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I am in a panic ..please help

Posted , 5 users are following.

dana01327
dana01327

I can't keep living this way, everything I stop the val cyclo virtual I week later it comes back..this time I had a rash under my left breast, 2 weeks ago it was under my right breast...I start the meds asap, because before I caught on to this issue..I was laid up for a week unable to function with stabbing back pain..and Dr's. Refused to diagnose it as shingles because of no rash

1 like, 30 replies

30 Replies

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  • Shoe_Lady
    Shoe_Lady dana01327

    Posted

    I am so sorry. So many dr's don't understand this disease. On their defense, it is very hard to diagnose because so many things could be causing severe back pain. I went to the chiropractor with my stabbing, burning back pain, and once my rash broke out a couple days later, he was hitting his head in frustration. "Of course, he said. Everything you were describing was classic shingles pain. My younger age (42 at the time) and nibrash threw him off completely. I sent you another response to your other entry earlier. I hope you try it.

  • tay56201
    tay56201 dana01327

    Posted

    I'm so sorry, don't give up, please try to get to accident and emergency in any hospital nearby, I'm in similar situation, I'm actually struggling to write this to you from the itching and stabbing pain. Best wishes.

  • dana01327
    dana01327

    Posted

    Thank u oelady I need a lot for support and networking, for I am in tears and alone with my lil pup
  • dana01327
    dana01327

    Posted

    I often feel living in ohio, the onset is not so much stress but severe weather patterns and allergy triggered....I am on val cyclo virtual, aches, lethargic abd feeling weak..and 3 years later no results
  • dana01327
    dana01327

    Posted

    I am often wondering how does a person continue to work and pay bills?..especially since I do hair and it kills your back on a good day...it's been 37 years I have done hair, no benefits, no good health care, no dollar amount justify the when your back hurts and the same people moan and complain about stupid issues..the more I lay here and cry the worse I am feeling..I also noticed I get outbreaks after being on antibiotics

  • Merry19451
    Merry19451 dana01327

    Posted

    Dear Dana,

    First, I am so sorry for your suffering with this disease. Physicians can be abysmally ignorant regarding Herpes Zoster Shingles.

    Herpes Zoster Shingles without the rash is called "Zoster Sine Herpete."

    I think "Shoe Lady" gave you a diet to follow to try and decrease the episodes of Herpes Zoster Shingles. It builds on the idea of the following:

    Google Herpes and follow high Lysine low Arginine diet. Shoe Lady's diet is more sophisticated than this diet.

    I am a Nurse Practitioner in the States and have had Herpes Zoster Shingles in my right ear every three to five weeks for the past twentyone years and twice in my right eye.

    Preceding the pain and rash, the following symptoms can occur: headache, aches and pains, fever, sweating and chills, malaise and fatigue, exhaustion, lymph node swelling adjacent to the rash and pain. When these symptoms occur, that is when you start the Valcyclovir. Do not wait for the pain or rash of shingles, as the antivirals are only helping to stop the replication of the virus.

    My suggestion is that you get a consultation of a university associated neurologist. If you know a registered nurse who can help you with this, so much the better. Ask around.

    May I ask where you live? Are you immunocompromised? Are you under a lot of stress?

    Best Wishes

    Merry Juliana

    • dana01327
      dana01327 Merry19451

      Posted

      HI Merry, I appreciate all of the information from everyone, thank you all, and prayers for everyone to rid of this terrible disease, Merry I live in sagamore hills, Ohio, I am healthy aside from a struggle through the change of life, I was anemic at one point, I had blood work, and showed nothing missing, I take a multi vitamin everyday and juice everyday with spinach, fruits and veggies, I do believe I amet still in a tate of shock on this couch gorgeous 3 days
    • dana01327
      dana01327 Merry19451

      Posted

      Sorry lol..typo on tablet, I am not gorgeous, I am inshock
    • dana01327
      dana01327 Merry19451

      Posted

      Sorry merry for so many posts , my head us all over the board,.yes some stress that I have calmed down from, my boyfriend of 18 years lost his son, so he isn't the same person, mean, bitter, hateful...he refuses help, my son is 28 and lazy when it comes to helping around the house, I have gad my own beauty shop inow home for 37 years..I am exhausted and fatigue, and my 3rd batch of valcyclvir

    • dana01327
      dana01327

      Posted

      I am forcing down sweet potatoes as we speak,, I do need a simpler diet plan , I was eating lot more chocolate because of stress, aside from the chocolate I still juice daily
    • Shoe_Lady
      Shoe_Lady dana01327

      Posted

      Do not eat chocolate of any kind. No cocoa powder, no peanut butter. Very high in argenine. Stimulates shingles. Keep juicing!!!
    • dana01327
      dana01327 Shoe_Lady

      Posted

      Yes i am still juicing ...I'm a mess in tears...tired and stressed pills galore..accidently gave my dog the wrong pill...gave him a flea pill...was supposed to give him heartworm.....praying he lives....I'm a mess...2 flea pills in 12 days

  • dana01327
    dana01327

    Posted

    HI shoelady, I googled high lysebene low arginine , but some said chocolate was a lysene...so now I am quite confused as of what I should eat
    • Merry19451
      Merry19451 dana01327

      Posted

      Dana,

      Chocolate is high in arginine and low in lysine.

