I have had LS for over 3 years.f

And nilstat is over the counter.  And yes, I use the clob and nilstat together. You get an applicator so you can use it internally and then I put it on externally because I’ve had external thrush and it was awful. I’m pretty sure that’s what’s caused this new flare up.

Yes, me too Isabelle. I asked my GP to send me to a Dermatologist rather than a Gynae. The lady consultant I saw for my initial appointment is a specialist in vulval conditions, and very knowledgeable, and she does vulval surgery relating to LS fusing, which I have, but has improved since using all my treatments 2 months ago, including borax. Obviously all specialists have their area of expertise. Some dermatologists cover vulval conditions, as do some gynaes, but not all have an interest in this area of medicine.

Isabelle do you mix nilstat and clin together or use it separately?   I really believe it is thrush ( itching and burning).  I also have pain from the LS.   Would you tell me exactly how you use  these medications I would deeply appreciate it.   Challenging last few months with recurrence of breast cancer and flare up of LS.  THANK YOU so much for everyone’s help

Meant Clob and nilstat not Clin and instant. Sorry

Aww bless you Hun, things can get so difficult to live with. Like a lot of us, those hormones drop, and we seem to be open to all sorts :-( I was already going through the menopause last year when pre-cancer was found in my womb lining, had to have a total abdominal hysterectomy, then LS reared it's ugly head a few months ago, now looks like I may be prolapsing inside, waiting for pelvic physio appointment for exact diagnosis. I've always looked after myself, including pelvic floor exercises etc, but lately I'm just falling apart. Sending hugs 🤗 x

Oh Maggie I do understand.  I am so sorry you are going through all this.  I had a total hysterectomy at an early age due to Endometriosis and then breast cancer,  A few months ago breast cancer again with no chance for reconstruction because the radiation treatments from the 1st BC destroyed my muscle and now suffering from LS once again.  I am on anti hormone cancer treatment drugs which eliminate all estregon in the body.  Of course LS will be worse without estregon.   I am glad I have my faith to carry me through.  Please let me know how you are doing.  Women like us on this site need one another.  Most people have not ever heard of LS.  Hugs

I wish you the best. That sound so awful. I've gone to a Gluten free, sigar free mostly all organic diet. I'm only on day 3. I was hoping to do mostly natural, bit not opposed to the cream if it prevents disfigurement.

This may be too personal but I'm curious about the extent of disfigurement. The pictures online are horrid. Is that what happens to most people?

So glad you are seeing a specialist. Sounds like you are in very good hands   I have seen 3 different Gynicologist due to an out of state move.  Each doctor had a different take on treatment.  As I mentioned before I now have an appointment to see a Vulvar specialist.  For me, this is the way to go.   The disease is complicated and complex.  

Oh my you poor women you’ve been through so much!!! You sound like a fighter.  Goodfor you!! I’m trying to be strong but this is just one more thing to be stressed about! I guess in time if we get a handle on the LS other things hopefully fall into place 

Thanks my sweet, I wish you all the best for everything you're going through. God bless x

Hi Hun, thanks for your kind words. Please don't despair about the images you've seen online. As someone pointed out before, they would highlight the worst cases, possibly untreated for a long time. I've had good improvement in the 2 months since being diagnosed, but it's all been very upsetting for me too. I'm on maintenance doses now, and don't know what the future holds. I had white skin and fusing around the perineum/fourchette area, which has improved, but may still require surgery, it was splitting a bit during sex, but not tried lately, I don't have a regular partner. Then I have my internal issues, as I said :-( Btw, the steroid is important to knock out the immune response and oestrogen to heal. I use both, on a maintenance dose now. Also borax solutions and oils are important too. Best Wishes x

Isabelle I have a question; does the topicals applied after clobetasol interfere with the effectiveness of clob making it a weaker application?  Are you applying Clob 3 times a week?  One Gynocolgist said to use Vaseline or coconut oil for a barrier.  Sounds like your method works for you.  I was concerned about using Vaseline worried bacteria would get trapped under it.  

Thanks for sharing