Posted , 12 users are following.
I would love to know if anyone on this forum besides jimjames gets a natural void after doing CIC,and had complete urine retention? Even a small amount of natural void? This information would be a big hope for all who do CIC.
0 likes, 53 replies
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pluff_mud frank27027
Posted
There are folks who have reported they regained the ability to void naturally after doing CIC. I am not one of them yet. I have been doing it for 22 months. I was retaining 1.5L before I started. I do get the urge now with much less in the bladder, but no flow yet. CIC is much better than what I was experiencing before I started.
hank1953 pluff_mud
Posted
PM, Did you have natural void before you started CIC ?
pluff_mud hank1953
Posted
Before CIC, I had frequent urges to urinate, and I would void about half a urine sample cup each time but was still retaining 1.5L in my bladder. I would get up several times at night and sometimes would go three times in an hour during the day. It would take a minute or more to get that half cup once the flow (or dribble) started.
lester90053 frank27027
Posted
Ask your doctor for a prescription for a diuretic. I have been on it for a number of years and it helps with a good flow after having full retention. There may be some who dispute this but they have not discussed this with their doctor. Beware of herbals and supplements that are unregulated because they do nothing.
hank1953 lester90053
Posted
My doctor called it nonsense but gave me diuretic anyway. Been taking it for months with no improvements. I read your other posts. What you had was an AUR and you had a procedure, with months of catherzization. The procedure and the catherization are what help your urinary retention, not the diuretic.
lester90053 hank1953
Posted
That may be so but my daily take of the diuretic has prevented retention from recurring. If your doctor gave it to you it was not nonsense. Give it another few months. Is the inconvenience of CIC restoring it any quicker?
hank1953 lester90053
Posted
My doctor gave it to me because I asked him to let me try and he's such a nice guy. CIC is not restoring it, I am now certain, but CIC will keep my kidneys healthy, until THE procedure comes along.
Thanks for suggesting
hank1953 frank27027
Posted
Frank, just to clarify, you used "complete urine retention". I know you are referring to what some urological texts refer to it as "chronic complete urinary retention" or "chronic total urinary retention". The keyword is "chronic" which means that the patient has been having this condition for a while. He cannot pee much, usually not at all, without a catheter of some types.
In comparison, Acute Urinary Retention (AUR) refers to a temporary complete urine retention that can be resolved by some types of catherization, usually with a Foley, to drain the bladder. After a period of catherization, few hours or few days, the patient can pee by himself again.
People recovered from AUR all the time, but from CCUR/CTUR, I haven't heard of, without a procedure, except for Jim James.
The bladder is just a muscle and CIC is just gives it rest. The rest depends on the individual. Regarding natural voiding, for some people, CIC helps. For others, it doesn't. I've read that it even got worse for some people. Many lost their natural voiding after staring CIC.
I have been doing CIC for over 3 years and I have concluded for myself. CIC helps to control the retention but does not help my natural void. Actually, whenever I became lazy and started CICing too often, my natural voiding worsened. It makes sense since the bladder didn't get the exercise it needed so it weakened. To maintain some natural void while doing CIC does require some efforts and some management. If you don't use the muscle, you'll lose it.
frank27027 hank1953
Posted
hank1953, Hi , I am referring to chronic urine retention. I have been doing CIC almost 3 years ,with no natural void. I was told I should do Turp with no guaranty I will have a NV. I didn't want Turp so i do CIC. You said you also do CIC, however you do have a NV? Did you have a procedure done?Jimjames said his urologist also wanted to do Turp,he refused and after 2 or 3 years he was blessed to get a NV.
I was concerned if anyone else on this forum got that lucky? Can you tell me how to reach jimjames?
frank,
keith42667 hank1953
Posted
How do you exercise that muscle though? The heart is referred to as a muscle also. I guess you exercise it with aerobics and such.
I understand that one can push a little while doing cic and this may exercise the bladder a bit to keep it from getting lazy. But I would think draining it and not letting it get stretched any more than it already is (for some of us) at least is a good strategy at first. The girl that did my ultrasound on my bladder two years ago - this is before they figured out what was going on - said that my bladder was stretched almost up to my navel. All the feeling had gone as far as urges to urinate. I think I was miserable at some level but it wasn't an urge to pee. That is coming back. Seems like at first the nerves are overly sensitive and if I don't give in and cath right away it will go away for awhile. If I thought I was retaining over 400 ml at that point; such as if I hadn't cathed for 6 hours or something; then I'd go ahead and do it. But knowing how much I had had to drink and the last time I cathed I wouldn't give in to the urge at first. Now, the urges seem more manageable sort of like it used to be.
BTW - I haven't had a UTI in the last two years. Either I'm careful or just lucky.
hank1953 frank27027
Posted
Hi Frank,
hank1953 keith42667
Posted
lester90053 frank27027
Posted
jimjames was a regular contributor to this site until about a year ago when he posted that he is about to undergo PAE which he selected. Following the procedure he posted that he is having problems with it and we did not hear from him for a while until some posted wondering what happened to him. He then posted that he thanked everyone for their concern and we never heard from him again. That was about 6 months ago.
hank1953 lester90053
Posted
Thanks. I've been wondering about Jim as well. Like myself, he was waiting for "the procedure". I guess he couldn't wait.
arlington hank1953
Posted
Yeah...my uro said that most CICers have colonization without a full blown infection with a fever.
frank27027 hank1953
Posted
Hi Hank, If someone had a prostatectomy for BPH,and then after this procedure because of his bladder he still cannot have a NV/? I guess thats possible? What do you think? PM this if you would? I know what CCUD is ,but what is CTUR?
Thanks
frank,
hank1953 frank27027
Posted
It's possible that after a prostatectomy, a man still can't pee. If that happens, I guess you can still CIC, or have a suprapubic catheter installed. I don't know those acronyms either.