How long (average) does it take for Graves' disease to go away
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Hi, I'm a 16 year old girl and I've just been diagnosed with Graves' disease (2 weeks ago) and so I have an over active thyroid. I've been feeling so ill for ages with fatigue, headaches, sweating and not being able to control my body temperature, anxiety and panic attacks and getting little to no sleep at all. I'm now taking 30mg of carbimizole and beta blockers and have been referred to the endocrinologist. I've just started sixth form and I have already had to miss half a term because of my Graves' disease and it's just really starting to get me down a lot and from what I've been reading, it seems like it takes quite a while to get rid of Graves' disease so I was just wondering if anyone had any idea how long it'll take for my Graves' disease to go away, thank you!!
2 likes, 50 replies
daku98791 Lou0214
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Can somebody guide me what they mean?
daku98791
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karen30256 daku98791
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I am unsure what all the blood results signify but I am sure someone on the Forum will answer your queries.
I assume that the Toh you mention is the equivlent of TSH.
If it is then my limited knowledge tells me that it is high. I understanf that a high Tsh Indicates an underactive thyroid.
Sorry that I cannot be more helpful.
Take care
jennifer91695 daku98791
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Sheepmama daku98791
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Carol
june_84727 Lou0214
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Sheepmama june_84727
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steven07999 Lou0214
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I was doing some research on Graves Disease and I found a fair amount of the symptoms are similar to mine, my heart rate was not as high, and eyes were burning.
I was diagnosed in the beginning of May. My original weight 6 months ago was about 200 lbs, at the time I was diagnosed I was a little under 140.
Main question is with my weight loss, I have pretty much no strength, I get fatigued easily. Worst to this I believe I lost my job I had 6 months ago due to the sleep disorder. I staying awake 24 hours and then I did sleep I would be asleep 12-16 hours. I had problems with urinating as well (Iam male)
Burning, pain, and stopping and starting, thin stream.
As for the job loss, I am still not working and I am trying to determine when it is safe to start looking for work.
I just do not want to take job and I have to tell them I am going to have multiple doctors
Over the next few months.
Any info is greatly appreciated
Steve
alicia62220 Lou0214
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Hope you are well now as its been 4years since you posted
joanne1977 alicia62220
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I was 35 when diagnosed with graves. I had symptoms of a thumping heart at night. I knew something was wrong. Went to my gp amd nearly sent me to hospital as I was suffering toxic storm! I was so scared. But I refused and waited until I saw my consultant. Had blood tests before. Saw my consultant who stated I start carbimazole straight away. She then rang me that evening asking if I had already started carbimazole before I saw her as my bloods came back at a lower reading, they had halted! She reduced my medication to half the original dosage. Finally I became back to normal range. Been in remission for 2 years. Then just had test 3 months ago....i was borderline overactive. Retest in 3 months....its back to normal. I'm one of those where a simple virus can effect my Thyroid.
