How long (average) does it take for Graves' disease to go away

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Hi, I'm a 16 year old girl and I've just been diagnosed with Graves' disease (2 weeks ago) and so I have an over active thyroid. I've been feeling so ill for ages with fatigue, headaches, sweating and not being able to control my body temperature, anxiety and panic attacks and getting little to no sleep at all. I'm now taking 30mg of carbimizole and beta blockers and have been referred to the endocrinologist. I've just started sixth form and I have already had to miss half a term because of my Graves' disease and it's just really starting to get me down a lot and from what I've been reading, it seems like it takes quite a while to get rid of Graves' disease so I was just wondering if anyone had any idea how long it'll take for my Graves' disease to go away, thank you!!

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  • Posted

    Hi. I was diagnosed with graces in December 2014, have been on carbimazole since then. My report now reads t3 2.65 (2.3-4.2) t4 1.02 (0.89-1.76) toh 10.549 (0.550-4.780). Have yet to see the doc after these results.

    Can somebody guide me what they mean?

    • Posted

      I am 29 year old female

    • Posted

      Hello daku

      I am unsure what all the blood results signify but I am sure someone on the Forum will answer your queries.

      I assume that the Toh you mention is the equivlent of TSH.

      If it is then my limited knowledge tells me that it is high. I understanf that a high Tsh Indicates an underactive thyroid.

      Sorry that I cannot be more helpful.

      Take care

       

    • Posted

      Hi daku, your T3 and T4 will often read normal with your TSH so high. You need to get back to the doctor and find a good endocrinologist. I myself am a nurse with graves. It really does suck.
    • Posted

      Hi there,  I have no idea!  My bloodwork shows the Thyroid functions. Mine have been high because of the Graves disease.  Did you go to your Dr?  They should explain. 

      Carol

  • Posted

    HI I WAS DIEGNOSED WITH GRAVES DISEASE 20YRS AGO THEY PUT ME ON TAPZTAPtaTAPZOLE.BUTVOBLY TOOK THUS MED FIR MAYBE A YWAR THEN QUIT AND DID NOTHING FOR YEARS BUT I ATE ERR A W GARLIC EVERY. OTHER DAY AND STILL SMOKED CIGS AND DID OTHR THINGS AND MY GRAVES DISESE IS GONR MY T NG YROID I S NORMAL
  • Posted

    Hello,

    I was doing some research on Graves Disease and I found a fair amount of the symptoms are similar to mine, my heart rate was not as high, and eyes were burning.

    I was diagnosed in the beginning of May. My original weight 6 months ago was about 200 lbs, at the time I was diagnosed I was a little under 140.

    Main question is with my weight loss, I have pretty much no strength, I get fatigued easily. Worst to this I believe I lost my job I had 6 months ago due to the sleep disorder. I staying awake 24 hours and then I did sleep I would be asleep 12-16 hours. I had problems with urinating as well (Iam male)

    Burning, pain, and stopping and starting, thin stream.

    As for the job loss, I am still not working and I am trying to determine when it is safe to start looking for work.

    I just do not want to take job and I have to tell them I am going to have multiple doctors

    Over the next few months.

    Any info is greatly appreciated

    Steve

  • Posted

    Im 25y.o female first diagnosed with graves disease at 19y.o, i was around 60kgs loosing 2kgs a week and went down to 49kgs at my lowest. Ive had thyroid issues since but all in all it hasnt been graves disease, it seems when i get really sick (flu) my thyroid will go over active but it seems to go back to normal after a few months. In the process tho i am still on beta blockers as graves disease has affected my heart rate. I now always suffer from tachycardia i never got the buldging eyes thankgod. But i do have a enlarged thyroid. Now my weight fluctuates between 58-55 weekly. I have told my thyroid specialist if it were to come back i would like to habe mine taken out as the feeling of graves is unbearable.

