loud roaring vibration sound in ear and hearing distortion

So sorry you are having such a struggle as I appreciate how debilitating that vibrating booming noise can be.  Sure sounds like PET.   I was stuck with that really badly for quite some time, but so pleased to relay the good news. It's stopped and I'm virtually back to normal.  Occasionally I may experience a little tinnitus but nothing too bad.  It's a costly business having to visit the ENT's, have scans etc and still get no relief. For me personally, I am convinced two factors have been my saving grace.  a)  I have had weekly treatments with a neuromuscular therapist for at least four or five months now.  She is very highly trained - works on the sternocleidomastoid muscle.  (might pay you to google it).  It's so connected to the ear!  b)  I took the plunge and went on an autoimmune paleo diet and stuck to it like glue for several months. It takes one right back to basics with food and it's amazing!  Love it.  A bit costly to begin with but as my mother always used to say 'you are what you eat'. My friends and family can't believe the change in me as I have so much more energy.  The one other thing is lots of exercise and deep breathing.  Like you, I am also super sensitive to normal sounds (hyperacusis), but even that seems to be improving.  So................if you are able to tough it out for a few months as I did (still do) it may be of benefit to you as well.  My journey of severe vertigo (which always landed me in hospital), PET, hyperacusis has been at least 11 years, and many a time I was close to giving up. I pray this may give you some hope.   

Aw, thank you so much for replying as I know people who tend to get better don't usually come back to report so.

I'm really happy for you that your condition went away/improved, so nice to hear success stories... all I've read about this is "I've had this for 30 years now" and it makes me feel sick with fear to think of having this another month let alone years (

I've heard of PET, but I'm not sure if it's what I have, as my voice and breathing isn't significantly loud, although my voice does sound bassy but so does everything else.

Also the ENT told me it wasn't was eustacian tubes as he would be able to tell from looking in the ear! How did they discover yours? I was hoping it would be to do with that and not anything further in the inner ear.

It's just frustrating after seeing almost every kind of doctor and nobody knowing, that feeds my anxiety and then it's s vicious circle.

I barely slept 3.5 hours last night, since it's almost impossible to mask this sour as I can feel it as well.

I will look into your suggestions though, whether it's the tubes or the tensor tympani muscles it could still help I guess?

Once again, thank your for responding after these months... I hope to God it can back off someday, each day is a mission to get through... other people don't seem to appreciate that something such as this can cause so much distress and EVERYONE seems to think it's anxiety and it's making me feel a bit like I'm going mad!

Oh, as for the diet, I am vegetarian but I wonder I try to eat healthy although now I am very underweight due to the stress of this... ill look into diet more though.

Keep up the good work, it's obviously paid off

It took a few ENT specialists before one actually noticed the PET.  He had never encountered it over the 25 years of practicing.  The way he discovered it was by looking in one ear and getting me to rapid breathe then doing the same in the opposite ear.  He could physically see the membrane opening and closing with each breath.  That of course, is not normal.  .................. Also, I was suffering badly from silent reflux (unbeknown to myself) apparent after an endoscopy was put down throat.  Turned out I had a very inflamed oesophagus and lots of mucus.  That ENT told me to eliminate anything acidic from my diet.   For a while I took medication, but it just didn't agree with me, so I worked with a nutritionist who suggested perhaps I was one of those people that actually NEEDED more acidic foods.  That worked amazingly well.  It is so hard finding the answers, but keep searching.  

