i feel like im dying

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how can peri make me feel this sick

it started jan 2016 but past 3 months have beem horrible. i wake up at 5am feeling so sick. i am beyond tired everyday all day ( prob cause i dont sleep much ) and my body doesnt feel good. i feel like i am slowly dying and even tho all my tests come back normal ( and i havr had a lot ) that they are missing something thats gonna kill me. my constant upset stomach/trapped air burping/ feeling unsteady when i walk is the worst one, amxiety, feel like i have ongoing flu.

please ease my mind and tell me im not alone. this seriously needs to stop. its putting me into depression

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  • Posted

    how do you feel i am going to be 34 years old and out no where one night i woke up feeling so sick ?? fever chills and body aches i also have anxiety and sometimes i feel like i am

    dying it goes away for a but then it comes back i go the doctor and they tell me its anxiety and that im not having a fever but my whole body feels like i have fever its been going on for a year now & people tell me it sounds like menopause 

    • Posted

      Maria your doctor has no idea ....  if there is anxiety it   Is caused by the stomach issues.
  • Edited

    Hi all. Hope that you are getting some ease or that things are improving. I often think about how your all doing. I'm still struggling on trying to tell myself that I'm not the only person going through all this so I shouldn't moan and feel so sorry for myself. Sending love to you all.

    • Edited

      I think that too ! But I see women my age having normal lives ... where are the women suffering ? locked up at home ? Right now I feel like I’m the only person in my area and within my friends of the same age going through such a TERRIBLE time .

      Thank God for this forum ! I wish we all lived close by it would be great to have support . 

    • Posted

      Yes if only we all lived close then we could of even had a coffee morning once a week and had a good chat and even a good moan... Thank goodness for this forum. All of you are lovely.
    • Posted

      Yes.  Thank God for this forum!!  It drives me crazy that I don’t know anyone that lives near me going through this.  I wonder if they think I’m normal?  Haha.  Prob not.  My son says I look stressed all the time and that I should start drinking to relax.
    • Posted

      I hear ya Lori. That's how I feel. How do other women deal with this and have a normal life. This forum has helped me realize that i am not crazy and not alone. The symptoms are real and it sucks. I finally started taking One a Day womens menopause. They are helping. I would suggust everyone try them. My hair is even healthier. I use to lose so much and now i am not shedding near as much. The hot flashes mellowed a lot too. Not a total fix. But it is helping me.

    • Posted

      That would be cool to be able to meet each other. I thank you all for sharing your experiences.

      I am in Beaverton Oregon...

      If anyone else is in this area..

    • Edited

      I’ve never seen anybody or heard of anybody suffering like this.  But as you see with this forum there are lots of people who suffer.  Where are they ?  Why do they not speak about it ?  Outside the forum I haven’t seen anybody, no matter what age, who suffers like we do.  
    • Edited

      I agree, without this forum we would think that we are crazy.  The worst is if even doctors don’t understand what hell this is.  I assume you all live also in the UK.
    • Edited

      Not that close to where I am.  I live in South East England.
    • Posted

      Ya i had a feeling we are all over the globe. I wish i lived there right now. Lol.

      Ya nothing like feeling like you have a flu bug that won't go away.

      I still am shocked that these vitamins are helping. I know i dont eat the right way... So i am serious... Try vitamins. I think it is the soy... That helps.

      Remember ladies. If it doesn't kill you it makes ya tougher..

      What my father always said anyway...

    • Posted

      Yes thank God for women speaking out on here ! I was sure I had some kind of crippling disease until I read everybody’s posts ! Yes that’s right .... not doctors or hospitals the bloody internet !

      I had NO CLUE it was going to be this bad there should be a government warning for all 40 year old women or women of any age !

      And why isn’t the HRT at least advertised on tv ???? Every other bloody drug is . 

      We are so uneducated and in this day and age this subject is taboo. This is hell and EVERY woman should be forewarned as it can destroy your life . 

    • Posted

      Not heard of that area. I'm in Shropshire would be good if we could all meet but I think we are all really far away. Still we can be there for each other on here

    • Posted

      Yes your right the doctors don't understand or know what we are going through. I'm in the UK yes.

    • Posted

      Yes so true ! I try to talk to other women but I’m sure they’re not suffering like I am as they are working going out and all the rest .

