Im losing my sanity fast

Hi again Tasha,  Sounds as though your ears are full of fluid with all the crackling sound that's going on.  What date did you say you were due that appointment ?  When you do finally go, please ask for the prescriptions I use for ETD.  My ears are still clear, I'm into my 5th month.  Not saying for one minute I'm cured of this wretched problem, but to just get some relief is so good.  I take my hat off to you suffering all these months with no help.  Keeping everything crossed for you that soon you'll get the help you so desperately need.

Anne

Hello Tasha,  I was wondering why we hadn't heard from you in a while.  Sadly, with you being unable to afford the doctors there is little anyone on this Forum can advise you to do.  I had the same thing going on in my left ear the other day and I immediately thought of you.  I put myself back on the Flixonase Nasules and the drops cleared it up again.

So sorry you're still suffering Tasha

Anne

Everyone got sick of my ranting that's why I didn't post.Doctor still don't know what is causing it.

My thumping settled and stop for a long while.

But right now I'm being tortured by fluttering and thumping and I'm badly sleep deprived.

And my bottom eyelid is twitching nonstop

along with it......ugh I'm sick of everything

Hi . Nice to meet you. I was wondering how you are ? If the noise you were getting is still there ? I have the same problem along with blocked ear. If you would like to talk I would be happy to. I do hope you are feeling better though.

I don't have thumping but I do have the fluttering and the eyelid twitching along with the left side of my mouth twitching. The most common cause of eyelid twitching is stress and fatigue.  It's actually a muscle spasm.  My doctor says the fluttering feeling in the ear is most likely a muscle spasm too.   They assume my TMJ causes all of my facial muscle issues.  I don't know what causes it but I am beyond ready for it all to stop.  

Hello ann my names emma. I have the flickering in my ear which I was told is my eardrum having a spasm I get numbness of the left fingers and blurred vision on the left. My ear is always blocked all the time and makes me have noise sensitivity do you have that ? I am sorry you suffer like this I know how you are feeling when you say your ready for it all to stop. I wished it would for all of us. I'm new on here so I'm a little unsure how it all works. Would you mind telling me how it all started for you please ann if you have the time that is. Thank you so much

I have left sided tremors in my hand and lower arm with occasional finger twitches.  Apparently that is TMJ related.  I had a pins and needles feeling in my hands a feet for a while.  That was said to be from the muscles in the back of my neck being so tight they were impeding nerve function.  

My story is long but to make it short I had a pain in the back of my neck around Christmas.  It moved up to the back of my head and around to the side behind my right ear.  I woke up New Year's Day with my right ear clogged up tight.  After a week or so the left ear clogged up too.  I was given prednisone and they finally opened but kept clogging and making weird noises.  I could hear myself talk and chew inside my head and it was driving me insane.  I pretty much stopped eating.  I saw numerous doctors... ENT said allergies, allergist said no allergies (blood test) so go back to ENT for tubes.  ENT said no it's allergies go back to allergist.  Fired them both and moved on.  I saw more specialists and was diagnosed with food allergies, a candida infection, multiple allergies (skin testing), ETD and TMJ.  I made a drastic diet change and I lost a ton of weight, was able to come off BP meds and heartburn meds but it didn't fix my ears.  

I started wearing a splint for TMJ in June.  I was actually diagnosed at the end of March but I started having awful neck pain and needed physical therapy so I put that on the backburner not realizing that TMJ was the cause of the neck pain!  

So I am taking allergy medication (azelastine, flonase and zyrtec) plus receiving 3 allergy shots two times per week.  I am also wearing a bite splint as needed during the day and every night for TMJ.  Plus I am going to physical therapy twice per week for TMJ and all of the issues it causes (stiff neck, muscle knots in shoulders and upper back, ears etc). 

I am much better than I was earlier this year.  90% of the time I can open my ears by moving my jaw like a yawn.  It makes a loud crackling noise when I do that but they open.   When I get a spasm in my face (due to TMJ) I can feel my right ear pull.   Usually the splint relaxes those muscles.  

My ears are more sensitive to noise but not as bad as they were.  I couldn't stand any noise at all for the first few months of the year.  I couldn't stay to get water in them either.  I had to wear wax waterproof plugs just to take a shower.  

I can feel the bite splint work within minutes when I am having problems.  I can't really tell if the allergy shots are working yet but I have a few weeks left of the build up phase.  

I am glad that you're feeling better than you were ann . Well done for being strong and also thank you so much for sharing your story with me.

my ear just got stuff up yesterday ...along with it its making a low whistle noise..i did everything...it didn't budge

Is it the first time you get the whistle sound? Did the thumping go away while you had the whistling sound?

first time yes...thumping was gone during the time.....now it started back up just a few minutes ago...

still whistling too....i cant be dependent on zyrtec forever....man this sucks

I'm miserable and can't take it anymore 

Have tried clonazepam?

II can't afford doctor medicine 

Hello Tasha,  I'm sure like me, many people on this Forum feel so very sorry for you that things are still bad.  So frustrating that you can afford medication and makes us all feel helpless.

have to reschedule for the appointment.Family issue came up that required the pocket change I had.so I will have to wither away in the world

Hi Ann, it helps to hear other people's side on this. Mine had similarities and a couple of symptoms you mentioned stood out which was at the pt. when I became desperate trying to find someone to help me - a Neuroto. Unfort. my only observation given was a quick pneumatic otoscope then told there were no other further tests for me but surgery. By that time I was desperate and had did not know what to do... but trust to believe this.  I had no one else to talk to and no one was listening. I did not know there were many other non-invasive tests that could have been done. Even today, I am still trying to get this but can't.  It seems ENT specialists and Audiologists have more compassion and understanding to try diagnose/treat patients than Research Surgeons. The part where you said sounds were loud, talking and chewing then back to muffled ETD. I learned this to be called the dynamic stage of PET -inbetween ETD and PET.   Do you have any specific type of tinnitus that goes with this?  -V

I've suffered Tinnitus for years and years....ever since the Eustachian Tube Dysfunction started.  I've learnt to live with that, but hate the ETD.