Overactive thyroid graves Part 3

morning everyone, Jane what strenght are you on ,i am on 75mcgs at the moment and still feel dreadful ,i phoned my endos secretary on monday morning to find out why i havent had an appointment since i last saw him on the 19th july,my own doctor increased my thyroxine on 17th august to the 75 ,now i am on the cancelation list ,seems like a big cock up to me.I am waiting for the post this morning and if no app comes i will play hell,i told her i was feeling dreadful but they just dont care .I also went for my bloods to be done on monday ready for when i get an app.i am so swollen up with fluid and my belly looks like a balloon ,even my son said last night i look puffy ,it feels very uncomfortable ,i am cold an no energy at all and the pain in my joints is terrible i am ready to burst into tears with it all.

Marigold kat bess and debs how are you all ,sorry for the rant when you all not feeling good yourselves .will let you know if i get an app

talk to you later take care my friends ,love sue xx

Morning Sue, just to say I'm thinking of you and so sorry you are feeling so awful. If you had your bloods done on Monday, could you ring in for the results ? You are right to kick up about this, as they say, its the squeeky wheel that gets oiled so keep on keeping on. You will get sorted soon I'm sure but its so exhausting having to fight your own corner all the time. Lets us know how things go and in the meantime try to rest.

Hope everyone else ok, love Bess xx

Hello everyone

marigold whats auras ?

mine was above my right eye its finally gone, it lasted 2 days ,

i hope i dont start getting them regular.

i was having a good day,went to tesco and ikea for a walk out for a bit then got home and a head ache for 2 days.

im trying to cut down on the propranolol ,doctor thinks it to soon but im sure they cause me lots of side affects , they put my dose up to 40 mgs 4 times a day so im trying to just take 40mgs twice a day, i asked for 20mgs but they dont want me to have them , surely i should have more say in what dose i take.

susy hope you get that appointment soon .keep on at them if you dont.

i hope you feel better very soon.

jane its my sons first day at big school today, i was just getting him to try his uniform on the other day , he looked lovely this morning . i had to take photos :lol: .

i hope everyones ok,

take care Deb

Hi Deb, just a quick post. You might not want to cut down on your Propanolol too quickly, I was also on 4omgs four times daily to begin with but it was a while before I could gradually cut down. Although they slow you down, they are important in the early days as they protect your heart from beating too fast. I think this is why your doctor doesn't want you to have 20mgs. You could ask him if its ok to take 40 mgs three times daily ? They are fine in the short term, its only when you have been on them for months that you need to cut down if possible and safe. Not sure how long you have had them ? Sorry to sound bossy, just concerned about you. Hope your son gets on ok at school - big day ! love Bess. xx

Hello Bess

i ve been on propranolol for 7 weeks altogether, they started me on 20mgs 3 times a day then 40 mgs 3 times a day then 2 weeks ago they upped it to 4 times a day.

how long was you on them for ?

i find they make me very dizzy .

one doctor told me to tweak about with them and take as i needed but another said to take the 4 a day .

i only really notice my heart racing at night time .

take care Deb xx

Hi everyone ,I am so mad my app came through this morning for 21st feb 2012 ,i have just been on the phone to actually speek to my endo and he said my levels were perfect Tsh 0.64 FT4 15.1 ,he said all the symptoms i am suffering must be due to something else and to see my own gp ,he is going to make me another app to have another blood test at the hospital for some other t level but he spoke so quietly i couldnt

hear him properly he has got me really worried now wondering what else could be wrong .Debs Bess please dont think i am ignoring you both i am so bloody mad at the moment and cant think straight .Worse thing is i cant grasp these levels so hoping you all can help .THANK GOD i have you all on here

better go need to get shower and do some food shopping

take care love sue xxx

Hi Sue, how frustrating ! I'm not sure about your T3, I think its ok but I'm sure your FT4 is within normal range. Perhaps your GP will arrange the usual range of blood tests, have a look on the form if you get a chance and see if it includes FBC. U @ E. LFT. etc. This will cover most things. Also perhaps he will give you a diuretic (water tablet) to help you get rid of some of the fluid if you need to. It makes you wonder if they really listen sometimes when we tell them how we feel.. Dont go worrying about this, they can sort it out for you and nothing horrible is going to happen. Is your GP good ? Does he check blood pressure etc ? Sometimes they just seem to want you out the door. You'll be fine, this is just temporary I'm sure. Let us know how you get on.

Deb, I was on Propanolol for I think about 8 months, whenever I tried to come off it, my pulse went up again and I felt anxious and panicky. My GP lets me take it as necessary now because my pulse is normal but they must have thought you needed it to keep upping your dose. Have a chat with your doctor, I think Propanolol is a godsend in many ways but you're right, it does make you feel like cr*p ! When your blood results improve, your pulse will settle and then you can look at reducing the dose I should think.

Hope everyone else ok today. love Bess xx

Hello everyone

Sue i hope you manage to get it sorted soon. it carnt be nice feeling like you do and them not listening.