      I’m lying in bed until afternoon managing a bit of tidying up and by 4.30pm some days ready for bed ! 

      Im Trying to warn my friends who have yet to go through the ‘bad part ‘ of this but that’s all I can do .... I’m sure they have no idea I certainly didn’t ! I was feeling great in February so together and level headed but my last period was in December and by April my life as I knew it was over .

    • Posted

      That's about how long it took after I stopped having periods. The HRT helped at first. Then the symptoms came back only worse. It was the side effects.

      The vitamins are helping more then the HRT all the way around.

    • Posted

      No Lori I think you may be wrong on this one. I say the same thing that I think Im the only way whos dealing with this so extreme...No i dont go out, work or do any of those things that I so enjoyed before. I havent been able to even exercise or eat whatever I want. Its very depressing watching my friends take cruises, trips, just enjoying life to the fullest, while i sat here daily going through perimenopause.. I think I am at what you call the "bad part"or at least i hope so. I just want to reasssure you that you are not along.?

    • Posted

      That is why this forum exists to educate, and support all of the millions of women literally who have to deal with this without prior knowledge its absurd.

      We are here to SPREAD THE WORD

    • Posted

      i forgot to add the

      x0x0x0x0

    • Posted

      There are many women out there who are walking around with poker faces TRUST me on this.

      We dont like to show our weakness, and so we pretend everything is OK.

      I see many women almost everyday where i work, and they only rarely open up about it but to the docs yes they do, and its real.

      We women dont like to show it though, its our innate pride, youth and ego that is at stake 

      I wish we could all meet us ladies wouldnt that be awesome

       

    • Posted

      Yes twould be lovely if we could all meet in a nicely 'padded' coffee house ...lol   

      just adding humor to it all, humor helps! 

      xoxo

    • Posted

      Hi Debra

      im from the NW and know your area a little bit years back. My sister lived in Pendleton.

      i take a lot of vitamins as it is but i would give daily meno vitamins a try if you think they help. I will try almost anything once. i think i know which ones you mean.

      LETS MARCH IN WASHINGTON OR BRITAIN EITHER ONE!!

    • Posted

      Yes so to far for coffee lol. Have got some form of my period today but everything that goes with it is so much worse! Madness.
    • Posted

      Ya. It is crazy. I also use cannabis. I think thats always helped me too. Maybe the one ladys son is right. Maybe i need some good wine. Can never sleep more than a hour or 2 max. Always tired. God should have re thought our stuff on that 1st Sunday he rested. Lol...

      I hope you have a good day.

    • Posted

      Hi Debra 

      Interested to know what the side effects of the HRT were for you . I just started on it 3 days ago ... a bit of a headache and don’t feel I’m getting a deep sleep .. some dreams but that’s about it . I do feel the ‘craziness’ that was popping up in my mind has gone and feel more ‘at ease’ not like I’m going insane . 

    • Edited

      Yes the meno vits have helped. But the Trump induced stress is killing me.

      I am having a hard time dealing with it. I want to help all these families. I cant stand whats happening.

    • Posted

      Hey Lori. Ya. I did get a little headache. And because i have trouble sleeping cause my back hurts always. But i did find when i slept i went to dream land. Thought it was kinda nice at first. But then the hot flashes returned real bad. Was always tired and light headed. . found the side effects are the same as menopause symptoms. They just made me feel worse.
    • Posted

      yes it's really affecting the nation . I dont live in the NW right now but it's the same.here where im at in HI ..don't follow news because it's upsetting.

      I gave t hrt a go for several months as well..but felt weirder,worse..so I may look up the vitamins..anything that helps smile thanks for the tip!

    • Posted

      They must be..and I’m probably one too.  I always force a smile when I’m around others.    Even around my husband sometimes bc I feel like he is so tired of me being down all the time.  Well, I’m tired of it too!  Occasionally I will pass someone in the grocery that looks like she might be as miserable as me.  Thank God for you ladies.  I am in a dark place today.  I ruminate about every negative past experience and imagine the worst possible for the future.  I take antidepressants.  What else can I do?
    • Posted

      I would highly recommend getting off the antidepressants. I have suffered with depression since about 1999. I have tried so many meds. They all ease symptons at 1st. Then the symptoms of depression return and are intensified. Then on top of the side effects!! The only time in my life i have ever thought about sucide was when i was on those types of drugs. I find it is something that most victims of suscide have in common. They take anti depressants or anti anxiety.

