Morning and Nights

I'm glad it's helping but I definitely know what you mean. My life has changed drastically and I don't like it one bit. I'm scared to plan anything because I never know how I will feel. Just stinks. I try to stay positive but even that has become hard work. I was never this person.

The horrible mornings make me so sad!  I hate that they happen to any of us, but I was actually relieved to learn here in the forums that I'm not alone in dealing with those daily... thought I'd lost my mind.  It can help a lot to focus on other things, especially when the symptoms do continue into the day.  It is definitely a change of life.

I'm having such a hard day today. Feeling so depressed and restless and agitated. Feel like crying but no tears come. Hate that sensation of feeling like I'm going to lose it. On top of that my head fee

Feels like it's tilting to right and all tense. I just wanna scream!!! Can't stand feeling this way.

I'm sorry you're feeling so bad today, definitely know what those days are like.  Haven't had the head tilting, but do you ever get those headaches where it gets tense and hurts really bad just on one side or the other?  Is your tension on the tilted side or all over?

I'm sorry you are not feeling well today. I can relate to the feelings you are having. I hope you feel better soon.

CC, those days really suck. Im sorry you are having one of them. Hugs

How are you feeling now ccincal?

You know I suffer from similar symptoms as you, I have the neck ache and tilting as well, Dono what the heck causes this lol

I hope your feeling a bit better by now if not try and distract yourself by just doing something and just let the symptoms be there, as frightening and annoying as they are we can't let them rule us

My balance has been bad today, I feel when I'm standing upright I could faint and feel as if I'm being pushed into the floor...strange, but I went to the supermarket with my husband and walked around slowly

I know what it's like on the really bad days when the anxiety, depression and worsening symptoms make you feel you can't cope another minute but you'll get passed it, we always do

Let us know if you need any help

Love

Brenda x

Thank you ladies your supportive words mean a lot. I'm just so down in the dumps today. Still. And it's 3:30pm and I haven't even been outside. My neck on the right side is stiff and my chin is moving to left and up slightly. I've had it for about a week now. Before that it was tilting back. Elizabeth, With periods I'd get bad sinus pain and headaches.

I get so down on myself which doesn't help I know. But it's so hard to bear. And I start thinking catastrophically and all doom and gloom.

I definitely relate... when those days come around, I just want to be away from people and will stay in when I can.  I do hope you feel better soon.  Sending a hug your way!

Hey ccincal,1.30 am her in Scotland, in bed reading now, was fast asleep for an hour earlier on my recliner chair...bliss, if only I could sleep in bed so sound

I wish I lived near you and I would come round and reassure you and give you a hug

I hope your ok and have someone you can talk to, try and relax and enjoy the rest of your day

Good nite from me 💤 x

Yes I want to sit on the couch all day. But then a part of me says I have to get out once at least or walk around the block and then I get conflicted and in turmoil about that because I don't want to do it. It's such a small thing but I get down on myself about it and blow it out of proportion. It's maddening.

Hi Brendaababy

Thanks I was able to talk to someone and get out. It helped some but still feeling so depressed. Yes wish we lived closer too. it would be nice to have friends nearby who could relate. Hug to you and hope you sleep ok. CC

Hi have you asked your doctor for something for anxiety? My anxiety is through the roof with this to the point I was almost agoraphobic. We can't function like this. I hope you feel better soon.

That's exactly what happens when I feel that way.  I can picture myself doing what I want to do, going for a walk or enjoying some other activity, but most times when this happens, I can't get myself to actually get up and do it.  It's like some kind of mental fog or cloud keeps me feeling down.  It is certainly maddening.

Thanks Kathryn I've got Ativan for anxiety. I could feel that I was starting to develop agoraphobia a few months ago but pushed myself to get out. It was scary. Some days like today I just don't know if I'll make it. I wish I was a positive person to begin with but I take after my mom glass half empty.

Hi cc,

I did have a lot of neck stuff at one time.

It's one of the things that got better on it's own. I didn't know that it was to do with meno at the time, but remember being concerned about it as it went on for a while, mine was so stiff and also sounded like it needed oiling at one point.

Driving the car was horrible because I was having to turn my whole body to look left and right.

Hope it sorts itself out soon.

Just horrible isn't it? I always made sure I went out to the shops every day, some days that was all I did apart from cook wash up and bathe.

I did manage last year to ride my bike to the shops instead of driving.

It helps to do something I think.

Try to get out if you are feeling that way. One of my friends a little older just stayed in and I'm sure it has made things worse for her. She's not going out at all now and being treated for agrophobia.

Thanks having a horrible morning, shaking and agitation, called into work this am have just been sitting on the coach. I am going to take a shower and try to get out

That's exactly how it is with driving. Changing lanes is hard. I wonder if a massage or chiropractor can help.

Oh I hope you feel better getting out! The agitation is awful isn't it? I had to take my anti anxiety med yesterday it felt so bad.

It could do, I don't fancy being pulled around though.

My neck isn't too bad but my shoulder is driving me nuts.

I'm pretty sure it's related though as it was my neck on the left that was always worse and a couple of weeks ago when the shoulder was really playing up I could feel my neck keep tightening up.

I've only had a few days of my neck being bad since peri and it was last year and it was the most painful it's been but only lasted a few days.

Have you tried Arnica cream. It helps my shoulder pain. Not a cure but helps.

No I haven't but I've got some somewhere so I will have a go with it. Thanks.

I went all day without one but now I'm nervous about going to work tomorrow so I'm going to have to take one. Yes it's so awful feeling agitated especially with my 9 yr old I have to keep it under control.

Hi I was just wondering how your day has been so far?

Hi Kathryn today is better than the other day thanks for asking. Morning was really tough. They usually are as I don't want to get up. My neck is still giving me pain and brain fog as usual. How are you doing?

