new here, not to fibromyalgia

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hi everyone, i was diagnosed with fm 3 yrs ago, and it has gradually got worse, even the pain clinic has discharged me 6 months ago as she said she couldnt do any more for me. the pain is unbearable and i'm taking 8 diahydrocodeine and 10 tramadol, using a heat pad, and taking clonazepam and amitriptyline to help me sleep so i dont wake up stiff and sore. none of it seems to work, does anyone know of any other pain medication i could try, and cn i get morphine on prescription, thanks

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  • Posted

    Hi Sue

    Sorry just saw your post. A Colonoscopy is when they put a camera type thing up the bottom end to look at the bowel and possibly intestines. My daughter has had some before has she has crohns diease. Not very pleasant experience as they pump some air inside to get a clear picture.

    Afterwards you get really windy as the air has to come out and can be a bit painful with wind pains. Best thing to do is to walk round after and gets rid of the air quicker. They do give you a local anaesthic and enough so you don't feel any discomfort. Sometimes makes you a bit sleepy afterwards. Think you can bleed a little after. But if you get really severe pain, temperature or and severe bleeding have to get in touch with hospital if you are at home. We have got dad in as a day case and will stay overnight especially as he is 85. Not a very nice test but the best way to see what is going on.

    You have done well with losing a stone in a month. :lol: Keep up the good work. Hope you are not in too much pain now.

    Love Tess x x

  • Posted

    Hi there nextasy65, there are many other tablets used for fibro and i am sure there should be something to suit yourself, like you I have had side effects from medications and so could not continue with prescribed meds and so my Pain management Consultant had to change my medication......... I have used ice packs before today and I constantly use hot water bottles and I have to move it around in order to comfort other areas at one time.

    If I were you I would get back to your GP and insist on help xx and if he/she isn't listening change doctors as I have done, and was a relief too, finally someone medical is listening instead of looking at me as though I was silly!!!!! Like Tess says you have done very well loosing the weight well done!!!!! Yeah Gabapentine did that to me and it is only now that I am finding the weight coming off and I feel not as bloated, as at the beginning of the year I looked nine months pregnant being on them, but thankfully the weight is coming off and I hope it continues for you too xxxx

    Take care and I hope you are having a better day xxxxx

  • Posted

    hi tess, just thought i'd update you, i had that colonoscopy thing done and screamed the place down. never felt pain like it, th dr sending me fo mri scan jan 9 and my own gp has given me valium for a few days and 4 to take on the day of the mri to sedate me, he said something must me badly wrong cos i shoulndnt have felt pain lijke that. it just seems like someone really hates me up there. enuf of me, how are you getting and how is your dad x
  • Posted

    Hi Sue

    Sorry to hear you had a bad experience with your colonoscopy. :cry: That has happened to my daughter Claire before when they don't give you enough sedation. She had one when she was only 13 as she had been diagnosed with Crohns Disease. It traumatised her for a long while afterwards. She still has them every now and again but always insists they give her more sedation. Never had one myself and don't like the idea but if you have to I suppose you do it. But they could make it more comfortable for patients. :cry:

    Yes my dad had his and was ok afterwards. Never said his was painful.

    Stayed in hospital overnight because of his age 85. Goes to see his consultant on 30th December. Told him he had some polyps and cauterised them. Will know more when he goes to clinic but is doing ok now. Coming to me for Christmas Dinner on Christmas Day!

    I am not too bad tired and aches and pains but we just have to get on with it. Still trying to keep my exercises going but difficult with having other things to do for Christmas.

    How are you feeling now! Are you nearly ready for Christmas.

    Well take care and good to hear from you.

    Love Tess x x

  • Posted

    i wasnt even offered sedation, i wasnt happy. but i've already been to my gp and he's given me valium to sedate me for the mri scan in jan, my heart app has finally come, that for jan too, and my copd app in feb. i've completely lost my voice, and have serious chest infection, i'm begining to think someone up there really hates me. i glad your dad is ok, and you dont do too much because you will end up in lots of pain xmas day. i've not got hardly anything done for xmas because of everything thats been going on, my husband is trying though bless him, he never done it all by himself before, thanks for listening, love sue x
  • Posted

    Hi Sue

    I am shocked they never gave you any sedation :cry: No wonder it was painful. I hope your appointments in January go well. It is good when our husbands can help out. Even if they don't do things the way we do at least they try. :lol: Well I hope you have a good Christmas and talk soon.

