Just diagnosed with copd a week ago.

That's good to know, I will stay off cigs and will continue to excersise. Did you get diagnosed at stage 3 or is that how it has progressed for you? My dr wants me to wait 2 weeks before taking the lung function test.. She says my lungs will regrow the cilia and should help my numbers ? Stage?

I don't think I've deteriorated much in 4 years , apart from my lungs I'm fitter now than I've ever been ! I was late stage 2 when diagnosed so I've done well looking after myself. Your lungs will improve slightly if you can manage the symptoms well . If you're on Facebook add me , my name is Andy Barker . Try not to worry too much ........ It's not the end !

Thanks Andy for sharing, feeling better with every experience shared!

Hi Teresa:  That is actually my name too, I choose to go by Terri though.

Not really sure what to say here without offending you and everybody

else!  I feel like a broken record saying this - we are all so different, an

obvious but perhaps overlooked fact.  What my Dr.'s prescribe for me to

inhale or ingest or whatever might work for me but not for you.  It does

somewhat irritate me when I hear people asking what works for you? 

What works for them most likely will not or perhaps, who knows, might

work for you.  I am sure that you are realizing that you need to find out

what works for YOU.  Not for all of the other people on this forum.

I agree that this forum is a great place to go for information, but please

remember that is all it is information.  None of us are doctors, as far as

I know, could be wrong?  We are all just people trying to cope with our

lives and copd.  Good luck Teresa from another Teresa. xo

 

Curious?  Why does it matter what stage you are at?  I have chosen,

perhaps stupidly, not to find out "what stage I am at".  Reason being

that I, knowing myself well, will dwell on the stage that I am at.  If you

know what I'm sayin Andy.  Looking forward to your reply.

Hi there ,I'm in the same frame of mind as you ,numbers ? I don't want to know ,I go by how I'm feeling on the day to day ,I have a visit to the consultant twice a year ,I have an annual review with the asthma/copd nurse ,I see the specialist copd practioner as and when I need to ,and I see the pulmary rehab nurses  twice a week when I'm in the gym ,next to where they do the PR COURSE. ,so if I have any problems they would be my first port of call ,the rehab nurses are brilliant ,always give me a thumbs up as I pass ,today I managed 3& 1/2 Klm on the tread mill  I'm hoping to reach my goal of 5 Klm,,,,,,, before getting another chest infection haha,

hope your keeping well ,take care ,

Hey Nanny: 

​Have to say that I am in awe and jealous, to be perfectly honest, of the health care system that you have in the UK and it would seem in the USA,

​or am I mistaken.  It took around 2 years to find a GP after I moved.  My

​GP is great but he has no hospital privileges.  He is from Nigeria and

​was a surgeon there, however here in Canada he can`t even get hospital

​privileges.  The gist of it is that if I end up in hospital my Doctor won`t be

​able to visit me, prescribe meds, etc...etc...  Rotten but true.  End of

​vent.  I`m ok Nanny.  Wild fires still raging but not close to my house,

thank God.

Wild fires ??? Oh yes it's been on the news here ,keep safe ,the last thing you need to is to inhale lots of smoke ,so take care ,

I am so very lucky to have the care that I do ,along with my lovely hubby ,

I take it you don't gave the option of Pulmary rehab ? ,I have to say that's what really saved me from,,,,well who knows,,,? I found them on my door step ( the PR NURSES) after being discharged from ICU after septasyma ,and pneumonia ,the hospital sent them out to take care of me ,,,,they were wonderful ,they visited me daily for a number if weeks ,sometimes sitting chatting to me when I got a bit depressed at the slow improvent I was making ,that was Xmas 2008 ,,,,,by July I was feeling much better ,and they came to see if I would attend a PR course they were setting up ,,,they had been so good to me ,,,I thought I must give them support ,,,,I did the 8 week course and felt sooooo much better ,,(,,,previously to that my hubby did all the house work etc as I got so breathless ,,,,) I followed up the 8 weeks by asking the trainer at the gym if he would pad help me with my fitness he was only too happy to help ,,,we had quite a few laughs ,,,you see my aim was to go once more on holiday by air for some sun ,,( and a treat for hubby ) as I had been told my oxygen levels dropped too much while on the aircraft ,,,I finaly had an inflight  lung  function test and passed ( but had to have back up oxygen during the flight ) so the next day I went to the gym and my grandaughter had made me colourfull sign to hang over my head back and front saying ,,,,,,I did it ,,,,,I can fly ,,,,we had a cheer and a laugh ,,,,and I went on to Majorca for 3 lovely weeks ,,,  I returned the next year and the next ,,but then I had a couple of falls and smashed my wrist/  hand  and had to have operations ,so couldn't exersise for a year ,then I had a slight heart attack due to high blood pressure ( I didn't know that I had a problem ) and they said the falls were probably caused by the blood pressure etc etc ,,,,any way a couple of years ago I failed the flight test ( even with  oxygen ) so now we holiday in uk , oh dear I've gone on rather a lot haven't I ,,,that's old age for you I'm 70 in January ,,,,,somi keep taking my medication ,and vitamins ,eat well ( but have a bar of chocolate now & then ) and exersise twice a week ,I'm sorry for rambling ,but I think it helps to know that although being diagnosed back in 1992 age 46 ,,it's not the end of the world ,

I have never asked what my readings are or numbers sometimes ignorance is bliss ,,,,,you will have to cone and live in the Uk we will look after you ,take care Terri and God Bless 

 

No Nanny where I live there is no care like what you have in the UK.  It took

over 2 year sto find a family doctor!  My adoptive mother was from England

​and I  have thought at times that maybe I should look into moving there,

believe it or not.  I am entirely on my own, no hubby, no children, etc.

​I am also a very strong person and choose to try and be positive.

Thanks for the message Nanny and take care. 

Hi ,keep a positive outlook and be strong as you are that's the key ,

take it a day at a time ,exersise is very important it gets the oxygen into our lungs ,I wish you well ,

Thanks Nanny.  All the best to you as well.

Hi Terrie , i think it's part of my personality, I like to know things like this , it gives me a start point ( sad or what lol) 

Well if you are sad Andy so am I coz I am exactly the same.  Not knowing something drives me potty and makes me worry all the more!   I think it's a personality thing.  x

Whatever works.  Right?  For me I would go bonkers if the numbers or

whatever were not good.  Would be worrying night and day.  Head in

sand, buried deeply?  Maybe, but it works for me.  I've never been one for

meds. or doctors for that matter.  No it's not sad Andy if it's working for you.

Which just proves we are all different Terri!    x

precisely correct!  and isn't it great that we are all so different?!

xo