Nissen fundoplication reversal
Posted , 45 users are following.
I'm about to have my nissen reversed because of severe neasua vomiting and pain. Has anyone had theirs reversed or taken down and what was the outcome?
3 likes, 131 replies
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Notes on Nissen fundoplication reversal
laura05084 amber69885
Posted
karlosso laura05084
Posted
I know that feeling well I was only told about the gas and bloating which I don't have a problem with apart from I am now on the same medication I was before the operation the bloating is so pad it effects my breathing I have had this lump in my throat since Jan I have to eat loads of polos it totally drains me it has been like this for nearly a year I have put a complaint in to the NHS so just waiting now I just want it reversed now
laura05084 karlosso
Posted
karlosso laura05084
Posted
karlosso
Posted
It's clearly the operation that's caused that then
emma02553 laura05084
Posted
I am from the stoke area, going through the same things as you and wondered did you get any answers?
felicia318 amber69885
Posted
I don't live in the UK area. I live in the US. I had the nissen done in August after years of PPIs, reflux, nausea, laryngitis, laryngopharyngeal problems, etc. I HATE the day I agreed to it. I can eat. I had to learn to belch again. I CANNOT vomit, which is horrible. I have constant gas, embarrassing. I have constant stomach pains. And have been told that the pain is from extremly lare air pockets in my intestines, causing ugly bloating & swelling of my mid area. And im back on reflux meds & gas meds. I want this reversed. I rather pray about the reflux than to deal with these after effects.
karlosso felicia318
Posted
rabiya27671 felicia318
Posted
john50478 felicia318
Posted
How did you learn to belch again
I have tried many times even putting my fingers into my throat
can't do it I could my problems would be solved.
Tried hundreds of times
You are lucky I guess it depends on the type of wrap
mine was a toupe what every that means
some kind of partial wrap been bloated ever since but only during the night keeping me awake
felicia318 rabiya27671
Posted
I still have the bloating, the stomach pains, the constipation (no gall bladder), etc. I still can't vomit, I'm continuously nauseated. still on reflux gastrointestinal meds. Its miserable.
felicia318 john50478
Posted
john50478 felicia318
Posted
I think that's what I have extremely large air pockets in my intestines
they have never been able to diagnose anything nor even tried but that seems to sum it up
do you have this during the day or just at night as in my case
Basically, a Nissan is the very last thing you need in this case as it makes you even more bloated
as it did to me, if only I had known, I cant belch to save my life nor the other vomit
The only drug that helps is Amitriptyline dont like taking it as it makes you drousey
MEG111991 amber69885
Posted
farhana71476 amber69885
Posted
Did you have your reversal? I am ready to have mine done. How are you feeling? Can you vomit?
We're there any complications? Please please advise. I am scared
rabiya27671 farhana71476
Posted
beaula29338 farhana71476
Posted
Hi, did you have a reversal? I had Nissen fundoplication surgery on the 24th June 2017 in the UK & still can't eat. Vomiting & regurgitating food & water everyday! I want a reversal ASAP!
How do you get a reversal in the UK? I have lost 1 stone 6lbs so far! I too am really scared & wish that I had NEVER had the surgery!
karlosso beaula29338
Posted
beaula29338 karlosso
Posted
Thank you for sharing your experience. I will complain & ask for an urgent reversal. Approximately how long did it take before they agreed to reverse the fundoplication? Are there any complications associated with this operation? Please can you keep me undated on your progress?
I would really love to know how you get on!
john50478 karlosso
Posted
maybe if I told them about my aunt working there they would do a reversal Ha Ha
karlosso beaula29338
Posted
karen93235 beaula29338
Posted
Hi I had a fundoplication done in London 2011 and I want mine undone . I'm in terrible pain . Where did you have yours done
beaula29338 karen93235
Posted
Hi Karen,
I am very sorry to hear that you are in pain. I had my Nissen on the 20th June 2017 & it was semi taken down on the 23rd August 2017. Unfortunately, as time passes everything starts to heal & knit together. I believe that part of the wrap is still attached to my gullet & I started to bleed quite badly so they couldn't continue. I still can't eat properly, vomit everyday & suffer from excruciating stomach pain, bloating, diarrhoea & exhaustion.
