Mono need help

​This virus is just miserable. Did the sensation go away? I think if you were tested for lyme it would have showed up,  Hope you are feeling better now.

Hi Christy

I'm sorry you are experiencing these awful symptoms. I've had many neurological symptoms with this virus. I believe it's all part of the virus. When you google your symptoms google will tell you many of the things that you could have but your mind stays on one thing. I know I've done it many many times to myself. I stopped googling a long time ago. It was not making me any better. I'm sorry I have not responded to you. Today I've been really tired and achey all over. This virus is such a roller coaster. Try not to worry yourself too much. 

The mental battle with the virus is even tougher than the physical battle at many times, Christy I just hope today can be a better today for you and remember that's encouraging that you had a test for Lyme and it was negative....it really is just the mono causing all this and it honesty can and does do that to many people unfortunately - but then those people also get over it once through the mill with it and get back to a normal happy healthy life - and that's going to happen for you, I have NO DOUBT in my mind about that so you just try not to worry and remember others are thinking about you and praying for you and that God is looking after you throughout this- I really believe that.

Definitely good advice Shawna, it's only the bad stories that get posted on the internet noone not the majority of people who things get better for...and it's best to focus on a platform like this one where there is genuine good, support and advice amongst people going through the same thing.

Hoping for a good day for everyone...thinking about you and your family also Mono I know it's been so tough for you - you all will pull through this I do believe that even though I know it's hard to see at times.

Craig

Hi Christy,

i have been dreadfully exhausted, just getting up I would be out of breath. After being bed bound for a while, I managed to get dressed every day and be up, but could only sit down and hardly move!!  It has now got so much better, so it's just another symptom that will fade slowly! I occasionally feel a bit out of breath or tired. Honestly that will fade in time xxx Caroline xxx

just to add...... Can you not sleep at night?!  It's probably going to be harder to sleep as you are not physical enough in the day to wear yourself out, but I know you can't because you're exhausted, maybe try reading before bed?? It's hard I know... Does get better x

Hi Caroline, I know the feeling. But I'm happy you're able to speak about it in past tense. and yess I can't sleep at night. And when I do I end up waking up around 8am and the sleep isn't too deep. I too  think it comes from not doing much all day. Thanks for the tip I just might read a little lol Thanks so much 

Hi Christy,

i think we can all relate to that, having our lives snatched from us. And just wanting them back and to be normal again,  I have been fortunate in the fact that I can sleep every night. 

Im sure all of us on here at one point has thought about CFS or something more serious that's has to be only natural! it's a long slow recovery and all we can do is just wait, and rest. 

Its really really hard to go through, I'm not finished with it yet! There's still lots I don't do but I am improving and now there's lots I can do since getting ill.

i would say try not to worry, things will improve

Caroline xxx

Hi Christy, 

I can definitely relate. I had trouble throughout this virus falling asleep and staying asleep. If and when I did fall asleep it (it was very hard for me) was never a deep sleep, like yourself. It's all part of the virus. In the beginning I didn't believe it was the virus but now I know, as things start to get better. Hang in there. I hope you were able to get to sleep. 

Christy, I washave 7&1/2 months into the virus before I started getting sleep. This was not every night just some nights. I remember wondering how long a person could go on no sleep to an hr or two a night. It was awful. I believe your sleep will return. The body is in the fight or flight because of the virus. I still have bouts with it.

Prayers, Rhonda

Hi Christy,

?Ugh sleep problems, I didn't have problems sleeping at night, but I would wake up very early to the anxious, depressed, shaky feeling and toss and turn for three hours until it was time to get up.

?I used to feel like I was trapped in a sick body, it was terrible. It is so very normal to feel sick and weak, Do what you can if you feel up to it, if not just rest. Just know that you will recover. I would never have believed that I would feel normal again and as I have said it took 11 months for it to happen, this will probably be sooner for you as you are young. I remember saying many times I just want my life back.

?Come to the forum as often as you like and post your feelings, I work from home and my computer so I am usually able to answer within a couple of hours, I have been having trouble logging on directly from email though I seem to get the notifications. 

im glad you said that, as when I try and view comments from my email the link is broken!? Bit of a pain.

christy, mono is right, we have been suffering the same length of time and we are both feeling better .... Xx 

Thank you mono , sometimes I feel like I'm annoying you guys but I swear sometimes I don't know where to turn. I have you guys and I have God 

I'm just having a tough week , can't wait for better days 

Hi Rhonda, 

I was the exact same. I didn't start to sleep and feel comfortable with sleep until 7-71/2 months. My body was definitely in fight or flight mode. The past two months I have been able to get a deep full nights rest. 

I can't log in from my email either. I'm glad I'm not the only one. I thought it was my phone. 

Same guys lol. My phone keep saying "link in broken " when I try to come on from email. And okay guys thanks for everything. I literally have not slept for more than 2 hours in days and I was getting worried today. Especially because for some reason I wasn't able to eat. I never have much of an appetite but today I couldn't even force the food down it just was a day of no sleep or food. And when I did try to sleep , I jumped up in like 15 minutes with a racing heart so I just gave up. Thanks guys I was so worried 

Idk if you guys have ever jumped up when trying to sleep but it's annoying if you have lol 

You are not being annoying at all. At one point we were just like you trying to understand what was going on with our bodies. I wish I had this forum in beginning. I'm sure it would have made a world of difference. This virus is incredible. It really does mess with you mind and body. I tell you, I thought I had every disease that came up on google. Driving myself crazy. I am so much better now Christy. I have had mono for 9 months now. I still have days where mono creeps up but nothing like before. Not even the same feeling. When I notice I'm getting fatigue, achey and emotional, yes!emotional because with mono comes depression. I take time out to rest. You will get better and faster. You are much younger than I. 

Yes Christy. When I would try to sleep I would jump up with a racing heart and that paniced me then I couldn't sleep the rest of the night afraid to fall asleep. I use to dread the night. 

When I googled that "jump" feeling they tried to tell me I had "pots " the condition that effects your heart rate /blood pressure. 🤦🏽???🤦🏽??? I know I don't have that now, thanks again for everything !! ??

I can't log in through my gmail account either. Thanks for posting you are also having an issue. It says bad request.

Still experiencing fatigue, muscle aches and pains. I do have a whole list of improvements Just ready to have this just as a memory pressing on toward full recovery.

Hugs and prayers to all. Thanks for your support and encouragement.

Rhonda

Hey!!! This comment really helped me, I've felt sick for almost 4 months in some way, first it was nausea now it's just drowsiness and a flu ish feeling. It's defiitely hard to imagine feeling perfectly fine right now, but I'm an 18 year old guy and I've been sick for months. Hopefully I'm done with this soon, as I got my blood drawn recently and the antibodies for acute infection were normal, and my long term antibodies are finally coming down. My only fear is chronic fatigue!!! Praying this is just monos aftermath, anything you could comfort me with? Thanks alot

Hi,

There has been a problem with our email sender site that has caused these broken links. This will get fixed today. In the meantime you can use https://patient.info/forums/me/notifications to view notifications and apologies for the inconvenience.

​It is a good sign that your antibodies are going down, I am finally feeling better after 11 months, it was like having the flu for a year, ugh! I also worried about chronic fatigue and never thought I would feel normal, but now I can see it was just the virus. It may take a long time but you will feel better. I think maybe the virus is just stronger and more long lasting than it use to be, so just rest assured that you will feel better it just takes time, take it easy as much as you can and look forward to better days.