Hi,

I am sorry it took me so long to respond.  I know what you are going through.  It is going on a year on Dec. 10 that I woke up to this nightmare roaring/vibration in my head/ear.  My left ear has since then improved with just some distortion of sound once in a while and ringing.  The right ear still has a roaring/rumbling/humming/motor sound in it.  it changes from day to day but has gotten a bit lower or maybe I have just accepted it which i never thought I could do.  My hearing in the right ear fluctuates and goes down from time to time.  When that happens the rumbling stops and I get distortion, sensitivitiy to low frequency sounds like motors and and a deafening ring which is much worse to deal with. When my hearing goes down the doctor puts me on steroids which seem to work but can't be sure if it  would get better on its own, so I am told by the ENT. I have seen numerous doctors and they feel a virus caused this or it is Meneieres disease without the spinning.  i do feel off balace from time to time but it is tolerable.  I lost 30 pounds and have a hard time eating as I don't enjoy many things the way I use to.  I miss listening to music and going to restaurant and shows.  It's just not the same anymore.  I am terribly depressed and anxious and had to go on varisou meds to help with mood and life. Please note it has gotten a bit better and I try to keep a good attitude.  Not many people really get it what we are going through. I am very skinny now and miss eating and enjoying food.  My doctor told me low salt diet and everything is loaded with salt. The rumble is the lowest in the morning after it has been quiet all night and lying flat down.  As soon as I hear noise the rumbling is stimulated and increases.   Sometimes I can mask it with the dishwasher or dryer noise, sometimes not.  Sometimes it stops rumbling when I speak or when someone is talking to me. It is the most bazzar thing that has ever happen to me. I am hight blood pressure meds as well. I had so many tests. The only thing that comes up on MRI is Chronic microvascular ischemic changes in the brain that were picked up incidentally on a scan of the brain, most typically   a small blood vessel disease that is probably not the cause of my hearing issues as I have been told.  I am still waiting to see the neurologist for the full report and what to do about it.  I have fought breast cancer for a year and a half in 2012 and going through chemo and radiation was much easier than going through this.  I know how you feel.  I am sorry there are not many answerers or cures. Just keep in mind it fluctuates. I am seeing a psychiatrist and psychologist that are helping me. It took me 5 months to agree to go that route but I had no other options. I was going down completely and was honestly afraid of what would happen to me.  I still have a hard time eating but I try my best. I was not a big  person to start with and i can't afford to lose anymore weight. Please have hope and try to get help and it will not come from the ENTs. Please let me know how you are doing. My doctor said stress can bring this problem on as well. (PTSS) Hang in there. Donna

I feel the same wayi miss my life 5 months now dealing with same thingi last my house im always scared feeling i dint know what to do

Hi and sorry to hear of problems you've had. I never knew what was and was never investigated but have had a mainly really loud high pitched buzz in both ears all my life. Have also wondered and been frustrated as a child why I could hear but found it really hard to understand what people were saying. I feel like been fobbed off by medics as went several times as young adult because the noise was becoming unbearably louder and sometimes like loud  screaming which was all could hear even in loud traffic and felt like was going completely deaf. That would last from several minutes to a few days with normal very loud buzzing which was constan returning. Eventually went to,private audiologist as went to cinema couple times and could hear it but still the overbearing buzzing and screaming and was alarmed I couldn't make out a single word. Was told had significant hearing loss 70db in left ear and 45-55db in left. I was surprised as my hearing has always seemed the same but suppose did wonder why couldn't understand even though could hear. This is all new to me really and wondered if anyone could suggest a sensible route to go down as audiologist doesn't really deal with the tinnitus which is extremely loud ar best but drives this normally placid soul to despair at times and feels like if only it went away or turned down a notch or 2 I'd be able enjoy stuff a bit more. I wonder where to go with it as no one has given me a sound explanation as no infection or usual suspects been detected. Maybe was just born this way but if anyone can suggest where I could go I'd be grateful as have lost faith. Hope things are better for you these days  

Hi Lorraine, are you still experiencing your ear issues? I have had blocked ear sensation,low buzzing and blowing sensation in left ear for past 13 months. Been to a number of different GPs in my health practise, seen 2 ENTS had MRI scan of ears, camera up nose, pressure test and all came back normal and nobody can tell me whats wrong!!!  I asked ENT consultant if it could be related to menopause and he said no, he thinks it could be due to teeth grinding and has referred me to maxo facial consultant. I think it is related to menopause I am 51 and perimenopausal, periods getting very irregular. My GP couldn't give me any answers but reading this forum it seems like other women get ear issues too, I just hope it eases soon as my head feels so congested and stuffed up.