i feel like im dying
Posted , 365 users are following.
how can peri make me feel this sick
it started jan 2016 but past 3 months have beem horrible. i wake up at 5am feeling so sick. i am beyond tired everyday all day ( prob cause i dont sleep much ) and my body doesnt feel good. i feel like i am slowly dying and even tho all my tests come back normal ( and i havr had a lot ) that they are missing something thats gonna kill me. my constant upset stomach/trapped air burping/ feeling unsteady when i walk is the worst one, amxiety, feel like i have ongoing flu.
please ease my mind and tell me im not alone. this seriously needs to stop. its putting me into depression
67 likes, 1716 replies
carlycat kim74983
Posted
Still having bleeding and clots, I can easily bleed 120 ml a day (that's one half cup)...to give perspective a blood donation is almost 2 cups). Some ladies lose 500 ml or more on there heavy periods. ..I am one of those unfortunate 25% of ladies. I am small and thin with low blood pressure and Dysautonomia on top of it. Most days I feel horrible until about 5 pm (no idea why) and then I perk up a little, am able to go shop or maybe do a bit of housework, before retiring back to my bed. That has become my life. I can't usually sleep until about 5 am. But ihave beenthat way for some years now- the differencebeing that i really don't feel strong or well enough to leave the house till 5 pm. It's very odd.
My doctor wants me to start the progesterone CREAM as my body is too sensitive for pills patches iuds etc. I get these heavy periods every 2 weeks about. Obviously it is maddening and many days I just cry and worry what will happen to me. I can't work, can barely function and the cramps are almost non stop. I hate my life at this point and mostly just feel doom and disparity. I have dreams of bleeding, dreams of being able to do the things I used to be strong enough to do, dreams of bad things like blood transfusions and surguries. I can handle just about any bad symptom except bleeding! I don't want to do ablation, hysterectomy, iud, d&c or any of that! I just want the bleeding to stop. How long did the heavy bleeding/cramps/clots/flooding go on for all of you? Did you have 2-3 weeks of bleeding then 2 weeks break then bleeding again? How many years did this continue and what did you do about the anemia? Did anyone try the progesterone cream? I know some people say it is a lifesaver. ..my issue is that progesterone can actually be taken in by estrogen receptor site's in the body and cause MORE bleeding (due to estrogen building up the uterine lining). I don't need any extra bleeding! And they say if you don't use a pretty high dose of progesterone that that can happen. I cannot handle a sudden high dose of ANYTHING. So I am in a predicament. ..I have no choice but to try a very small amount and see how I do with it and build up from there. I am desparate at this point. ...my life is falling apart fast.
mauiblue carlycat
Posted
I know ive responded to one of your posts in the past- sesveral months ago.
How old are you and how long have you been in this situation?
What do the doctors say?
Im thinking that you need some support in your area, family or friend. Can someone help you where you are at, to atleast get started on getting well, in terms of your energy? (not being able to leave the house cause you are too weak) Ican imagine this because i get really weak myself, and i do bits here ant there around the house because im so weak, but i just keep going and im afraid i will have a physical breakdown if i dont get my energy back.
Sooo im trying to help alone thoses lines and thats why i posed these questions.
Acouple of years back i bled like a stuck pig for 30 days straight and it was SSCARYYY. I felt like a vampire had sucked the life out of me, became anemic, could not function taking care of two boys and my mother at the time, it was hideously overwhelming so much so that we moved back to where we are now. My mom lives in an elderly home and im guilty everyday for not bein able to do it all.
Were here for ya
x0x0x0
carlycat mauiblue
Posted
Hi! I'm 46. I've had symptoms since I was 39 but periods started getting shorter at age 37. But it's the bleeding I can't take. And I'm not sure that all the symptoms now are anemia. ..I think some is my hearts reaction to the hormone flux. I'll find out in a day or two how anemic I am. I bled heavy for 25 days, then a week break then 19 days then 2 week break then 12 days. I'm guessing a total of at least 4-5 blood donations amount. Blood donations are almost 2 cups. One period I measured was 7.5 cups of blood. So I don't even want to think the total amount. I don't feel tired but I have a hard time getting up the stairs or my heart goes very fast walking. Its an uncomfortable feeling.
