Just the beginning I think

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hi folks I've just joined the forum because quite honestly I'm a bit scared.  I've had a cough now for over 8 weeks which has subsequently turned into breathlessness.  After a third visit to my docs just over a week ago I was told that I have COPD.  Well never heard of it,  I was coughing too much to ask the doctor much so have relied on Internet info.

I was given an inhaler but not told how to use it, I think I have it Sussed now.  I was told to take anti hystermines and have had appointments booked for stopping smoking (easy to stop when you're struggling to breath really)

my spirometry test is tomorrow.  My dr indicated that she thinks I have mild COPD when I saw her the other week but I feel so unwell and tired having difficulty doing even basic stuff like getting dressed at the mo.

anyway can anyone throw any light on how you should feel and what light there is at the end of the tunnel.  I feel like I'm really letting my family down at the moment.

thanks

 

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  • Posted

    Hi I sometimes have low oxygen levels as well despite being mild.  I think this could be related to the smoking though.  The breathing exercise I do always increases it by quite a lot. 

    I breathe in quickly (nose or mouth whatever's most comfortable) hold it for a few seconds,  then breathe out to a count of about 8 but don't stop until you run out of breath completely.  This seems to get rid of any carbon monoxide lurking in the lungs. 

    The exercise thing.  I have been to PR and they said that to get the maximum effect you need to exercise to a level where you are not too breathless to hold a conversation but are too breathless to sing.  They called this the Borg level (google it).    You need to exercise to your level borg 4.

    I hope this helps.  Bev x

     

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  • Posted

    Hi,LOU AI

    i found out I had copd when I was in hospital in February  for something else,i wondered why my doctor never told me.so like you I went on line to inform myself.i was shocked ,like yours mine is mild,I don't think there is any think you can do yourself about it.iexpect you have been given an inhaler.I don't think you are letting your family down,we all get some form of illness at times,if they were ill you would not blame them.

    take care.

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    • Posted

      I didn't know there were exercises for it thanks hyper at.

      liz

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    • Posted

      There's a LOT anyone with COPD can do about it!   Rehab for a start, breathing techniques, exercise .......  it's a very manageable condition if we're prepared to take some rsponsibility for educating ourselves and acting on what we learn.

      Did your doctor know your symptoms and not check for COPD, or did h/she check and not give you a diagnosis?

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  • Posted

    Hi ,stoping smoking is the best thing you can do to help yourself ,,,and exersise is Also important ,take care ,
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  • Posted

    Hi

    Sorry to hear you have this condition. I too have it. My lund function test showed that I had only 40% of my lungs working. It tends not to bother or worry me, I tend to take life as it comes. Anyway, you will probably fill tired and exhausted at times, other times you will feel okey dokey.

    Have you had a lung function test yet ?

    Try not to get to stressed over this as this can affect your breathing.

    Please keep in touch as you get more information.

    The best way to use an inhaler, though it is differant for some so you need to read the instructions. Totally empty your lungs out as much as possible and then inhale the inhaler. You may need to do this 2-3 times depending on the medication.

    I am absolutely appalled that you were not shown how to use it.

    My very best wishes to you.

     

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  • Posted

    Hi folks,  latest update.  I've not felt any better following use of  Spirva felt worse yesterday completely lost my voice and struggling to breath as soon as I moved.  I went back to my go this morniing.  Oxygen level was even lower, now signs of infection.  She put me onto a rescue plan of steroids tablets, antibiotics and sent me straight to the nurse to go onto a nebuliser.  She is quite sure that I will see the benefits of this treatment by tomorrow evening, but if not I will need to go to hospital.  I'm due to see the doc again on Monday to see how it's gone.  Hope it does work as I've been feeling terribly unwell.  

    What an awful illness this is guys,  people rattle on about cancer from smoking but don't remember anyone ever mentioning this at any point in my smoking history.

    i never want to see another cigerette ever.

    xx

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    • Posted

      Sorry to hear your feeling so unwell. Sounds like a plan to have steroids and ab, hope this works for you and prevents an admission. I often think young people should be. Made to visit a respitary ward and see first hand what can happen if you smoke. It's not a pretty sight. Hope you start to feel better soon. Xx
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    • Posted

      Once the antibiotics kick in you will feel so much better then you must really look after yourself with a good diet and exercise. I had numerous repeat infections early this year and it really got me down. Been clear for a couple of months now and feel great x take care xx
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    • Posted

      No I dont tak additional vits only Accrete as I have oestioporosis (prescription). I eat plenty of fruit and veg and where poss have balanced meals. It might be worth asking your doc if they would advise you on this xx I have also started walking at least a mile a day at different speeds, trying to extend the distance slowly xx hope this helps
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    • Posted

      Hi Lou Al I am sorry you are feeling so poorly and I really hope the treatment works so you can avoid the dreaded hospital.

