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I need success stories please!

Posted , 24 users are following.

Gavinium
Gavinium

I was just diagnosed with blepharitis in July and feel as if my life is over. I'm so depressed that it's incurable. What makes it worse is that the opthalmologist acted as if it was no big deal - describing it as dandruff of the eyelids with a simple remedy - baby shampoo.

Here I sit, a month later with the same symptoms. Haven't worn contacts. Haven't worn makeup. And for a 50 year old woman I would love to wear both again.

I did some research on my own and all I found was misery. Chronic cases in which no one ever improved. Symptoms lasting years. I feel as if life as I know it is over. It's affecting my family life as well. My husband doesn't get it. He thinks it's just an eye irritation and I should get on with it.

If I didn't have kids to raise....

Please no more horror stories. I've seen them.

I need to hear of people who live with blepharitis who have occasional flare ups but not constant symptoms.

Please!

3 likes, 148 replies

148 Replies

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  • Gavinium
    Gavinium

    Posted

    Still struggling.

    I have an opthhal appointment on 8/25

    Will look for more

    The white flakes in lashes which had gone have now returned?!

    And stinging at lid margins remains - at times worse than other times

    I'm trying warm compresses day and at night with Ocusoft Plus Lid Scrub.

    They might have to give me antibiotic cream or check for Demodex?

    • fiona51388
      fiona51388 Gavinium

      Posted

      Have you tried a course of cetrazine backed up with daily and nightly blephagel?  It virtually cured mine completely.
    • lee12629
      lee12629 Gavinium

      Posted

      I can relate. I do hope you find something. Xx
    • fiona51388
      fiona51388 lee12629

      Posted

      Its an anti histamine, I don't know how it works but it does, and its ideal for me as I am not one of those people at all happy about scrubbing ruthlessly with weird chemical scrubs, my delicate eyes, all I need daily is my cetrazine tablet and my blephagel morning and nightly and I am virtually 100% out of the discomfort region I previously found myself in,

    • fiona51388
      fiona51388

      Posted

      Sometimes the simple remedies are the best, I struggled with wet ones, they worked for a couple of months then appeared to have overall made things worse, baby shampoo, also the same, manuka honey I felt to bizarre to even try but these were all things recommended on the patients forum but my doctor recommended the anti histamine tablets and they were like a miracle cure and then i backed up the residual final throes with my blephagel, which I discovered myself, I couldn;t be happier now.wink

    • dena64643
      dena64643 fiona51388

      Posted

      Fiona, it's also called zertec I think and causes dry mouth,if you don't mind the side effects and don't care that it's a drug, it may be OK. smile

    • fiona51388
      fiona51388 dena64643

      Posted

      I have no such silly paranoia about what you term "drugs", sometimes they are completely necessary to maintain health therefore wise medical council, and a dry mouth can easily be rectified by more hydration, besides it works and puts me out of abject misery and that's the only consideration as far as I'm concerned!

    • lee12629
      lee12629 dena64643

      Posted

      But the eye issues often include dry eyes,most meds that make your mouth dry,dry the eyes. Just something to be aware of.Xx
    • lee12629
      lee12629

      Posted

      Actually that comment was for Gaviniums.
    • lee12629
      lee12629 fiona51388

      Posted

      Thats great,i have dry eye/mgd/bleph,so dont know if it would make my eyes drier. Xx
  • Gavinium
    Gavinium

    Posted

    My eyelids are no longer swollen noticeably but my eyes sting and when I wake up in the morning I have to blink quite a few times to clear my vision. It's kinda like a blurry film that comes on overnight perhaps. Maybe they are blocked glands.

  • Gavinium
    Gavinium

    Posted

    Thankfully the vision clears very quickly. But it's a bleary eyed thing.

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