i feel like im dying

did any of you ladies get a tubal ligation? i did i was only 26 and 6 years later all the symptoms started also i read an articleabout tubal ligation syndrome and surprisingly i have 95% of the symptoms !! there should be an organization for woman who suffer this horrible hormonal stuff !!! like seriously im 34 and i feel 50 

Hi KIM 

I’m right there with you honey ! I wake up can’t get out of bed for like 5 hours and then just can’t wait to get back in bed . It’s no life!!!! It’s a CRIME against women and if we had the energy and could stay awake we should be marching to Washington !

I just took a migraine pill that is very expensive but relieves you in 30 mins why oh why do we have to SUFFER like this !!! Why is there no real cure ????? 

It’s been since February for me and each month has got worse . The last 2 months have been unbearable . I just got divorced this was going to be my year of fun ! Ha!!!

Beautiful summer evening and I’m already getting ready for bed ! 6pm!

I hope your doing good these days. I know its been 2 years since your post. Thank you Kim. Your comment I feel like im dying is what really caught my attention. And this forum you seemed to start have helped us all so much.

Hi everyone

I'm new to the online chat world. ..I guess I'm pretty desparate at this point. I was reading everyone's comments in a parking lot and I just broke down and cried for 20 minutes. Then I decided to write instead of just read because every gal that writes here or anywhere on the Web helps add to the support net of suffering ladies everywhere.

I am 46 and now that I am finally putting the puzzle pieces together I can see that the beginnings of my own hormone issues started a long time ago. I had always had cysts on my ovaries since childbirth (often extremely painful) and right after childbirth I had the low thyroid then high thyroid that can often happen. Then that normalized but always kind of went up and down. I developed heart arrhythmias. ..skipped beats, tachycardia, "runs" of ventricular, etc etc. Drove me nuts. They said I had mild mitral valve prolapse and not to worry but the MITRAL VALVE PROLAPSE SYNDROME will drive you insane with all the symptoms. Chronic low blood pressure (due to low blood volume), headaches, dizziness, low blood sugar, and on and on! Well... since I didn't know about all this I thought I was maybe allergic to foods. I became so paranoid I got down to only eating alot 6 different foods! I also had hyperthyroid so i lost alot of weight. Then things normalized somewhat except the heart arrhythmias which never went away and were always worse around period and ovulating. I always kept a period journal too which has really helped over time for me to start to see and track all this. That wasall between ages 24 and and 35. I was about 38 and my periods became a few days closer together. I didn't think much of it but was always tired, got sick easily and developed painful esophageal spasms at times. ..possibly severe stress related. My mother had passed and I was a scared single mom with no family. At one point I could barely swallow but had no health insurance. Then we moved to a better area and the hard core symptoms started kicking in. Constant sore breasts, fast heart rate waking me up at night, headaches, dizziness, ringing in the ears, and extreme fatique. Was married again by that time but could not conceive. FSH or LH (ovulation) times of the month brought tachycardia and hot feeling. Didn't think much of it till periods started coming every 16-19 days! I was 40 then. I was dizzy and tired less though. Period had always been light but started getting a little crampier/heavier bUT no big deal and overall felt better and only had fast heart rate occasionally. Went on this way, the extreme fatigue came back and periods ranged from 17 days to 31 days, and got much lighter until 2017 when I missed my first period (68 days) and started suffering extreme anxiety/tachycardia (80-100 bpm for hours to DAYS) and waking up sometimes 5 times a night. The heart racing drove me INSANE because normally my heart rate is only 60 beats per minute! If it's even 65 I feel out of breath or hyped up. So I started really suffering at that point. I would have episodes of 90 bpm for one day to 3 days. I would sit in my car outside the ER room wondering what was wrong. ..thinking I had hyperthyroid again or some strange illness. I was terrified beyond belief. This would come and go. I never thought it might be hormones but I did and still do think cortisol could have something to do with it because MORNINGS ARE THE WORST. In fact I generally cannot function until after about 5 pm. And then can't sleep til after 2 am. So I'm only feeling normal for a few hours a day now and the good days are getting fewer and fewer. So my periods started skipping and I had some fast heart episodes and insomnia but I didn't lose my mind until I suddenly started having flooding, big blood clots and a non stop period! Back to the ER room. I bled (moderate to heavy) for 25 days that time. That's not counting a month of spotting before that started! Then it let up for 4 days. Meanwhile I had developed a weird "wooshing" sound in my left ear with each heartbeat and could barely get up a flight of stairs and every morning the heart racing, waking me up too early or all through the night, and the heart never going down below 70. This was DEFINITELY not the real me. .. or the old me. I was paralyzed with fear. Then the heavy period started AGAIN. and AGAIN! between that and the heart racing I really feel that my life has ended. I dread going to bed and waking up. I never know if I'm going to face a flood or heart racing all day or both! I'm so miserable. My mind just races all day long. ..telling me its just hormones or telling me that something is terribly wrong or that my heart can't take it. Do I have anemia yet? Don't know. The gynecologist won't test unless or until I submit to the biopsy. ..just another way for them to get money. I don't believe in all their protocols. I know what I have is either hormones or cortisol or thyroid. I need to go to a HOLISTIC gynecologist that will look at my WHOLE BODY AND ALL SYMPTOMS but it is expensive and they don't take insurance. So I'm just suffering in silence and scared, alone. I was catching most of my menstrual blood in a Doctors urine collection cuP to try to monitor how much I was losing each day. It would range from 10 ml on a light day to 180 ml on a bad day.120 ml is the size of a doctors "pee cup". One of those fills about 2 maxi pads. 2 of those is about 1/2 a cup . Basically if you want to try that you just run to the bathroom if you start to feel flooding or clots (keep the clots too). Keep track of how much you're losing and keep a calendar. That way you can tell your Dr about how much you're losing. And then eat lots of chicken liver (one serving is 70% of your iron requirement per day so eat 2 servings) and it is the MOST absorbable kiND of iron (heme/meat). Screw the vitamin kind. Natural is much better! Chicken liver is much higher than beef! I was terrified about the blood VOLUME but I got educated! As long as you aren't losing more than 2 pads an hour for more than 8 hours, your body will QUICKLY produce more liquid plasma. Drink alot of water and eat plenty of salt. It's the red blood cells that take much longer to replace (enter chicken liver). So. .. that's where I'm at right now. I feel like crap. ..wake up with heart racing most days, sometimes cramps in upper calves, moods and tiredness goes up and down all damned day. Sometimes I feel good and ok! Other times extreme anxiety and heart racing. It's a constant roller coaster. I dread what is next. I wonder how much worse it could or will get! I don't know what will happen and I'm terrified of blood transfusions, hysterectomy, D&C, and all this very invasive crap. What did ladies do before all this modern (witchdoctor) technology? Did they die? What is going on? I'm still figuring it all out and doing my own research but in the meantime this forum helps. ..reading all your stories helps more than you know! I'm still going crazy but I know that somewhere right now is another gal, looking down at her pee-stream, and begging Please Lord don't let me flood today! And another is saying I hope I can survive today and my heart won't give out or I won't pass out at work!

