Overactive thyroid graves Part 3

Hi Shazza. Sorry you're having problems with weight gain and hair loss. I was on a high dose of Carbimazole for a long time, and I didn't gain any weight. I didn't even put the weight back on that I lost with being hyper, and I still haven't. I think it varies from person to person. Hair loss is a symptom of an overactive thyroid as well as a side effect of Carbimazole. I was on steroids too which also cause hair loss. My hair felt like cotton wool, but it's getting back to normal now. It's even shining again. I'd be asking your doctor to check your blood before February, I think that's too long to wait. Keep your chin up. It might not feel like it now, but you will feel better soon.

Take care.

Marigold.

Hi Sue. I'm pleased you managed to get an appointment. It makes me mad too when no one has the decency to phone back. This illness is bad enough without being messed about. Stress is one of the symptoms, and when you have to keep phoning and phoning and no one will speak to you it makes it worse. I hope you get the result from your ECG. My heart seems to beat really fast for a few seconds, and then it goes back to normal. I only go to the doctors when I have to, it's hardly a pleasant outing is it? Then when I do go my GP doesn't seem to have a clue. I'm pleased you're taking things a bit easier, resting isn't my style either. :lol: xx

Hi Jane. I didn't know there was a seasonal element to the thyroid. That's interesting.I know what you mean about feeling you're shaking when you're not. I feel like that sometimes. I hope you hubby's results come back soon, and then you'll know where you stand.

Deb, glad you're feeling a bit better. Has your urine infection settled? It's a miserable illness to have.

Are you ok Kat? I can't remember if you're on holiday this week.

Bess. I don't have the energy I used to have either, and my memory's shot. :lol: I can't remember names. I used to have a really good memory. I'm still very jumpy, but I'm loads better than I was. I think you're right not to stop the Propranolol when you're cutting down on the carbs.

Thinking of everyone else.

love,

Marigold

xxx

Hi Barry. I've just seen your post. That's good isn't it? Well done!!!!!!! :D

I have my next blood test next week. It's 3 months since the last one. If it's ok I have another one in 6 months, and then 1 year after that. Then I have it checked every year. The last two have been T4 18 and TSH 0.27 the first test and 0.58 the second. The endo is pleased with that, and he says the RAI has worked.

Keep in touch.

Marigold

Hello Everyone

barry thats brilliant,so happy for you

marigold its not cleared up but there having a new computer system installed at my doctors so you carnt phone and book a appointment, you have to phone early in the morning for a appointment that day but its always engaged then all the appointments have gone when you manage to get through so i carnt get to see my doctor yet, there not doing blood tests either and im suppose to have one tomorrow to check everythings ok after reducing the carbs,they dont get there systems back up untill oct 31st so dont know what im going to do

anyway feeling a little better today.

how you doing marigold and everyone else?

Deb xx

Hi marigold,

Fingers crossed it is good yes, he wants me to have repeat bloods done every 6 months or if I feel any symptoms creeping back to get them done earlier.

Glad you are doing well it's good he iodine has worked and it gives hope to our fellow graves friends on here that it is the best option to take.

Hi debs thanks,

Just seen your post hope you at doing ok also.

Take care ;-)

hi everyone ,good news barry so happy for you .

My doctor phoned me yesterday ,he is writing to endo to get me an app before feburary ,he has not heared any thing about my ecg so i will have to wait untill i have had the short synacthen test and all my results will go to endo i just hope he will act fast ,what makes me think it could be my adrenals is when i went for the last test and was taken in to A&E ,on my way there the road i usually take was blocked off and i had to detour a different route that i didnt know well then along one lane cattle were crossing :lol: holding me up ,well when i got there eventually my body couldnt cope with the stress i could hardly walk to the ward and felt dreadfull i thought i was going to collapse ,i just hope it doesnt happen again on thursday ....Marigold Jane KAT Bess debs Hope you all are okay

enjoy your weekend

take care love sue xxx

Hi Everyone,

Just a quick post to say I'm back from a great weeks holiday in North Wales seeing all my relatives. We ate too much and probably drank too much especially in front of the lovely log fire!!

Feeling quite good at the moment did me good getting out and about everyday while we were away.

Will come on again soon to catch up with everyone's posts.

Take Care,

Love Kat xxxx

Hello everyone

Sue is it the test your having thurs? if so good luck i hope all goes well.

