Mono need help

Posted , 34 users are following.

Hi so In June I woke up one morning feeling very weak. I thought I needed to eat something but when I ate breakfast I still felt weird. I ended up having my first panic attack. My entire summer was filled with ER visits for weakness, low energy, fatigue, dizziness, off balance feeling, and generally feeling unwell. It turns out I have mono (diagnosed a week ago). I don't know what to do. Just looking for others' stories and well and recovery process. It's my 3rd month and I just feel so helpless. ?? Thanks guys ! Blessing to all 

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  • Posted

    Sorry guys just one more question for the day. But has anyone’s fatigue literally made them feel like they were dying ? Like death was near. All day I felt like I was floating and disconnected so I laid in bed and I don’t think I could get up if I wanted to. This fatigue is sooo heavy. I hope this is normal for 7months??😩. I know I’m getting better but it’s really hard to see and I feel like maybe a little bit more progress should be made by now 😣. I just don’t want to die  and I mean that in the most non dramatic way 😕

    • Posted

      I felt the same Christy don’t worry. I felt so bad I penned a letter to my wife explaining what to do in the event of my demise! It sounds daft and overdramatic  but that’s how I felt.  It seems to give you that feeling but don’t panic it will pass and you will be fine 😊🐸

    • Posted

      Hi Christy,

      I think we have all had that feeling, its so weird, I think that is why most people think it has to be something more than mono, but all tests are clear, so it is just a horrible side effect of this miserable virus. I felt miserable at seven months but I did recover and you will too it just takes a very long time.

    • Posted

      Hi Ashley , thank you for your response ! And haha that sounds like something I would do. Looking back on situations I too think I was soo dramatic but when you’re in it , it feels like it’s life and death. Thanks so much for the encouragement and laughs 🐸😇

    • Posted

      Hi mono , weird is a the simplest yet most accurate way to describe this virus. A lot of it just doesn’t make too much sense to me. But that’s good to know , I thought I was behind For someone’s who’s 7months in. Thank so much 😇

    • Posted

      Hey Christy- it totally happens. Two months in I woke up  in the middle of the night so weak and thought I was dying and I couldn’t even lift my arm to wake up my husband. I absolutely panicked. I hobbled to the kitchen to get some yogurt and I fell over. Scariest moment of my whole entire life! 

       My brother-in-law got mono twice as a teenager and was sick for 4 months each time. I think it’s very likely that you could have gotten another infection or have relapsed. Or it’s just taking a really freaking long time. Are you as sick now as you were in the beginning? 

      My fatigue is better but always still there. 

    • Posted

      Hey everyone,

      I really do empathise Christy because the feelings are so intense and real that you just don’t know sometimes what’s happening to your body – it often takes you places you have never been before in terms of fatigue and exhaustion, so you have nothing to reproach yourself about in experiencing these feelings – it’s a really scary thing Christy but remind yourself in those moments that this is just part of the virus and a period that will pass over, and just take things very slowly don’t expect too much of yourself at all or push yourself beyond your limits – rest is good as is gentle movement and activity, but of course doing that in moderation and sensibly is very important.

      Thinking about you and today more than ever fully believing in your recovery – still believing God will bring healing in your life Christy and for everyone on the forum. You WILL get through this Christy, I totally see that for you.

      Craig

    • Posted

      HI Lisa, sorry for the late response school day haha but omg I’m doc glad you’ve recovered from that night ! Id like to say I’m not as sick as I was in the beginning but I feel like I am some days 😩

    • Posted

      Hi Craig , yess it Is really scary 😩. ANd honestly I can’t imagine my life returning to normal at this point but thank you soo much for saying it will pass over. Means so much to me , gives hope on the days I can’t see too much of it. 😕😕????

    • Posted

      Hey Christy,

      I know it's so hard to imagine things getting better right now, when you're in that dark place and things seem to scary and uncertain. There is hope Christy, I do believe God is going to heal you fully, and pull you out of the darkness and bless your life again. Just praying for God's grace, mercy and peace for you and everyone on the site today. And remember you ARE going to get through this and ARE returning to FULL health, without any doubt I believe that in my heart today.

