My world at the moment!

Posted , 21 users are following.

Hi all

12 week post TKR

Many of you will know me from this forumI'm Irish Ann.

Everyone on this forum has been so helpful and informative and I would not be as well as I am today without you all. Thank you.  Thank you.

My world at the moment is in chaos.

My one and only sister, which I have spoken about on this forum, is in hospital 50 miles away with a virulent form of pneumonia.  She is quite frail, and is very ill.

My mother (she's 91) is in hospital near me for over a week, with the same pneumonia.  She had given it to my sister.  My mother is doing well and is responding to treatment.

My husband is in the same hospital awaiting an operation in the 'man problem' area.

He has major heart problems so anaesthesia is a problem and they are still not sure how to proceed at the moment.

He has a large inoperable clot in the back of his heart.

He also has haemachromatosis.

All three are serious and coud kill him and I dont know which bit of him to worry about the most!

But by far the worst and saddest of all is I am losing him, my husband of 47 years, my best friend to dementia. 

He is slowly fading away from me.  Did not remember that they had told him he had a clot in the heart.  Did not tell me about the haemachromatosis nor did he turn up for the appointment that was made for him.  I only found all this out a couple of weeks ago, and the haemachromatosis when he was admitted yesterday.

He will never go into a doctors surgery without me EVER again.

It was a wake up call for me, I had not realised how bad he really was, as on day to day things he is fine.  But anything new he will keep asking you the same thing over and over again.

Terrible too for me was going to the doctors yesterday and explaining that he would not remember a word of what they tell him and they would need to refer to me.

I know this has absolutely nothing to do with TKR but just needed to have a rant and you are the best guys I know for that.

Thank you for listening

Ann

Ireland

 

5 likes, 120 replies

120 Replies

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  • Posted

    Hi Ann glad to hear you are still looking after yourself and keeping your sense of humour, you sound a bit brighter today. I'm sorry your husband's operation was cancelled, but hopefully it won't be too long waiting. Keep trying to put your feet up and doing your exercises as you need to look after yourself too. Hope your mum and sister have a speedy recovery .. Remember we are all praying for you. Kind regards Jannette
  • Posted

    Aw thanks Sue Isobel X

    It did open!

    Thanks Janette too X

    Colm is not answering his phone so my son went up to see whats going on as I am waiting for my shopping to be delivered (pushing a trolley is not my scene at the moment) husbands do have some uses !biggrin

    He is not in his bed and the nurses didnt know where he was (!) but the man in the bed opposite said he went off with the cardiac team. So I am no wiser.

    Mam is talking away to herself in the sitting room with the TV blaring!

    Think I'll have to gag her!

    Thanks a mill both

    Ann

    The Irish One!

    • Posted

      Well, it would have been nice if they had telephoned you to say what they were doing, but small mercies, they are doing something.

      Fingers crossed that everything they do is a success. Keep us posted.

      What about a pair of those big headphones that remotely link to the tv for your mum??? xx

  • Posted

    Hi Ann, 

    ur rant, as u call it, lol, I think I'll adopt that phrase!!, I'm in the USA, and hadn't heard that expression! Any way, it reminds me of my mom when she would come to visit. I laughed when u said that she talks to you even when she's in other room; mine did too. I chalked it up to the fact that she was lonely and just need to chat. Though she had always been a talker!!she is gone now, and I miss her. Would even put up w/ the incessant talking if she was here. BUT, i empathize, it can drive one crazy.

    glad to hear that some things are going well. Will keep thought of ur husband in my mind and hope for the best for him.

    thinking of you! Damy( Donna) Damy is my nick name on this site.

    • Posted

      Oh, we say I have to vent here. 
    • Posted

      Vent will do Donna

      Rant and rage is better though!confused

  • Posted

    Leila imitating me, thought it would give you a laugh but not sure if it will post

    liz x

  • Posted

    Hi All

    Colm had his op this morning and all appears to be well with it so far.

    He has them tormented to let him come home and follow up in out patients but I'm not too keen.

    Have called the hospital asking for one of the cardiac team to call me as he is not in under them, but they had to become involved obviously.

    Needless to say I am not holding my breath!

    Hey! Its Friday frown

     

    • Posted

      Glad they FINALLY decided what to do and your husband got his surgery!

      Use you best judgement on his discharge. He has been under anesthesia, and we all know how hazy that can make our thinking for awhile!

      Keep us posted on everything. You have lots of friends here who are pulling for you!

      Sending prayers of strength today!

    • Posted

      Si that's where he disappeared to!!! Ha ha! At least he's been sorted, hopefully they will keep him in just while you take a big deep breath!!! Slowly slowly now for all of you for a wee while, rest and recuperation all round, xx

  • Posted

    What happy news, Ann and a bit of relief for you. the part about coming home this weekend? Maybe you should tell him your mum is at your home and she's talking nonstop - a mile a minute and he would probably get more rest if he stayed in hosp over weekend.

    Can you take care of both your mum and hubby? And you??

    This is where you call in the troops- your kids and give them the opportunity to help.

    Keep in touch.

    Prayers and quiet thoughts coming your way

    Elaine

    • Posted

      Hi Elaine

      My subconscious must have taken in your chocolate tip.

      When I went to bed on Friday, I took a glass of brandy, 2 Codeine, and one of my mums sleeping tablets which I had liberated.

      I was seeking oblivion for a few hours!

      Woke up next morning with a chocolate bar wrapper beside the bed!

      No recollection of eating it, which is a bit disappointing, but it was definitely me that did! rolleyes

      Must have been the brandy........................

      X

       

  • Posted

    Picked Colm up last night.  No call back from the cardiac team but I wasnt really expecting them to!

    He seems ok, though a bit grumpy because he's sore.

    Did not give him one painkiller for home or a prescription.

    Just as well I'm a bit of a junky at the moment and will share confused

    Had warned him about my mothers continuous talking but he just wanted to get out of there.  He just sat bemused looking at her as she yapped on and then looking at me - with a stop her look on his face. Then the kids arrived with a couple of grandchildren not the best idea but he was delighted to see them.

    Bedlam insued with Mam talking and the kids talking, they kind of curtailed her a bit, but not much!

    When they went I steered her into the sitting room, and left Colm in living room. Colm kept saying 'does she every stop?' Me 'no'! Both watching TV but my mother's is blaring and she is still talking!

    Next problem who do I sit with??????

    Opted out and went to bed with  a splitting headache, a glass of brandy, a sleeping tablet and two Tylex.

    Slept til 6.00am.  House quiet. Sound of silence luxurious.

    Waiting for painkillers to kick in and I will start my PT regime.

    Ann

    The Irish One!

    Thanks again for all your kind words.

    Don't know what I would have done without you guys over the last week

     

    • Posted

      Totally agree with all Jeannette just said!

      You have already PROVED that you have this! You are strong, caring, and can look at things with a sense of humor! You WILL get through these first tough days!

      Sending prayers of MORE strength, calm, and JOY that God has brought ALL of you into healing!

      Try MUSIC with your mom. It tends to calm anxieties and offer REST.

    • Posted

      Thats a very good idea. My Mam had really bad dementia,forgot almost anything but the words to all the old songs. To ANN,you/she wouldnt be Irish if you didnt like music. Try it if possible. Not posting much but thinking of you and yours

      John.

    • Posted

      glad to hear that hubby came tru operation. Though I do wish u some peace and quiet!! I too say, find time to take care of you!!!!
    • Posted

      ann im laughng here its sounds like bedlum in your house  at the moment ,you are a marvel to keep sane !!!  glad you had a sleep it will stand to you xx

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