      Please just know that life can get easier. I know others that say the same. Please hang in there. My depression comes from chronic pain. My back. I injured it at 17. I'm 53 now. 3 back surgeries. I have found that the depression symptons i will aleays have to deal with. But it is so much easier without the meds to make them 10 times worse.

      I feel for you. And i am here for ya. XO

    • Edited

      Yes a good glass of wine or failing that the bottle. I know the feeling I'm always complaining that I'm tired yet struggle to get to sleep once I'm in bed and the night sweats are so horrible. Yes maybe god should of made it better for us women on his rest day. Xxx

    • Posted

      Well we can try to do something similar to that..... via the Internet.  I feel already really close to all of you ... if if we’re geographically not.   ( geographically Im about a  3 hours drive from you)
    • Posted

      we can’t take the worlds problems on ...and let’s stsy away from politics .  I know how you feel though it seems when something happens in the news it affects us so much more during our change .

      I was devastated last week with all the bad news. Especially when you’re depressed and you see that celebrities are too .. when they seem to have loads of money lots of friends .

    • Posted

      Yep. Same here. I was just plugging my blow dryer in next to my bed. The night sweats suck bad. No energy. Always tired but cant really sleep. It's like my thermometer is broken. I am either hot or cold. Feel like I'm always running a fever and i am not at all.

      So weird.

    • Posted

      So true. I have always said.. Money is wonderful. We all need it and want as much as we can get. Have to pay the bills. But it doesn't stop people from suffering. The most important things in life you cant buy. Love. Happiness. Good health.

    • Posted

      Hi Debra

      That was a very heart felt reply to 2ch. I too understand pain i just havent mentioned ittoo much in the meno forums but ive been with neck pain and degenerative issues for about 9 yrs.

      Im 53 also!

      Yes pain will make you depressed for sure, its just a day to day thing. I also tried different antidepressants and they were so creepy i couldnt take the for more than a few days. I feel guilty because different people told me to stay with it and it gets better, but with 

      meno symptoms on top of'

      the mood caused by meno symptoms was too much.

      Yes these drugs are powerful and can cause problems for sure.

      Antianxiety same thing, so many of us need help, and i think noone would take anything if they werent hurting in some sort of way.

      Im without any meds or hrt, just sleep aide when i need it and i break everything in half its ridiculous.

      All the dark and gloom i feel is real and its raw.

      i feel for you and i know also what your going through. when do you turn 54? for me its august!

      x0x0x0

       

    • Posted

      I think there is almost no point talking to other people unless they experience exactly what we are.   JUst think back  a few years ago :  would you ever have been able to imagine what this feels like ??  I certainly wouldn’t .  
    • Posted

      Debra I know what you mean :  you’re very hired and try to sleep .... you wake up in the morning feeling totally shattered.  
    • Edited

      NO Mary you’re not alone.  I also watch peopke every day enjoying life to the full whilst I struggle through the day forcing myself to do my work whilst crying for hours.  I feel with you so much.  And watching others going through extreme fun and trips and dining out in super cool restaurants ..... whilst you have to force your food down your throat..... it’s more than tough and feels unfair
    • Posted

      Oh wow. You do understand. I did try several med for months at a time. They all had the same effect. Some i could only stand for a couple weeks. But after years. I saw the pattern. My kids saw it too. They know me well. But the cloud of depression is always there. Like you said. Real and raw. Like sometimes it is hard to want to do anything. Just being able to focus and concentrate. It feels hopeless and helpless. If you haven't tried vitamins. I wish i would have done more research long ago. I could tell the 1st week. I was feeling better. More energy. Motivation. Actually feeling happiness. And I'm not losing so much hair.lol.. One a Day womens Menopause. Something with the soy.

      How cool we are the same age. I will be 54 in January.

      My daughter is aug. 5.

