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oral lichen planus

Posted , 78 users are following.

elizabeth_lee
elizabeth_lee

Hi I have just been diagnosed with oral lichen planus.

I have had a sore mouth for about six weeks now and have just seen my dentist and g.p.

I thought I would find out how mwny out there have this condition as I have never heard of it before.

3 likes, 214 replies

214 Replies

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  • ML-65
    ML-65 elizabeth_lee

    Posted

    A medical study by Petruzzi found 5 out of 10 with OLP have HCV hepatitis and a quick web search suggests it is associates. A leading liver professor at Royal London (Prf Foster) told me OLP usually goes if HCV virus is cleared. Maybe worth having test for hep c just to eliminate that connection 
    • trudy98661
      trudy98661 ML-65

      Posted

      I know this post is old but want d to mention that I had the Hepatitis C virus for at least 20yrs ( dormant) and was recently treated- I have been clear of Hep C for over 4 months but 2 months ago, developed Oral LP.

      Coincidentally when being treated for hep C, I was diagnosed with Autoimmune Hepatitis .LP is an autoimmune condition so this lines up or it could have been triggered by treatment meds ?!

    • Noni9
      Noni9 ML-65

      Posted

      Hi, I was just recently diagnosed with olp, but have suffered with symptoms a long time.

      I was recently tested for hep c, but turned out negative.

      However, I do have hpv and hsv2.

      Also have ulcerative colitis.

      Wondering if there's a connection???

    • karen41728
      karen41728 Noni9

      Posted

      Yes there definitely is Noni... I too have hpv and had colposcopy years ago for it.. do you have any skin itching
  • Moperry
    Moperry elizabeth_lee

    Posted

    Recently diagnosed too, waiting for dental hospital appointment. Don't know if it's just my imagination but have found a certain new chewy sweet, lemon or orange seems to help! Not sure why but think they may help with keeping mouth moist. I bought them just to try but a few days later noticed my mouth getting uncomfortable which settled again after I got more! No cure but certainly help. Plan to stop the sweeties and see what happens. By the way I feel that taking NSAIDs for my psoriatic arthritis was the trigger! Stopped that too. 
    • Advice
      Advice Moperry

      Posted

      I was diagnosed 4 years back and I tried doctors, surgeons but all was temporarily worked....

      I found the solution my self to this diesease and its working for me... it appears after 1 year but its not teasing me any more..

    • sweetsingeruk
      sweetsingeruk Moperry

      Posted

      Which sweets were they? I wouldn't mind trying them if it helps relieve the symptoms
    • Noni9
      Noni9 Moperry

      Posted

      I too have taken nsaids forbyears
  • annc68
    annc68 elizabeth_lee

    Posted

    During my latest flare up of oral  lp my daughter suggested trying coconut oil. She had been reading about it and uses the coconut water herself. I tried the organic virgin cocount oil in a jar. It is solid at room temperature and you can rub it on to your gums. It gave instant relief from the pain. If your gums are too sore to touch you can leave it in your mouth a for a few seconds and it liquifies and you can run it around your mouth accessing the hard to reach areas. You can then swallow it. Not sure if there will be any long term benefits but it can't hurt. I don't have a problem with nuts so I'm lucky in that sense.

    Also re lp of the vulva, the hospital prescribed balneum cream which I find really useful. It keeps the area moisturised and you can use it as many times  a day as you need. Wouldn't be without it.

    • Advice
      Advice annc68

      Posted

      Hi

      Well thanks for the advice and treatments you are using....

      What helpled me is this...

      1. No Juices/ Specially Mango milk shakes

      2. Never use soap tooo much

      3. Avoid tea with too much milk

      4. Tobacoo

      5. half fried eggs

      I will paste the name of medicine that helped me alot... 

      I was prescribed to use steriods that badly affected by kidnies as well... and then after that the doctor suddendly stopped that..

      hope this will help you guys.

    • annc68
      annc68 Advice

      Posted

      Good to know. Any help and tips are invaluable because who knows what will work for you. If it's helped others got to be worth a go!
    • Ladybug327
      Ladybug327 annc68

      Posted

      I just used the coconut oil and no joke relief right away. I'm going to use it a couple times a day I'm also going to pick it up in a pill form. OLP, knock it off we don't have time for this nonsense.

    • catherine97989
      catherine97989 Ladybug327

      Posted

      I agree it's a pain in the butt! Let us know if coconut oil in tablet form works for you. Good luck!

    • donna18720
      donna18720 Ladybug327

      Posted

      Did it really work? I have some unopened that I just bought I am having a really bad olp flare right now. I hate using these strong medicines that all say not for oral use and the docs say just ignore that , but oh yeah we have to check your liver and your eyes and you may go bald !!!

       

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