It is all one big nightmare and my life is positively horrid at the moment. But as someone once wrote, let's all be thankful for the health we DO have. I try! I see homeless people on the street that are standing in 95 degree heat that are feeling better than me and I can barely function . What gives? Am I just a weak sissy? I'm not sure. I just know that perimenopause is an actual MEDICAL CONDITION (or should be) and doctors are not helpful or caring. I will keep crying and reading and learning and maybe be able to help ladies one day somehow. The doctors just try to scare you into biopsies and d&c and synthetic hormones and pills. There has got to be a natural way and I'm going to find it! But until then I know it will be a long dark road. Feeling in the dark but at least we have each other right?

God Bless you all!

Carly in Houston, TX

Hi all. Hope you are all as well as we can be. I'm still struggling along finding new symptoms that just pop up from out of the blue, something else to add to the list. Sometimes I feel that maybe other people are right I should snap out of it and enjoy life and believe me I'm trying but they don't understand how I'm truly feeling. I do enjoy life just abit of understanding would be nice, it's just a daily struggle.

How do you feel know! I stop my period In December and it came back in March but I started feeling weird in Middle of May and I don’t know what is it! Got MRI done and blood work and everything is normal!

That's the way it is. You can feel ok for a few days but then another symptom comes. I have now developed constant high heart rate (10 to 20 or more bpm faster than my previous normal) and although I've stopped having panic attacks due to this (yayyy!) It is still very much a problem as i cannot do my usual activities anymore, even going up the stairs leaves me very heart racing and out of breath. And every morning my heart is racing for half an hour. Horrible. I'm going to a Holistic doctor in 2 weeks. If it all comes back "no explanation" and tests normal OR if it is due to high hormones or low or imbalance whatever, then i will just have to try to accept that this horrible state is my b NEW NORMAL and try to carry on. I have some good days and some ok days still. None are great anymore unfortunately. Are we doomed to an inferior life from perimenopause onward? ? I'm really starting to wonder.It seems so unfair- getting older is hard enough with all of its own set of unavoidable issues! But then the female hormonal results on top is just unbearable. I cried for 5 days just coming to this conclusion. It is very depressing and i am NOT a depressed type person at all. So if I'm crying there is a damn good reason. I should not have to feel like I'm clinging to a rope hanging off a cliff, hanging on for dear life, every damn day and night! I do not like the idea of HRT. WHAT DID OUR ANCESTORS DO? All the ladies in eras past? Many had no access to ANY healthcare or even herbs. Or even alcohol! So how did they endure and survive? Surely they had the same issues we do. I read a book by a lady who said simply that technically we (the over 35 club) should be dead by now. Our hormones shut off to prevent childbirth to a mother who won't live past her child's 5th birthday. Hence, the hormone issues. So we are alive when we should not be, and the "punishment" (consequence) is this horrific state of existence ?

I don't think i want to accept that as my 2nd half of life fate!