neuropathic pain
Posted , 7 users are following.
Hi I have neuropathy and wish to know if anyone here has this due to medication. Thank you
0 likes, 34 replies
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Notes on neuropathic pain
derek76 jenny30641
Posted
I went to see a neurologist about neuropathy in my lower left leg four years ago ( Drug induced by Cipro and Fluoroquinolones but try proving it) It came one suddenly after having taken them only for a few days after initially having tendonitis from them.
Do a search on the drug manes in the top right of the page and you will find many posts about the dangers of this family of drugs.
Sometimes it lies dormant for a long time until triggered by another prescribed drug in my case Bisoprolol and Clarithomycin .
jenny30641 derek76
Posted
thanks Derek. Flqs are notorious for causing muscle problems.
derek76 jenny30641
Posted
No doubt Miriam our Floxie expert will add her expertise to this conversation. She did a presentation to the EMA (European Medicines Agency) inquiry in June. See the EMA web site for latest information on the drugs. She is also speaking to the MHRA on wording of the patient information going out with the drugs.
jenny30641 derek76
Posted
thanks Derek I am taking cardicor i m wondering if that is causing or contributing to the neuropathy?
derek76 jenny30641
Posted
The list is practically endless 😃
derek76 jenny30641
Posted
Cardicor (Bisoprolol) was what I first blamed for it as did another lady who posted here at that time. She had acupuncture from someone who specialised in treating neuropathy. I then realised that from other problems that it had probably triggered the Fluoroquinolone effect. The first time I was prescribed it was when in hospital having my aortic valve replaced and I had a prostate infection when going it that they treated. I came out with tendonitis after hardly having walked for ten days.
carole57510 derek76
Posted
I am taking cardicor.
derek76 jenny30641
Posted
This is the first Forum link
https://patient.info/forums/discuss/fluoroquinolone-toxicity-syndrome-427305
carole57510 derek76
Posted
Thank you/
dawn68509 jenny30641
Posted
mine just came on overnight toes to knees and both hands effected none stop tingling 27 months now
jenny30641 dawn68509
Posted
NIGHTMARE I know. have u been investigated for Vit B12 deficiency ?have u ever taken any fluoquinolones or opiates I believe opiates cause neuropathy as well as a range of other drugs. sorry. Fluoroquinolons cary aback box warning NOWre muscle and tendon damage. see floxiehope.
derek76 dawn68509
Posted
I had slight occasional numbness in in my lower left leg and foot for some time then one day I walked up to the station with my wife who was going out. It got more difficult the farther I went and I had a problem walking over the tiled surface in the station. Going home I almost fell a few times and was holding on to railings for support. In my case it is numbness without ant tingling or leg pain.
I now use a rollator or a wheelchair. I've been to several neurologist and a neurosurgeon and had CT and MRI scans that do not show what causes the problem. I had tests for CMT that were unproven. That neurologist suggested it was from my lumbar spine.
dawn68509 jenny30641
Posted
i have been investigated for everything mris of my brain and spine bloods numerous nerve studies emg all clear yet i have tingling limbs none stop ive never felt my hands or legs the same since that day whatever happened i dont know
derek76 dawn68509
Posted
We get a life changing incident and even in this day and age it cannot be properly diagnosed or treated. I've had all of your tests over the past four years.
I tell the various consultants I see that they have presided over my deterioration as I walked in with a numb foot and a some back pain in May 2014 and now I come to see them pushing a rollator or in a wheelchair.
Most of the investigations I have paid for myself as the start of my problems coincided with semi privatised MSK taking over specialist musculoskeletal services from the NHS in our area and they are very reluctant to spend the millions they have been given to run the service on patients. We are no longer seen at hospitals but a local clinics mainly by moonlighting NHS consultants.
Even then getting an MRI scan is difficult as I have an MRI compatible pacemaker and the private company who own the scanner at the local hospital took four years to agree a protocol for scanning pacemaker patients. I paid for a full spinal and pelvic scan three years at another hospital. I recently did manage to get another by the NHS on my lumbar spine that my cardiologist arranged when the protocol was recently agreed.
pippa58442 jenny30641
Posted
My neuropathy in my hands and arms came on after injury. I have recently been getting it in my foot and leg which I think may be coming from my back which I hurt from a fall on black ice.
derek76 pippa58442
Posted
My lumbar spine pain came later. The neuropathy caused a change of gait that affected my back.
pippa58442 derek76
Posted
I find my hand(s) and arm(s) get numb, tingling or painful before I go to bed and stay numb through the night and even when this thaws out, pain and tingling sets in. Heat does help to soothes it.
derek76 pippa58442
Posted
First consultant I went to said there are 125 types of neuropathy we will never know which one it is. On my back he said don't let anyone operate on it they will make it worse. The first neurologist said idiopathic neuropathy.
Have you tried CBD oil. It helps some people but I've been taking it for about five months and can't really see that it has helped. My other problem is insomnia that started around the same time.