Hi ccincal, how you feeling today?xx

Hi Brenda my mood was ok today. But this neck issue is starting to worry me. When I'm walking it's ok but sitting and reading or eating I feel like my whole head is twitching or shaking a bit. It's hard to describe. Like its wanting to move left but I'm making it go back straight if that makes any sense. How are you doing?we are 8 hours later where I am so you are hopefully sound asleep. 🌛💤

Hi ccincal,what did the doctor say about your neck?

I have problems with my neck as well, I tend to keep my neck stiff because of the problem I have with the off balance dizzy sensation, I feel my neck veers to the left

The only time I feel a bit better is when I'm sitting on my recliner with my head resting against my travel cushion. If I'm sitting up eating at the table etc I feel as if I'm swaying around, it's so weird and annoying

Feeling really anxious this morning, my husband has been off work for a while due to a dispute and then he used his sick leave. He is a great support and been company for me, I just can't stand feeling so trapped at home and alone it's horrible, got a lot of adrenalin building up in my stomach

Probably bed time for you right now it's 8am here

Hope you can have a peaceful nights rest

Speak soon xx

Sorry you are feeling anxious this morning. I know mornings are the worst for me. I can barely tap on my phone now and sit still because of my neck. It's making me agitated. Only when sitting. Standing is ok.

Dr said because I feel off balance my head is compensating. Don't know if believe that.

I'm waiting at gyn office now to talk about HRT. Wish me luck.

This describes it well from webmd:

Cervical dystonia, or torticollis, is the most common type. Cervical dystonia typically occurs in middle-aged individuals. It has, though, been reported in people of all ages. Cervical dystonia affects the neck muscles, causing the head to twist and turn or be pulled backward or forward.

Just noticed your post ccincal, hope you got on well at your gyno appointment

I know what you mean by the off balance shaky head and agitation, I have that as well and it is worse sitting still, I notice it when I'm sitting at the table eating or when I'm out for appointments etc

When I'm at home I always sit on my recliner with my travel cushion supporting my head so I don't notice it so much then, I also hate getting from sitting or lying to standing...it's weird 😂

I cried my eyes out this morning when my husband left for work, I felt bad for giving him a hard time for leaving me on my own and it's his 50th birthday today as well, I don't know how he puts up with me

Let me know how things went

Love

Brenda X

Good luck with the gyn appointment.

Last week I started vit d3 at 6000iu a day. I wasn't tested but would imagine I may be deficient as I'm no longer a sun lover.

I read it can help with sleep and that's my reason for trying it. Since the second day I have had quite an improvement in my shoulder pain. It's still there a bit but no pain putting my coat on or reaching up for things in the cupboard.

The shoulder has been painful every day since September but is now after a few days on the d3 better than it's been in several months.

I wonder if it would help with your neck pain?

OMG I got a prescription for HRT!!! And I didn't have to beg, threaten or maim. I just read all my symptoms and all the meds I've tried and just explained that I've been doing a lot of research and wanted to try it. He was skeptical that it would help since Im on BC pill and still symptomatic. But I got to give it a try. I can't start it until I finish my BC pack which is another 9 days. I'm praying this is a big piece of the solution and will help me be functional again.

Brenda be gentle with yourself. Your husband is lucky to have you. We are not our normal selves right now. It's like some alien creature has come down to earth and taken over our bodies and minds. I'm so hard on myself too. We've got each other and the forum thank God.

Thanks Zigsngie I'll try it. I already take 4000 D3 so I'll just add one more tablet. My d levels were 35 a few months ago. I think optimal is around 60. That's great about your shoulder. Do you ice it or put heat on it? I have one of those microwaveable buckwheat shoulder pads and use it daily for shoulder neck and cramping.

Thanks ccincal, how'd you get on at gyno?

My health anxiety has reared its ugly head tonight since I read your post about dystonia, now I'm worrying I have that lol 😂

Sometimes I get fed up with myself so how must others feel

Love

Brenda x

Oh no! Sorry about that and right before bedtime too! Well good thing is that it's treatable with stretches and physical therapy. I'm going to see if I can get it to go away with stretching more, heat pads and now extra vit D. Oh an arnica cream. I hope you can sleep and stay asleep through the night. Hugs to you. CC

Oh I hope it helps you, give it a good go at least 3 months

I've been on tibolone for 1 month meant to be gentler than HRT, think I'm sensitive to taking hormones directly

Hope your having a lovely day ccincal, it's great that you have some hope now with the HRT

Hugs xx

Good hope it works well for you.

It didn't like ice, I haven't tried heat. Resting made it worse, it's the best it's been for ages and only thing different is starting the d3 5 days ago. I'm hoping it will help with my sleep that's why I decided to try it, but seems that may take a while.

Thanks ccincal 😂 It's 10.30pm here, watching tv. I'm a bit of a nighthawk, usually don't go to bed till bout 1am, sometimes I do fall asleep on the chair though

Waiting on the next drama coming on, been watching it for a few weeks, it's about the OJ Simpson trial, it's really good

Hopefully we don't have any neurological problems and it's just meno related, I went to a special balance physio a few times and she never got to complete the full assessment cos I was so anxious 😂😂 when she was asking me to turn my neck from side to side I was scared I would get dizzy. She also told me to stand in front of a mirror so that I could see I was out of alignment, I never noticed that my left shoulder was lower than the right, the physio pushed my right shoulder down and I panicked so she's told me to go away and deal with my anxiety before I go back

Scared of everything lol

Xx

I know what you mean about being afraid. I have health anxiety now too. I'm afraid what if the side effects of anything I take make me worse.

I remember that OJ trial. It was on the news everyday for a year or more. Got so tired of watching the news because of it.

I hope you're sleeping well right now !