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Multiple fibroids, route I have taken and very happy 😊

Posted , 11 users are following.

camelia61043
camelia61043

Hello ladies, you are all so strong, I have read your stories and we are all heroes for putting up with the nasty fibroids. 

This post is about the route I have taken when I was faced with no options that I was happy with, and I hope will help some of you as an alternative. 

18 months ago, I was diagnosed with multiple fibroids, biggest one at the time 4,5m. The consultant NHS London, dismissed me with cerazette only. April this year I saw another consultant as the fibroids has grown , 7cm and I was put on a waiting list for myomectomy or hysterectomy. The doctor said they can't make a decision about the exact procedure until the operation. I am 35 and no kids so I have said no way to hysterectomy, but they didn't gave me other options. 

I have searched private hospital in Europe as in London is very expensive and I work as Receptionist. I found a fertility and gynaecology hospital in Romania, Wellborn Hospital  private with affordable prices starting from 1000 pounds. I have contacted the doctor very helpful and friendly he has his own website and speaks French and English, sent him my records and he told me that I am suitable for a laparoscopic myomectomy and m fertility won't be affected.

He arranged all for me based on my availability and in less than a months I have had my operation done. 18 days today and I have had slightly no pain, not started bleeding yet, the scar is small and healing very well. 

They treat endometriosis, fibroids, cyst, organ prolapse. So anyone of you who has fibroids and want kids like I do, please don't delay your treatment. We all know, the more you delay the less chances you have. And most important seek a 2nd opinion, even if is just a consultation with private doctor. 

Please feel free to message me directly and I will tell you more info, and the hospital and doctor contact detail as here won't be published.

all the best for all the strong ladies here, don't gave up.

3 likes, 36 replies

36 Replies

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  • sarah_83755
    sarah_83755 camelia61043

    Posted

    Hi camelia61043,

    After reading your experience and others I have made contact with the clinic and I’m hopfully going to make arrangements for this month. How has your recovery been and do you have any follow up appointments? My experience with the NHS has been disappointing. I’m 38 and hoping to get pregnant. Fertility investigation and ultrasounds highlighted that I have 4-6 fibriods. A bunch of them gathered around my tubes and overies. There is also one near to my cervix which appears to be crushing it. The consultant has categorically told me that having a myomectomy causes infertility, and therefore he will not be performing it, all of the fibriods are outside of my uterus and he does not see why I should not be getting pregnant.

    • sarah_83755
      sarah_83755 pam87650

      Posted

      Hi Pam87650,

      Here in the U.K. we have the National Health Service, which means that we get our treatment for free, however this is based on whether your doctor believes you require it. The NHS is great but for something like a myomectomy for fibriods outside of the uterus they wouldn’t deem it a necessary procedure. My consultant says that the procedure causes infertility and to see if I can get pregnant with ivf before removing them. 

    • pam87650
      pam87650 sarah_83755

      Posted

      Free treatment😲😮😯 think I'm living in the wrong place🤔. I was never told myomectomy can cause infertility😤. I thought the point of a myomectomy was to preserve the uterus to be able to conceive??? Why wasn't i told about this by my doctor nor have i read that online😒 when i googled it? So can laparoscopic myomectomy cause infertility too????? I'm going to ask my doctir about this. What is wrong with dictirs not telling patients all the side effects!😡😡😡😡😠😠😠😬😤😳

    • sarah_83755
      sarah_83755 pam87650

      Posted

      This can be the issue with a service you don’t have to pay for, it is struggling to survive. I’m waiting to hear about a date from the Wellborn Clinic, but I’m hoping to go in the next couple of weeks. There is a problem with me getting pregnant and the only thing I can see is the fibriods, everything else seems to be ok, so the myomectomy can only be of some benefit. I’m fed up with reading that subserosal fibriods do not cause infertility, well mine are. Where are yours? 

      I would be keen to know how you get on with your doctor. 