      I think the knowledge in the public domain about COPD is totally inadequate and I know many smokers who have never heard of it - until they get it.   I think the cancer link though very important is much overplayed at the expense of much more common illnesses like COPD.  After all everyone knows they won't get lung cancer so most smokers will dismiss it.   And the silly adverts saying every 10 ciggies cause a tumour.  Every self respecting smoker who has had more than 10 ciggies says ok well it is too late for me then and ignores it.

      However if people were properly informed about COPD and given the facts that smokers have a 1 in 4 chance of getting this and suffer from shortness of breath,  life limitation and possible need oxygen I think many more would listen and stop the fags.   But the truth is the Govt. makes a fortune in taxes and can't afford to lose the money so they just pay lip service to it.  

      Call me a cynic but that's what I think.  Bev x

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    • Posted

      I thinkthe emphasis on cancer is because cancer it'ss such a feared thing and can kill you very quickly.

      What enrages me is that the Quit campaigns here in Australia have been putting out flyers & posters for years and ads on the back of magazines stating amongst other things that a smoker's lungs will return to normal within some given period of time.  Well we all know that's not true for anyone with COPD, but I believed it.    I really believe I would've given up smoking much sooner if I'd known more about COPD.

      I did know about emphysema, but I didn't know I could die of it once it got to the COPD stage.

      I think you are being a bit cynical:  surely if governments were only concerned about maintaining taxes on tobacco they wouldn't be publicising the dangers of lung cancer?   I don't know what the situation is in the UK, but in Australia we now have plain packaging with very gory warnings,including about emphysema, plus no smoking in cafes, pubs or bars or in cars with children and soon there is to be a ban on smoking in outdoor eating areas.   I wouldn't call that lip service, would you?

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    • Posted

      Hi Jude and bev,  I can see how we get a bit cynical about governments as yes they have done all of these things to attempt to change people's attitude to smoking.  

      The problem is that putting the biggest emphasis on a condition you can get no matter what you do you take away some of the impact if not all of it.

      just my view having lost my amazing fit incredible son a rare form of cancer.

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    • Posted

      I would Jude yes.  It is not quite so restrictive in the UK yet but can you honestly see smokers saying 'Oh it's in a plain packet now so I won't buy any now and give up?'   It might make youngsters think twice about taking it up, which is a good thing.  

      Why do you think they won't advertise COPD?   Coz too many smokers might give up then and they would lose a fortune.   After all the taxes on smoking in the UK is more than enough to fund the entire NHS. 

      After all if they really wanted all smokers to stop why don't they ban cigarettes completely?  They could do it tomorrow if they wanted,  but they never will!

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    • Posted

      Meant to say taxes on ciggies are more than enough to fund the entire NHS 3 times over.
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    • Posted

      The scenario you suggest isn't the reasoning behind the plain packaging:  my understanding is that it was based on research indicating that many smokers, especially young people, associate particular brands with being cool or sexually attractive etc etc, so the plain packaging is an attempt to break that connection.

      The Quit Campaign here does mention emphysema but not COPD, which isn't surprising really:  lots of people who actually have it don't know what it means and obviously cancer is more effective as a scare tactic than something hardly anyone knows about.   They also mention all the other things smoking causes:  cardio-vascular conditions, bladder cancer, mouth cancer, etc.    If governments didn't want people to stop smoking they wouldn't be telling the public about those conditions either!

      Re your last sentence:  did alcohol prohibition in the US work?   Has zero tolerance of illegal drugs worked?    Of course not, and banning nicotine wouldn't work either.     Government campaigns in western countries like the UK and Australia have hugely reduced the smoking rates, to the extent that tobacco companies now focus their marketing in impoverished third world companies where there are no regulations whatsoever.     

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    • Posted

      Do you have the actual figures on that?  I'd heard it was a myth that had been debunked ages ago?
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