Mono need help

Hi Christy,

i would get nausea, fatigue and be quite thirsty a lot!! You just don't feel 'well' it's just horrible feeling like that all day and sometimes days on end, just waiting for it to lift, but it will.enjoy the moments when you feel a bit more normal and eventually they will happen more and more..... I'll be starting (touch wood) my 5th good week tomorrow!!🙏🏼😬😊. Very nervous saying that.

C x

Definitely Christy,

I used to feel like that all the time with the virus! Just felt kind of 'stunted' as though I couldn't describe how I felt to anyone or explain what it was in any sensible way, but just that I didn't feel right and felt the fatigue and running fever and nausea all working together at once - it is horrible but just to reassure again it's normal and it's just a nasty part of the virus - this will pass and it will go completey given time - hang on to faith in that because you're going to get fully better!

Craig

HI Christy,

I know just how you feel,( even now and it has been almost five months that I have been better) I have a hard time saying recovered for fear the feelings will come back. I sometimes have an occasional down day, but I think that is just normal and I should stop looking over my shoulder.

This virus has taught me to appreciate every day in a way I could never understand before.

My daughter who has been so sick for so long said she it felt a little lighter the other day and that is exactly how I felt when I first turned the corner, hoping it may  be a glimmer of hope. 

Hi Christy,

Yes, this virus produces all kinds of strange symptoms and you never know what it will bring next. Hopefully this goes away soon. Just keep thinking that the virus is dying off and you will be recovering soon. I know how hard it is to go through but you will recover.

Hey Mono,

I do understand that fear for sure, it took me a long time to say that too because it just leaves you so vulnerable. It's amazing when you're able to experience each day in a new day having come through the other end. Just wish you could bottle that feeling and keep it forever!

Craig

Hi mono,

wow, 5 months, that's brilliant news! I am truly pleased for you...And great for your daughter too. I've just done 4 weeks and I know what you mean about not quite trusting it's completely done. I would say that I haven't got much resilience right now and daren't step it up just quite yet, just in case!😬 But to all on here reading this, recovery is happening,, to us all!!!!

keep believing

Caroline xx

Wow 5 good weeks ? That’s amazing I haven’t had one good one all the way through ! But I’m in a hopeful spirit now 🤞🏼 Thanks for the reassurance ??

Thank you Craig , sucks we relate to such crappy symptoms haha 

Hi mono , yea I’m going to keep telling myself it’s just die off symptoms !! I’ve come too far for it to be anything else haha ! Thanks so much 

Hi Christy,

Mono has DEFINITELY made me a hypochondriac, lol. Every little symptom makes me think something new is very wrong. So I find myself resisting the urge to google my symptoms. 

And I'm also more sensitive to light, and especially sound, right now. 

All in all, it's a scary experience! Hang in there.  

Hi Phacelia, you are one of the few I remember mentioning the sensitive to noise. It was literally painful to me to hear a sudden loud noise. I was just thinking about that today. I was trying to recall all the symptoms this virus has has attack my body with. It literally feels like the nervous system is on high alert and even my sense of smell was so intensified.

All this does go away. Loud noises no longer bother me and I feel my sense of smell is pretty much normal.

The light sensitivity is also gone.

How many months are you into this virus?

Thanks Christine and Mono for your encouragement. Mono it is good to hear your daughter is making some measurable progress!

Craig thank you for your unwavering encouragement and support !

Praying for hope and strength as you struggle with your back issues!

Prayers, hugs and a great big thank you to all!

Rhonda

Hi Rhonda,

It's been almost 3 months since the onset of my first viral symptoms.

I remember in the first couple of weeks that sound was physically painful. I have a rambunctious 4-yr-old and he would make a loud noise or yell and it would feel like it was reverberating down my sore throat through my ears. Very weird. 

Still sensitive, but not that bad anymore. It's hard to be in a room with a lot of people talking, and it sometimes causes my ears to ring.

I've noticed the increased sensitivity to smells, also.

So many bizarre symptoms!