    • Posted

      Debra, you’re right , this Trump stress is the last thing we need.  Whether for you in the US or for us in the UK,  every day for years it seems you hear nothing but this horrible Trump stuff.   It’s impossible to escape .....hearing the name Trump 10 times per day.  
    • Posted

      I used to love watching the news and being informed    Now news are nothing but horror stories.   
    • Posted

      Yes totally. I dont sleep more then a hour at a time. Just because of pain. So i am always tired. About once a week it catches up to me. I will fall asleep watching tv at 8pm. Sleep for 2 hours. Wake up feeling rested. But then won't be able to sleep all night. And will find myself more irritatable. Last time i slept was about 6 years ago after kidney stone kept me up all night and went to er. I scared the hell out of my kids. Slept for 10 hours.

    • Posted

      Debra you’re so right about the Antidepressants.  It’s hard to stay away from these drugs when there is nothing else to help you.   But they can be disastrous for many people I believe.  .I would never wanto use them.  Since they are used so much the suicide rates have gone up dramatically.  We are suffering enough ..... the last thing we need is to get into an even bigger hell with these horrible drugs

    • Posted

      I couldn’t agree more with your view re Antidepressants.and  you’re view is even from own experience....my views are only from observation of others.     I wrote more in detail about this which is  being moderated.   
    • Posted

      HI Mauiblue I admire you that you are battling through this. WIth added hardship of your neck pain.... 
    • Posted

      That's surprising you are both so close to each other.

      How cool.

    • Posted

      You are so right!! I feel i have the flu all the time. The last 3 months right after my period i get a horrible shore throat for a week or so and then goes away !! Any of you ladies experiencing this because im so scared about it..

      Thank you all of you ladies!!! I dont know what i would of done dealing with all this alone

      Xxxxx

    • Edited

      It is still so hard to believe. He is a sick evil person. I'm not the proud American i use to be. I miss obama. Just fyi.. I am a white woman. Dutch and French on moms side. German and English on dads. American mutt as we say. But in no way racists. What he is doing to childten . mothers and fathers. is tearing my heart apart. I want to go save them all. I have to tune it out. Sports bloopers. Deadliest catch... Music. Anything but the news. But i can't go all day. I have a need to know whats going on in my world. I'm sorry he is also causing stress for you and everyone in the UK. ACTUALLY..EVERYWHERE. ALMOST. LOL...

    • Posted

      Awesome. Thanks Lcat. The more info the better.
    • Posted

      Yes we all agree that menopause is AWFUL that’s why we’re here however we don’t all have the same political views so ... let’s concentrate on supporting each other . 

      It’s the corporations and the banks that run the world anyway so let’s not have another worry. We’ve got enough already !! 

    • Posted

      Exactly ! And I came to this forum to discuss menopause , not politics. 💝

    • Posted

      Yes you’re right .   We can’t change the world anyhow.  So best not to think about it.  No TV News, no radio news, no newspapers, no news on our I phones.  We will be uninformed but happier.
    • Posted

      Yes I do feel like i have the flu and am running a fever. The last weeks been bad. But never a soar throat. Be sure to tell your doctor.

      I am glad this forum is helping you. It helped me alot. Like Kim said. Feels like im dying. Was nice to hear from other ladies experiencing the same. We are not going crazy. It is menopause. And it sucks. I should have had more sympathy for my mom. She is 75 now. No more problems since she was 70...that scares me. Im 53 and dont want to feel this way till i am 70. Or 60.

      Hang on there. Your not alone.

    • Posted

      Thank you Debra.  It helps to know there are you ladies who do understand and care ((Hugs))
    • Edited

      Fyi pam. Lori didn't start it. I did. Sorry... But for me. And i was telling my story. It is a factor. You see i live in the USA. UNDER TRUMP. WHO IS PUTTING FAMILIES IN PRISONS. ABUSING CHILDREN!!!!

      So. Ya. But to bad. Stress is stress. !!!

      I won't reply to you again...

    • Posted

      Hi Debra!  What vitamins do you take.  Just One A Day Women’s?

      I’m in misery pretty much everyday, if you confirm, I’ll eat the whole bottle.  LOL.  Thank you!! ❤️

    • Posted

      So true ! I’ve tried to warn my friends of the same age but I don’t think they get it . I’m telling them to get hormones checked before they CRASH like I did. I can advise but that’s the best I can do . 
    • Posted

      So sorry you are going through that on top of everything else . I can only imagine the pain. Can you workout ? Anything ? 