      Craig

    • Posted

      Hi Christy,

      i know how scared you must be feeling and the thought of not ever getting better is a real one,  you just can't see it happening after so long. Just remember every day is a nearer day to getting better and a day further on from this virus. I've nearly done a good 4 weeks!! I wouldn't say I feel 100% yet but it's a whole lot better, like 85%. Remember I'm at 13 months. Things will definitely improve. Just keep going,

      keep calm and carry on!!!

      caroline x

    • Posted

      Hi Caroline, yess im very scared sad. When i first got sick i got hit with this drunk feeling and im having it again today. Had to leave school early and i can't think straight. Praying for the day where this all gets better

  • Posted

    Hello again everyone. These last few weeks have just been a Tough time for me sad Not sure if it's because my emotions are heightened or what but I've been feeling off all day. Really reallly disconnected, more than usual. Scared as s**t. Just wanna be a normal 17 year old. Feel like someone took a hammer and hit me in the head. The drunk feeling is sooo intense. Not sure what to do. Anyone else get like this ? is it normal to be this intense?Im really scared

    • Posted

      Hi Christy, sorry to hear you are struggling. The last few days have been terrible for me aswell so I’m guessing it’s not unusual. I’ve not been able to go to work at all because of the dizziness. I had a cardiologist app yesterday and I was walking down the hall in the hospital holding on to the rails along the wall as I felt so bad. This level of dizziness and wooziness is fairly new for me but I’m hoping that means I’m moving through the symptoms towards a recovery! Are you getting plenty of sleep? 
    • Posted

      Hi Christy,

      This is very normal. I had someone tell me that they virus dying off and entering the blood stream can cause these feelings, I think they called it herxheimer effect, something like that anyway. I found that thought comforting anyway on bad days.

    • Posted

      Hey Christy- I would say yes it's totally normal.  My health fluctuates hour to hour.  I will feel great for the mid morning and sometimes at 3 wham.  I feel awful again.  It's so so weird.  And yeah the drunk feeling sucks.  I think it's caused by the dizziness.  I also run to check my blood pressure or want to check my blood sugar.  It feels like there should be a more tangible reason then just 'the mono'.  It's so frustrating.  And then when I do get good days I start panicking, almost waiting for the symptoms to come back.  It's pretty rare that I completely forget about it unless I'm engaged in something that totally takes my mind off it.  

      Right now I keep getting the mild fevers.  They don't make me feel sick so much as really really hot.  It's so weird.  

      Do you still have the fatigue?  Your symptoms sound like what mine were in the beginning before the fatigue set in.  

      I'm so sorry you are dealing with this.  I was sick so much as a kid.  I know what that's like and you see all your friends having fun and living life and you're stuck in bed.  But!  A year from now this will all be a distant memory for you.  And you'll be amazed at how strong you are and what your body is able to withstand and overcome.  It'll be your party 'war' story to tell for years! 

    • Posted

      Lisa that was such a beautiful message thank you soo much.  Aw man I hate feeling feverish hopefully your normal body temperature will regulate soon. And yes I have major fatigue 😩. Thank you can’t wait for this to be over and in a year from now we all can be in a better place ??

    • Posted

      Hi Ashley, omg I’m praying your dizziness can leave soon. But I do believe too it’s all because you’re one step closer to a full recovery !! Yes I am sleeping thankfully , it’s not the best but I can’t complain 
    • Posted

      Hi Christy,

      I most definitely agree with Mono in that how you're feeling is a normal experience in the virus. It's very scary to go through, but even just telling yourself that it's okay to feel like this right now because it's only temporary and it's part of the symptoms of the virus and it gets better. Remember the guys on here have been through it too and know what it's like and I know I for sure went through the same felt so scared and that the feelings were so intense and that it would never get better - but with time passing God heals and you will get better Christy, I not only 100% believe that I totally trust God it's gonna happen for you.

      Remember just deal with each day and challenge as it comes, and getting through every day right now is an achievement - you're doing well considering what you've been through Christy, I can see real heart and courage in you - and because of that you're going to make it and be a healthy young person again enjoying life - those days are on the way - hang in there.

      Craig

    • Posted

      Hi Craig, your messages mean soo much to me. thank you for telling me that i will return to a healthy young person. I desperate want to feeling normal again so that means a lot. Just thanks for always trusting in Gods process when others can't ! 

    • Posted

      Hey Christy,

      Thanks for such kind words, taking the time to do that when feeling so unwell yourself says a lot about your character! I do really believe you're going to get better and that you are gonna be a healthy and happy young person again - I know it's not easy just now but remember those better days are ahread for you - thinking of you today!

      Craig

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