Bess thank you for the advice .i think im trying to rush things ,sometimes i think im better before i am .

i started to feel anxious this afternoon so im going to take your advice and carry on taking them for a while.

take care everyone Deb xx

Hi Sue,

Sorry you feel rubbish, we all missed you when you were away I was going to book you to jet wash my drive!

All I can say is give it a bit longer rather than worry about other possible illnesses yet. Your body has been all over the place recently with being hyper and then Rai followed by hypo like you've been through the wringer. Your levels have settled and the rest may follow. Not that I know anything but i too feel and look very hypo at present and am remarkably calm.

I have done a bit of research which does suggest you need 6 to 8 weeks of thyroxine to get the best from it. It also said you tend to need less once you're in your 60's. I'm on 100 and feel like it runs out anytime from mid afternoon to the evening time. Kat is on the same, how you getting on Kat?

I feel marginally better for starting work a bit later and dropping to 4 half days. Today is my first Wednesday off and I managed to do a bit of gardening which was good, I'm stiffening up now though so I may pay for it.

Hope Debs son had a good first day at big school, my lad is year 6 so that's next year for us. Hope Barry has had no more frights and everyone else is as well as they can be. Sorry it's a long one.

Jane xx

Hi all.

Went to docs today got checked out and seemed all ok blood pressure pulse was fine.Got my bloods done as well to see were my levels are at.

Marigold like you said them palps could just be one of those things.

Debs I had my rai done in December but I have been under and over a few times since.They think I am finally under now though but time will tell.

I wouldn't play around with the propanolol until you have proof that your blood levels are improving- when I was first diagnosed a 160 mg dose still sent me into AF so just be careful.

Keep digging in all take care baz

Hello everyone i hope your all feeling well today

Jane he enjoyed his first day he even enjoyed the school dinner so they must have got better :lol: .

Baz

im glad everything was ok at the docs,i didnt realise the rai took so long to work .

im going to keep taking the propranolol and have a word with the doctor when i go on the 19th of this month,i dont know what AF is .

take care

Deb xx

Hi everyone ,Debs glad your son liked his new school especially thE dinners,I know i am a right one to tell anybody but just give your self time on your meds debs .Jane glad you got out in the garden i have just mown my lawn and cut the cable in half ,its a good job i use a power breaker and not only that i went out shopping for a couple of hours and left my hot water tap running in my bathroom ....Thankyou bess i will try and not worry but i know in myself i am not right maybe i need some t3 aswell ,have you ever thought of going on armour any of you only i have been reading stop the thyroid madness and it seems like my endo is wrong thinking i shouldnt have symtoms of being hypo now i am on thyroxine well i can assure him they are not in my head :lol: and what i do have are simalar to being hyper

MARIGOLD where are you hunny are you not well ,i hope not ,missing you xx ....well teas ready be back later ..take care love sue xx

Hi everyone.

Hi Sue. I is here. :lol: I'm sorry you don't feel well. Your T4 and TSH were fine, so I'd go and see your GP as your endo suggested. Tell him your thyroid levels are ok. He should do some blood tests to see what's causing the fluid retention. It sounds like you're having a good time cutting the lawn mower wire in half and leaving the hot tap on. When we got home from shopping last week there were two starlings flying round the living room. They'd come down the chimney, so there was soot and feathers all over. Luckily we weren't out too long as there would have been an even worse mess. Hope you feel better soon, and don't work too hard.

Hi Deb. An aura is what you get sometimes with migraine before the headache.

Flashing lights and zig zag lines, and you can only see half of everything.

I'd stick with the Propranolol. It's to stop your heart beating too fast You'll be able to reduce the dose when your thyroid levels come down. I know it makes you feel strange and slows you down, but it's better for your heart.

I'm pleased your son enjoyed his first day and his dinner. :lol: Was he as smart when he got home as he was when he set off? :lol:

Hi Barry. You'll be relieved your blood pressure and pulse were fine. I was just thinking today it'll soon be a year since we had our RAI. Doesn't time fly when you're enjoying yourself? :lol:

Hi Jane. I hope you're managing with work and feel a bit better. I feel fine. I'm a bit stiff and achey, but that's old age. My tummy is a windy, but apparently thyroxine can cause a gassy stomach, but as I'll be on thyroxine for the rest of my days I'll have to get used to it. Compared to how I felt last year I feel brilliant.

Hi Bess. I hope you're ok. I'm off the biscuits at the moment, very strange. :lol:

Take care everyone.

love,

Marigold

xxxx

thanks marigold ,but why am i having all these symptoms,feeling cold breathless extreme pain in joints ,aching back aching across my shoulders, no strenght in my arms,feeling tired ,feeling as if i cant be botherd ,swollen stomach legs and ankles and acne on my face,sweating at night and pain waking me up in hips and ankles lol. I am so happy for you marigold its taken a long time for you to feel well ........................... i can feel my bra going tighter and the legs on my jeans feel tighter too ,i just wish i knew whats going on with me :lol: i feel a right moaning hyper con driac :lol:yet they were loose this morning.

did the bird make much mess

take care and love to my friends xxx sue

lol lol lol ,can you follow my mixed up post marigold :lol: my minds mixed up too :lol: take care sue