      I find my mind lifts and aches and pains go when you build some muscle . 

    • Posted

      Hello Jamie. Yes. The One a Day womens Menapause formula. I was shocked! The 1st week. I had more energy. Just fealt more balanced all the way around. The hot flashes decreased big time in frequency and intensity. I found myself wearing make up again. Even eye make up. And i noticed i was not losing near as much hair. I got off my routine of taking one everyday with dinner. And after about a week of taking them only every other day. The flu like feelings and hot flashes returned quickly. The last week has sucked. Lol. I took one 2 days in a row now. And even if i have to eat some crackers with 1. I will take it every day. I sure hope they help you the same.

      😃

    • Posted

      No real exercise. Just what i do at home. Climbing stairs and playing with my kirby. Some days are better then others. But that is great advice. I need to join a gym.
    • Posted

      Oops!!! Didnt mean to touch your heart. Only 2 likes... I take mine back...but it won't let me.

    • Posted

      No. It is the leader of the country. The banks and corps just fund who they want...just fyi. Trump runs this place.
    • Posted

      Also ladies if the hrt doesnt work. Or help you. I have heard that the bio identical therapy does help some. They text your hair. And i guess determine exactly what one needs. I know my insurance doesn't cover it. But it is how people with money do it. Many women celebrities go that route.

    • Posted

      I tried BHRT for 3 weeks and  nothing . No difference whatsoever and in fact my dizziness and fatigue was worse. On HRT now 3 days as just had enough of not feeling normal !!!!
    • Posted

      THANK YOU!  I know everyone is different & no two things work the same on some folks....but because of you, I just bought 2 boxes.  

    • Posted

      Hi Jamie. Well i sure hope you get the same relief as i did. Lol. I started with just one box. Your not messing around. Let me know.

      Have a nice night.

    • Posted

      absolutely. I do not have mental reserves for all of the ugly horrible things going on,,i try to but its so upsetting

      what happened last week with the two celebrities suicide hit me hard,, really hard. its haunting. I know now i for sure i could never do that..I want to live feel normal, and live for my kids, it was a real eye opener for people in general as the population of depression, anxiety has super skyrocked  in the last 9 yrs the studies show..

      im glad your here on the foruma and everybody else..its a hard hard cross to bear..

      and im going to say it again

      twere it a mans condition it would have been SOLVED years ago..

      x0x0x0x0

       

    • Posted

      i do take many supplements but i would like to try this forumula because its got everything in it.

      thank you for offering this support to us ladies  xoxox

      I had a reprieve of pain off and on with my neck and shoulders as i did traction, and ive learnned to sleep on my back now 8 yrs. I do have encroachment on the foramen on the C5-6 , and the bone is hypertrophied due to the imbalance of the neck..bone spurs etc..i guess ive learnned to live with it.

      I do know what your going through. 

      menopause came so unexpected, as Lori has been saying..its soo freaking unexpected and we are so uninformed its mind boggling. I will say that there are a good majoritiy of women whos symptoms are actually pretty manageable. I remember reading somewhere that its like 60%. but there are a another % of women who get trashed by it and im one of them.  I thought that regular neck pain syndrome was enough i didnt know it would go into the mood things and craziness feeling..adrenal surges,, AM doom and gloom, wt loss i mean...seriously ...  the list goes on i just try not to talk about all of it am focused on regaining well being of my mind, thats really what im most concerned about.

      the weather is really nice now where you are huh? I am originally from Redmond WA, a very techy, conservative, boring place but lots of money, go go go...ive outgrown it but might be forced to return when my boys go into college..maybe even next year.

      I do it all alone and the weight is so heavy and overwhelming, im proud when i get home from work, boys fed, and i say to myself YOU DID IT!

      so nice to talk to you and everyone...how old is your girl? 

      xoxoxo

       

    • Posted

      It could well be your stomach causing some acid reflux or mucus coming up all the way.  I had this often for periods of time and it went away again.  I’m a also often coughing . I used to think it was a respiratory issue but I know now it’s caused by the stomach  
    • Posted

      Thank you so much LCat. Its good to have you all in here☺ i cant to talk about this to my husband, he doesnt want to hear it!

