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I have concerns about the information that's provided to people diagnosed with hip OA. Information from doctors, health organisations - and sites like this - is presented as 'evidence based' and the assumption is that it is very reliable. Yet I would argue that this is NOT the case.
It's extremely difficult for people to get straight answers from health pros as they always refuse point blank to provide details of evidence - falling back on patronising and dumbing things down into baby talk.
I realise I'm being a bit antagonistic here (and massively generalising about health pros), but we're grown ups so how about having a grown up discussion? If you're reading and you're one of the 'good' health pros, then please share your honest views as you will help a lot of people immensely with honest, open discussion.
My first concern is that health pros are NOT up front about the fact that there is no diagnositic test for OA - that it is a diagnosis of exclusion, yet very common and treatable forms of joint pain AREN'T ruled out - for example muscle imbalance/RSI's. Why not? The risk is EXTREMELY high - especially in over 45's - that we'll be labeled with an incurable disease that we don't actually have and will spend the rest of our lives with pain and disability UNNECESSARILY. So much for "Primum non nocere" - when you tell people they have an incurable disease you do IMMENSE harm.
When it comes to treatment of hip OA the guidance given to patients is based on extremely scant information. There is next to no research into hip OA so any info given about it's management and prescriptions for exercise are for the most part plucked out of thin air. Patients follow this advice because they trust it to be reliable; if they knew how little research and knowledge was behind the recommendations they'd probably come up with better management schemes on their own.
I'd like to ask the pros what steps they take to reassure themselves that a patient really does have an incurable joint disease, and how they decide upon treatment recommendations. Do you admit that there is no research to guide you reliably? That there are no 'experts' in the NHS that are adequately trained to identify the curable cause of joint pain (which I would argue all too often will be complex muscle imbalance - certainly it was the case with me, and was at least a huge component for many other patients posting on these boards.).
People deserve to be given more honest information so that they can make informed choices.
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