Lichen Sclerosis

I wouldn't think having sex with you is right at the top of your girlfriends "to do" list right now. She could probably do with a hug and some compassion. She has just been diagnosed with a chronic, painful illness. Why don't you man up and give your girlfriend the support she needs?

Like a real man.

Hello,

Sorry you are feeling a bit lost about this condition your girlfriend has.  It can be really hard on both of you.  My husband and I have worked things out, it has been hard at times.  I feel less than whole sexually sometimes.  I am currently feeling pretty well, the ticket for me was eliminating wheat.  Lots of lube helps with regular sex, and we can't go on for too long because my skin will tear.  If I am having even a mild flare, recovery after sex is brutal, there are tiny tears in the skin. Oral sex for me is a no-go anymore, which is a TOTAL BUMMER because saliva feels like acid. I am not kidding. AWFUL.  Anal is not my thing, so can't comment on that.  But imagine if every time you had sex the skin on your penis tore all over in different places, and imagine if the most tender pleasurable parts of you disappeared altogether and it was almost impossible to have an orgasm at all.  And then as it starts to heal a bit it doesn't exactly feel much better really,  it feels like an itch that is on fire, can't sleep, can't wear any underwear can't focus on anything at all.  It's torture to your most intimate parts, and that affects your whole outlook on life and others.  It's depressing as hell. Try your best to support and understand, grab a magazine and head for the bathroom if you need some relief on your own.  Don't cheat, don't get angry. The more support you give, the better is is for both of you, I promise.  Good Luck to you both!

Just want to add that anal is probably "out" as the disease often extends to the skin in that region also.  

I can't really give you any good answers.  My LS was horribly active during my younger years but I *always* *always* had irritation for probably a week after sex.  Due to the condition, frequency of sex was probably not what a younger man had in mind.  You need to have a good, long "think" to yourself to see if this is something you can live with without resentment.

Hi Marky. I'm sorry you have received some hostile responses to your open and honest question. Sadly I can't tell a positive story re a full/wonderful sex life. However, me and my husband do have "fun" in the bedroom and we have been able to conceive two wonderful children. Hopefully there are lots of women who are enjoying good sex lives whilst living with LS, but because of minimal impact on their day to day life they are not as active on sites like this.  My main reason to respond to you however, is just to say that it is hard on the partners of people suffering with LS and it would be natural to be sad about a lack of sex life (if this were to be the case in your relationship), but please know that there are many men (and women) out there who for various reasons don't have a full/active sex life with their other half. Far more than I think society would have you believe. I say this because I think it can be easy to get depressed by the idea that you are the only one out there not having sex all the time and you can feel isolated and this can impact negatively on your relationship. Whereas if you focus on the things you can enjoy doing together sexually along with the love you have for each other then life is good x 

So I think LS affects people different ways. Not sure what your GF is experiencing so my answer may not be of any help. 

My one symptom is severe itching to the point where I’ve cut myself open. And even though it sucks I consider myself lucky that’s my one ailment ( so far). 

I can have sex w/o pain. As for oral sex I opt not to because I don’t want my husband to contract anything orally. I kind of live in fear of lichen planus (lichen sclerosis of the mouth). My GYN did say it’s not contagious but I’m not messing around with this and frankly don’t trust drs know enough about this. Good luck. I think it’s great that you’re researching this. 

Hi, unfortunately, the whole tone of your post ain't great..its crude, and crass...if you had worded things a little differently, perhaps being a little more sensitive, you might then have got a better response.

For many of us just being able to have full penetration is an achievement, and I can't speak for everyone else but Anal sex isn't something that I think about too often.

      su culpa.

So much negativity on here !!

thought this site was for helping everyone??

 he’s just asking for some help !!on something he’s just found out on a diesese that is not heard off very often before I got it !!!

I never even heard about it ,,,

how ! is it ok , for woman , on here to ask when they just got there diagnosis ,  

 is going to ruin there sex life ? and not a man ?

I wish my husband , had got the guts to join a forem and ask these questions  sure his wife also want to know the answer,  to this also ,

that’s the first thing when I found out that I wanted to know !!

and the first thing I googled for the answers  !!! Please give the guy a break ..