Mono need help

Posted , 34 users are following.

Hi so In June I woke up one morning feeling very weak. I thought I needed to eat something but when I ate breakfast I still felt weird. I ended up having my first panic attack. My entire summer was filled with ER visits for weakness, low energy, fatigue, dizziness, off balance feeling, and generally feeling unwell. It turns out I have mono (diagnosed a week ago). I don't know what to do. Just looking for others' stories and well and recovery process. It's my 3rd month and I just feel so helpless. ?? Thanks guys ! Blessing to all 

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  • Posted

    Hey everyone, I’ve felt so poorly over the last couple of days. My head is spinning constantly and i have that feeling of just being very unwell. I can’t leave the house I feel that bad. It’s been over 9 months now! I did start to feel slightly better but it feels like it’s back with full force today and this is the worst it’s been since the start.  Has anyone else had this after so long? I can hardly move and when I get out of bed it makes it so much worse. It keeps making me think is it something else. I hope you are all ok 
    • Posted

      Hi Ashley,

      it turned around for me at about 12/13 months....... I'm now in a 5 week stretch of goodness, so don't be discouraged you will get better, just a bit more time.

    • Posted

      Thank you for your encouragement 😊 i was that bad this morning my wife was going to call an ambulance! It’s strange how I’ve not had the dizziness to this extent for all that time then it just comes on. Hopefully it won’t last long 😫

    • Posted

      Hi Ashley,

      Just want to empathise with how you're feeling, as I went through it for a long time too, it took me about 10 months to start to see a real turning point and after 9 months like you I was feeling so low and helpless. Just want to let you know there is hope and let me assure you that the second year is a walk in the park compared to what you've been through up until now.

      Even though you're feeling it hit you hard just now, in now way are you back at all to the start - that cannot happen, it's just the zig-zag nature of recovery with this is very up and down as I found to my frustration, but these lapses won't be as long or cause anywhere near as much bother as the start and you will pick up again sooner than you think.

      You ARE going to get through this and get better Ashley - definitely would recommend taking some good vitamins and herbs if you're not already doing that, can really make such a difference (let me know if you want my advice on which ones but you may have seen from my other posts I mention it a lot).

      Thinking of you and remember even though you feel like back to square one right now, you're not and actually each relapse like this I believe is your body taking another step towards getting on top of it for good and kicking it out, so you will be stronger when you recovery from this one and as time goes on these lapses will become less and less until you get to a point where you feel like your old self again - it's going to happen Ashley hang in there and just take each day at a time when feeling this way, get plenty of rest and don't beat yourself up or put pressure on yourself - this is real and it's normal to feel this way it's not you it's just the way the virus gets everyone - I was the same, it floorerd me to similar levels as you and I was a 25 year old active guy who did long distance running, football, etc before that - and with a bit of time was able to get back to full activity again and you will too.

      Craig

    • Posted

      Hi Ashley, same here ! My dizziness went so far today. I was sitting in class and the next thing I knew I was about to faint. Scariest things when we aren’t in control. But I guess it passed. Just resting now and I hope you are too ! Keeping you in my thoughts and prayers ❤️
    • Posted

      Craig, you are amazing for taking the time to write that. It made me feel so much better thank you 😊 

    • Posted

      You're welcome Ashley, I just know how tough it is to go through that thing and recognise so many of the feelings I felt in what you describe, and really do want you to know that it does get better and you will get better - truly I believe that in Jesus' name. You will get there hang in there Ashley - one day at a time!

      Craig

    • Posted

      And if that one day isn't great then it's okay - there will be better ones ahead!

  • Posted

    For the past couple of days when I’ve been at home I’ve been feeling fine. I don’t have too much energy. But I’m definitely not at my worse when I’m at home. But when I get to school I automatically get lightheaded and dizzy and everything that was wrong before just comes back. Almost as if there’s too much stimulation going on in the room where I have class. The lights bother me, and the lightheadness is awful. Today I felt Like I was going to faint yet when I got home that feeling went away and my fatigue wasn’t too bad and I was okay for the most part in my bed. I know it sounds weird but does anyone find/have found that stimulation makes their symptoms worst ? 

    By the way : I use to be sick ALLL the time. No mater if I was home or not but now it’s like I feel a little better at home but waay worse at school. 

    • Posted

      Hi Christy, that’s exactly what’s happening to me. Any stimulation or anxiety makes me feel terrible and like you say all the symptoms come back. When I come home I’m not well, but better. I was supposed to go for loads of blood tests this morning and I think I must of been anxious which brought it all back. I’m having waves of light dizziness at home but it’s manageable. Let’s hope for both of us this bit doesn’t last long . Thinking of you! 🐸

  • Posted

    I feel like I can’t do this anymore 😩.