    Hope you are well now as its been 4years since you posted

    • Posted

      I was 35 when diagnosed with graves. I had symptoms of a thumping heart at night. I knew something was wrong. Went to my gp amd nearly sent me to hospital as I was suffering toxic storm! I was so scared. But I refused and waited until I saw my consultant. Had blood tests before. Saw my consultant who stated I start carbimazole straight away. She then rang me that evening asking if I had already started carbimazole before I saw her as my bloods came back at a lower reading, they had halted! She reduced my medication to half the original dosage. Finally I became back to normal range. Been in remission for 2 years. Then just had test 3 months ago....i was borderline overactive. Retest in 3 months....its back to normal. I'm one of those where a simple virus can effect my Thyroid.

  • Posted

    My journey started in 2013 when I suffered with dry eyes, intolerance to bright lights and severe headaches. Referred to opticians and eye clinics but no diagnosis, I felt I was going mad after 2 years of GP telling me they couldnt find anything wrong! I gave up and tried to self heal. Then in 2015 I was getting hot flushes, insomnia and mood swings put it down to early menopause even though tested and GP said I wasnt. The crucial moment came when I was losing weight from 8 stone to 6 stone rapidly, despite having cravings for sweet food and drink, my eyes bulged, hair falling out in clumps. Energy levels up and down, and hand tremors. When my husband and son urged me to see my new GP. He sent me immediately for blood tests and before i got home he was calling me to say he needed to see me urgently. I attended and was diagnosed with graves and overactive thyroid! The relief that I wasnt going loopy and I was very ill. My doctor said my throid levels were the highest he had seen, average high levels were 4.0 mine were 9.6. In fact he was shocked I hadnt gone into cardiac arrest as my heart rate was extremely fast! I was verging on organ shutdown. He presctibed me carbamazole and propropanol beater blockers, remained on this for a year, but it just agitated my thyroid more and my head, neck and eyes swelled to the point I struggled to breath at night as my goiter was putting pressure on my windpipe. I couldnt recognise myself in the mirror, to the point no one recognised me. I began to feel every day took courage to see it through. My consultant and Gp decided the treatment wasnt working and I was added to an urgent list for surgery. 4 weeks later on july 23rd I had a total thyroid removal. It was the best thing to ever happen. I feel so much better now. As for my eyes well they are much better, although not 100%, I see the normal me returning everyday. I can feel my eyes morphing back into the sockets which is a strange feeling. I do find eating berries with flax seed help immensely to the point i now batch make energy bars containing these ingredients and eat these for breakfast. Yes I have to take thyroxine for the rest of my life but its a small price for feeling as great as I do!!
    • Posted

      So glad you are feeling so much better. I still have a long way to go yet. I have become sensitive to carbimazole so can no longer take that so have been put on propylthiouracil. So far so good after 2 weeks of taking this medication. I only hope for an outcome as good as yours. Thank you for sharing your wonderful story and giving me a glimmer of hope xx
    • Posted

      Hi I have just been diagnosed with haves dieases just wondering how you are getting on with you medications and could tell me a bit more about it x
  • Posted

    I have been researching Graves and fiund it is an autoimmune disorder and never goes away. It goes into remission but does not go away.  I have Graves abd have just been diagnosed. I am seeing a specislist who gave me a beta blocker and another pill to help my thyroid. My blood work is a mess.  I see a surgeon next week to discuss removing ny thyroid because I have had cancer and I do not want to risk it returning in my thyroid.  My eyes are swollen and very sensitive, especially to light.  I slept most of March. I am feeling some better these days because if the meds.  This disease is hard on our bodies because Thyroid controls your organs.  God bless you all who suffer with thyroid disease. 
  • Posted

