1. Community
  2. Women's health
  3. Lichen Sclerosus

Hope for the future

Posted , 13 users are following.

deb09833
deb09833

Hi - I have been sitting here crying whilst reading these discussions. I have had LS since 2009. I am up to my 4th gyro and after the current one split me this week and for the second time gave me a printout and incorrect script sent me on my way. I can no longer have Pap smears because I tear so easily. Someone must be looking over me because the thought for looking up support groups has never been suggested and I feel like I have been given a chance to not feel so alone. I will definitely try baking soda - thanks guys you have made my day - by the way I am also an artist, mainly oils. Any one on this site from Brisbane? 

4 likes, 49 replies

49 Replies

Prev Next
  • margaret289
    margaret289 deb09833

    Posted

    Coconut oil between application of strong steroid ointment (Dermovate in UK - Clobestaso elsewhere) works well for me.  If you are being prescribed cream(even Clob) DEMAND that they give you the ointment instead.
    • kate207
      kate207 margaret289

      Posted

      Hi Margaret, i just want to point out that ointments arn't always better for everyone - I always get really sore with Dermovate ointment but am fine with the cream, and the same for the over the counter hydrocortisone cream which I use most of the time. It's a case of whatever works with this cofusing disease!

       

    • margaret289
      margaret289 kate207

      Posted

      The problem is that cream used in area that sweats will be 'washed off'.  It's a tricky one.  it is very unfortunate that is doesn't work for you.
    • mborr
      mborr margaret289

      Posted

      Hi Margaret.. I was browsing for coconut oil.. but the only one that I found would be for the hair... what is the brand name.,... and where should I found it.

       

    • margaret289
      margaret289 mborr

      Posted

      I honestly can't remember.  I tend to decant from a large jar into a smaller one I can carry around with me and this hasn't the name on it.  You can find it in most health food shops.  It seems quite expensive, but you need very little.  It tends to become solid if it gets cold and softens in the heat.
    • hanny32508
      hanny32508 mborr

      Posted

      The brand name on my jar says: SOLEIL D'OR

      Product fo Philippines   100 % Organic

      Hope this helps mborr.

  • Guppy007
    Guppy007 deb09833

    Posted

    Hi Deb, Welcome!..I'm an Abstract Artist!.....  there appears to be a lot of us on this site!

    Morrell is correct regarding the Glob, I was diagnosed around March time this year, I used the cream for a WEEK, and then forgot about it, only recently did I realise the error of that as I have had some fusing going on..the best advice I can give you is to buy a small magnifying mirror and keep a regular eye on your undercarriage..

    Glad you found us.

  • Guppy007
    Guppy007 deb09833

    Posted

    Hi Deb, Welcome!..I'm an Abstract Artist!.....  there appears to be a lot of us on this site!

    Morrell is correct regarding the Glob, I was diagnosed around March time this year, I used the cream for a WEEK, and then forgot about it, only recently did I realise the error of that as I have had some fusing going on..the best advice I can give you is to buy a small magnifying mirror and keep a regular eye on your undercarriage..

    Glad you found us.

    • deb09833
      deb09833 Guppy007

      Posted

      I have started to fuse. I am going to see if I have any success with bi carb and a few other suggestions. I have not been able to stop clob for 5 years just reduce from twice a day to every second day or more if I have a flair up. The thing that really amazed me was the way the gynaecologist told me. At the moment in Australia there are adds on TV telling us to look out for one another if you see someone not coping - I think some of the medical profession should be skilled in how to do this. Thanks for the advice - undercarriage will be closely monitored!
    • Morrell1951
      Morrell1951 deb09833

      Posted

      Did you also get a prescription for estrogen cream? I couldn't handle the side effects, but some say it prevents or even reverses fusing. Though I suspect not in post-menopausal women.
    • margaret289
      margaret289 Morrell1951

      Posted

      i tried estrogen cream but had to wash it off it was so irritating.

       

    • hanny32508
      hanny32508 Morrell1951

      Posted

      Morrell, I have been prescribed the use of Premarin, but it caused swelling, as I already knew;  now I use Bi-est, which works fine.    
    • Morrell1951
      Morrell1951 hanny32508

      Posted

      So some of us can handle some kinds... Maybe Deb could try one...
    • deb09833
      deb09833 Morrell1951

      Posted

      Went to dermatologist as my gyno told me to and she took me off estrogen. So the gyno gave me grief about this. Back on Ovestin as of this week. Previously though this didn't achieve too much. A compound called estriol (I think) used to be great. 
    • hanny32508
      hanny32508 deb09833

      Posted

      And estriol is supposed to be made by the adrenal glands after menopause to make the transition easier.  Wasn't it something like that? Or was that estradol?
    • deb09833
      deb09833 hanny32508

      Posted

      Will have to get back to you on that. I need to go and get a new script
Back to top
Prev Next

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.