    Love Tess x x

  • Posted

    Hi Sue

    Meant to say also I do hope you feel better soon.! :lol:

    Love Tess x x

  • Posted

    Hi Sue

    Hope you have a very Happy Christmas and New Year. I hope you are not in too much pain. I have not been on for a couple of days as had a bad headache and aches and pains. Think headache is due to my period probably going to start. Hope it doesnt for next few days lol.

    Anyway have a lovely time with your family and catch up again soon.

    Love Tess x x

  • Posted

    hi tess, how did your xmas go. i just glad it all over now, just wasnt in the mood this year. te best bit was watching the grandchildren opening their presants. the last child i had at home left home just before xmas, not that i mind but my husband has treated her like his own since she was 6 (17 now) and we had to protect her from bio dad as he used to beat be up and tried to run me and her over 2 yrs ago, and that where she moved to we feel so betrayed, it has really hurt my husband , x
  • Posted

    Hi Sue

    I do feel so sorry for you it must really hurt you both but especially your husband who has treated her as his own daughter for so long. :cry: Can see why you didn't really have a good Christmas. It is good to watch the grandchildren open their presents. I watched Molly who is five as she opened hers and also sophie who was too young at only 13 weeks to open hers this year. Molly did it for her.

    I had a good Christmas and busy one! Not too good at the moment with bad throat and full of cold. My daughter invited us to her house for New Year and as we went to hers over Christmas we feel like a quiet night in.

    So Stewart my husband and I are staying at home with a film, bottle of wine or whisky for stewart and maybe a film. Are you doing anything for New Year. I hope you are not in too much pain and will talk again soon.

    Love Tess x x

  • Posted

    my mum and daughter are nagging me to go up the pub, but i trying to tell them if i go out in that freezing cold it could make me hurt loads, so i told them i staying in to watch a movie and bottle wine with my husband, we got the house to ourselves so i gonna have a nice hot bubbly bath and leave the door open so i can listen to music, bliss. happy new year to you and your family. im just hoping 2009 going to better than this year has been. i got 3 hospital app though in the first 5 weeks of 2009, i hoping that not a sign of things to come, byr for now, talk again soon, love sue x
  • Posted

    hi everyone

    well im home alone on new years eve as hubby working and 3 kids all doing there own things but bless them cause they were all worried how i would be but i love being home alone especially tonight cause i get to emotional and im just going to go to bed soon before the bells....

    so i hope everyone a happy pain free 2009

    hugs to all my good friends on here x

    di xx

  • Posted

    happy new year to everyone, we had a nice quiet night. i went to bed bout 1 so my husband went over to r friends house to let loose, but he deserves it. we went visiting on new years day and i ruined it by having a severe copd attack just after arriving and went to bed,for hour, so we had to leave early, been to dr today and was told i should have called the ambulance, my husband was going to bt i didnt want to. the dr gave me a reliever inhaler and said i should have had one from the begining as well as my seretide, we werent very impressed, lets hope that the only one of them i have cos i was terrified. so we started the year well, hope everyone is ok talk soon love sue x
  • Posted

    Hi Sue

    Poor you! Are you feeling ok now. What a start to the New Year for you!

    Why wasn't you given an inhaler before. That does make me really angry when they don't give you all the medications you should have. :cry:

    I hope you are feeling a lot better now. I am not too bad the normal aches and pains. Really got to get back into my exercises but still getting over a bad cold. So give myself a few more days. Not seeing physio until February so got plenty of time to work hard lol. :lol:

    Take care

    Love Theresa x x

  • Posted

    hi. i still feel extremly tired, but dr said that was to be expected. he wasnt very impressed either that i hadnt been given the other inhaler. i still getting loads of back pain but learning to accept that aint gonna change. i've got my mri on fri, but gp already given me 6 valium to sedate me so i not so scared cos i know i'll be away with the fairies lol, and i am now down o ony smoking about 10 ciggies a week, i very proud of myself. 3 of the kids have very bad colds, so does my husband and the 2 grandchildren, so it is really difficult to stay away from them all. i'm lucky the cold cant get over the computer too lol, make sure you fully better before you start exercise again else you just wipe yourself out. talk again soon love sue x x

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