      Merry Juliana

    • Shoe_Lady
      Shoe_Lady dana01327

      Posted

      Oh dear!! I have never seen that before, anywhere. Maybe you were dreaming😜

      I will try and find the link of the chart I use.

    • dana01327
      dana01327 Shoe_Lady

      Posted

      Hi merry and shoelady....i am finished with my meds, but now the dr. Has given me one 500 milligram of vacyclovir a da y.For maintenenc i am starting to feel sore again in my lower back and with high himidity i am very tired ..i am so afraid on the maintenence dose it will come back,,,still feeling tingling under m6 right breastboned
    • Shoe_Lady
      Shoe_Lady dana01327

      Posted

      The problem is, it is so hard to tell the difference between PHN and a possible new episode. Most people wwould say m, start another round of the antiviral just in case it is flaring up again. However, PHN causes pain and tingling and it can increase and decrease in severity. This exact scenario is what makes me crazy!!! You are not alone, and unfortunately I do not have a solid answer for you. I am freaked out about taking too much medication, so I always lean towards holding off until I am sure that is progressing into an outbreak. i wish I had a better answer for you. (My mother in law had shingles 30 years ago and she has taken a maintenance dose of 1 a day ever since. She is doing great and does not have any adverse effects from the antiviral)

    • dana01327
      dana01327 Shoe_Lady

      Posted

      Yes shoelady i am the same way, all these pills freak me out too, i am worried vecause i am already on bexium for mt sensitive stomach, And this daily dosage isnt cuttin g it, i feel like giving up, only thing left is to , realized i wont gave a stomach left now....i think it has travelled to my esophagus because about midday its itchy shingles inside...byvthe time i finished work doing hair i was in agony...a lil better this morning , but its suill there
    • christine76458
      christine76458 Merry19451

      Posted

      Hi Merry and Dana,   Christine from NZ here

      I am so sorry for all your problems with this awful virus.

      I have been spared another dose since tallked to you last almost 2 years ago.

      After 5 months mine cleard up but left me still quite dizzy and un balanced. I saw an ENT specialist a year later and had an MRI, which showed noithing un toward in my head., still unbalanced .

      Six months later I got itchy hands and fingers,saw a skin specialist who just diagnosed dematitis or eczema. I have been on prednisone for that, and it has helped.   That was October last year.

      In February  I had a heavy bleed in my bladder and was diagnosed with bladder cancer, I am having treatment for it with OncoTICE .

      I saw my skin specialist this week, and talked with her.

      I asked if the two contditions could be connected and she said YES !

      She often had patients with eczema type problems that erupted before a cancer problem or other illness.

      I know I am a bit off subject, but just thought you might have some insights about it.

      I am hoping if the cancer heals, my skin will get back to normal .

      I hope you are still on the mend and have had no further set backs

      Christine cry

       

    • Merry19451
      Merry19451 christine76458

      Posted

      Dear Christine,

      I am sorry you are going through this with bladder cancer. I do remember you from before, btw. Has the cancer invaded the muscle wall?

      You bring up an interesting point about the body's tendency to show signs of internal malignancy. (besides recurrent episodes of Herpes Zoster Shingles)

      My identical twin and I each developed multiple seborrhea keratosis (ugly brown warty patches) on our scalp one winter, which was highly unusual for us. I knew this was a sign of Leser-Trelat of internal malignancy as my mother had developed these patches on her back prior to her diagnosis of lung cancer.

      I went to a dermatologist regarding the seborrhea keratosis who did not acknowledge the relationship to internal malignancy. My twin and I were diagnosed with the identical breast cancer, at the same time, same location, same tumor markers, same size tumor to the mm, same area of the same breast, three months later.

      I hope your treatment is going well without too many side effects, or at least tolerable effects.. but what are our options, really? My husband and son complain we live in an igloo as I have perpetual hot flashes and 2/3 of my eyebrows are missing, plus some of my hair....I am not a makeup artist, but now have to paint on eyebrows, with sometimes quite hilarious results. My poor 21 year cat lives under blankets to stay warm. I do feel sorry for him. I do look longingly at his plush orange fur.

      Best Wishes in healing

      All my love

      Merry Juliana

    • christine76458
      christine76458 Merry19451

      Posted

      Hi Merry

      Your poor pussy cat LOL

      I am amazed at all you have been through,and come out the other side.

      I hope you are coping as well as you can.  I really admire youand your husband for being so supporting.

      I am so glad you see the connection with rashes and keratosis, it gives me some hope.

      The tumor was stuck to the bladder I think, but not right through the wall

      the procedure was TURBT (19.5) what ever that is .

      I have had 4 OncoTice treatments so far, another 2 to go , then reassement. The side affects are not too bad so far.

      I am not too worried and positive all will be ok .

      It will be interesting to see if the itchies go away .I did have some of those hard crusty keratosis as well, three on my head which I managed to scrape off LOL , just one or two now on my legs.

      I am taking all the vitamins I can, but not sure if they help .

      So nice to talk to you again,I will keep in touch

      Take care

      Hugs Christine

       

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