Kat glad you had a good time, it does you good to get away from it all

i finally got in to see a doctor today, got a 5 day course this time ,i asked while i was with the doctor if they would be ok with all the tablets im already taking and was told yes by the doctor and guess what when i get home and read the leaflet you carnt take them with one of the tablets i already take so not sure what to do now.

why carnt they just get it right .

i hope everyone else is ok and feeling well

Take care Deb xx

hi everyone ,Kat glad you enjoyed your holiday ,its good to get away from all the worries and a great pick me up ...

Debsyes its thursday i go for my test ,have to be there for 9.00am i just hope the rush doesnt stress me out again I will be glad to get it done to see if it picks anything up ,you sound like your in the same situation as myself with doctors :lol: i know we shouldnt laugh as they must get stressed out like us and they are only human at the end of the day.,Hope you feel better soon hun xx

Marigold are you alright hun and Bess hasnt been on for a while

Jane hope you are okay xx

Thinking of you all

take care

love sue xx

Deb. What a carryon you're having with your GP's surgery. It's disgraceful. Can you speak to your GP on the phone to ask about taking the tablets with the other ones you're on? If not it might be a good idea to speak to the pharmacist, and see what he advises. I hope you get it sorted. Take care.

Thinking of everyone.

Marigold

xxxxx

Hello everyone

marigold i phoned the doctors today and she said there fine to take together so i phoned the chemist to double check and they said make sure to space them out and not take them both at the same time, at least a hour apart so its put me off and ive not dared to take them

im funny like that with tablets .

Sue it might not be so busy at that time if the schools are off where you are, as for the doctors im fed up with mine at the mo as everything comes to a stand still just because there having a new computer system,you carnt have your blood took,carnt book a appointment ,carnt get repeat Prescription carnt even get a sick note, sorry for the rant but i dont think everything should stop .

how is everyone

Take care Deb xx

Hello everyone.

I had my bloods checked yesterday. T4 15. TSH 2.29. Hows about that then? I'm chuffed and the endos chuffed. I don't need another blood test for six months unless I start to feel ill. :D

Sue. You'll be pleased when you get your test over with tomorrow. Allow yourself plenty of time to get there then you won't get too stressed. I hope everything turns out ok for you.

Kat. I'm pleased you had a good holiday, the change would do you good.

Are you back at work now?

Hi Deb. I'm sorry you're having problems with your tablets. I think sometimes you get more help from the pharmacist than the doctor. Are you feeling any better?

I haven't heard anything like the carryon at your surgery. It shouldn't take that long to put a new computer system in, and they should make other arrangements for the patients while they're doing it.

Are you ok Jane. Has your hubby had the result from his scan yet? I hope he's ok.

Are you ok Bess?

Thinking of everyone.

Love,

Marigold

xxxx

I am so glad that I have found this forum and see that there are others who have and are suffering with the same symptoms as me; I really thought that I was going mad!

I am 53 years young woman and I was diagnosed with an overactive thyroid back in July and have been taking Carbimazole and Propanadol since. I have had one appointment with a specialist at the hospital, who basically said just to carry on with my medication, going back to see him next week and have had various blood tests since my appointment.

What I am really struggling is with work, I work in London and have a two hour commute, at first they were very supportive about me being unwell and not being able to get into work. At the moment my GP has signed me off sick, it’s the tiredness and not being able to concentrate that is getting me down, maybe if I had a good night sleep I might feel better. This time my manager sounded as if he didn’t believe that I feel so unwell.

I was wondering if anyone has any idea how long you feel so unwell for?

Thanks Maria

Hi Maria. Welcome to the forum.

I'm sorry you feel so unwell, it's an awful illness. Once the Carbimazole brings your thyroid levels down you will start to feel better What dose of Carbimazole and Propranolol are you on? .

I don't go out to work, but I know when I was really ill last year I couldn't have coped with work. You have a long commute too. I think because we tend to look ok we don't get an awful lot of sympathy. Sleeping is a problem, I don't sleep very well, some of the other people on the forum use relaxation tapes.

I find it's a good idea to make a list of questions you want to ask the specialist. If you're anything like me you'll forget half of them if you don't write them down. :lol:

I hope you feel better soon.

Marigold

Thanks for the reply Marigold, I am on 5mg of Carbimazole 3 times a day, 10mg of Propranolol 3 times a day.

Maybe I should consider packing up work for a while, so that I am not so stressed about not being there!

Maria