I think I have kidney disease and I'm terrified.
Posted , 17 users are following.
Hi I am new here. I think I might have kidney disease. I didn't get diagnosed with it yet though. I am going to first go to my primary care doctor and get them to take a urine sample and blood tests and other tests if they need to. Some of the symptoms i have are dark colored urine. It looks like amber colored most of the time. And i have noticed small bubbles in my urine once so far. I go to the bathroom like 6 or 7 times per day which i believe is normal. Then i also have like some skin on my foot that turned brown. And then a little of it turned yellow too. I think its called increased skin pigmentation. I also just started getting these muscle twitches. Then sometimes i get diarrhea but not every day. Just like probably once or twice a week. I dont vomit at all and i dont' ever feel nauseous. I also started to notice that I bruise more easily. I am not tired at all as long as I get enough sleep. I ususally sleep for 8 hours and 30 minutes to 9 hours, which is normal I think. I don't feel weak and I still have enough energy to do the things that I need to do every day. Sometimes I get headaches but not every week. Maybe like once every other week and some weeks i don't get headaches at all. So i am very worried and scared about going to the doctor. Because I am afraid they are going to tell me that they think I have kidney disease. Do you all have any of those symptoms? If so what stage of kidney disease did you get those symptoms at? I am just so scared that I could be at stage 4 or 5 already and not even know it. I just found out I have high blood pressure too, but I didn't know i had it so it has never been treated before. I am going to get blood pressure medicine at the doctor too. I will just be really depressed if I really do have kidney disease in addition to high blood pressure.
0 likes, 172 replies
Janinec87 Megan3031
Posted
Megan3031 Janinec87
Posted
Well i know i don't feel sick or tired. But just because I don't feel sick yet doesn't mean that I might not have kidney disease. I could have it and just not have any bad symptoms yet. And yes I know that i could have another issue like liver disease or diabetes or something. But all of those symptoms i listed are symptoms of kidney disease too. So i don't know how I am being immature? And i don't understand why you are getting so mad? I'm not trying to make fun of anyone and i'm not trying to be rude. I know that kidney disease is a horrible thing and i feel terrible for everyone who has it. Well if I don't end up having kidney disease then I will make a post and say that I was wrong and i will apologize for making the post. But if i do end up having it hope you will apologize to me.
Megan3031
Posted
I don't understand why people get mad at me. I didn't make this post to make fun of anyone and i didn't make it to get attention. I just only made it because I am scared and worried. I'm sure anyone would be scared and worried if they think there is something wrong with them. And maybe people think that I'm wasting my time reading alot about kidney disease when I didn't go to my doctors appointment yet. But if I do end up having it then at least I know more about it. Maybe it was a good thing that i have learned about it even if i don't end up having it.. Because if i didn't know anything about it then I would not have thought to tell my doctor that I think i could have kidney disease. But now at least i can tell her that I am worried about having kidney disease since i have read about it and i have some of the symptoms. So at least i educate myself about it. And yes i know i could have waited to post something here until I went to the doctor. But i was just worried and scared and wanted someone to talk to.
Megan3031
Posted
Sorry it just upsets me that some people were giving me a hard time for making this post. I just posted here because I thought these types of places online are suppose to be supportive. I know that posting here isn't going to solve my health problems. But i am going to the doctor soon even though I am so scared. And even if I don't have kidney disease I probably still have other health problems in addition to hypertension. So i just thought that this would be a good place to talk about my worries. But anyways I know there have been some people on this forum that have been supportive and given me suggestions on things that I can do to get healthier. So thank you to those people who have given me some advice and helped me. Because even if I don't have kidney disease I still need to get healthier since I most likely have some sort of health problems. So ya thanks to the people who have been nice and helped me even though I didn't get diagnosed with anything yet. And if i do end up having kidney disease I hope people would be able to give me advice later on.
Janinec87 Megan3031
Posted
Come back after you been to the doctors.... you just said "And yes I know that i could have another issue like liver disease or diabetes or something" NO you could just have a urine infection or nothing... you just listed 3 major illnesses... STOP freaking out and go to your Drs instead of over thinking. good luck
rick39522 Megan3031
Posted
Megan, I don't think people have made fun of you as much as everyone is just continually yelling at you to stop the panic and get yourself to a doctor. Hopefully, and we all hope this, you have absolutely nothing wrong or something very minor such as a UTI. You ask everyone to understand your feelings, but you I think need to also understand the people you are speaking to. Many of us actually have CKD. Some in moderate stages, some in more severe, much more severe. Faced with actual and life ending situations. You think you are afraid now because you have undiagnosed items that bother you, imagine the people you are writing to, what they face, factually. And what most are telling you is if you are so afraid and concerned (which you can certainly be) it appears that you are very lackadaisical about getting a proper diagnosis. The time you have spent dreaming up every possible ache, pain, discoloration, potential disease, sleepless nights, writing endless concerns to us, would be FAR better spent having marched yourself into a walk in clinic, and emergency room, or a doctors office and more than likely found nothing serious is wrong. Each time you write, everyone tells you the same. We all know the seriousness if you do end up with CKD and because of that some may seem rude to you but they are angry that you seem to do nothing about it except dream up every possible affliction a person could have from CKD, liver disease, cancer, etc. I say to you how silly this can appear. Perhaps it is yellow fever, typhoid, copd, cardiac concerns, circulatory issues, blood infection, etc., etc. Get the point? You are so scared and worried and yet days have passed and you have not found out a thing! Certainly you can see why some people even believe you are a scam, because no one would be so concerned and do so little about it. We all hope you the best, and want to hear the result, if you ever do get to a clinic. It is just hard to believe what you write can be true and you do nothing.