      Xxxx

    • Posted

      Hi Maria. I'm so glad that you have mentioned that, I thought that I had something else wrong with me, I've had the same thing a sore throat after my period and while I'm on my bit of period, my voice also starts going. So strange.

    • Posted

      Yes that would be good. I do feel close to you all, you have all been so welcoming and friendly. It's such a help.

    • Posted

      Your mother had this until she was 70?  Scary!  So when did it start and how many years did it last ?  
    • Posted

      I'm sorry that your husband doesn't want to hear about your problems. But us ladies are here for you.

      I wish men had to go through this. They have it way to easy.

    • Posted

      Yes. I know it scares me. But her symptons were nothing like ours. She just dealt with being hot. Lol. She took a pill called provera. If my memory is correct. Unfortunately. The doctor kept her on them for 13 years. They were meant to use short term. She had all the side effects.

      Long term side effects are dementia and Alzheimer's. So mentally she is not really the same woman she always was. She started at about 50.

    • Posted

      Debra, very interesting :  you used Makeup again... since this horror with the stomach issues started..... I’ve never used Makeup again.   I’ve just been too ill and, not being able to go out and have any fun .... I didn’t see the point of Makeup.   But if these Vitamins help so much ... aren’t you then in great shape ?   
    • Posted

      Thank you so much! Please my husband wouldnt been able to handle all this not even for a day☺ its been a long 8 years and if wasnt for this side, i dont now what i would of done!! The past year things started to improve.. my weight went down some, i can sleep all night, love to be around people again and doing things i loved to do, i dont feel tired all the time!!

    • Posted

      You should be really proud of yourself. it's definitely not easy being a single mom that works and hurts all the time. I used to feel the same way at the end of the day. getting kids to school myself to work then come home cook dinner clean and take care of Life at home. I'm glad the traction helped you. Avoid surgery always if you can. I can't stand to lay on my back I have to lay on my sides. my problems are in my lower back. started with a ruptured disc the very bottom one when I was 17. I look back now and realize I was just a little kid. LOL my daughter Jennifer is 26 and Ryan is 28. everything in my life is getting old. well at least you were able to escape the Northwest for a while. I was born here in Oregon pretty much been in the same area all my life. so if you move back this direction. will be almost like Neighbors. :-)

    • Posted

      Oh no! That means she had it for 20 years.!
    • Posted

      Yes the vitamins help. But i deal with depression. So great shape. Maybe not. Doing much better with the menopause symptoms. with hot flashes constantly. I couldn't wear makeup. once the vitamins started helping. Last week my tummy was upset. Didn't eat much and skipped some days taking my vitamin. The intense and frequent hot flashes came back. Along with the mood blas. No energy. Etc. So i know they are helping me.

    • Posted

      Regarding your  Mother and her 13 year prescription , I only trust those doctors ‘ prescriptions who are good at and understand pharmacology.  Unfortunately not all of them are.  
    • Posted

      Yes. I agree completely. I still can't believe it sometimes. She should have had her license taken away. A old doctor friend of mine told me a joke many years ago. . he said what do you call the doctor that graduates at the bottom of his class. Lol. Doctor!!!

      So ya i hear you. I had no idea my mom was on them all those years. When she started having mental issues and other problems. I found out. And of course wanted to read about the side effects. that's when I was finding out that she had all of the side effects. every one of them. and she stopped taking those pills at that time. She was about 63. The dr started her on them when she was 50. The info they came with said they were not meant for long term use. Very upsetting. But we still have her. She is 75 and has her own little apt. She is just very very over weight and has high blood presdure. Just had cateract removed from both eyes. Lol. She doesnt wear glasses to drive anymore. So she is good. 😃

    • Posted

      I honestly don't think so. She says now at 75. That she had hot flashes till 70. I dont recall her having them like she did for years. By the time she was 63

      And we took her meds. She never complained about hot flashes the same. I believe that she has put on so much weight thats why she is always warm enough.

    • Posted

      Your not alone. I was too. When Anthony Bourdains suicide was announced. I cried like i was family. I love him. Had a crush for years. Still can't believe it.

    • Posted

      Try Okra Pepscin by Standard  Process it works WONDERS ! Cured me of some bad stomach issues... takes a while to work as it’s natural but once it does .... it’s fabulous ! 
    • Posted

      Yes every day is like ok ‘did it’ ! Supermarket cleaning house changing bed .... then it’s just waiting to get in the bed! 

