Horrible head pressure/ swaying feeling!!

Mary,

gluten free can help. But don’t expect to see quick results. As well, you may need a higher dose before things improve, so keep getting tested and share your results here for insightful advice.

Hi Mary. Thanks for your reply and sorry to hear you're feeling just as rotten.

Do you mind me asking how your head has been feeling? As it's this symptom that's really getting me down at the moment. Have your doctors suggested anything for it? Or is it just part of getting used to the tablets? 

I had to go to doctor on an emergency appointment yesterday as I felt so bad I was feeling so down. Head and eyes really bad. Had been using optrex. Was told to go get my eyes tested. Then asked did I want to stop tablet. More confused than ever. Going to wait till January and if I’m no better I’m going to a private consultant as I don’t think GPS know enough about how bad you feel with this problem. I have had back surgery and would go through it again rather than deal with how I’m feeling at the min. Cried all day yesterday.

Dave, Emma has only been on levo for 6 weeks and is due bloods / tests results now

My TSH levels have come up into normal range 2.36.. So my low does she seems to be working at the moment? 

Doctor couldn't find reason for this horrible head other than she may think it's down to anxiety/ tension after all this worrying and my body getting used to the tablet? 

She could be right. When I was first diagnosed I developed health anxiety which took a grip on me. I didn’t realise at the time but looking back it made me very ill. Constant headaches, chronic pain. I wasn’t sleeping due to worry. Then one day I thought I’ve got to get a grip and sort myself out. Once I did I began to relax more and the chronic pain disappeared, the headaches stopped. Then I started to sleep better which helped loads . 

I myself, had the same experience with anxiety before being put on levo.  The hypothyroidism made my anxiety 100 times worse.  I too, would get migraines, and my whole body felt sore.  My muscles would just be so tight all the time and my mind would not turn off.  Anxiety can literally make your mind and body sick.  It was definitely a terrible time in my life.

I too Jennifer done the same.. I spent so much time worrying about my symptoms that I felt ten times worse.. so now I tell myself I don't have nothing wrong with me (and started taken coconut oil ) I feel a 100% although i do keep getting a stuffed up nose(is this a symptom?)

Yep, stress caused me so much chronic pain and tension. And it put my hormones out of whack even more. 

I also take coconut oil and apple cider vinegar.

Sinus infections are linked to thyroid issues. I suffer from them. Having a flair up at the moment

How can you stop these sinus flair ups? Do you feel better since taking coconut oil? Ive also started taken apple cider vinegar in tablet form x

Rita it is tough to know sometimes what is causing those symptoms, because while they could be from the medication they could also be from hypothyroidism, which causes very similar symptoms.  What were your latest lab results?

Omg Im sitting here crying my eyes out because I am soooooo majorly depressed. I found out with the last 2 yrs i have an underactive thyroid. My dr put me on levo 25mcg at first waited 3 months did nothing much. Went back for lab work Dr put me on 50mcg and I was finally feeling better. However Shortly after the new year I tried a weight less medicine(phentermine) that i was only on for 3 days before I had to stop because my heart was fluttering and my blood pressure was easily 250/114. It also caused this feeling you ladies are talking about with the head. Foggy, blurred vision, light headed, face pressure etc. I have been on different blood pressure meds because my dr couldnt get it regulated. It was causing low potassion, It was causing it to drop to low cause irregular vaginal periods etc. THESE LAST ALMOST 3 MONTHS HAVE BEEN COMPLETE HELL. I had to quit my job, because of the symptoms my high bp had caused as well of major panic and severe depression. I finally got a referal for an endocrinologist. I can not get seen until August. I feel like I will go crazy until then and I dont know what else to do. I am a 36 year old mom of 3 kids and am scared Im going to die EVERYDAY it is so horrible and scary. Last labs my doctor did my thyroid level was 3.7 I know its leaning more to needing a med adjustment soon but my doctor tried 75 mcg and I think it might have been too much as I had like this burning feeling in my throat and my heart was racing. I feel completely hopeless.

You might want to ask your doc for a mild sedative to help with the anxiety and depression. May help with the high blood pressure as well, and get you through to August.

Just a thought if you don't get enough selenium your T4 won't be converting to T3. Also Levothyroxine will elevate your blood Pressure. Confirmed on Mayo Clinic site

My Kidz, I know exactly how you feel.  Try to relax, it can and will get better.  I am finally getting my thyroid problem sorted out 2 years post diagnosis and I feel WAAAAY better. 

A TSH of 3.7 is most likely still too high for you.  Adjusting to the medication increases always threw me for a loop for a week or two, I experienced some minor palpitations and brutal migraine headaches afterwards.  But that would subside and I would notice that a symptom or two that was related to my hypothyroidism would also disappear.  I am now on 88 mcgs of Tirosint and doing mostly well. 

As Dave suggested you may need an anti-anxiety medication during the interim.  I found that Ativan worked well for me, I only had to take a small amount and I felt better almost immediately after taking it.  

You have to do what you need to do to regain your health, physically and mentally.  With time you can, but the road can seem long.  You will get there.

Rita,

I hope things have gotten better for you. I was extremely sick at first also and wondered how I could even get through another day. But very slowly things improved. I changed my diet, yoga, got on effexor for anxiety and depression and garden. I maintain friendships and work 2 teaching jobs. Its a struggle every day because I do not know how I will feel from day to day. Dont give up there are others going through this also and it helps to learn what they do to help ease symptoms or get through each day.