Jenisa Lou0214
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jjuicyllucy Jenisa
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lana07849 jjuicyllucy
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Sheepmama Lou0214
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calli37597 Lou0214
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Two years ago, my husband was feeling very ill, extreme fatigue, his heart rate was high (even at resting it was over 100 bpm). He went to a doctor who took some tests and said he had the flu (even though the test was negative, but he said those tests are not always accurate). I was just about to leave for a 3-week immersion yoga teacher training and was going to cancel but he told me since the doctor said it was the flu, he would stay home from work and rest and no need to cancel. I returned a week later for our one-day weekend and he looked awful, had dropped weight to 120 lbs, said he couldn't sleep since heart constantly in over-speed and he was monitoring it with a heart-rate monitor (as he bicycles as a hobby) and still high rate. He was too tired to even cook (he normally likes to cook for us as years early he discovered he had allergies to gluten and dairy and other foods) and couldn't even walk to the mailbox. For training, I had to write a paper on the endocrine system and being the geek that I am, researched which directed us to insisting he go see an endocrinologist which he had to first get a new GP since only can be referred to a specialist. So it took more than two months for him to even see the endocrinologist HOWEVER, we were blessed because Dr. Amy Myers, functional medical doctor from Austin, TX was just about to release a book later that month (Sept) on "The Thyroid Connection". I was messaging them if any chance to get it sooner, but at least the book arrived on the second day. For those with any thyroid issues, I'd highly recommend getting that book. It's a life changer!! Dr. Myers got Graves Disease when she was in medical school and her mom was dying of cancer -- complete stress. They followed the typical protocol and she had her thyroids removed. She realized later that it could have been avoided and the book is broken into different sections. The first part explains the scientific/medical part (pretty easy read). The next section provides the foods to avoid and the foods to eat. It even has actual recipes. Due to shellfish allergies and nuts and other foods, my husband's diet is a bit more limited but even two years later, he is following the same breakfast meal. The last section is another so important part. It lists the lab tests that you'll need to have AND the actual letter you will need to have your doctor read and/or write as they will be trained to follow certain protocol and therefore NOT know to get the other blood tests.
My husband faced this problem with his (new) GP who thought the doctor/book was a quack and I was there and stated, she has a medical doctor degree, and now a functional medical doctor. I had to be quite insistent as even when my husband asked for the tests, the doctor basically stated, there's no reason to do that, and it's just a waste of time and money. SO, since you are tired/fatigue, it may help to have someone else with you during your appointment to help advocate. We brought the book.
When he was finally able to see an endo, as it took several months (for new patients), the Dr looked at the blood tests and even said, you should have seen me sooner . . . seriously?!?! Yeah, we tried. Good news is, we were already following the recipes, but his heart rate was still very high. After having a sonogram (I think) to look at his thyroid, to count out cancer, the doctor diagnosis stated Graves disease and my husband had to be put on two meds -- one to lower the heart beat and the thyroids. There were the other options too - radioactive iodine (which my husband's sister who is in the medical field was pretty insistent on too, but since my husband is an endurance cyclist, he didn't want to need to rely on synthetic thyroids as it wouldn't be able to adjust to when he's riding or not). So the doctor was willing for us to use the diet, and be on the two meds, but as he progressed, he was able to drop the heart meds within a month, and then start decreasing the thyroid-blocker dosage (sorry, I don't recall the meds names). By six months, hubby was able to be off ALL the meds and he's fine now.
In fact, the only reason why I've found this site was due to me going on-line to find out what his route will be tomorrow. He's leaving for another 3-day charity bike ride for Alzheimer's that will go across the state. This is his second year, so he did it last year too. I was searching to see if there was any Thyroid or Graves Disease forum or organization, since for the alz had examples and requests for various volunteers.
Graves disease will be part of you, but it isn't you. You can lead a normal life once you realize what may trigger it. He may have picked up mold when he was in Europe for work that year, but his immune system probably was low to begin with, since as a child he had very bad asthma, and certain food allergies (and his dad smoked). He had been pretty good about trying to maintain a healthy stress level, as he was the one that got me started on yoga way before, but in hindsight, both of his parents have digestive/intestinal issues . . .
I hope you are encouraged that you can find a way to take control of this -- with food. We didn't realize that a lot of what he was eating before, that was gluten-free, was not good for him. Yeah, he's still GF and needs to be, but as you read, he's back to riding. I highly recommend getting Dr. Amy Myers' The Thyroid Connection book. She may have certain products she sells. My husband did purchase some of them initially, but isn't exclusive -- as he's looking for supplements or powders that will allow him to ride several hours/miles.
lin67069 calli37597
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Thanks Calli for sharing your husband's experience of fighting with Graves disease. I have been diagnosed as well about 2 years ago and since then have been on medication (Methimazole). I started at 2 bills a day and now is only at 0.5 bill, TSH is back to normal so as T3 and T4. Your message let me feel uplifted and certainly I will read the book you suggested, thanks again. Lin