told me to snap out of it and do the following:
GET RID OF YOUR MACHINE! it is obviously ruling your life and it's doing more damage than good. He said he could see in my arteries and the whole structure of my heart and there was no true arterial hypertension anywhere, so lay off the machines and to give it to people who actually need them.
GO SEE A PSYCHIATRIST! This was in relation to my obsessive behavior/phobia and conviction some health catastrophe was about to happen. He told me to get rid of the root cause of the anxiety and get some help doing it and he guessed that # 1 phobia would eventually subside.
KEEP RUNNING! He told me to keep running and doing cardio - he said if there was anything wrong with my heart, stress during exercise would give me preliminary signs than you would normally not have if you weren't. And if I felt fine during exercise, it was a sign to keep doing it and that it was good for me for a number of reasons. He also said if you ever did have true hypertension, meds can only control 20-30% of the problem, exercise is actually a better control system at 30-40% and said you are already doing it and it works as a preventive system. He also said you would not have normal readings here and there if you had true hypertension - your BP would be high all the time no matter if stressed or happy, etc, which is not the case for me.
I followed each recommendation to a T in the last six months and I can say I feel a ton better. 1) getting rid of the machines has helped me regain control of my life. 2) I am doing CBT to deal with the OCD and health anxiety triggers without or trying to avoid taking any meds - this helps a lot and it is natural - it does take time and it is considered to treat PTSD. Basically, my doctor told me that the culprit of all those physicians/nurses panicking when seeing the high BP number has triggered a series of events in my head that cause me to panic simply at the sight of a BP machine. It's unfortunate, but it is true. In this case, it is worse feeding the panic and conitinuing to measure BP when you know it will be high and you won't have a good sense of your hypertension factors. 3) I doubled down on the exercise and I quit monitoring my heartrate or anything that would cause me to go into a panic. Basically, eliminate all possible triggers until they have subsided and your mind goes back to its original state of interpreting them as they should be.
I am not out of the woods yet, but I feel a ton better. I have come off the benzos, which are also poison, I haven't had a panic attack in 6 months...sure I haven't taken a BP reading in 6 months either, but that simply tells me that the BP machine had a lot to do with my panic and I feel healthier in general. Not out of the woods, at all, but it's the best shape I have been without taking any treatment or relying on any meds to make me feel better.
There are a lot of stories like mine out there - I just wish doctors and nurses were a bit more educated on the triggers of mental health disorders and a bit better trained on how to respond in each context rather than freaking out about a stupid high BP number when the patient is clearly in distress...
Sorry for the long post, but I hope everyone takes this story as an example of the full journey I have been through, with the hope it can help and/or relate to anyone else in similar conditions.
Thanks!
M
mubarak94664 menzo
Posted
Thank you Benzo for the time you took out to write this, this means alot. I have actually gone a long way since this. I would say i'm generally better mentally and my health has been pretty good bar some bad days now and then. I've probably just had like one panic attack in like 2 years and that happened due to a really rough time in my life because i had a break up from a 5year old relationship. That event took it's toll on me. It's been over a year but that has gotten me so fragile psychologically. I have good days but some days when things aren't going my way i don't have it easy. Right now in this COVID19 times things are so difficult. Life just feels really scary. I hope everyone out there suffering some sort of mental health issue finds it easy in the coming days
rob55013 menzo
Posted
Hi,
I am right now dealing with exactly same issue, i am sleeping with my bp machine and i am keep checking my bp almost all the time, its horrible and difficult for me to give up this right now, my bp range under amlo and ramipril is from 97/66 to 140/90. When i get panic attacks my bp is 170/100. I have a health anxiety issues and phobia from doctors and hospitals too. I am oversensitive which is even more difficult for me especially when in my family runing so many medical problems from hbp to cancers etc. I have been in hospital for all possible tests which came back negative, my blood test negative except my cholesterol which was slightly higher, for that reason i get to the extreme diet and exercise regime that i was unable stand up from exhaustion and calorie deficit. I went so bad that i lost 42lb in 4months which is too much too fast. All this from fear of cholesterol and overweight connection with bp fear. My bp is so low now that i am dizzy very often, depressed all the time, tremors and anxiety and all that. I am trying CBT techniques, but still it's a big fight between me and bp threat which will probably take some time and so far bp machine is still winning... At doctors office my bp is always much higher. Even with my bp being low or normal-ish now i still can't stop from taking a measurement. Its horrible psychological issue, i cant think straight it definitely interfere with my daily life, because i cant concentrate on normal things in my life. It helps me lot to read your stories it brings me sort of a relief and ease with hope that i can fight this too. Thank You.