MEDICAL MARIJUANA
Posted , 16 users are following.
has anyone tried medical marijuana to help with PR and does it work?
0 likes, 17 replies
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Notes on MEDICAL MARIJUANA
EileenH Snowman1609
Posted
Many of the people on the forum live in places where it is not legal - which does really reduce the numbers! I think there is another thread started in the last few months.
After looking through over a dozen back pages, here it is
https://patient.info/forums/discuss/medical-marihuana-588790
There is also this discussion
https://patient.info/forums/discuss/cbd-oil-608131
shelley45866 Snowman1609
Posted
EileenH shelley45866
Posted
And someone said it helped - not because it stopped the pain but because she didn't care as much!
Anhaga Snowman1609
Posted
It is possible that CBD oil, from the leaf, helps because it's recognized as an effective anti-inflammatory. This particular derivative has no psychotropic effects.
Anhaga Snowman1609
Posted
Anhaga
Posted
Anhaga Snowman1609
Posted
The oil I'm not allowed to mention has been used in some cases of intransigent epilepsy in children, cases where the child cannot tolerate any other treatment. it's a pity we aren't allowed to name it here. This particular substance should be legal everywhere as it doesn't affect mood, reflexes, etc, as other parts of the plant do.
mimi1950 Snowman1609
Posted
I have used it and it does help some, although it's mostly the psychotropic effects that help, I think. As Eileen says, it just made me happier despite the PMR.
I have stopped using it, however, because I found it made the "pred brain" much worse!
Snowman1609 mimi1950
Posted
"Pred brain "?
mimi1950 Snowman1609
Posted
Steroid brain? I'm not sure if a foggy mind is actually a listed side effect of Prednisone, but a lot of patients experience it according to the forums.
I guess it's like any other drug, its an individual choice ..weighing the risk against the benefits. For me it did have one great benefit : have had nausea and anorexia during most of my PMR journey.I attributed it first to the PMR itself and then the Methotrexate but now I think it's the Prednisone, because I still have it. For that, the stuff is the best. There are no unpleasant side effects and there has been no record of overdose, so it's safe. I have tried the CBD and the THC , both have their propertoes.I like the THC but it does give you a temporary loss of recent memory, coupled with steroid brain fog, it wasn't worth it for me. I guess it also depends on one's circumstances. When I was practically bed bound with a broken pelvis, IT served as a pain killer, sleep aid, and anti depressant .But right now , my personal circumstances require that I be really alert , so I've stopped the regular use of it.
I never understood the hype about it being psychotropic, though. .. dont alcohol or opium- based drugs have psychotropic properties?
mimi1950
Posted
Forgot to say that when I had the excruciating pain from a double fracture of my pelvis, I didn't take any other pain medication. The stuff was enough to see me through.
EileenH Snowman1609
Posted
pam7653 Snowman1609
Posted
I'd try it if it was available. Don't be surprised if these posts are deleted. It happens every time it's mentioned.
EileenH pam7653
Posted
The moderation is different and they let the subject through - it was captured I think as I didn't see it for 2 days after it was posted. But they do allow it unless it gets controversial or someone is blatantly trying to flog the stuff.
denise____84544 Snowman1609
Posted
I've got ankylosing Spondylitis, Polymyalgia and Giant cell arteritis and have been trying Medicinal Cannabis for the past year. I'm in Australia and the oil has just started being used for children with epilepsy and I'm hoping they will allow it to be used for people with chronic pain. It certainly has been helping me a lot and I've been gradually lowering my opioid tablets. I have the support of my GP and my rheumatologist because the opioids were affecting the part of my brain that controls breathing - I now have a restrictive breathing problem so lots of breathlessness. I also found the oil kept me in a more relaxed state which helps me cope better with the pain issues. I hope this information will help you. I was also told that it takes 2 weeks of continual useage for the benefits to be noticed.
EileenH denise____84544
Posted
Thanks - that is really interesting.
Are they sure you have PMR and GCA? I know someone who was originally dx'd with PMR and GCA but she switched to a new and particularly good PMR/GCA rheumy (does research) when she simply couldn't reduce the pred. She happened to mention nighttime pain - which isn't really typical of PMR and AS was discovered when the right imaging was done. The "GCA" pain was referred from and due to the neck involvement and PMR type pain is often seem in AS. She is now on one of the anti-TNF biologics and Naproxen which have made a big difference to her pain.
denise____84544 EileenH
Posted
Yes, it has been confirmed that I have these conditions - recently spent a few days in hospital with my first bout of GCA alongside with the PMR which I've had for the past few years. I havent been able to take anti-inflammatries any more because of having a stomach ulcer 8 years ago and my stomach started having issues last year so they were stopped immediately. I find that a person will try anything to help reduce the terrible pain that autoimmune conditions cause and to just have some quality of life.