    Two years ago, my husband was feeling very ill, extreme fatigue, his heart rate was high (even at resting it was over 100 bpm).  He went to a doctor who took some tests and said he had the flu (even though the test was negative, but he said those tests are not always accurate).  I was just about to leave for a 3-week immersion yoga teacher training and was going to cancel but he told me since the doctor said it was the flu, he would stay home from work and rest and no need to cancel.  I returned a week later for our one-day weekend and he looked awful, had dropped weight to 120 lbs, said he couldn't sleep since heart constantly in over-speed and he was monitoring it with a heart-rate monitor (as he bicycles as a hobby) and still high rate.  He was too tired to even cook (he normally likes to cook for us as years early he discovered he had allergies to gluten and dairy and other foods) and couldn't even walk to the mailbox.  For training, I had to write a paper on the endocrine system and being the geek that I am, researched which directed us to insisting he go see an endocrinologist which he had to first get a new GP since only can be referred to a specialist.  So it took more than two months for him to even see the endocrinologist HOWEVER, we were blessed because Dr. Amy Myers, functional medical doctor from Austin, TX was just about to release a book later that month (Sept) on "The Thyroid Connection".  I was messaging them if any chance to get it sooner, but at least the book arrived on the second day.  For those with any thyroid issues, I'd highly recommend getting that book.  It's a life changer!!  Dr. Myers got Graves Disease when she was in medical school and her mom was dying of cancer -- complete stress.   They followed the typical protocol and she had her thyroids removed.  She realized later that it could have been avoided and the book is broken into different sections.  The first part explains the scientific/medical part (pretty easy read).  The next section provides the foods to avoid and the foods to eat.  It even has actual recipes.  Due to shellfish allergies and nuts and other foods, my husband's diet is a bit more limited but even two years later, he is following the same breakfast meal.  The last section is another so important part.  It lists the lab tests that you'll need to have AND the actual letter you will need to have your doctor read and/or write as they will be trained to follow certain protocol and therefore NOT know to get the other blood tests.

    My husband faced this problem with his (new) GP who thought the doctor/book was a quack and I was there and stated, she has a medical doctor degree, and now a functional medical doctor.  I had to be quite insistent as even when my husband asked for the tests, the doctor basically stated, there's no reason to do that, and it's just a waste of time and money.  SO, since you are tired/fatigue, it may help to have someone else with you during your appointment to help advocate.  We brought the book.

    When he was finally able to see an endo, as it took several months (for new patients), the Dr looked at the blood tests and even said, you should have seen me sooner . . . seriously?!?!  Yeah, we tried.  Good news is, we were already following the recipes, but his heart rate was still very high.  After having a sonogram (I think) to look at his thyroid, to count out cancer, the doctor diagnosis stated Graves disease and my husband had to be put on two meds -- one to lower the heart beat and the thyroids.  There were the other options too - radioactive iodine (which my husband's sister who is in the medical field was pretty insistent on too, but since my husband is an endurance cyclist, he didn't want to need to rely on synthetic thyroids as it wouldn't be able to adjust to when he's riding or not).  So the doctor was willing for us to use the diet, and be on the two meds, but as he progressed, he was able to drop the heart meds within a month, and then start decreasing the thyroid-blocker dosage (sorry, I don't recall the meds names).  By six months, hubby was able to be off ALL the meds and he's fine now.  

    In fact, the only reason why I've found this site was due to me going on-line to find out what his route will be tomorrow.  He's leaving for another 3-day charity bike ride for Alzheimer's that will go across the state.  This is his second year, so he did it last year too.  I was searching to see if there was any Thyroid or Graves Disease forum or organization, since for the alz had examples and requests for various volunteers.

    Graves disease will be part of you, but it isn't you.  You can lead a normal life once you realize what may trigger it.  He may have picked up mold when he was in Europe for work that year, but his immune system probably was low to begin with, since as a child he had very bad asthma, and certain food allergies (and his dad smoked).  He had been pretty good about trying to maintain a healthy stress level, as he was the one that got me started on yoga way before, but in hindsight, both of his parents have digestive/intestinal issues . . .

    I hope you are encouraged that you can find a way to take control of this -- with food.  We didn't realize that a lot of what he was eating before, that was gluten-free, was not good for him.  Yeah, he's still GF and needs to be, but as you read, he's back to riding.  I highly recommend getting Dr. Amy Myers' The Thyroid Connection book.  She may have certain products she sells.  My husband did purchase some of them initially, but isn't exclusive -- as he's looking for supplements or powders that will allow him to ride several hours/miles.

    • Posted

      Thanks Calli for sharing your husband's experience of fighting with Graves disease. I have been diagnosed as well about 2 years ago and since then have been on medication (Methimazole). I started at 2 bills a day and now is only at 0.5 bill, TSH is back to normal so as T3 and T4. Your message let me feel uplifted and certainly I will read the book you suggested, thanks again.  Lin

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