I have only my 2 daughters ages 20 & 21. It is very hard on them because I'm behaving like an elderly person almost. I can't work now. If I can get the bleeding under control or at least compensate with enough iron then I guess I'll just deal with the heavy bleeding which now seems to come every 2 weeks! Overwhelmed doesn't even describe the feeling. Doom and despair is more like it. I can't take pills or do this invasive stuff they do, and I decided against even the bio identical hormones as those can be very toxic too. So I don't have alot of options. I try to function as best I can just basic things like drive to the grocery store and pay the bills. I never thought something this awful could happen but then I suppose cancer victims feel that way too! This to me is just as scary almost. I try to eat chicken livers and just rest and pray the bleeding will go away. I knew more symptoms will come but I feel like I can deal with just about anything except the bleeding! My girls will have to work and pay the bills until this part of it gets better. My life hasn't just fallen apart, it has stopped! I feel like I've been driven mad from all this. And no one really cares except others who have been thru it. Those that haven't just say hang in there or it will get better. ..really ridiculous and stupid things that don't even make sense! I get very resentful. It's hard and it's like a silent disease. ...no one knows how wretched you feel and there is no one to help you. Between the fear and the isolation and despair there isn't much left it seems. I feel like I just fight to survive this and endure it. The medical people are not too good either. They just want to push hard core treatments on you and are very cold. So in the end I'm at home, terrified and without help. I don't know. I'm sure many women in days past survived all this but how I'm not sure. I really am not sure how they did it! Today my heart was racing between 80 to 90 all day. Very uncomfortable. I had to run around and do errands and I did it though it was scary and hard. I wonder if that is going to be my life from now on- if it is ever going to get better for me. Or just one horrible symptom after another. I used to be strong and able to race up the stairs easy. ..I could go to a museum or a park and walk around. Now I can barely shop or walk across a parking lot. I have bad dreams.I've lost alot of weight. I have bad anxiety and don't want to do anything except watch tv. It's hard. I think if you had a big family or alot of friends or even a husband you'd be able to get thru this but being alone is very very rough.
Thanks for writing me! :-) it's so nice to know there are others also in this horrid stage of life!
eleonora0422 carlycat
Posted
Hi carlycat. This menopause sucks. I hear u. Feeling tired a lot of the time amongst so many other symptoms. All we can do is just hang in there. Docs don't know much either when it comes to hormones and meno.
maria_03422 carlycat
Posted
mauiblue carlycat
Posted
Hi Carly cat
I am concerned about your blood loss.
I know how it feels to be weak from blood loss,and i know its not safe.
Would you mind telling me your cbc results hemoglobin and hematocrit?
I know that you dont trust the doctors and nor do i but sometimes we need to use them in order to be stable and in your case to stop the bleeding. So you wouldnt consider a med or ablation or anything to slow things down? I dont think it would make things worse, it could maybe give you some time to regain your strength.
Its good you have your daughters, but this is scary.
I remember too in my40's having a lot of palpitations if i did too much, heart racing irregular etc, and low blood count will make this all worse.
fluctuating hormones..all of it.
im sorry your going through this. We have our own hell i guess that we endure and we have eachother on this forum and im grateful for everyone ..please write or whatever ..when you want to talk or share.
x0x0x0
carlycat mauiblue
Posted
My hemoglobin is a 7 (should be 13-15) and rbc's are 3.75 (should be > 3.80) . If i had started taking iron in thefirst heavyperiod i prob wouldn't be so low! I didn't start till about a week ago! The lady who drew my blood said she's had heavy periods her whole life and was down to a level 4! And she was still working but felt like crap, dizzy and tired. They wanted to do blood transfusion but she refused and just suffered thru it. She started taking iron and now she's fine despite the bleeding every month. That is pretty much my goal at this point. I don't want to do the invasive stuff because eventually the estrogen will drop and I won't have periods. Why risk all the potential terrible things that come from all the hrt and ablasion etc. I've read the horror stories. It might be about a 50/50 chance either way but I can't risk that.
I don't mind the inconvenience of the cramps and bleeding. Just the health aspect. So if I can keep my anemia under control then the bleeding is not such a big deal- surely it will end one day! The lady who did my insurance said she bled for 3 months then never again. If course there are some who bled til age 60! But. ..I think that is pretty rare. Considering my periods shortened starting age 39 and I've had missed periods since the beginning of 2017, I figure I've got to be at LEAST in the middle of the perimenopause process! I mean it has been all these symptoms for years now. So that's my goal. ...eat enough iron to compensate for the blood loss. Maybe I'll get lucky and miss a period! Lol. It's horrible though. My doctor gave me a work exemption form. I got on food stamps for awhile until I can feel_well enough to work. I will never forget the terror of all of this- it's truly a curse for every woman who has to suffer through PM.
lori93950 carlycat
Posted
Yes all these hormone issues are tricky and would never have thought in a million years that it could be so bad .
