Irritating , annoying comments about chronic pain .
Posted , 10 users are following.
Don’t you hate it when the able-bodied try to encourage you with cliches that no longer apply to chronic pain patients?
The one that irritates me most is, “If you can dream it, you can do it!”. or, "the power of positive thinking" ... Here's one of my favorites
just keep moving and be "Mindful" of your tolerances.
It makes me want to reply, “Really? I’m dreaming that you would feel my pain”.
What at are some of the irritating response you receive from those who do not suffer from chronic pain? And what do you tell them?
4 likes, 369 replies
Carolineq8 hope4cure
Posted
Well the other day while I was sitting on the pain clinic ward waiting for 20 injections in my spine telling the lady in the next bed that i had to do my Xmas shopping on line as I couldn't physically walk or stand for her to turn and tell me that her pain tollerence must be much higher than mine and that you have to just work through it and on and on and on she went about how tough she was, well it got me thinking why she was even there in the first place, never felt so patronised in my life and didn't expect that from someone in the same situation 😂
ihavenonickname Carolineq8
Posted
Carolineq8 ihavenonickname
Posted
😊
edward61102 Carolineq8
Posted
I'm tougher on myself than anyone else could ever be. Others that don't live in chronic pain can't even begin to understand what it takes from day to day to even get out of bed. The fatigue, the lack of normal sleep, the chronic dependency on medication, the sadness and depression because our lives haven't been what we imagined as young people. People think I'm just fine because I don't complain and I exercise regularly. They don't know what I go through privately. If I started to complain, I'd probably alienate every single person who loves me.
hope4cure edward61102
Posted
Very true in so many cases. Chronic pain can change who you are loose your lifestyle and the whole ball of wax just keeps getting bigger and bigger.
Yet I am thankful to have the life I have. I am so lucky and grateful for all the things that make me happy and bring so much joy every day.😀
many blessing and heeling prayers sent ur way .🙏🏽😇
hope4cure Carolineq8
Posted
So sorry you have to endorse back injections. I hope they help. Can you share what for and did the injections work.
many people that suggest that they are in pain or claim to have high pain tolerance in many cases have not endured mind boggling take your head off pain yet.
That in itself is what we deal with every day. Minor annoying pain and there is no easy way to say this but extreme pain every day wears us down. Every ones back problems are at different stages. pain is different for everyone. Chronic pain changes the picture and makes us stronger to handle uneducated comments. You did a good job. If it were me I would have bopped her gently with my cane and said oh excuse me didn't mean to hurt your feelings! 😚
gloria55119 edward61102
Posted
Mr. Ed. I.m with you all the way. I'm lucky, the people around me get it...they know how I'm feeling when I can't get out of bed.. Problem I have is that the gossip goes round the village that Mama can't get up and everyone expects me to be dead in a few hours. Luckily...it hasn't happened yet...but sometimes I feel so bad that I wish it was "the end". But then I'm back again and I have to resume my position here as Mama to hundreds...and get over it once again for the umpteenth time this week. How does one explain that anger goes with pain...grumpiness is not me..it's the alien that lives inside me. Thats how it feels to me...the aliens that cause pain...won't let go of me. Gotta fight it...gotta find the courage...gotta find the strength...gotta find some peace. Love you...hugs for my Mr. Ed. G
Carolineq8 hope4cure
Posted
They do so I'm one of the lucky ones as I know they don't for a lot of people, I have lumbar faucet and sacrialic bilateral joint injections every 5 months after an l4/5 fussion 13 years ago, I have a thoracic arachnoid cyst compressing my spinal cord which flares up and causes upper back and neck spasms and cervical degeneration and now they think I may have some sort of infamitory arthritis.
This sight is amazing!! Some of the comemts regarding mindless people are hilarious You made me laugh with yours about bopping her with your cane, it's sad to think that there is other people that get what your going through because there experiencing it to, I wouldn't wish this on anyone but every comment regarding pain can only come from someone who's walked those shoes, wish you all peace and comfort with your daily battles 😘
gloria55119 ihavenonickname
Posted
well said jude...love it.
edward61102 gloria55119
Posted
Oh I'm with you, I'm naturally happy and friendly, but I can be the biggest prick alive when I don't feel good. I need to stay behind a locked door. Especially away from whiney kids. :-)
ihavenonickname gloria55119
Posted
Indigoods edward61102
Posted
Most people just don't wanna hear it. And no, AS is not something you can just make someone understand, hell, not even sure my rheumy understands it.lol...It all goes back to how people in general, are in constant fear od thier own mortality. I actually had one person that didn't want to be in the room with me. To dumb it down for her(sry it was a lady), I said you can't catch arthritis moron? Not real accurate but it was the best I could do in such short notice.
gloria55119 Indigoods
Posted
I think we should just paint spots all over ourselves...that'll give em all a fright....and keep them away...who wants these people around anyway...better off without them...lol.... Lets stick together on this....love and hugs..G
hope4cure gloria55119
Posted
HiGloria, and India missed you guys. G great response. We could have specially made tee shirts made up and have the polka dots on them to distract the onlookers, make it an optical illusion style of dots to make their eyes cross! 😀😀😀😀
gloria55119 hope4cure
Posted
Great idea Hope...or something really nasty...you know those stick on scabs that they use in horror movies...lets get some of those...and a "Kiss Me" T shirt...ha...ha..ha...ha......
gloria55119
Posted
Just another thought...when my son was dying from AIDS we had to take him to a small country town hospital as he had a chest infection. The domestic staff of one...put his food near the door of his room on a tray and shoved it in with her foot....all these posts just reminded me of what we went through... Now don't go feelin' sad for me...it taught me so much...
Carolineq8 gloria55119
Posted
Unbelievable 💝
hope4cure gloria55119
Posted
I have my own stick on scabs it's called psoriasis. Funny recently while going thru pre op tests for THR revision the doc saw the scabs from P. And jumped back and exclaimed what's this? Well it was on the inside of my thigh, I said it's leporsy. Just kidding its psoriasis not contagious . I heard a sigh of relief and out the room the tec flew.
Kinda scary to see that kind of reaction from educated people. I guess not!
I get so tired of explaining it all the time so now it's just messing with them to get a reaction! 🙀
Take care Gloria keep,packing and have fun with those bubble guns . I love bubbles.
my nephew had HIV I miss him just as much as you must miss your son! The things that happen to our children we could never expect when they were our babies. We just wanted them to grow up and be HAPPY 😐
Hows the packing? Your sure to be off to Australia soon! I'm so happy for you! Sunshine will do wonders for the Holidays🎅
Hopexxx