      I’m right there with you Mauiblue we are the 20% of women who get it really bad and I feel so much compassion for all the ladies on here as we understand the hell ! 

      Most of my friends just get hot flashes brain fog .... can handle that but ‘this ‘ it’s terrifying depressing . I just try to get through each day and days seem long . I don’t need loads of entertainment just for my mind to feel ‘at ease’ I can’t even nap anymore. Although laze around a lot I’m never relaxed really as worrying about all my symptoms . 

    • Posted

      Oh Mauiblue, I feel so for you.... this is so hard. Most of my days are like yours but sometimes I have a good day like yesterday : I felt good and made plans for the next 2 weeks.  I was 99% convinced that I’m through this nightmare and healthy again!  But I as so wrong as I’m having a day of hell today.... Do you ever have any good days?
    • Posted

      Oh yes those ‘good days’ they are not 100% but you can manage to do a few errands. I had one last week and made it to a few stores then I went a bit ‘off’ dizzy etc so came home . I also had a day where I stayed up late (for me ) cleaning but then suffered punished the next day . 

      It’s like you get a good day then crash ! Followed by a bad one . Can’t make any plans anymore as just gotta feel better and more normal . 

    • Posted

      Hello Lori. Wow you just described my life. :-) I hope everybody's having a good day today you're right. Every day is different. And what you do one day. You might pay for the next day.

    • Posted

      Yep I do that too.  I will sometimes even have a few good days....and think oh I’m past the worst.  Then BAM, a new symptom...anxiety, depression..no appetite.  Doom and gloom...   I know NO ONE who is going through this.  Thank God for you ladies.  
    • Posted

      WE are all are going through it through varying degrees. I am with you on this. Thank God for the forum because it reconfirms how REAL it is for so many of us, and how debilitating it is..no joke.

      You cant push yourself because it throws everything off. I feel so wiped out when i do my 10 hr shift, its awful. I cant get out of that shift.

      I dont know if its me but its like its getting worse for everyone these days..??

       

    • Edited

      Oh yes .... I know that feeling .... one ‘good’ day and the next day you must ‘pay’ for it big time.   And yes ... anxiety, depression, doom and gloom .... those symptoms are the very worst !!!!............I hate it so much when they come up .    I get so upset  and ask myself ‘what on Earth have I one to deserve this’?  I’ve worked hard all my life ...... why me ?  I also sometimes wonder whether all those people who have depression, whether they really have stomach issues and aren’t aware of it.  
    • Posted

      I’ve never had more than one ‘good’ day but I get several bad days in a row.  I’ve worked until 2.00 or 3.00 at night on a ‘good’ day as I always worry not being able to ‘catch up’ .  Do you think it’s a bad idea to do too much in a day?   Do you that would potentially cause the next day to be bad ?  Do you think it would be wiser to ‘take it easy’ on a good day?  That would be against my personality as I usually like to ‘get things done’ .....otherwise I might  feel lazy.
    • Posted

      It sounds tempting to try the vitamins but I’m still worried :  in Jan/Feb I couldn’t eat anything and lost 2 stone.... then I went to the pharmacy and took a strong multi vitamin .   That made me sooooo I’ll ..... maybe because of the ascorbic acid...... I have no idea...... since then I’m scared of the Vitamins.  
    • Edited

      I must have missed these news ..... as I’m trying not to watch News so that I don’t hear about the ‘T’ man and the horrible things he did .... you know what I mean.  
    • Posted

      I will definitely try it.. thank you so much..always something. Today no throat pain, but i do have a breast an chest pain it..every day something else!! Doe any of you ladies get a toe pain?
    • Posted

      The breast and chest pain is typical ....is very likely caused by the stomach ..... the foot pain .... is it somewhere in the joints in the foot ?? There are many joints in the foot... Joint pain is also typical ....I hope you will have a better day tomorrow .... I feel for you
    • Posted

      Icant say for sure because I do the same. When I'm having a good day (or several good hrs) I try to do as much as possible because I feel ok..so I want to take advantage and get things done...but crash the next day.

      Pacing ourselves is best, so we go with the changes..I resist though..I have boys I be to keep up with..so hard ..so sad to me.