Megan3031 rick39522
Posted
I didn't mean to say that people made fun of me. I just meant that some people seemed to get mad about me making this post. And yes I am going to the doctor. You must have not seen my other posts on here. A few people asked me if I made a doctors appointment the other day and I said yes I did. So trust me I am going to the doctor. I have to go anyways because my dentist is requiring me to go to the doctor to get medicine for my high blood pressure. And i have to bring him a doctors note saying that it's alright for him to do dental work on me. So I have to go since I need the dental work done. And I know it is not smart of me to wait so long to go because if anything is wrong then that is harmful for me to wait. But I am going even though I am scared. And yes i understand how serious this disease is. I have read a lot of different posts on this forum and I saw that most people say that they are very tired most of the time and they don't feel well. It really does make me feel terrible to see that people have to go through this. I wish there was a cure for kidney disease and all of the horrible diseases that exist in this world. So no i would never write this post as a scam or a joke. I don't joke around about stuff like that. And yes that's true that it could be something else instead of kidney disease. I did read that some of my symptoms can occur in people with diabetes. So i could just have diabetes along with high blood pressure. But i don't think that tea colored urine occurs if someone only has diabetes though. But i suppose i could have diabetes and liver disease. Because i know dark urine could occur in liver disease too. My dad has diabetes though so I guess it's possible that I could too. I should probably ask them to test me for diabetes as well while I am there. i know that if i do only have diabetes and high blood pressure then i need to get those under control as soon as possible. because i know high blood pressure and diabetes can do damage to my kidneys too if they haven't already. I also saw that some people who have kidney disease don't feel sick or tired until they get to stage 5 though. So i could still have it and just not have any bad symptoms yet. But yes i know that if i do have it then it's important for me to know because then at least i could slow down the progression of it and have more days where i continue to feel well for awhile. Thank you for saying that you hope the best for me. That's so nice of you. I will tell you all the result after i go to the doctor and get the blood tests back.
Megan3031 Janinec87
Posted
Well with the urinary tract infections don't those usually cause pain when someone is urinating? I am pretty sure they do. I don't have any pain when urinating though. I am going to the doctor soon. I have an appointment already. I will try my best not to worry though unless the doctor says that something is seriously wrong. Thanks for wishing me good luck too. I sure do need it.
marj01201 rick39522
Posted
Rick,
I do greatly appreciate your thorough and thoughtful response. I do hope Megan is able to take a step back and look at how her posts are viewed by those of us with CKD--some very severe. I made a similar response to her a few days ago. Unfortunately she missed the point of my response completely. Perhaps she's now ready to hear what you have said.
Marj
Megan3031 marj01201
Posted
Yes i read your post and i understood what you meant. I know that alot of people have to deal with many issues that go along with kidney disease and most of them are serious. I know don't know what it's like to deal with what you and many others deal with on a daily basis since I don't have those severe symptoms. But if I do have kidney disease then I am sure that i will eventually deal with those severe symptoms too. And i understand that I should have gone to a doctor sooner since I believe that something else is wrong in addition to my high blood pressure. I really should have been going to a doctor every year for a check up. I know I am not smart to not go to the doctor at least once a year. I will really be mad at myself if I do end up having a serious problem. So yes I realize that I am stupid.
rick39522 Megan3031
Posted
Megan3031 rick39522
Posted
Oh i didn't realize that. I am not sure if the muscle twitching could be caused by an infection though. It's just that all those other symptoms that i notice are strange too. So i am scared to see the results. i know i have to find out sooner or later though. But anyways i guess people are going to stop talking here since everyone keeps getting mad at me. So I guess i should leave since people want me to. I guess i will come back to post the results of the blood test though and if i do have kidney disease like I think then i guess i will just leave this forum again after i post the blood test results.
Shadowhawk Megan3031
Posted
I realize that some of this discussion has moved on (and agrivated people), but i want to note something.
Megan, i am currently fighting extreme anxiety myself, and can imagine pretty well how it can wrack you with fear. But the constant anxiety also WILL take a physical toll on you, in many ways you don't expect; one of them being random muscle spasms (medically referred to as BFS). This was a "symptom" that scared me to at first, until i made it a point to pay attention - as i was able to control my anxiety, my twitches greatly decreased; conversly if the anxiety gripped me again.
In addition to the twitches, the anxiety also thoroughly did a number on my digestive tract, which only now (after months), feels like it is healing (though i still have some abdominal pain). It also brought about chest pain (which in the end i took for a heart attack), which now simply appears to be a combination of anxiety and costocondritis (likely done by the constant chest tightness....).
My point being.... while you may have symptoms of "something" (or may not have anything), the anxiety you feel about your health can take an equally massive toll on you as well. Much like myself, no matter WHAT the blood work says, you MUST seek help for your anxiety, as it will continue to plague you if you don't (i am guilty of having my worry bounce from heart, to liver, and now to CKD).
marie529 Megan3031
Posted
Megan3031 marie529
Posted
No i don't just want attention. I really do think that I have kidney disease. I understand that people here are really ill. I wasn't trying to take away space from other people either. I know that I don't feel very sick or anything but that doesn't mean that there isn't a chance that I don't have kidney disease. But anyways if i do end up finding out that i have kidney disease after i go to the doctor then I guess i will just go to a different forum if i can find one.
Megan3031 marie529
Posted
And i don't know why I can't write that I'm scared even though I don't know what's wrong yet. Because even if it's not kidney disease it could still be something else that's bad. I just always get terrified when i know something is wrong. So i am just really scared to find out. I just thought people here would understand how I felt i guess.