Hi Phacelia , yess google can be a nightmare for the hypochondriacs !! And yea light sensitivity sucks ! Ugh we’ll get there eventually 😊

Thank you soo much for your kind words Rhonda....your prayers mean EVERYTHING to me, just to know others you trust are praying for you is a great support and comfort - thank you so much and keeping you in my prayers too - still believing God will heal you fully Rhonda, hang in there. Got a potentially tough week coming up with dealing with work and medicals and things to deal with....any prayers for strength at this time mean so much!

Craig

Hi Christy / Phacelia,

Yes most definitely it's normal for the virus to make you feel so worried and anxious about your health - it's only natural because your confidence takes a real shake with the virus and then every symptom can seem so difficult to deal with mentally and physically and the whole thing just causes worried and confusion and panic and it's a horrible cycle, it really is.

I just really want to reassure that these feelings will go away.....remember that most (if not all) of the symptoms you are experience are likely to be the virus because it does so much to your body....I know that doesn't help them go away but at least take comfort in that there is a reason for it and in knowledge that it is definitely going to pass and the symptoms fade away and disappear completely over time. That day will come when it's all gone it really wlil. And remember to talk to someone you trust too about how you feel if you can, that's really important to share how you're feeling and not to deal with it all yourself.

I do remember having some weird feelings with senses too....I think the virus can put your sense into high alert and just make you experience normal things a bit differently sometimes....it does pass though and remmeber you guys are all going to make a fully recovery, I believe that thanks to God.

Craig

 

Hey guys!

Lol currently my right back side has been feeling tender for a week and im trying to stay calm and not google 😂😂 also the smell/noise/light sensitivity I went through that too... it felt like I could smell every spice. I would have to have the radio turned off driving to my doctor because the sound nauseated me (I’m a gal who is always singing along to music as I drive). And the light sensitivity wasn’t as bad but I remember my eyes hurt and were very tired around bright lights. It’s very reassuring to read your stories because blood tests were never able to confirm an active mono infection, but ALL MY SYMPTOMS are the same as many of yours.

Update: 

I am in month 3. The only lingering symptoms are fatigue (but this has lessened and I am able to leave the house for short amounts of time now), breathlessness (also seeing an improvement here), and swollen glands in my neck. Oh yeah, and the new right back pain/tenderness but I’m hoping this is just my liver or kidneys working in overtime to get rid of this awful bug.

I am off work, and I think I will be returning part time in March. That’s the hardest part.. feeling useless AND the health anxiety mono causes. 

100% yes!!  It's awful.  And google was my worst enemy.  But it's hard not to try and sherlock it ourselves when the doctors are so useless.  

Christy have you tried Natural Calm?  It's a magnesium powder you put a teaspoon into tea.  I swear to goodness that it makes me so mellow and drowsy at night and I sleep really really good.  It might be nice for you midday when you feel yourself getting worked up with anxiety.  I know it really helped me.  Plus magnesium is good for you!  Might be worth trying.

I've had a really good week.  I changed my diet (again) and so far this one is helping me feel better.  No more limb pain at night and no more heavy fatigue.  I still can't get my heart rate up which is freaking me out.  But I'm hoping it's just going to have to be a super slow process of easing back into light exercise.  So for now it's just lots of stretching. 

I truly hope you start turning a corner!  Message me anytime! 

Thinking of everyone still....I know it's so hard and I get it because feeing a bit discouraged myself about my own circumstances....just praying there can be brighter and happier and hopeful days ahead for us all.....hang in there everyone and still rooting for your recovery.

Craig

Hey Craig, 

Is it your back? I hope there isn’t anything else going on. Don’t forget that this will pass too.. just like the horrible mono did.. and when whatever is troubling you passes (as it will), you will again be supporting others going through the same thing  

You got this Craig! You’re strong. We will be here to cheer you on as you recover and have better days again. 

Thanks so much Van, that's really kind of you and I really appreciate your words!! You are a star!! Yes my back has been bothering me and just mentally got feeling down too lately, hoping we can all fight back!!

You are gonna get through this too Van, I know it's been such a tough time for you and just want you to know I'm thinking about you too! We're stronger together in recovery for sure, collectively the guys and gals on the forum here are building up a big boot to kick out the virus and our troubles for good!!

Craig