Mono need help
Posted , 34 users are following.
Hi so In June I woke up one morning feeling very weak. I thought I needed to eat something but when I ate breakfast I still felt weird. I ended up having my first panic attack. My entire summer was filled with ER visits for weakness, low energy, fatigue, dizziness, off balance feeling, and generally feeling unwell. It turns out I have mono (diagnosed a week ago). I don't know what to do. Just looking for others' stories and well and recovery process. It's my 3rd month and I just feel so helpless. ?? Thanks guys ! Blessing to all
2 likes, 733 replies
christy32934
Posted
I know I should probably stay off google. But I keep reading stories about people who got mono and "never returned to normal". I read these stories often and I know I shouldn't but I just feel so ill too , I can't help it. Then I sit here and cry about how I'll never get my life back too. It's like a never ending cycle and I hate that I keep doing this to myself
craig07920 christy32934
Posted
These cases are the tiny minority Christy....the vast majority do make a full recovery and get better and you are one of those people who will make a full recovery....I truly believe that, you're young and have lots to look forward to so hang in there. That's good you are taking some vitamins to help also.
Craig
Mono_too christy32934
Posted
Hi Christy,
?I remember those days of feeling scared. I think try stories of recovery from mono/ Epstein Barr. The horrible ill/ anxious feeling is miserable. The fact that you have a better day every now and then is encouraging, that's how it starts but it takes a long time to get out of that cycle.
christy32934
Posted
Thank you for telling me that I will recover , I needed that. I keep scaring myself which truly isn't doing anything good for my recovery. I'm going to keep taking my vitamins and hope for the best. Thank you Craig and Mono soo much. It really means a lot to me. You give me something to look forward to. Encouragement for the next day , that maybe tomorrow will be a little bit better than today. When you start having good days , it makes the bad days even worse and I think that's what happening to me. Anyway thanks again. Praying for better days !!
40with.gf. christy32934
Posted
Hi Christy,
i feel that is quite true, when a bad day comes along after some good ones it's such a hard hit. I have felt, and probably still do, just like you! I've had such an improvement in these last four weeks, doing lots more, and feeling better but when the odd dip phase happens it just reminds me that I'm still not quite better. I just keep saying when am I going to be better X caroline
Mono_too 40with.gf.
Posted
I feel the same, had a good week, yesterday had a few hours of the down, tired, anxious feeling and today I feel better. It really is a roller coaster and we just have to keep remembering that we are getting better and one day this will all be an unpleasant memory.
40with.gf. Mono_too
Posted
I felt like that yesterday morning mono, but I am generally doing better on the whole, I ask my husband and my mum, "I am getting better aren't I?" Just someone saying , "course you are" helps greatly! Just the reassurance. I wish it would speed up.
christy32934 Mono_too
Posted
yes me too ,i had a good last night. I thought that goodness would follow me on to today and when it didn't i began to feel down mentally which made me physically feel drained too. It's so crazy how everything is connected. Stress really does not go well with the recovery process.
christy32934 40with.gf.
Posted
For me i really can't stand the weakness and whenever that returns, I get soo sad. But I'm glad you had a good last four weeks. These dips sucks but we'll get through it !! better days are def comming.
christy32934
Posted
Hey guys i hope everyone is doing well. I have a question. Is it weird that my fatigue isn't a sleepiness but a physical exhaustion? People always speak about how they sleep all day with mono. For me, it's not that i feel the need to sleep it's just that i don't have the energy to do much. I don't think it's been one day where i just slept all day. I just physically can not move much.
Mono_too christy32934
Posted
I think it is a physical exhaustion more than sleepiness, my daughter and I have had the exhaustion, my granddaughters were sleepy at first and then more the exhaustion, it hits everyone a little differently. My daughter who had been hit harder than the rest of us, is by far the healthiest of the family, she was runner and has always had the healthiest diet. Go figure.
christy32934 Mono_too
Posted
Oh okay i get that. haha i would love to just be able to sleep this off but nooo i have to be awake during this terrible virus. I've heard that the body does it's healing at night so when i experience days without naps or nights where i can't get a good night sleep it makes me feel like i'm stopping my recovery.
40with.gf. christy32934
Posted
Hi Christy,
i have never slept in the daytime even when I was at my worst! I can only sleep at night and I have no problem sleeping either. It was just the exhaustion, I also felt so exhausted that I felt like I needed to breath deep all the time, I had air hunger! Yep,I just had the no energy and not being able to do much, with fizzy achey arms, now the exhaustion has gone. And the achiness too, But I'm a bit further on. So it is fading xxx
christy32934 40with.gf.
Posted
Every now and then I breathe very deeply because I feel air hungry too. I know it's probably more psychology than physical b/c I got my oxygen levels checked, but the urge is still there some times !!
40with.gf. christy32934
Posted
Hi Christy,
i dont think it is psychological. I think it's real exhaustion.i felt so tired just walking around. As I've got better, that breathing deep has gone. It's a symptom isn't it.
craig07920 40with.gf.
Posted
Yes Christy I agree with Caroline....the symptoms are definitely real and not psychological, but of course it makes you think that way because you're struggling so much to see improvement, etc, and it increases stress and everything else. If you can do anythign during the day to try and distract your mind from it, something stress free and not using up a lot of energy that you enjoy doing, that's really important - still do things you enjoy when you feel up to it, it really helps with recovery.
Craig
christy32934 40with.gf.
Posted
Hi Caroline & Craig. I say the air hunger feeling is psychological because sometimes when I feel that way and start breathing heavy and rapid if I distract myself the feeling kind of goes away. I know their are physical reasons as to why I have that feeling in the first place but if I distract myself the breathing isn't as deep.