My husband doesn't sleep.
Posted , 16 users are following.
He tries to sleep but can't. Sometimes he goes 5 days with no sleep. This has been going on for about 3 years. The Dr has tried him on many different drugs, he's tried a few different varieties of weed, acupuncture, reflexology, chiropractic. You name it he's tried it. He used to be ok mentally after 2 or 3 days with no sleep but now even after just 1 night of no rest he becomes very agitated and has started not making sense when talking. Yesterday he finally fell asleep after 2 nights and he ended up falling out of bed and was so disoriented it really scared me. The worst it's ever been. He has no memory of falling or of any of the things he is saying. Sometimes it will seem as though he is wide awake and all is fine and then he will start saying random things. Often getting mad at me for trying to get him to sit down when he is up wondering around. He was able to get about 6 hours of sleep at one time the other night but when he woke up he said it was like he was awake the whole time, felt like he hadn't slept at all. He is unable to work now because of sleep deprivation and I'm fearful for his health and safety. A sleep study was done but he never slept. We just got approval to travel 200 miles to see another specialist but at this time my expectations are low due to the fact that so far his pulmonologist and his neurologist can't seem to do anything except have him try more pills that don't work. I know this sounds rather odd and I'm sure I've left out details but any help would be wonderful.
0 likes, 39 replies
jay_babes jennifer83333
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jennifer83333 jay_babes
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Thank you for your concern I very much appreciate it. We went to see his neurologist again yesterday and he just gave different pills again. I honestly don't know why we are even seeing him. He hasn't suggested any kind of counseling, just writes scripts for more pills. I dont want my husband hooked on pills. Im going to call our insurance and see about some counseling services tomorrow. I will keep you updated.
lydia31947 jennifer83333
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Have a look into cognitive behavioural therapy for insomnia. Research shows that it's just as effective than sleeping medication, with better long-term improvements.
jennifer83333 lydia31947
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Thank you. I've never heard of this before. I will be doing some research on it. I will let you know.
ahmed35711 jennifer83333
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jennifer83333 ahmed35711
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Obviously you have not gone years with only 2 or less hours of sleep on only 2 or 3 nights a week and no other sleep in between. So when you can go 3 years with a total of 6 hours or less of sleep a week and live a happy productive life then I encourage you to tell me again that it's just a simple case of insomnia. So please if you don't have some sort of useful or meaningful message please don't reply. Thank you.
jay_babes jennifer83333
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jennifer83333 jay_babes
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venkatesan21677 jennifer83333
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Hai. Iam a CSVD patient with nerve probelms. I am also suffering from insomnia & taking clonazepam tabs.for the past 9 months. Now I have become a addict of tablets. Though I have lessened the dosage without that I can't sleep. Few years back I slipped my sleep & worked during night times. This has resulted in brain shrinkage & nerve problems. So I wish to tell that if U slip good sleep for nearly 7 hours the above gifts will follow. Can't concentrate on anything. So be careful while taking sleeping pills. Whatever medicine U take for insomnia will make U addict & suffer. If U have not tried why don't U try yoga, meditation which will calm your brain & focus towards better life. Wishes!
jennifer83333 venkatesan21677
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atulit75078 jennifer83333
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atulit75078 jennifer83333
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jennifer83333 atulit75078
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Hi. Sorry for the delay in my reply I actually was doing some research on CBT-I. It does sound like something he should try. Also you asked his age...59. He has a little high blood pressure but under control with one med and his cat. He had Shingles a year and a half ago on his face and in his eye. Luckily no permanent damage. Because his insomnia is so bad he's been unable to return to work since his hip replacement a year ago. He is stressed since we have no income but the insomnia started a couple of years before. It's just much worse now.
atulit75078 jennifer83333
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jennifer83333 atulit75078
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He still isn't sleeping. Seems very agitated, restless, can't sit still. The Xanax the Dr gave at last appointment made him slightly suicidal. Luckily we got thru it safely.
I don't know what to do.
atulit75078 jennifer83333
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jennifer83333 atulit75078
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I've started keeping a journal... kind of a sleep log I guess. I note the date, medication name, medication time, sleep times, and total sleep for the day. I've just started keeping it this detailed but I've always kept track of how he reacted to which medications.
He does take micro naps sometimes without realizing it. They normally last from 2 seconds to 10 or 15 seconds and only after he's been awake for a few days.
He doesn't take care of himself like he always has before. He doesn't shower as often, comb his hair, he wears the same clothes for a couple of days (normally pajamas). His cravings for food have increased drastically and his heartburn is out of this world.
I'm wondering if the CBT-I will work with him since sleeping medication hasn't?
It's late here so I'm going to get some rest but tomorrow I'm going to make a list of all the different medications the Drs have given him over the past 2 years. I'd like your input if that's ok? His Drs have never suggested any kind of treatment except for pills.
atulit75078 jennifer83333
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derek76 jennifer83333
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Some drugs like flouroquinolone antibiotics can also cause chronic insomnia as a long term side effect. Has he ever been prescribed them for an infection or when he had his hip replacement.
There are a lot of conversations here on the drug and its other side effects.
https://patient.info/forums/discuss/insomnia-and-flouroquinolone-641525
https://patient.info/forums/discuss/fluoroquinolone-toxicity-syndrome-427305
jennifer83333 derek76
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No. That drug doesn't sound familiar but I will double check. Thank you.