Overactive thyroid graves Part 3

Hi all,thanks to everyone for the replys I am still feelin ok.

Just wondered does anyone still have a large goitre? Ive noticed mine is still prominent especially when I put my neck up and look in the mirror,my right thyroid lobe is bigger than my left one and the bit that sits below my adams apple is quite prominent.

Like I said still feeling good but would like to know what has all think.

Hello everyone.

Hi Barry. I don't have a goitre now. I only had a small one, and one lobe was smaller than the other. Is yours the same size as it's always been or is it getting bigger?My eyes are dry and sore. I hope they settle down. Are your eyes ok? Take care.

Hi Maria. Sorry about your mum. I hope she's better soon, hospital visiting is so tiring. When's your new grandchild due? Our second grandchild is due at the end of April, we'll find out at the beginning of December whether it's a boy or girl. As you say they're a tonic, but where do they get their energy from? I could certainly do with some. :lol: I'm pleased you're feeling a bit better, and hope your appointment with your doctor goes ok.

Hi Jane. sounds like you're doing ok. I hope your hubby gets an appointment soon, he should if your endo is on the case. It's no wonder there are long waiting lists when they get you back to tell you something you already know. Take care.

Hi Deb. I hope you stop losing weight soon. Have you got a good appetite?

I still haven't put any weight back on, but I'm not losing any either so that's something. I'm enjoying my food more now than I have for a long time. I wouldn't go back to work until you feel up to it, you're the only one who knows what you feel like. How's your partner doing? Has he seen someone about his

thumb yet. It's disgraceful the way they've messed him about. Take care.

Hi Sue. Are you feeling any better? I'm thinking about you.

Thinking of everyone.

love,

Marigold

xxxx

Hi marigold, i think it's just me to be honest and the way I am always looking for problems.

Are you still feeling good ? Take care

Hi Barry. I'm feeling fine thanks. I must admit I keep looking at my neck and giving it a good prod to make sure it's ok. I'm always looking for something to worry about.

Take care.

Marigold

Hi all just a quick hubby update.

Endo was true to their word they got his referral on thursday and phoned him that day. We spent all friday morning in hospital So he could have lots of tests. I think one was the adrenal test that you had sue where they inject you and then take blood at regular intervals after. We were in complete shock when they showed us his scan. The picture is so clear and huge tumour so obvious, its not even in the pituitary space as it wouldnt fit. We can't get our head around the fact that he has no symptoms with it and is ok. Both doctors were very careful about what they said to us about it which in fairness was very little, other than the tumour is unlikely to be cancer and it's very large.

Go back on Tuesday for the results. Not sleeping and feel sick most of the time, under the circumstances it's probably normal.

Love to all

Jane x

Hi Jane. You must be worried to death, but at least the endo got things moving.As you say it's strange that the tumour can be so big yet your hubby has no symptoms. I'll be thinking about both of you on Tuesday when you go back for the results. Keep your chin up.

Hope everyone else is ok.

Love,

Marigold

xxxx

hi everyone ,Jane what a year you both have had ,keep us posted on tuesday if you feel up to it ,i will be thinking about you both xxxxxx

Marigold you okay hun xx

Hope everyone else is okay and coping with their thyroid madness lol.

I have just been down my daughters for sunday dinner ,i walked down as its not far ,i got so breathless my son in law had to run me back after we had eaten,i am phoning my gp in the morning for a telephone consultation i am hoping he will give me t3 ,like Jane i too feel as if thyroxine doesnt last long ,i cant see him putting my thyroxine dose up because of my age as i am on 75mcgs now .Marigold what was the highest dose you took ..?I just hope he will treat my symptoms and i must be due another blood test .I have never moaned as much in my life as i do now :lol: but my body is telling me its not running right its like a car that needs a bit of redex :lol: .

T ake care everyone i am just going to look at handbags on line seen some lovely ones in debenhams and TKmax

love to you all sue xxx

PS My little grandson called me nana today ,i nearly cried as he always called me hermff i just cant tell you all how nice is was love sue

Hi Sue. Sorry you're still not feeling right, I hope you get something sorted out when you talk to your GP. I'm feeling good.I started on 100 mcgs thyroxine and then went down to 75, and I've been on 50 since May. It feels strange not to spend half my life at the docs or hospital. I had lots of migraine auras when I was hyper, and hadn't had any for months, then last weekend I had one and flew into a panic. Anyway I haven't had anymore, so it must just have been a one off. I don't know what set it off, although I'd had a busy few days and was tired.

