Im losing my sanity fast

Hi Tasha, you know you're not alone with this awful complaint....there are so many of us suffering as you know.

Had you been able to afford to see a doctor, I'm sure by now you would have found some relief.

You are seeing one soon, aren't you ??

Sorry for the late reply My computer monitor won't stop flashing. No doctor money went to late light bill.Every thing is still the same.

Sounds like you're suffering a lot but at the same time, it seems like you're not too in a hurry to get your issue resolved. Your health should be at the forefront, but you always have excuses as to why you're not doing anything about it. In your case, I'd be moving heaven and earth. Keep blogging I guess, but I do wish you get better. 

Hello Ver,  your message is extremely informative and for those who live in the US it's so sad you're not get the attention required for this very disabling condition.  I feel so sorry for Tasha too.

I'm so lucky being in England with our National Health Service and my ENT consultant is just brilliant, so I'm one of the lucky ones.  However, I did have to suffer Bacterial Meningitis for anyone to sit up and take notice of my Eustachian Tube Dysfunction that caused.

I think many people are suffering with air being unequal, that is so different than mucus being stuck in their ears from Sinus and Allergy issues.  I've experienced that a few times and it's worse than mucus, as one can't pop their ears to clear it.

I never realised until I came onto this Forum just how many people are suffering different types of ETD....I thought I was on my own.

So it's good to message people who understand this awful condition.

Anne

It makes a rumbling sound. Like a drumroll that wakes you up etc.This blog is my diary.

I apologize.. on the diary misunderstanding. ETD seem to be an unpopular subject to discuss with most Specialists for some reason. For sure, there's A LOT more profit to be made from people suffering ongoing with it than to correct it. Hm? I know the symptoms create frustration. especially when you feel those around can't see this happening in front of them.  Everyone vents in their own way,   It's a start that you are aware of ETD... I wish I was aware of this before all the things that happened to me and was able to read blogs like this to communicate and learn from others. 

Please keep us posted and be more specific on how it feels/sounds and when it happens(e.g. a sense of inner muscle spasm moving when the thumping occurs or hear heartbeat). What seems to make it stop?   If it stops, let me know... this seems to be good news because then it's not totally dysfunctional yet!  Next, are you able to apply for Medicare/medicaid right now esp. with your low income? There's some non-profit agencies who may assist to help. This would be a good start to help pay for expensive Specialists this year.  I'm aware of a clinic in your area where you may get help directly for this. Don't waste any more money in expensive E.R. unless your life is in danger. Save the money for this Specialist which you can ask your mom to drive you to. 

-V

its not a heartbeat sound.it feels like a hard annoying poking feel in the eardrum.Try poking your harm really hard very fast and say 1 2 3 then stop then rapidly do it again then stop.it go in a horrible pattern.i burp,lay on my side by or yawn or start moving around it acts up Thumping like mad.It rattles my head to the point my left is trying to  copy.Zyrtec the generic version does slow it down to the point it stop for a few days but now it got my thumping caught on to it and it ignores the medicine.sometimes it thumps on and off and wakes me up(i got bags under my eyes and everyone is staring like i saw something horrific).tried calling all the specialists in dallas ...they are expensive as hell.charity clinics go by zipcode,im in none of their zipcodes.i cant qualify for medicaid cause my mom has medicaid and it will mess up her stuff and long dark story from years ago.i almost lost my job off the *do not accept this person list* cause of the medicaid deal.cant get insurance im under the poverty level the tax people told me.my mom has some sort of anemia blood pressure mix that comes on without warning so she cant help me and we dont have a car.plus since the dart rail arrived here in dallas long ago,getting to any doctor is impossible cause the original buses on those routes changed or no longer exists.so im gonna be another jane doe in this world.abadoned and left as bones in the ground.      

pardon my bad writing

Hi Tasha - the circumstances surrounding Medicare eligibility is a bit odd and I can see you're uncomfortable or unsure about it.  I still think you may qualify for it despite your mom's illness. There has to be a social worker somewhere (you can ask the "free' health clinic) who may be able to help you with this. I do not know.. thats the only thing I can think of which has to be asap because I believe enrollment is right now to begin for Jan 2018.  Time flies.

Your symptoms sound to be aligned to what some others here said earlier - muscle spasm in the middle ear due to that specific thumping from ETD at times. Fluttering sounds is usually said to be the tympanic membrane(eardrum). This is all a pressure equalization problem your ETD is triggering (the need to pop, belch, yawn etc. to open them). Then your anxiety increases (like everyone else because your brain and body is fixated in trying to correct this abnormal feeling/hearing).  

I know you likely don't want to hear it again but there's Tonic Tensor Tympani Syndrome (TTTS), Ear Myoclonus or Stapedius muscle disorder.  Some people had this surgically cut which helped. Yours seem to be sporadic and not constant which is a GOOD thing.  Some people take Benzos. to help relax yourself/muscles but they are addictive and require $$/prescription. Then I read there is a "ZYGOMATIC HAND PRESSURE TECHNIQUE" to try!  We can't post urls here but look up "Ear Myoclonus" under "tinnitusformula" to see this technique. I hope this helps.  Along w/ it at least try Melatonin, magnesium and saline spray<-- (I have seen them for 99cents in dollar stores and in "Wal"stores).

Im not keen on surgery unless there's a true -valid- high success rate w/ it along with input from people who actually had it done (like here on blogs).  Need to pinpoint WHAT is it that's making your ET congested? Specific allergy, sleep apnea? silent acid reflux? GERD? Sinus disorder, past injuries etc. blah blah blah. It really sucks with the monetary limitations and it seems you're in the suburbs. I wonder if posting for carpool help in classifieds? but obviously need to be careful - a woman driver etc.

I'm aware of 2 good places in TX to see through "word of mouth" from other professionals. Try at least to consistently use simple saline nasal spray to balance out your nasal/ ET mucosal biofilm and try that technique. Who knows - (fingers crossed) a miracle!!  -V. 

Quiet for three weeks is good news, in my opinion. It means that there's a good possibility it might away, and hopefully forever. My tinnitus is 24/7 and has been for the past 22 months. Some days are quieter than others but I've never had 3 weeks of complete silence. Wish yours goes away soon and forever. 

hi Tasha, im sorry of the ongoing suffering. I came across other forums involving others who state similar symptoms. I don't know if it may be helpful but if you type in search "Rapid thumping sound in right ear" by andrew97653 and "What is wrong with my ear" by Ange527... they both sound very similar to yours. The latter has more responses that you may find something to help you cope. -V.