    • Posted

      Ahh Christy,

      you CAN get through this and you WILL... I could only watch telly or play games on my iPad when I felt bad to try and just get through the day, it's so hard, I'm so sorry you feel like this, I know it was the worst year of my life, unbelievable it takes so long. Try and keep calm.

      Caroline xx

    • Posted

      Hey Christy,

      Definitely agreeing with Caroline that you WILL get through this....I think that's for sure normal that when you try to do things when already not feeling well in a setting where folk don't always understand how you're feeling or how tough it's been, it is very stressful and can make you feel panicked and worse. It is natural that confidence takes a dent from doing normal things when going through this, not least of all because the physical symptoms are so intense and difficult to cope with.

      As Caroline said do try to keep calm and take deep breaths, oh I know it's much easier said than done, but remember if you can keep your mind occupied that's a good thing but don't put stress on yourself or expect too much of yourself right now - it's okay that you can't do as much as you used to right now, that doesn't mean to say you won't be able to again, because you will, it's just important you give yourself some space and time too and just take each day and situation as it comes, and remember there will be better and brighter days ahead and you will overcome this and get there! God is working for you good at all times remember that - He's got your back, even when it seems scary.

      Thinking of you Christy and you ARE going to make a FULL recovery - I remain convinced of this today, more than ever!

      Craig

    • Posted

      Hi Christy,

      I told myself this many times, I made it through and now feel better, my grandaughter who has been sick since last April has had a few good days in a row and is so happy. Would they let you go on independent study at school? this helped her so much. Talk with your parents and let them know your feelings.

    • Posted

      Hi Caroline, that’s pretty much me ! Either I’m watching something or playing games . Ugh it’s so hard right now but thank you soo much , keeping hope alive ❤️
    • Posted

      Hi Craig , thank you for such a strengthening message ! Thank you for telling me it’s okay that I can’t do much and there will be brighter days !! I know God is watching and working , sometimes it’s hard to see but thank you for the reminder ❤️
    • Posted

      Hi mono, I graduate in about 3 months and here it’s such a long process I don’t think I could do any sort of home schooling here for high school. 😩 but I talked to Rhonda and reading this message just assured that I should give it a shot  and at least talk to my parents if school is draining me too much ! Thank you ??

    • Posted

      Yes Christy, anything to focus your mind elsewhere. I know you're still suffering but taking your focus off is all you can do. 

      I feel so normal now and doing so much more. It's happened to mono and it will be the same for you, the same for all of us reading this. Just time and rest. Keep,going steady you're doing good🙂🙂

    • Posted

      Hang in there Christy, I know the feelings of pain and discouragement, it's awful, having a hard day myself just now and let's just trust God that we will get there. Thinking of you and just one day at a time.

      Craig

    • Posted

      Hi Craig,

      im sad to hear you're having a bad day. It's not fair you're not getting much relief from your back.

      sending you wishes of healing

      🙏🏼😘

    • Posted

      Thank you Caroline,

      My problems have been triggered by an epidural injection I got yesterday to help my back but my pain has been 100 times worse today....had to be in bed and it's got me panicked and worried.

      Just wondering if anyone else (maybe the women especially who have had children) have any experience of an epidural?

      Sorry for hijacking the forum here with my own woes.....still thinking about everyone and thanks so much Caroline for the kind words of support and really trying hard to catch that healing you sent!!

      Craig

    • Posted

      Hi Craig,

      live got 3 children but I've never had an epidural, I think my mum had an injection in her back when it was bad, not sure if it was an epidural maybe a steroid?! Not quite sure, but I know it made her feel worse, it did get back to normal in time, I'm hoping you'll be less in pain tomorrow xx

    • Posted

      Hi Craig,

      I wish i could help, but I have never had an epidural. My mother had pain management injections,but not an epidural, she didn't have pain, I hope you start feeling better soon. Prayers for you.

       

    • Posted

      Hey Caroline, Christy, Mono,

      Thanks so much for your kind words, it really means a lot to me. Been an upsetting couple of days, just hoping thing improve for us all! Your prayers mean EVERYTHING to me and so grateful for them. Prayers for your recovery Caroline, your recovery Christy and your recovery Mono too, in Jesus name, Amen. Thinking of you all.

      Craig

       

    • Posted

      Hey Craig.  Yes I've had an epidural for childbirth.  It didn't leave me with injection or back pain.  But I was also so overwhelmed with a new baby I may have not noticed.  I know there's always a risk of spinal fluid leaking out but that caused a terrible headache, not necessarily back pain.  My husband however suffers back pain and he's has the steroid shots in his back.  They seem to help temporarily.  I hope the pain eases for you.  And that you have a doctor you can trust to address your pain and concerns! 

    • Posted

      Thanks for the kind words Lisa and taking the time to write. Just having a really hard time with it now and hoping I've not damaged myself further. Trusting in God's healing with this and for all of us, in Jesus' name, Amen.

      Craig

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