It must have been lovely when your grandson called you nana, bless him. Our little granddaughter calls me mama or gaga (not lady gaga I'm pleased to say). :lol:

I daren't look at handbags, it's not long since I bought one, and I'll find another one I want. I daren't tell you how many I have. :oops: Let us know how you get on with your GP. xxxxxx

Thinking of everyone.

Marigold

xxxx

Hi All,

I'm hoping for a touch more advice and thought I would jump onto this thread as it seems quite active.

I was diagnosed about 3 months ago, and have been on Propanalol, carbimazole and levothyroxin, I have been weaned off the propanalol over the last 10 days and have not had any for the last 2 days, but have had the blackouts/dizzy spells coming back over the last 4/5 days, not as often as before, but still not nice, is this just a little kick from my body, and it will go away in the next few days or do I need to go back to the Dr?

thanks for your time

Jo

Best to speak to your gp hux ,I found when I was coming off propanolol if I did it to quickly I fealt strange. I still take 20 my a day now as it helps put my mind at ease when I exercise.

Hi Jo, I agree with Barry, coming off Propanolol too soon can make you feel dreadful. A lot of thyroid people are on it for many months before they are ready to stop. I hope your GP is helpful about this. Hope you feel better soon.

Jane, you poor love, what a horrible time for you. No wonder you feel so dreadful. I too am thinking of you. Thankgoodness things are now moving for you and you can get this sorted out.

Marigold, the dreaded migraine aura ! Just when you think its gone for good it comes back and has another go at you. I can go 3 months or so without anything and then have several over a two week period. I've noticed it starts off when I have too much going on and am tired. I hope this was just an isolated one, not nice for you.

Sue, thinking of you and all you are coping with, be strong lovely lady. Thank goodness for little ones making us smile.

Hope everyone else ok today.

Take care Bess xxx

Hi everyone ,Phoned my Doctor this morning and guess what he cant presribe T3 He said the endo has to do that but he has wrote to him for an earlier appointment for me ,i think he was shocked that my next appointment was for 21st feb ,i think the last time i saw endo was in July when he put me on thyroxine ..Marigold i am so happy for you that you are now doing well i cant wait for the time i am writing to you all that i am too ,my memorys that bad i forgot to ask him if my thyroxine needs upping :oops: ,i keep falling asleep alot too ,i missed x factor last night :roll: then when i went to bed i couldnt sleep so was parading around the house untill 3-00am..Bess you sound good hun ,hope you are ?

are you both still into baking .My daughter with the thyroid had her appointment this morning and thank the lord its not as serious as we feared she has an outoimunne desease thats killing off her thyroid,she is now on thyroxine ...Jane i will be thinking of you both tomorrow as i am sure the rest of us will be .I treated my self to a T bone steak on saturday

:lol: i have not had any since the mad cow scare :lol: so thats what i am having for tea .My little grandson phoned me this morning as he wanted nana to his ear lol he babbles on and i cant understand a word he says

but i can pick out odd words he is trying to say so i go from there ,they say at school he is very bright and not behind other children his age ,his mum and dad are going to pay for an extra lesson with a speech therypist to see if that will help him and that can range from £70 to £120 the school authorities only give one hour a week Must stop rambing :lol:

HOPe everyone is well today take care love to everyone sue xxx

Hi everyone ,Jane thinking about you both ,hope you feel up to posting .

Myself i feel very tearful this morning i am so fed up of my Bl@@@dy thyroid ,i feel as if i need to phone endos and have a full scale row on why they are neglecting me and why no app has been made for me,i have always found they are abit slack in the office ,the last time i phoned they said he is a very busy man mrs #### so i said am i not a patient too and need to get well.So sorry for the rant but i have no one else who understands how i am feeling

hope everyone else is okay

love sue xxxx

Hi again, Thought blow it and phoned hospital in tears,thet said they had not had referal from my doctor yet ,and my app is for 21st feb ,told them how i was feeling and about all my symptoms ,they said again that endo was booked chok a blok ,then the next min was offerd an app for 29th Nov at 4-00pm , cant wait for it to come and hope he can do something for me

love sue xxxxxxxxxxx