Overactive thyroid graves Part 3

Hi Kat. Keep your chin up. I've always felt the difference very quickly when I've changed my thyroxine dose. I think your gp is talking out of the back of her head. You're not going to be back to normal overnight, but I'm sure you'll see a big improvement in much less than two to three months.

Take care.

Marigold

xxxx

Hello everyone, just to say I'm having terrible trouble with my computer and keep getting cut off, will try to send a proper post over the weekend, thinking of you, hope you get this ! xx

hi everyone, Bess i was having trouble with my lap top not long ago ,i had to take it to have some memory put in as i was virtually running on nothing just like myself :lol: he also got rid of viruses for me ,cost me 70£ with a new lead but my laptop is so much faster,anyway how are you?

Marigold did you ever feel as food was getting stuck going down only i experienced that when i was hyper but its returned and its not a nice feeling,i am feeling a tad bit better my mind seems a bit clearer but my memorys not great yet and i am still haveing terrible pain in my back and hips,i was hoping that although i have oestoarthritus the pain is a lot worse because of the thyroid problem,i could have cried in town today the pain was so bad and said to my girls i could do with one of those scooters :lol: i have always had a good pain threshold but this is pulling me down and making me so miserable.

Jane and kat how are you getting on with thyroxine ,felt any different?

must go got my feet soaking in a bowl :lol: just done a manicure now going to do my feet. its nice putting nail polish on without my hands shaking

ps can any of you remember all the horrible symptoms you had when you were hyper only i was trying to think of all mine lol

take care sue xx

Hello everyone,

not been on here for a while so i thought i would drop by and say hello. Lifes been really hectic over the summer so its been a struggle to keep up to date with things. I had an endo appointment scheduled for sept. (my last one was in April). I'm on 5mg of carbimazole and 160mg of propanalol. The plan was to stop all meds in oct and see what happens. Had a letter through the door last week saying my appointments been changed to mid oct. Then 2 days later another appointment change to dec and then the very next day another letter with an even further date in December. So i just have to wait until then. Things don't appear to be going too good. I'm waking up feeling nausea most days, been going to toilet more frequently and generally feeling moody and depressed. So think i'm going to book a gp appointment and have a blood test. Hey ho apart from that things are not too bad.

Hope everyone is doing ok.

Chris

Hello everyone

i hope everyone dont mind me joining in .

i just wanted to ask a couple of questions to see if what i am feeling at the moment is normal,down to thyroid or something else as im still new to this. i have had over active thyroid for a month.

i havent had the hot feeling like everyone else,i always feel cold,but lately normaly in the evening my face feels like its burning up but im shivering cold on the rest of my body also the last few days my neck (where the thyroid is ) aches . has anyone else had this ?

thanks Deb

Hello Graves gang.

Hi Bess. I hope you're ok and get your computer sorted.. Mine gave up the ghost completely, and I had to get another one. It kept going off, and was driving me mad. :x

Hi Sue. I'm pleased your mind is feeling a bit clearer. My memory is hopeless, I can't remember names. I get someone on my mind and lie awake half the night trying to remember their name. Silly or what? I'm sorry your back and hips are playing up. I'm stiff and achey, my legs hurt in bed and I can't get comfortable. If you get one of those scooters don't go too fast. :lol: We were coming out of the supermarket one day and suddenly the doors flew open and a man came flying in on a scooter, we had to jump out of the way. We could tell me the look on his face that he didn't have control of it.

I felt as though food was getting stuck in my throat just after I'd had the RAI. Does all food feel like it's getting stuck, or just dry food like toast?

I'm trying to forget all the horrible symptoms I had when I was hyper. Don't remind me. :lol: Take care.

Hi Chris. Good to hear from you. It sounds like you're getting messed about with your endo appointments.If you're not feeling well it's a good idea to have your blood checked. If it's ok it'll put your mind at rest, and if it isn't then you can get your doctor to do something about it. Take care.

Hi Deb. You're more than welcome to join in.

I always felt hot when I was hyper. Are you eating any better? If you're hungry that could make you feel cold. Just a thought. I haven't had the burning face or the aching neck, but someone else may have. Sorry I'm not much help.

Hope everyone else is ok.

Marigold

xxx

Morning Everyone,

Well what a difference a few days make, day 4 today of taking 100 mg of thyroxine and I definately feel better, head clearer, more energy and less aches and pains and best of all I seem to be sleeping much better which I think helps with everything. Still all puffed up with the fluid retention but I noticed yesterday that the swelling in my eyeballs had gone down a bit and they looked less red :-)

Sue like Marigold I felt like things were sticking in my throat after RAI then after about 6 weeks all of a sudden my throat felt clear. My nails have just started growing again so I've been doing a new colour every few days, currently have a french manicure I was really pleased that I managed to do the white tip - small things make me happy!

Chris I too have long waits to see my Endo my last appt was beginning June and my next is beginning of October, I would call and ask for a cancellation. I agree with Marigold about getting your bloods done again. I called my Endo's secretary last week to ask about a cancellation (nothing available) but she said she could get my notes along with my latest bloods and get the Endo to give me a call, maybe you could do this too?

Hi Deb, welcome, sorry I didn't get anything like you are describing, I was always hot everywhere when I was hyper and now that I'm hypo I do feel colder but not all the time, especially in my legs, feet and hands.

Jane how you getting on? Are you still away?

I'm off to hang out the washing it's lovely up here today and I'm going to try and walk the dog again even if it's just for 15 mins it's better than nothing!