Do you know what is causing the pain? Are you in the UK?
I wouldn't recommend the two surgeons who carried out my surgery! Apparently James Gossage (London) & Guy Slater (Worthing/Chichester) are very good! I hope this helps 😊
farhana71476 beaula29338
Posted
My hernia was 2 cm. I had the nissen but had it reversed. Worst surgery ruined my life. Have your doctor fix the hernia only. Don't get the nissen
beaula29338 farhana71476
Posted
Hi Farhana,
Thanks for the advice. Unfortunately I had both the Nissen & reversal & can safely say that both surgeries have ruined my life. How are you doing now?
farhana71476 beaula29338
Posted
It has been 4 month post op. I am doing better but everything makes me nauseated and i get spsmas. So the only thing that calms everything down is xanax, so I can eat. I have good days and bad days. Went for a 2nd opinion and Dr said to give it time . My nausea is due to tightness and pressure after it was undone. He said it will resolve in time. I don't know ....i am taking it one day at a time. How are you doing?
beaula29338 farhana71476
Posted
Pretty much the same as you! I vomit everyday, get spasms, diarrhoea etc. I am getting 3 second opinions early part of next year. I have completely lost faith in the original surgeons (I had 2 due to complications) & don't want them touching me again, ever!
I do hope that things improve for you very soon. I know it's hard but try to stay positive. If in doubt get a second opinion.
farhana71476 beaula29338
Posted
Here is my email Farhanac29@gmail.com[/b] So we can talk better. I hope you feel better too. But we have to stay positive. My Dr said it can take up to 2 yrs before we feel normal again.
farhana71476
Posted
How long did you have the nissen before reversal? How long has it been since the reversal? I ask because i went for a 2nd opinion and my Dr said that all the symptoms i am having are normal and to give it time. It can take up to 2 yrs to before feeling better. There is a wonderful support group on Facebook called nissen takedown by Gina. I have gotten so much knowledge and support from this group. You should join. I still can't throw up. I wish i could. That is my main issue. Dr. Said I have to give it time since the area is still healing and very tight. That is why I am having nausea. I had to give up my life ,my job and everything to heal from this nightmare. I wish i can go back in time. But I am thankful that I had the reversal and it is over with. This will pass we just have to be patient.
farhana71476 beaula29338
Posted
beaula29338 farhana71476
Posted
I had the Nissen in June 2017 (one surgeon) & the reversal in August 2017 (same surgeon & his superior!). Just one Nissen & have been living a hellish existence ever since. I certainly wouldn't recommend Nissen to anyone & wouldn't have had it done if I had been informed of the hideous side effects & life changing, life limiting effects prior to surgery. I do hope that things improve but at present, I am being given conflicting information from the surgeons in question re the best course of action to improve my condition. It's very worrying that they don't appear to know how to cure me. Keep me posted on your progress. I hope that your condition improves ASAP.
farhana71476 beaula29338
Posted
I am on t he same boat as you. I have no definite answer so went for a 2nd opinion and got some answers as to why I am feeling like this. I like you have the nissen April 2017 and takedown june 2017. The nausea is awful but the new doc says is due to the tightness and pressure. I still can't throw up. It sucks and was told to be patient. It can take up to 1 to 2 yrs before we feel normal again. I am praying for us for better days.
karlosso beaula29338
Posted
Gunna have it out with the surgeon when I next see him
emma02553 karlosso
Posted
That is how my issues started it has been hell since I had the fundo. Have you had your reversal? what doctor did you see, I am in the uk too sorry for all the questions I am desperate.