There’s many women on here that have also given up work and personally I don’t work but could not even if I had to . I’ve never experienced anything so bad in all my life . Hope this balances out soon for all of us it’s HELL!!
carlycat lori93950
Posted
It is truly traumetisizing. I wake up every day terrified the bleeding will start again. ... I don't know how I'll feel from day to day or what will strike next. I've had to stop all the things I love- I'm a skinny, scrawny shell of my old self. Scared, tired, sad, and miserable. I just try to live moment to moment. If I have a few days without bleeding, pain, fatigue, headache, or mood swings I just try to enjoy it as best I can. I know this hits some people much harder than others. For me the bleeding was pretty extreme. I was definitely in the 25% with extreme bleeding. I was going thru moving to a new state at the time as well so the stress was unimaginable. Half the time I was sleeping in my van on the way there. My heart was racing the whole drive and I honestly was not even sure I would survive. I'm sure I have some mental trauma from that and then once I was moved the bleeding continued. I've had very few days of no bleeding since the beginning of May. Maybe 2 weeks total. So I just pray that it will somehow stop. I just had another pelvic ultrasound so I'll find out if there's anything that might be causing it but I'm pretty sure it's just hormones. I used to miss alot of periods and they were light. Now they are coming closer together and heavy. And with alot of cramps. I don't know. ... I know it's pretty common and alot of ladies go thru this but I think mine has been pretty extreme. I think why me? But its pointless to agonize over that. I just pray the stupid estrogen will dry up and disappear and I won't have periods ever again! !It's funny, I always had very light, painless, short and easy periods my whole life! Maybe this was making up for all that with a vengeance. ..lol
mauiblue carlycat
Posted
Hi
guess if you are able to handle it and are getting the iron you need, but it seems like there are other options besides just that that would help you through so you have a relatively safe quality of life also.
Also there are many women who do really well with hrt and ablation, but it might not be for you. My sisternlaw dealt with what you are going through i remember years ago, and she did well, and eliminated the problelm, she was in her 40's.
Well im glad you are here for support.
xoxo
carlycat lori93950
Posted
It is so hard. I don't want to sound over dramatic but I feel like I'm clinging to life some days. I try to be brave but when you've lost 7 cups of blood in one period and 5 cups in the next it will give you severe PTSD and trauma. I bled 25 days in may, 18 days in June and 11 days in July. I'm dreading my next period. Funny I had all kinds of anxiety before this but now looking back those were the salad days. Lol. Now I just pray that if the bleeding stops I'll never fuss about anxiety again. I got a fitbit heart rate watch and I've learned to monitor my anxiety. Some days I do get a bit freaked out but most days I'm able to stay calm even with the anemia which causes high heart rate. So damn if I can survive this I guess i can survive the rest!
eleonora0422 kim74983
Posted
Davesgirl kim74983
Posted
jackie16209 kim74983
Posted
I'm so glad I found this place. About a month ago, I began waking up with extreme anxiety borderline panic. The anxiety has gotten increasingly worse along with worsened symptoms of depression. I'm a counselor, so crying during work is not an option. After some research, I have an appointment with my primary care doctor to discuss my symptoms. I have physical symptoms as well including nausea, fatigue, hot flashes, insomnia, breast tenderness, and headaches. What kinds of questions should I be asking my doctor? Are there any medications that would be helpful at this seemingly early stage? I'm 41, but my grandma told me she began to have symptoms of menopause at this age.
maria_03422 jackie16209
Posted
Hi Jackie
So sorry, thats the worst!
The things that worked for me were, diet change, no sugars no caffeine and no alcohol!!
A cupofchamomile tea before bed time and walking!
I end up afew times to the ER with panic attacts..keep your self occupied when you feel one is coming on..my dr had prescribed xanax and i would take it only when nothing else helped!
Good luck with your dr's visit!
Xxxx
lori93950 jackie16209
Posted
carlycat jackie16209
Posted
Oh yes I started having symptoms at 39. Each year was slightly different! Lol I've had all of it except the hot flashes. I used to wake up 4- 5 times a night. Skipped periods terrible anxiety heart racing dizzy cold spells breast pain constant headaches fatigue and just all kinds of weird stuff. The worst has been the flooding periods which gave me bad anemia. The anxiety is nothing compared to that. Nothing like a worse problem to make your other problems seem easy lol
Just hang in there. .. know that the hormones can make you feel crazy and sick but you will survive it! ?
maria_03422 jackie16209
Posted
lori93950 maria_03422
Posted
maria_03422 lori93950
Posted
I know lori!
Maybe because i have been having all these symptoms off and on for the past 8 years and im familiar with the whole process that i dont get as anxious as before..jow long you been suffering with them...anxiety was always part of my life since i was a child, not ab easy childhood for me😣
lori93950 maria_03422
Posted
Yes I suffered too at the age of 27 with panic anxiety probably a breakdown then again at 41 now again at 52 . My childhood was very traumatic too ! After I crashed at 41 I got my mind back after many months even years and managed to live with the anxiety and panic . Plus I had my husband for support . Now single again it’s a whole different ballgame ... and other symptoms popping up . Trying to remain hopeful that things will level out soon but it’s a tough journey on your own. Thank God for TV medical marijuana and a glass of wine . I also try to workout every day which keeps me sane .