      I don't commit anymore though

      Im not able to..physically or mentally know where I'm gonna be at that time.. day to day

    • Edited

      Yes when I find I have some energy at night I make sure I don’t do too much as yes ! You pay for it the next day . There is no just winging it with this illness you have to really baby yourself . I make sure I’m in bed and often asleep by 9 and even with12 hours sleep it’s never enough . Don’t know about being 51 feel like I’m 91! I see much older people with more energy than me ! 
    • Posted

      Yes I don’t make ANY plans unless it’s drs or therapists and even then make sure that the appt is not too early or not too late . 

      We have to go day by day it’s no way to live ! 

    • Posted

      You always have to take them with food ... you may need them so get your blood done and pinpoint what you’re lacking . 
    • Posted

      It is very positive that you are able to sleep as well as you do. At least your adrenals arent waking you up at the early hours like for many of us.

      I wake up most mornings from some upsetting or uncomfortable dream..and the dark surge in the gut begins and then the mind, doom and gloom...

      I was never bothered with being alone before.and I feel for you bein alone like you are, it makes things heaps more difficult. Its the isolation from others that makes it so hard. But then again

      i can say for sure that is exhausting having to 'fake it' through your day with people you see, at work, your children everybody, its really awful to have to force a smile, pretend you feel full of life and energy when you are grasping to just get through the day.

      Ive had some serious neck shoulder flareups, and so im dealing pysical pain that has my shoulders and neck on fire.

      The chiropractor could not EVEN help me. My neck wa so tight like chords..he couldnt crack my neck, i have such intense stress...prettty scary.

      The forum is awesome, hang im there. I appreciate everybody, its even painful typing...i have to prop i a certain fashion.

      Im even thinnking of cbd oil, i dont care at this point, its rough white knuckling my way through this, its a bloody curse, this meno/mood/pain life im in right now. 

      didnt mean to go on...carry on .

      x0x0x0x

    • Posted

      Completely understand you Lori, im in it knee deep. The mind isnt calm, the nerves are going, the mind wanders. Its hormones i keep telling myself that this thingggg that im going through now for 16 months straight has to have a reprieve..there must be and end to it or an easing up i should say

      xoxoxo

    • Posted

      Yes he was someone i used to watch, he was a cool guy but now i see all the signs, all of the undercurrents of the pain he was suffering that he couldnt get out of.

      It didnt matter how much money he had or fame. The same with Kate Spade, i didnt know who she was i only know she was menopausal and depressed...wayyyy to close to home for me...

      an offhand question, do you use cbd oil or any cannibas of any sort? i remember something about you saying you do but cant keep up on all the posts  wink

      i have some that i brought back from mainlad and dont even try it because im afraid of every mediation as nothing helps...was going to try it.

      hope you are well, and i know your pain..i do. You sound like a very good mom and person..!

      x0x0x0

    • Posted

      That’s hard to  have to baby yourself.  I’ll probably feel useless and depressed.  But I will do it:  3 days ago I had a really good day ... The night before was 12 hours sort of sleeping.  
    • Posted

      I also feel like 99.  Then I see on TV David Attenborough in his 90ies, the Queen in her 90ies, Prince Philipp, 97, days after his hip operation, ..... all of them look much fitter than me.
    • Posted

      Yes so true :  DONT  make AnY  plans . I’ve learned the hard way : last Xmas. I promised my sons a holiday ... no way...... my stomach will wreck everything
    • Posted

      well yes I took them in Jan/Feb at the time when I basically ate NOTHING (because of nausea/vomiting). for several weeks and lost 2 and 1/2 stone.... to make up for the weight loss I tried the Vitamins ... not very clever....but when you feel so horrible you do stupid things .... because you can’t  think straight.
    • Posted

      Hello. Thank you. They are the best. I love being their mom.

      Yes. Cannabis. I have used it for years. Can't imagine not having it . Cannabis is my best medicine. Been growing my own for 15 years.

      I hope your feeling better.

    • Posted

      Yes, Maria! Have had a sore throat/cough for months! Sometimes my mouth is so sensitive that hot food burns. Extremely sensitive! SO glad for ALL of you! Thought it was a nervous breakdown...it's just being a woman...😕

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