    • pam87650
      pam87650 sarah_83755

      Posted

      I have something similar but it's not free. It's called harris health system (gold card). But last September or November i was forced to get this other insurance thankfully i don't have to pay the premium. but i have to pay 3 bucks for visits not exams, mri etc 50 some bucks for surgery. I kinda like this insuranve because now i can go to other hospital that are not going to take 2-10 hours to be seen in the emergency room or wait a month or months to see a doctor🙄. My fibriods were everywhere😒. The Gynologist i was seeing tried to shove down my throat a hysterectomy twice 😤 I told her nope i wanted to see a doctor spcializes in fibriods. Just because you're receiving help don't mean you have to agree with what they say😬😤😠😡🤦🏾🙍🏾. Well i went to go see my gynologist twiceshe wasn't listening to anything i was saying. My sister told me to tell i wanted to talk to somebody who would be doing my surgery so she referd me to him. Tell her ypu want to see another doctor.

    • sarah_83755
      sarah_83755 pam87650

      Posted

      Hi Pam, 

      Do you have children? Are you trying to conceive? In that case I wouldn’t go for a hysterectomy. I have my surgery at the Wellborn Clinic  on the 7th May. I am flying out on the 6th May and spending the night in a hotel before going to the hospital. I’m scared but hopeful that the fibriods are what has been stopping me from getting pregnant. 

      You must try and see if you can get a second opinion on them. I’ve been reading loads and the hysterectomy takes less skill to remove, therefore many surgeons will recommend it before they refer you to someone else who would be able to perform an operation that will save your uterus. 

    • pam87650
      pam87650 sarah_83755

      Posted

      I had an open open myomectomy on the March 20th was expecting a laparoscopic myomectomy. Goodluck on your surgery🙄. What surgery are you having???. So you'll be traveling alone for your surgery🤔😕🙊???Because you're going to need alot of help😞

    • sarah_83755
      sarah_83755 pam87650

      Posted

      Hey Pam

      Thank you for your wishes and concern. 

      Yeah I’m going on my own. I will stay in hospital for a few days so I should be ok. I am having the laparoscopic myomectomy. Hopefully it won’t be an open myomectomy. They are not big but there are in troublesome spots. X

    • pam87650
      pam87650 sarah_83755

      Posted

      That's good you'll recovery well be less then open myomectomy.

    • camelia61043
      camelia61043 sarah_83755

      Posted

      Hi Sarah, I am sorry for my late replay. If you are on fb send me your profile and we can chat there. Did you spoke with Dr Mitroi yet? My recovery had been fast and my follow up have been done via emails/ phone. Dr Mitroi is very good, always answer his emails. 
    • camelia61043
      camelia61043 pam87650

      Posted

      No Pam, myomectomy or laparoscopy will not cause infertility.

       

    • sarah_83755
      sarah_83755 camelia61043

      Posted

      Hi Camelia. It is lovely to hear from you. I’m glad your recovery is still going well.  I haven’t had chance to email him yet,too scared. I’m going to email him today. I will have blood test ect on the 7th and hopefully operate on the 8th. 

       Did you go on your own? I am because I’ve told very few people that I am doing it, except for mom and sisters. 

      Were your fibriods submucosal? My are suserosal but the largest (6cm) has become calcified. I wonder if it will be harder to remove because of that?

      Did you have any issues in Romania. I’m afro Caribbean and a bit scared that I will be treated differently as I would imagine they wouldn’t have many black people in Romania. So many things going through my head. 

      Sorry I’m not on Facebook I’m afraid. Is there anyway that me you and Pam can talk privately on here? I would love to give you my number but I’m worried that it will be public.xx

    • camelia61043
      camelia61043 sarah_83755

      Posted

      There is absolutely not a single problem with color. Is one lady here Ani who had surgery done by same doctor and she is black. They do have black people in Romania and even one doctor is black. Will text you later on today today. 
  • jenny1910
    jenny1910 camelia61043

    Posted

    Hi Camelia, am happy you took a bold step and a great decision. Am really encourage I wish one day there would be permanent cure to this illness. I pray always to God to inspire more doctors to get solution to this fibroids and myoma. So that women will be free for once. I am also suffering from almost the same issue and hopping one day it will be no more and I will have my baby hopefully.

    God will see all of through this pains. Let's us all just keep fighting to stay health.

    All the best ladies.

    Ciao

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