Kat xxxx

hello everyone

marigold i still dont feel like i can eat eventhough im hungry, im trying little bits but everything gives me acid/heartburn so it puts me off.

i felt a bit better last week but back to feeling bad today, heartburn more than ever and keep going dizzy and feeling quite strange.i feel like i did when i first found out i was hyper.

im so fed up of not being myself and being able to go out, i avoid going anywhere now.

jane im always cold but im hyper,i dont understand why im cold.

im off back to bed ,hopefully i will feel better after a sleep.

take care everyone Deb xx

Hi all,

Kat, I am so pleased that you too are feeling a bit better. I don't feel hyper at all now and could probably use a bit more thyroxine but can wait a bit yet. Sue you sound better too and bess its good to hear that it's just computer trouble. Marigold, hope you are good.

Debs, I was fairly hypo a couple of weeks ago and have never felt cold once, I've still been getting hot flushes as if I was hyper. Everyone else has been cold so I thought I can't be hypo as I havnt got the same symptoms but when my results came back I was very hypo. I've definately had an achey neck but I'm not sure if it was after rai or not. I wouldn't read too much into your symptoms being slightly different.

Take care everyone

Jane xxx

Jane

evening everyone ,Debs go to your doctor with the acid/heartburn,my doctor put me on omeprazole 20mg capsules ,i have not had acid heartburn since ,dont suffer wth it hunnie..you should beable to eat if you can get your tummy settled. Glad your feeling better Jane and Kat what a roller coaster ride we are all on.I have been over doing it again power washed my front drive then repointed the flags then today stripped the beds then stood ironing bedding and holiday clothes then mowed the back lawn so no wonder i nearly fainted when i went to bring the last of my washing in which i will iron tomorrow ,its funny how you forget you are supposed to be taking it easy when for some reason you feel normal for a short while :lol: ...My son has brought my memory foam mattress topper down off one of my spare beds upstairs ,i am hoping to get a goods nights sleep without aching hips and back which wakes me anytime from 3-00am its about 3ins thick so should help..Marigold i am off to Newquay this saturday wish you were all coming ,you could keep me pinned down :lol: :lol: to make sure i rest ,just hope the weather holds

take care talk tomorrow sue xx

hello everyone

sorry about my rant yesterday, i think i was feeling a bit down as i had started to feel better but then started feeling horrid again.

sue thank you for the advise i will ask my doctor and see if he will give me some,he told me to take gaviscon last time but as i was telling marigold there really horrible so i gave up on them .

i really dont know how you all have coped with being ill for so long ,im only 5 weeks into it and its got me down.

i hope your all feeling as well as can be today .

thanks Deb

Deb,

You rant away we have all been there. I too used to get really bad heart burn/acid and the Doctor gave me a months course of Omeprazole 20mg same as Sue and fingers crossed haven't had any since. Get yourself back to the Doctor you don't have to suffer.

Jane that's great you don't feel hyper anymore it must have been your body reacting to the initial thyroxine, how's the fluid retention? My eyes are less puffy to be honest haven't tried my rings again will do today, have noticed the weight creeping up though :-(

Sue will you please slow down, remember what the Doctor told you? Although you must be feeling better if you managed to get all that done. Least you are away on Saturday for a nice break, you going to try surfing when you are there :-)

Marigold, Bess, Barry you all ok?

Take Care, Kat xxxx

Hello everybody!!!

Hi Kat. I'm pleased you're starting to feel better. My nails are growing again, and are much less brittle. When I was hyper I had red patches on my hands, especially on the palms, just below my fingers. ( Another symptom apparently).

The red patches have gone, but where they were the skin keeps peeling off.

Still, I can put up with that. I'll probably have to. :lol:

Hi Deb. Don't you worry about having a moan. we all do that. There's nothing like it. Does you the world of good. You'll find you'll have bad days, but as you get better they'll get less and less. As Jane says everybody gets different symptoms. I was always hot when I was hyper, and I haven't been hypo so I don't know what I'd have felt like. I had really bad fluid retention when I was hyper, and you're supposed to get that when you're hypo, so we're all different. I'd ask the doctor for something different for your heartburn. Don't just put up with it.

Jane, it sounds like you're feeling a lot better. That's good.

Hi Sue.- It sound like you're on Duracell batteries. :lol: Don't overdo it or you'll be worn out for your holiday. I've heard the memory foam mattresses toppers are very good. You'll feel better if you get a good night's sleep. I'm not sleeping very well at the moment, and when I do sleep I'm dreaming rubbish.

I hope you enjoy your holiday, I can imagine you power washing the streets of Newquay. :lol:

Hope everyone else is ok.

Take care everybody.

love,

Marigold

xxx

Hi everyone,Debs hope you got to the doctors ,when i was hyper i had all kinds of symptoms some of them hypo i thought i was cracking up as i had just lost my husband and dad,everyone thought i was severly depressed but i knew it was something else ,of course i was grieving but this thyroid illness was something i couldnt discribe to anyone ,you will get there in the end and the graves gang on here are brill and will support you . Well i had a good nights sleep on the memory foam the only thing is i need a hitch up :lol: and i hope i dont fall out of bed its a long way down :lol: I am feeling so much better on the extra thyroxine ,just wish my hips and spine werent so painful..Marigold my daughters going to help me pack she will make sure i dont pack the kitchen sink and power washer lol,

be back later sons just walked in for his tea ...Kat Jane Bess you all okay

love sue xx

Hi everyone , The last two days i have been feeling dizzy sick, tingling in legs and as if i am going to faint i am also feeing tired with not much energy,i think its the increase in thyroxine ,should i reduce my meds and go back to 50,havent time to see the doctor with going on holiday ,hope i feel up to going ..hope you all are well be back later sue xx