Mono need help

Posted , 34 users are following.

Hi so In June I woke up one morning feeling very weak. I thought I needed to eat something but when I ate breakfast I still felt weird. I ended up having my first panic attack. My entire summer was filled with ER visits for weakness, low energy, fatigue, dizziness, off balance feeling, and generally feeling unwell. It turns out I have mono (diagnosed a week ago). I don't know what to do. Just looking for others' stories and well and recovery process. It's my 3rd month and I just feel so helpless. ?? Thanks guys ! Blessing to all 

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  • Posted

    Has One ever felt like they were going crazy? Yes I have a therapist to talk about this kind of stuff with. But I wanted to know if anybody else feels or have felt this way. I’m not sure if it’s a symptom of anxiety or just the virus  in itself but I feel like there’s a huge frog between me and the rest of the world I went to the mall yesterday and felt like I was gonna pass out borderline but I also just felt really disconnected even though they were like hundreds of people beside me. I don’t know the experience really made me feel like I was going crazy and everything was just foggy and hazy and it was like a glaze between the world and me and I guess that freaked me out and I woke up this morning feeling the same way but the fog is just so incredibly intense and I feel like I may lose my mind to this virus I don’t know I know it sounds weird but I just feel like I’m going crazy. Which sucks because I’m 17 and love the mall haha 😂

    • Posted

      Hi Christy, I’m guessing this feeling must be normal during the course of this virus. I know exactly the feeling you mean! It definitely feels like I’m disconnected from the rest of the world and it’s like your life is sort of on hold. I nearly passed out whilst driving earlier so no more driving today! I’ve found that stress, and interacting with other people makes the symptoms more intense. I’ve spent the last few days feeling like a zombie. Prior to that I had a few days of not feeling well but better than I have been. I’m praying for some better days for you 😊

    • Posted

      Hi Ashley , I’m glad you could understand my message. Instead of typing it I said it into my phone because I’m being lazy. THERE WERE SO MANY TYPOS ! 🤦🏼??? But thank you for the response ! The fog is such an awful experience and I’m so glad you didn’t get hurt and didn’t actually faint. Yes staying away from driving right now may just be best 😊.  Thank you praying for you too 🤞🏼

    • Posted

      Haha it’s bad that I didn’t even notice any typos apart from the huge frog 😂 I did think that was a strange symptom! 

      It’s horrible how it effects your brain and no one seems to understand (apart from people on here) the anxiety is terrible some days for me, so if it’s any consolation you are not alone 🐸

    • Posted

      Yes I agree with Ashley. I still have brief periods of this disconnected feeling. Earlier the slightest stressful situation, which would not have normally stressed me in any way that I was aware of would bring on this fog, disconnected feeling. It would make me very lightheaded and weird feeling I can't fully describe.

      We are unable to process the amount of stimuli of being in public or even a small group. But it gets better. I can go drive and go shopping. I still prefer the smaller quieter shopping centers but am able to go to the busy ones. The next day or later that day I require more rest.

      Praying for all. God will bless you with better days ahead!

      Rhonda

    • Posted

      Well said Rhonda, that’s exactly the feeling I try and explain to people but it’s very difficult. I’m not the best at writing things down or explaining things like but it’s people like you that help me get by. Thank you 😊 

    • Posted

      Hi Rhonda , thank you and I’m glad you mentioned the lightheadedness that comes along with it because that is awful too and I’m having that today as well. Glad you’re doing better and can do more things , God bless you too ! ❤️
    • Posted

      Thanks, Mono. I think of you often. You have been a wonderful encouragement to me!

      How are you, your Daughter and Granddaughter?

      Rhonda

    • Posted

      Hi Rhonda,

      My daughter is still suffering, her brain fog is a little better though, my granddaughter is on independent study so only has school a few hours a week, she feels better, but still tires easily, I have been feeling better since September with a few down days here and there, I am able to get through the work day and still need more rest, but compared to last year it is a breeze.

      Are you fully recovered?

       

    • Posted

      Hi mono,

      its great to hear you're doing well, your daughter will get there, she obviously just needs a bit longer. I feel like you, still needs rests and early nights but nothing like the last year! Although I'm not back at work yet, even though I have pretty busy days!

      x

    • Posted

      Sorry to hear that your Daughter is still struggling so! I'm glad your Granddaughter is on independent studies. I think too much to try and process is very taxing in us.

      So glad to hear of your vast improvements.

      I took can look back and see how much I have improved. Soon to be month 18 but not completely recovered.

      Thanks for the family update.

  • Posted

    Hey Christy.  That anxiety/disconnect feeling was the scariest symptom of all.  I felt like I was on a different plane of existence and I would never get back 'home'.  It was so so awful.  I'm so sorry you are going through it.  I remember being at the grocery store and forcing myself to get groceries.  All I wanted to do was go back home and crawl into bed.  

    It does get better though!  Now I mostly just get sad when my symptoms are back instead of anxiety.  I started doing breathing exercises and turning on music when I feel the anxiety creeping back in.  It's so bad for our health and totally relapses the mono so I've learned to be super careful to keep myself calm.  It's not always easy.  But I've found that anxiety is the worst trigger of all.  

    I don't think I've been to a mall in months! But I did recently discover something called an Escape Room and it has been the most fun hour I've spent in a long time.  Interactive, not too physical and such a fun distraction.  

    Hang in there girl! 

    • Posted

      Lisa, I too would have that feeling along with out of touch and feeling I would pass out at the grocery store. I would speak aloud softly saying you are ok. I would repeat this till I could get the groceries I needed. I started buying just enough for making one meal at a time. I was not able to process thinking any further. I was so thankful to just be able to do that. I'm so thankful for so many things that use to seem like chores. What a blessing I can do these chores! I think we all have gained a better understanding of how good it is to do activities of daily living. Learning not to take simple things for granted and to remember the ones who are struggling and feel alone , forgotten, helpless and sometimes hopeless. Everyone else is going on with life while we are stuck on hold and struggling.

      May we not forget others. So thankful for the goodwill, support and encouragement this forum provides.

      Rhonda

    • Posted

      Hey Christy,

      I agree with the guys too, I think that numb and disconnected feeling is very common because remember this is a condition which affects you physically and mentally - the two are very intertwined, and your body been so beaten up and the brain fog are all symptoms I really believe. It's so hard to deal with those moments, if you can even just try to tell yourself when in the midst of that that how are you feeling then is normal for the virus and although it feels horrible and scary, it will pass and you will feel better. I think the stress of having to do things and see other people definitely adds to it all - still thinking about you and believing in your recovery.

      It's great to hear from you Mono and Rhonda too, as well as Ashley and Lisa, really hope everyone is doing better and God bless everyone too.

      Craig

    • Posted

      Hi Lisa, thank you for sharing a bit of your own experiences it eases my nerves soo much 😩. I’m glad you’re learning how to manage your anxiety better nowadays with things like the escape room and breathing !! Well wishes ??

    • Posted

      Hi Craig , yes the physical and mental parts of this can easily be intertwined and dependent on each other !! Thank you for the reassurance and telling me this is normal for this virus !! Thank you always ❤️

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